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Re: PEG'S POLL UPDATE 10/5-Another New Member

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ADULT

Adam ,M,34,dx 6/96 =2 Walnut Creek , CA

Marsha ,F,47 dx 11/98 =2 Garden Grove, CA

?,M,29,dx 1995 =1 Germany (working in Switzerland)

Phil Alfeld,M,56 dx 12/98 =2 Santa Clarita,CA wife-Peg

Dianne Arneill,F,49,dx 1996 =2 Castle Rock, CO

Russ Askren,M,42,dx ? =3 San Diego, CA

Ben(Caseyspa),M,35,dx 11/98 =2 Medford NJ

Dan Bertles,M,38,dx ? =2 ? , CA

Tom Black,M,46,dx ? =4 tx ?,Kettering, OH

Larry Bowers,M,50,dx ? =1 Baltimore, MD

Michele Bruno,F,31, dx 1996 =3 listed ?, ?,NJ

,F,34,dx 1997 =2 Mousup CT

Teri Bullock,F,32,dx 2/96 =2 Hope Mills, NC

Jim C.,M,41,dx 2/99 =1 Staten Island,NY wife-Liz

Jim Carroll,M,56 dx 9/98 =2 Northfield, MN

Bill Dolan,M,59,dx 1988 =3 Drexel Hill(Philadelphia), PA

Rick Butchart,M,44,dx 1/93 =2 Port Ludlow, WA

Laurie Coughennower F,44,dx'87=2 DesMoines, IA

Dawn ?,F,29,dx 1998 =1? New York, NY

Doris ?,F,?,dx 9/1998 =? Belleville, IL

Vickie Fowler,F,38,dx 6/99 =2 Toledo,OH

Tina German,F,28,dx? =1 Delphos, OH

athan ,M,29,dx '92 =2 Clinton, TN

Serge Gilbert,M,dx ? =? Edmonton, Alberta, Canada

Mitch Head,M,43,dx ? =? Atlanta, GA

Jim Heitkemper,M,56,dx 1991 =3 listed 6/99,Portland, OR wife-Kathy

Hilton,F,46 =1 ?, NH

Jim Hines,M,?dx ? =? Louisville,KY

Norm Hoffman,M,58,dx 9/93 =2 Bakersfield, CA

Diane Howell,F,55,dx ? =2 Vancouver, BC, Canada

Rene' ,F,50,dx =2 Farmington, NM

Ken Kosiorek,M,31 dx 10/99 =1 Baltimore, MD wife-Jackie

Lathrop,M,47,dx ? =2 Houston, TX

Debbie Lynch,F,34,dx 1989 =2 Ontario, Canada

Bill McCarthy,M,43,dx ? =2 ?,NY?

Mike McCormick,M,52,dx 9/99 =1 Nova Scotia, Canada wife Patti

Peggy McGovern,F,52,dx ? =2 Billings, MT

Erwin P,M,33,dx ? =2 ? , ?

O'Brien,M,35 dx 3/99 =1 Dublin, Ireland

Ed Reynolds,M,49,dx 1994 =3 Coventry, RI wife-Gracie

Tim Romlein,M,51,dx 1989 =4 tx 4/4/98 Ann Arbor,MI

Dirk Rosen,M,40,dx 1985 =2 Oakland, CA

Biddy Santon,F,57,dx 1996 =2 Princeton, WV

Tony Spehar,M,30,dx? =1 Melbourne,Australia

Jacquelyn Spencer,F,28,dx '90 =4 tx 4/99 Dallas,TX

Spiro?,M,?,dx ? =4 tx ?, ?, ?

Carol Staples,F,57,dx 8/88 =2 Gettysburg, PA

Goran Stosic,M,32,dx ? =2 Yugoslavia

Toutant,F,41,dx ? =3 Louisville, KY husband-Roy

Sharon Toebaert,F,51,dx 1/99 =2 Surrey, BC, Canada

Mike Vizas,M,55,dx ? =3 status 2B,Wakesville,MD wife-Lynn

Walderich,F,54,dx 6/85 =3 status 2B,Manchester,NH

Penny Weller,F,55,dx12/96 =3 listed 4/97status 3,Rochester,NY

Marilyn ,F,54 =3

Wysong,F,21,dx 9/98 =2 Piqua(Dayton),OH

CHILD/TEEN

Quantell,M,9,dx1996 =2 Chicago, IL mom-Pam

Rhoades,M,9.5 =2 Eagle,CO mom-Jodi

Crowley,M,12 =2 Buckfield, ME mom-Marcy

?,M,7,dx 8/99 =2 Madison, WI mom- (38)

Tyler Estler,M,17,dx 1992 =2 ,NJ mom-Luanne

Marielle Carroccio,F,6,dx 1993 Biliary Artesia =4 tx 1994

Staten Island, NY mom- author of Biliary Tree,Children's Liver

Alliance http://livertx.org

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Got another new person. Adam please fill in the blanks below.

Here's the update as of 8:30p.m. PST Tues. 10/. Please add

info where there are ?, I have guessed some of the status please

correct me if I errored. I have also added dx dates.

Peg

1=Asymptomatic 2=Symptomatic 3=Listed 4=Transplanted

(this is not a transplant status #)

ADULT

Adam,M,34,dx 1996 =? ?, CA

Marsha ,F,47 dx 11/98 =2 Garden Grove, CA

?,M,29,dx 1995 =1 Germany (working in Switzerland)

Phil Alfeld,M,56 dx 12/98 =2 Santa Clarita,CA wife-Peg

Dianne Arneill,F,49,dx 1996 =2 Castle Rock, CO

Russ Askren,M,42,dx ? =3 San Diego, CA

Ben(Caseyspa),M,35,dx 11/98 =2 Medford NJ

Dan Bertles,M,38,dx ? =2 ? , CA

Tom Black,M,46,dx ? =4 tx ?,Kettering, OH

Larry Bowers,M,50,dx ? =1 Baltimore, MD

Michele Bruno,F,31, dx 1996 =3 listed ?, ?,NJ

,F,34,dx 1997 =2 Mousup CT

Teri Bullock,F,32,dx 2/96 =2 Hope Mills, NC

Jim C.,M,41,dx 2/99 =1 Staten Island,NY wife-Liz

Jim Carroll,M,56 dx 9/98 =2 Northfield, MN

Bill Dolan,M,59,dx 1988 =3 Drexel Hill(Philadelphia), PA

Rick Butchart,M,44,dx 1/93 =2 Port Ludlow, WA

Laurie Coughennower F,44,dx'87=2 DesMoines, IA

Dawn ?,F,29,dx 1998 =1? New York, NY

Doris ?,F,?,dx 9/1998 =? Belleville, IL

Vickie Fowler,F,38,dx 6/99 =2 Toledo,OH

Tina German,F,28,dx? =1 Delphos, OH

athan ,M,29,dx '92 =2 Clinton, TN

Serge Gilbert,M,dx ? =? Edmonton, Alberta, Canada

Mitch Head,M,43,dx ? =? Atlanta, GA

Jim Heitkemper,M,56,dx 1991 =3 listed 6/99,Portland, OR wife-Kathy

Hilton,F,46 =1 ?, NH

Jim Hines,M,?dx ? =? Louisville,KY

Norm Hoffman,M,58,dx 9/93 =2 Bakersfield, CA

Diane Howell,F,55,dx ? =2 Vancouver, BC, Canada

Rene' ,F,50,dx =2 Farmington, NM

Ken Kosiorek,M,31 dx 10/99 =1 Baltimore, MD wife-Jackie

Lathrop,M,47,dx ? =2 Houston, TX

Debbie Lynch,F,34,dx 1989 =2 Ontario, Canada

Bill McCarthy,M,43,dx ? =2 ?,NY?

Mike McCormick,M,52,dx 9/99 =1 Nova Scotia, Canada wife Patti

Peggy McGovern,F,52,dx ? =2 Billings, MT

Erwin P,M,33,dx ? =2 ? , ?

O'Brien,M,35 dx 3/99 =1 Dublin, Ireland

Ed Reynolds,M,49,dx 1994 =3 Coventry, RI wife-Gracie

Tim Romlein,M,51,dx 1989 =4 tx 4/4/98 Ann Arbor,MI

Dirk Rosen,M,40,dx 1985 =2 Oakland, CA

Biddy Santon,F,57,dx 1996 =2 Princeton, WV

Tony Spehar,M,30,dx? =1 Melbourne,Australia

Jacquelyn Spencer,F,28,dx '90 =4 tx 4/99 Dallas,TX

Spiro?,M,?,dx ? =4 tx ?, ?, ?

Carol Staples,F,57,dx 8/88 =2 Gettysburg, PA

Goran Stosic,M,32,dx ? =2 Yugoslavia

Toutant,F,41,dx ? =3 Louisville, KY husband-Roy

Sharon Toebaert,F,51,dx 1/99 =2 Surrey, BC, Canada

Mike Vizas,M,55,dx ? =3 status 2B,Wakesville,MD wife-Lynn

Walderich,F,54,dx 6/85 =3 status 2B,Manchester,NH

Penny Weller,F,55,dx12/96 =3 listed 4/97status 3,Rochester,NY

Marilyn ,F,54 =3

Wysong,F,21,dx 9/98 =2 Piqua(Dayton),OH

CHILD/TEEN

Quantell,M,9,dx1996 =2 Chicago, IL mom-Pam

Rhoades,M,9.5 =2 Eagle,CO mom-Jodi

Crowley,M,12 =2 Buckfield, ME mom-Marcy

?,M,7,dx 8/99 =2 Madison, WI mom- (38)

Tyler Estler,M,17,dx 1992 =2 ,NJ mom-Luanne

Marielle Carroccio,F,6,dx 1993 Biliary Artesia =4 tx 1994

Staten Island, NY mom- author of Biliary Tree,Children's Liver

Alliance http://livertx.org

>

>

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ADULT

Adam ,M,34,dx 6/96 =2 Walnut Creek , CA

Marsha ,F,47 dx 11/98 =2 Garden Grove, CA

?,M,29,dx 1995 =1 Germany (working in Switzerland)

Phil Alfeld,M,56 dx 12/98 =2 Santa Clarita,CA wife-Peg

Dianne Arneill,F,49,dx 1996 =2 Castle Rock, CO

Russ Askren,M,42,dx ? =3 San Diego, CA

Ben(Caseyspa),M,35,dx 11/98 =2 Medford NJ

Dan Bertles,M,38,dx ? =2 ? , CA

Tom Black,M,46,dx ? =4 tx ?,Kettering, OH

Larry Bowers,M,50,dx ? =1 Baltimore, MD

Michele Bruno,F,31, dx 1996 =3 listed ?, ?,NJ

,F,34,dx 1997 =2 Mousup CT

Teri Bullock,F,32,dx 2/96 =2 Hope Mills, NC

Jim C.,M,41,dx 2/99 =1 Staten Island,NY wife-Liz

Jim Carroll,M,56 dx 9/98 =2 Northfield, MN

Bill Dolan,M,59,dx 1988 =3 Drexel Hill(Philadelphia), PA

Rick Butchart,M,44,dx 1/93 =2 Port Ludlow, WA

Laurie Coughennower F,44,dx'87=2 DesMoines, IA

Dawn Scala,F,29,dx 1998 =1 Glendale (Queens), NY

Doris ?,F,?,dx 9/1998 =? Belleville, IL

Vickie Fowler,F,38,dx 6/99 =2 Toledo,OH

Tina German,F,28,dx? =1 Delphos, OH

athan ,M,29,dx '92 =2 Clinton, TN

Serge Gilbert,M,dx ? =? Edmonton, Alberta, Canada

Mitch Head,M,43,dx ? =? Atlanta, GA

Jim Heitkemper,M,56,dx 1991 =3 listed 6/99,Portland, OR wife-Kathy

Hilton,F,46 =1 ?, NH

Jim Hines,M,?dx ? =? Louisville,KY

Norm Hoffman,M,58,dx 9/93 =2 Bakersfield, CA

Diane Howell,F,55,dx ? =2 Vancouver, BC, Canada

Rene' ,F,50,dx =2 Farmington, NM

Ken Kosiorek,M,31 dx 10/99 =1 Baltimore, MD wife-Jackie

Lathrop,M,47,dx ? =2 Houston, TX

Debbie Lynch,F,34,dx 1989 =2 Ontario, Canada

Bill McCarthy,M,43,dx ? =2 ?,NY?

Mike McCormick,M,52,dx 9/99 =1 Nova Scotia, Canada wife Patti

Peggy McGovern,F,52,dx ? =2 Billings, MT

Erwin P,M,33,dx ? =2 ? , ?

O'Brien,M,35 dx 3/99 =1 Dublin, Ireland

Ed Reynolds,M,49,dx 1994 =3 Coventry, RI wife-Gracie

Tim Romlein,M,51,dx 1989 =4 tx 4/4/98 Ann Arbor,MI

Dirk Rosen,M,40,dx 1985 =2 Oakland, CA

Biddy Santon,F,57,dx 1996 =2 Princeton, WV

Tony Spehar,M,30,dx? =1 Melbourne,Australia

Jacquelyn Spencer,F,28,dx '90 =4 tx 4/99 Dallas,TX

Spiro?,M,?,dx ? =4 tx ?, ?, ?

Carol Staples,F,57,dx 8/88 =2 Gettysburg, PA

Goran Stosic,M,32,dx ? =2 Yugoslavia

Toutant,F,41,dx ? =3 Louisville, KY husband-Roy

Sharon Toebaert,F,51,dx 1/99 =2 Surrey, BC, Canada

Mike Vizas,M,55,dx ? =3 status 2B,Wakesville,MD wife-Lynn

Walderich,F,54,dx 6/85 =3 status 2B,Manchester,NH

Penny Weller,F,55,dx12/96 =3 listed 4/97status 3,Rochester,NY

Marilyn ,F,54 =3

Wysong,F,21,dx 9/98 =2 Piqua(Dayton),OH

CHILD/TEEN

Quantell,M,9,dx1996 =2 Chicago, IL mom-Pam

Rhoades,M,9.5 =2 Eagle,CO mom-Jodi

Crowley,M,12 =2 Buckfield, ME mom-Marcy

?,M,7,dx 8/99 =2 Madison, WI mom- (38)

Tyler Estler,M,17,dx 1992 =2 ,NJ mom-Luanne

Marielle Carroccio,F,6,dx 1993 Biliary Artesia =4 tx 1994

Staten Island, NY mom- author of Biliary Tree,Children's Liver

Alliance http://livertx.org

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Roy,

Did you mean 1988? If she was listed in 1997 it seems impossible to be dx in

1998. Don't mean to be critical.

Peg

Roy Toutant wrote:

> Just to fill in a blank:

>

> Toutant was diagnosed in 1998, I believe. They told her she had 10

> years to live without a transplant. This estimate turned out to be on the

> low side! Although she has been listed since March 1997.

>

> Roy T.

>

> Re: PEG'S POLL UPDATE 10/5-Another New Member

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Roy,

Did you mean 1988? If she was listed in 1997 it seems impossible to be dx in

1998. Don't mean to be critical.

Peg

Roy Toutant wrote:

> Just to fill in a blank:

>

> Toutant was diagnosed in 1998, I believe. They told her she had 10

> years to live without a transplant. This estimate turned out to be on the

> low side! Although she has been listed since March 1997.

>

> Roy T.

>

> Re: PEG'S POLL UPDATE 10/5-Another New Member

> > Mime-Version: 1.0

> > Content-Type: text/plain; charset= " us-ascii "

> > Content-Transfer-Encoding: 7bit

> >

> >

> > ------------------------------------------------------------------------

> > @Backup - The #1 Online Backup Service. Protect your files before

> > you lose them. Easy, Reliable, Secure online backups. INSTALL

> > today. http://clickhere./click/938

> >

> >

> > eGroups.com home: /group/

> > - Simplifying group communications

> >

> >

> >

> >

>

> ------------------------------------------------------------------------

> @Backup - The #1 Online Backup Service. Protect your files before

> you lose them. Easy, Reliable, Secure online backups. INSTALL

> today. http://clickhere./click/938

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