Guest guest Posted December 7, 2010 Report Share Posted December 7, 2010 Hey ,I'm thrilled for you! Lyme is such a diverse disease that it's always wonderful when one of us finds a good fit. As they say, "It's an ill wind that blows no one good."Your experience adds to our archives of possibilites, and even though I've chosen other protocols that are doing it for me and do supplement with D3, I'm glad you've spoken up, because there are probably others who may fall into your particular category and may benefit from pursuing the MP. After all, it was developed by careful observation and must have worked for someone, to have progressed to an organized protocol. Treating Lyme is an ongoing mystery, that most of us have been forced to solve in a hit-or-miss style. We all have to gather our courage to try things and fail, and try other things and see if they're the answer. We may reject some protocols, based on our own observations or general consensus, but should never rule out that they might actually be right for someone else. From what I'd heard, I probably wouldn't have recommended the MP, but hearing that it has helped you has opened a little window in my mind. We're all in this together.You should be applauded for speaking up! I don't think anyone will be upset with your sharing.Be well,LénaHello all! It's been a long time since I have posted. I have been reluctant because I haven't wanted to alienate myself because I love everyone here. I forget that I haven't actually met anyone here, but I miss them if I don't get to my emails for a while. I realize that many people are opposed to the Marshall Protocol, but I felt like a hypocrite not saying anything because I am on the Marshall Protocol. It is ironic because I have never been a fan of western medicine but here I am healing because of it.I am 32 years old and became debilitated by Lyme for at least the past 9 years but have had symptoms since grade school. I may have been born with it and I was not a healthy child. I did the whole antibiotics for a year including IV rocephin. I herxed at first then nothing, just sicker. No surprise to anyone, antibiotics failed. I have done so many herbs and natural remedies I can't even remember what they all were. I started the Marshall Protocol in April 09 and I finally feel like I have a future.I have done a ton of research for the MP and every other treatment I could. I have not found any that has no one who doesn't claim horror stories. No one method is universally curing.I realize that the Marshall Protocol is not for everyone but it was the right choice for me. I was rather sensitive to the sun before the MP and so avoiding sun was already something I did. The extreme low light I live with seemed very difficult going in but the lessening of symptoms gave me such hope that I don't mind at all anymore.I am just on the Benicar alone as I am trying to wean off of Cortef before I even consider adding abx. I had addisons and never thought I could get off of Cortef (trust me I tried every which way in about 15 attempts to wean over the years). I was on a minimum daily dose of 20mg per day. Now I am less than half that and not dead yet or close ;)I posted previously that I had daily fevers. My temp was getting 101 and over every day never a day without it. Now, not only have I had a few days with out a fever, I even had weeks without it going over 100. It is one of the biggest reliefs of my life! I am also happy to report that the brain fog is lifting and I am getting myself back. I can even read books again.I still have symptoms of the spirochetes. I still had the fall cyst busting flair. But I am once again getting the exact same herx symptoms that I had at the beginning of the antibiotics when I was killing the bugs. I really do believe that the science behind the MP is correct, assuming you have a Vitamin D dysregulation in the first place. I definitely do.The Marshall Protocol is like every other method for treating lyme out there. No one protocol works all the time for all people. Antibiotics work for some and not others. You have to be open and find what works for you. If anyone has any questions, feel free to email me. I really hope you all won't be upset with me, it took all of the courage I could muster to write. I wish everyone a health-filled day!Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2010 Report Share Posted December 8, 2010 , Thank you for your report . I cannot afford the Doctor anymore and when I could my Dct did not have a clue on how to do . So we gave up. If I have ssmple and comprehensice protocol he will do it for me . I remember Just for the test of Vit D57 , we did it twice and it was still not the right test. I do not know if I am the only one to have given up due to the lack of infos . they give the real protocol if the dct take a subscription but dct have other things to do than to be on a computor to get theses infos. if you have any document to transmit us it may be usefull to me ,at least mto others may be so, the Doctor does not have to digg during his family time on a computor after his long day in his office. Thank you , Marie To: Lyme_and_Rife Sent: Tue, December 7, 2010 12:17:43 AMSubject: OT: Marshall Protocol Hello all! It's been a long time since I have posted. I have been reluctant because I haven't wanted to alienate myself because I love everyone here. I forget that I haven't actually met anyone here, but I miss them if I don't get to my emails for a while. I realize that many people are opposed to the Marshall Protocol, but I felt like a hypocrite not saying anything because I am on the Marshall Protocol. It is ironic because I have never been a fan of western medicine but here I am healing because of it.I am 32 years old and became debilitated by Lyme for at least the past 9 years but have had symptoms since grade school. I may have been born with it and I was not a healthy child. I did the whole antibiotics for a year including IV rocephin. I herxed at first then nothing, just sicker. No surprise to anyone, antibiotics failed. I have done so many herbs and natural remedies I can't even remember what they all were. I started the Marshall Protocol in April 09 and I finally feel like I have a future.I have done a ton of research for the MP and every other treatment I could. I have not found any that has no one who doesn't claim horror stories. No one method is universally curing.I realize that the Marshall Protocol is not for everyone but it was the right choice for me. I was rather sensitive to the sun before the MP and so avoiding sun was already something I did. The extreme low light I live with seemed very difficult going in but the lessening of symptoms gave me such hope that I don't mind at all anymore.I am just on the Benicar alone as I am trying to wean off of Cortef before I even consider adding abx. I had addisons and never thought I could get off of Cortef (trust me I tried every which way in about 15 attempts to wean over the years). I was on a minimum daily dose of 20mg per day. Now I am less than half that and not dead yet or close ;)I posted previously that I had daily fevers. My temp was getting 101 and over every day never a day without it. Now, not only have I had a few days with out a fever, I even had weeks without it going over 100. It is one of the biggest reliefs of my life! I am also happy to report that the brain fog is lifting and I am getting myself back. I can even read books again.I still have symptoms of the spirochetes. I still had the fall cyst busting flair. But I am once again getting the exact same herx symptoms that I had at the beginning of the antibiotics when I was killing the bugs. I really do believe that the science behind the MP is correct, assuming you have a Vitamin D dysregulation in the first place. I definitely do.The Marshall Protocol is like every other method for treating lyme out there. No one protocol works all the time for all people. Antibiotics work for some and not others. You have to be open and find what works for you. If anyone has any questions, feel free to email me. I really hope you all won't be upset with me, it took all of the courage I could muster to write. I wish everyone a health-filled day!Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2010 Report Share Posted December 8, 2010  Dear I am going to forward this to my son ,who started the MP about 2 weeks ago -- but is having real difficulties with the Benicar (called Olmesarten here in the UK), as his blood pressure has dropped so low he fainted. He has to stop Olmesarten (benicar) now, and is feeling very despondent. Like you, he has been ill since birth, and we have tried literally hundreds of different treatments and remedies. Dan is 24 years old, and too ill to work. He had great hopes for the MP as it activates the innate immune system. Are you in the US? Like Marie, we have had difficulty finding a Dr who knows anything about this, but have seen one who is at least prepared to give it a try, and given Dan the prescriptions. I am glad you had the courage to post your improvemnt and success with the MP -- it may be the cure for some people. Hopefully, Dan will email you himself. thanks again, Debra Freechild OT: Marshall Protocol Hello all! It's been a long time since I have posted. I have been reluctant because I haven't wanted to alienate myself because I love everyone here. I forget that I haven't actually met anyone here, but I miss them if I don't get to my emails for a while. I realize that many people are opposed to the Marshall Protocol, but I felt like a hypocrite not saying anything because I am on the Marshall Protocol. It is ironic because I have never been a fan of western medicine but here I am healing because of it.I am 32 years old and became debilitated by Lyme for at least the past 9 years but have had symptoms since grade school. I may have been born with it and I was not a healthy child. I did the whole antibiotics for a year including IV rocephin. I herxed at first then nothing, just sicker. No surprise to anyone, antibiotics failed. I have done so many herbs and natural remedies I can't even remember what they all were. I started the Marshall Protocol in April 09 and I finally feel like I have a future.I have done a ton of research for the MP and every other treatment I could. I have not found any that has no one who doesn't claim horror stories. No one method is universally curing.I realize that the Marshall Protocol is not for everyone but it was the right choice for me. I was rather sensitive to the sun before the MP and so avoiding sun was already something I did. The extreme low light I live with seemed very difficult going in but the lessening of symptoms gave me such hope that I don't mind at all anymore.I am just on the Benicar alone as I am trying to wean off of Cortef before I even consider adding abx. I had addisons and never thought I could get off of Cortef (trust me I tried every which way in about 15 attempts to wean over the years). I was on a minimum daily dose of 20mg per day. Now I am less than half that and not dead yet or close ;)I posted previously that I had daily fevers. My temp was getting 101 and over every day never a day without it. Now, not only have I had a few days with out a fever, I even had weeks without it going over 100. It is one of the biggest reliefs of my life! I am also happy to report that the brain fog is lifting and I am getting myself back. I can even read books again.I still have symptoms of the spirochetes. I still had the fall cyst busting flair. But I am once again getting the exact same herx symptoms that I had at the beginning of the antibiotics when I was killing the bugs. I really do believe that the science behind the MP is correct, assuming you have a Vitamin D dysregulation in the first place. I definitely do.The Marshall Protocol is like every other method for treating lyme out there. No one protocol works all the time for all people. Antibiotics work for some and not others. You have to be open and find what works for you. If anyone has any questions, feel free to email me. I really hope you all won't be upset with me, it took all of the courage I could muster to write. I wish everyone a health-filled day!Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2010 Report Share Posted December 8, 2010  Dear I am going to forward this to my son ,who started the MP about 2 weeks ago -- but is having real difficulties with the Benicar (called Olmesarten here in the UK), as his blood pressure has dropped so low he fainted. He has to stop Olmesarten (benicar) now, and is feeling very despondent. Like you, he has been ill since birth, and we have tried literally hundreds of different treatments and remedies. Dan is 24 years old, and too ill to work. He had great hopes for the MP as it activates the innate immune system. Are you in the US? Like Marie, we have had difficulty finding a Dr who knows anything about this, but have seen one who is at least prepared to give it a try, and given Dan the prescriptions. I am glad you had the courage to post your improvemnt and success with the MP -- it may be the cure for some people. Hopefully, Dan will email you himself. thanks again, Debra Freechild OT: Marshall Protocol Hello all! It's been a long time since I have posted. I have been reluctant because I haven't wanted to alienate myself because I love everyone here. I forget that I haven't actually met anyone here, but I miss them if I don't get to my emails for a while. I realize that many people are opposed to the Marshall Protocol, but I felt like a hypocrite not saying anything because I am on the Marshall Protocol. It is ironic because I have never been a fan of western medicine but here I am healing because of it.I am 32 years old and became debilitated by Lyme for at least the past 9 years but have had symptoms since grade school. I may have been born with it and I was not a healthy child. I did the whole antibiotics for a year including IV rocephin. I herxed at first then nothing, just sicker. No surprise to anyone, antibiotics failed. I have done so many herbs and natural remedies I can't even remember what they all were. I started the Marshall Protocol in April 09 and I finally feel like I have a future.I have done a ton of research for the MP and every other treatment I could. I have not found any that has no one who doesn't claim horror stories. No one method is universally curing.I realize that the Marshall Protocol is not for everyone but it was the right choice for me. I was rather sensitive to the sun before the MP and so avoiding sun was already something I did. The extreme low light I live with seemed very difficult going in but the lessening of symptoms gave me such hope that I don't mind at all anymore.I am just on the Benicar alone as I am trying to wean off of Cortef before I even consider adding abx. I had addisons and never thought I could get off of Cortef (trust me I tried every which way in about 15 attempts to wean over the years). I was on a minimum daily dose of 20mg per day. Now I am less than half that and not dead yet or close ;)I posted previously that I had daily fevers. My temp was getting 101 and over every day never a day without it. Now, not only have I had a few days with out a fever, I even had weeks without it going over 100. It is one of the biggest reliefs of my life! I am also happy to report that the brain fog is lifting and I am getting myself back. I can even read books again.I still have symptoms of the spirochetes. I still had the fall cyst busting flair. But I am once again getting the exact same herx symptoms that I had at the beginning of the antibiotics when I was killing the bugs. I really do believe that the science behind the MP is correct, assuming you have a Vitamin D dysregulation in the first place. I definitely do.The Marshall Protocol is like every other method for treating lyme out there. No one protocol works all the time for all people. Antibiotics work for some and not others. You have to be open and find what works for you. If anyone has any questions, feel free to email me. I really hope you all won't be upset with me, it took all of the courage I could muster to write. I wish everyone a health-filled day!Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2010 Report Share Posted December 9, 2010 Here is where to find some great info on the Marshall Protocol. The following site is the Marshall Protocol Knowledge Base and is a good place to dive in http://mpkb.org/ It has sections for patients as well as for doctors. The following document is the actual guidelines for Phase 1 http://autoimmunityresearch.org/phase1.pdf If you are wanting to check your vitamin D levels to see if your ratio of D25 to D1,25 indicates a Th1 disease (what they call the sum of diseases caused by cell-wall deficient bacteria). Be sure that the lab follows the instructions on the web site for proper handling of the blood from the following page http://mpkb.org/home/tests/dtesting If the instructions for the D1,25 are not handled and frozen properly, you will get a false normal result when it is actually quite high. For this reason, I did the therapeutic probe to find out for sure how I would react to it. I didn't do the antibiotics, just Benicar and no Vitamin D (and NoIR glasses before you take the first pill) The other site I rely on is the forums at http://www.curemyth1.org/ It is the place to go when you get your Vitamin D metabolites test back, need to find a doctor, or have any questions. Be sure you put in what country you are from as we are a very international group. The people who are most likely to succeed are the ones who report weekly on their own thread. They are like this group in that they are a caring group of people who just want to be healthy and see others get healthy too. Also like this group they say go slow and keep the herxes tolerable. Marie, These two sites will have all of the information you and your doctor will need. There is also a separate forum for doctors to get their questions answered. I printed out the whole mpkb.org for my doctor. Debra and , I too had severe dizziness when starting Benicar. I quite literally stayed in bed for at least two weeks while my body adjusted to the Benicar. I already had quite low blood pressure and worried about taking a blood pressure medication and struggled the first couple of weeks. Then it got better little by little and now my blood pressure is in low-normal range. I asked my pharmacist about the effects of taking a blood pressure medication 4 times a day and he gave me all the data he could find on it. It is a very weak blood pressure medication that at most only lowers BP by 10-12 units of mercury (I forget the exact label BP is measured in). Also, it maxed out at 20-40 mg of Benicar a day. Any higher doses or more frequent dosing does not lower BP. Just don't get up anymore than necessary, get up very slowly, and be prepared to sit back down even on the floor when you start seeing black. I found drinking lots and lots of water helped and even adding salt to that water for the fist couple of weeks. Just make sure it is a high quality salt. Praying Health to You, > > Dear > > I am going to forward this to my son ,who started the MP about 2 weeks ago -- but is having real difficulties with the Benicar (called Olmesarten here in the UK), as his blood pressure has dropped so low he fainted. He has to stop Olmesarten (benicar) now, and is feeling very despondent. Like you, he has been ill since birth, and we have tried literally hundreds of different treatments and remedies. > > Dan is 24 years old, and too ill to work. He had great hopes for the MP as it activates the innate immune system. > > Are you in the US? Like Marie, we have had difficulty finding a Dr who knows anything about this, but have seen one who is at least prepared to give it a try, and given Dan the prescriptions. > > I am glad you had the courage to post your improvemnt and success with the MP -- it may be the cure for some people. > > Hopefully, Dan will email you himself. > > thanks again, > > Debra Freechild > OT: Marshall Protocol > > > Hello all! It's been a long time since I have posted. I have been reluctant because I haven't wanted to alienate myself because I love everyone here. I forget that I haven't actually met anyone here, but I miss them if I don't get to my emails for a while. I realize that many people are opposed to the Marshall Protocol, but I felt like a hypocrite not saying anything because I am on the Marshall Protocol. It is ironic because I have never been a fan of western medicine but here I am healing because of it. > > I am 32 years old and became debilitated by Lyme for at least the past 9 years but have had symptoms since grade school. I may have been born with it and I was not a healthy child. I did the whole antibiotics for a year including IV rocephin. I herxed at first then nothing, just sicker. No surprise to anyone, antibiotics failed. I have done so many herbs and natural remedies I can't even remember what they all were. I started the Marshall Protocol in April 09 and I finally feel like I have a future. > > I have done a ton of research for the MP and every other treatment I could. I have not found any that has no one who doesn't claim horror stories. No one method is universally curing. > > I realize that the Marshall Protocol is not for everyone but it was the right choice for me. I was rather sensitive to the sun before the MP and so avoiding sun was already something I did. The extreme low light I live with seemed very difficult going in but the lessening of symptoms gave me such hope that I don't mind at all anymore. > > I am just on the Benicar alone as I am trying to wean off of Cortef before I even consider adding abx. I had addisons and never thought I could get off of Cortef (trust me I tried every which way in about 15 attempts to wean over the years). I was on a minimum daily dose of 20mg per day. Now I am less than half that and not dead yet or close ;)I posted previously that I had daily fevers. My temp was getting 101 and over every day never a day without it. Now, not only have I had a few days with out a fever, I even had weeks without it going over 100. It is one of the biggest reliefs of my life! I am also happy to report that the brain fog is lifting and I am getting myself back. I can even read books again. > > I still have symptoms of the spirochetes. I still had the fall cyst busting flair. But I am once again getting the exact same herx symptoms that I had at the beginning of the antibiotics when I was killing the bugs. I really do believe that the science behind the MP is correct, assuming you have a Vitamin D dysregulation in the first place. I definitely do. > > The Marshall Protocol is like every other method for treating lyme out there. No one protocol works all the time for all people. Antibiotics work for some and not others. You have to be open and find what works for you. If anyone has any questions, feel free to email me. I really hope you all won't be upset with me, it took all of the courage I could muster to write. I wish everyone a health-filled day! > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2010 Report Share Posted December 10, 2010 Thank you very much I am going to look at all this Marie To: Lyme_and_Rife Sent: Wed, December 8, 2010 7:27:40 PMSubject: Re: OT: Marshall Protocol Here is where to find some great info on the Marshall Protocol. The following site is the Marshall Protocol Knowledge Base and is a good place to dive in http://mpkb.org/It has sections for patients as well as for doctors. The following document is the actual guidelines for Phase 1 http://autoimmunityresearch.org/phase1.pdfIf you are wanting to check your vitamin D levels to see if your ratio of D25 to D1,25 indicates a Th1 disease (what they call the sum of diseases caused by cell-wall deficient bacteria). Be sure that the lab follows the instructions on the web site for proper handling of the blood from the following pagehttp://mpkb.org/home/tests/dtestingIf the instructions for the D1,25 are not handled and frozen properly, you will get a false normal result when it is actually quite high. For this reason, I did the therapeutic probe to find out for sure how I would react to it. I didn't do the antibiotics, just Benicar and no Vitamin D (and NoIR glasses before you take the first pill)The other site I rely on is the forums at http://www.curemyth1.org/It is the place to go when you get your Vitamin D metabolites test back, need to find a doctor, or have any questions. Be sure you put in what country you are from as we are a very international group. The people who are most likely to succeed are the ones who report weekly on their own thread. They are like this group in that they are a caring group of people who just want to be healthy and see others get healthy too. Also like this group they say go slow and keep the herxes tolerable. Marie, These two sites will have all of the information you and your doctor will need. There is also a separate forum for doctors to get their questions answered. I printed out the whole mpkb.org for my doctor.Debra and , I too had severe dizziness when starting Benicar. I quite literally stayed in bed for at least two weeks while my body adjusted to the Benicar. I already had quite low blood pressure and worried about taking a blood pressure medication and struggled the first couple of weeks. Then it got better little by little and now my blood pressure is in low-normal range. I asked my pharmacist about the effects of taking a blood pressure medication 4 times a day and he gave me all the data he could find on it. It is a very weak blood pressure medication that at most only lowers BP by 10-12 units of mercury (I forget the exact label BP is measured in). Also, it maxed out at 20-40 mg of Benicar a day. Any higher doses or more frequent dosing does not lower BP. Just don't get up anymore than necessary, get up very slowly, and be prepared to sit back down even on the floor when you start seeing black. I found drinking lots and lots of water helped and even adding salt to that water for the fist couple of weeks. Just make sure it is a high quality salt.Praying Health to You,>> Dear > > I am going to forward this to my son ,who started the MP about 2 weeks ago -- but is having real difficulties with the Benicar (called Olmesarten here in the UK), as his blood pressure has dropped so low he fainted. He has to stop Olmesarten (benicar) now, and is feeling very despondent. Like you, he has been ill since birth, and we have tried literally hundreds of different treatments and remedies. > > Dan is 24 years old, and too ill to work. He had great hopes for the MP as it activates the innate immune system. > > Are you in the US? Like Marie, we have had difficulty finding a Dr who knows anything about this, but have seen one who is at least prepared to give it a try, and given Dan the prescriptions. > > I am glad you had the courage to post your improvemnt and success with the MP -- it may be the cure for some people.> > Hopefully, Dan will email you himself.> > thanks again,> > Debra Freechild> OT: Marshall Protocol> > > Hello all! It's been a long time since I have posted. I have been reluctant because I haven't wanted to alienate myself because I love everyone here. I forget that I haven't actually met anyone here, but I miss them if I don't get to my emails for a while. I realize that many people are opposed to the Marshall Protocol, but I felt like a hypocrite not saying anything because I am on the Marshall Protocol. It is ironic because I have never been a fan of western medicine but here I am healing because of it.> > I am 32 years old and became debilitated by Lyme for at least the past 9 years but have had symptoms since grade school. I may have been born with it and I was not a healthy child. I did the whole antibiotics for a year including IV rocephin. I herxed at first then nothing, just sicker. No surprise to anyone, antibiotics failed. I have done so many herbs and natural remedies I can't even remember what they all were. I started the Marshall Protocol in April 09 and I finally feel like I have a future.> > I have done a ton of research for the MP and every other treatment I could. I have not found any that has no one who doesn't claim horror stories. No one method is universally curing.> > I realize that the Marshall Protocol is not for everyone but it was the right choice for me. I was rather sensitive to the sun before the MP and so avoiding sun was already something I did. The extreme low light I live with seemed very difficult going in but the lessening of symptoms gave me such hope that I don't mind at all anymore.> > I am just on the Benicar alone as I am trying to wean off of Cortef before I even consider adding abx. I had addisons and never thought I could get off of Cortef (trust me I tried every which way in about 15 attempts to wean over the years). I was on a minimum daily dose of 20mg per day. Now I am less than half that and not dead yet or close ;)I posted previously that I had daily fevers. My temp was getting 101 and over every day never a day without it. Now, not only have I had a few days with out a fever, I even had weeks without it going over 100. It is one of the biggest reliefs of my life! I am also happy to report that the brain fog is lifting and I am getting myself back. I can even read books again.> > I still have symptoms of the spirochetes. I still had the fall cyst busting flair. But I am once again getting the exact same herx symptoms that I had at the beginning of the antibiotics when I was killing the bugs. I really do believe that the science behind the MP is correct, assuming you have a Vitamin D dysregulation in the first place. I definitely do.> > The Marshall Protocol is like every other method for treating lyme out there. No one protocol works all the time for all people. Antibiotics work for some and not others. You have to be open and find what works for you. If anyone has any questions, feel free to email me. I really hope you all won't be upset with me, it took all of the courage I could muster to write. I wish everyone a health-filled day!> > Thanks,> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2010 Report Share Posted December 10, 2010 Thank you very much I am going to look at all this Marie To: Lyme_and_Rife Sent: Wed, December 8, 2010 7:27:40 PMSubject: Re: OT: Marshall Protocol Here is where to find some great info on the Marshall Protocol. The following site is the Marshall Protocol Knowledge Base and is a good place to dive in http://mpkb.org/It has sections for patients as well as for doctors. The following document is the actual guidelines for Phase 1 http://autoimmunityresearch.org/phase1.pdfIf you are wanting to check your vitamin D levels to see if your ratio of D25 to D1,25 indicates a Th1 disease (what they call the sum of diseases caused by cell-wall deficient bacteria). Be sure that the lab follows the instructions on the web site for proper handling of the blood from the following pagehttp://mpkb.org/home/tests/dtestingIf the instructions for the D1,25 are not handled and frozen properly, you will get a false normal result when it is actually quite high. For this reason, I did the therapeutic probe to find out for sure how I would react to it. I didn't do the antibiotics, just Benicar and no Vitamin D (and NoIR glasses before you take the first pill)The other site I rely on is the forums at http://www.curemyth1.org/It is the place to go when you get your Vitamin D metabolites test back, need to find a doctor, or have any questions. Be sure you put in what country you are from as we are a very international group. The people who are most likely to succeed are the ones who report weekly on their own thread. They are like this group in that they are a caring group of people who just want to be healthy and see others get healthy too. Also like this group they say go slow and keep the herxes tolerable. Marie, These two sites will have all of the information you and your doctor will need. There is also a separate forum for doctors to get their questions answered. I printed out the whole mpkb.org for my doctor.Debra and , I too had severe dizziness when starting Benicar. I quite literally stayed in bed for at least two weeks while my body adjusted to the Benicar. I already had quite low blood pressure and worried about taking a blood pressure medication and struggled the first couple of weeks. Then it got better little by little and now my blood pressure is in low-normal range. I asked my pharmacist about the effects of taking a blood pressure medication 4 times a day and he gave me all the data he could find on it. It is a very weak blood pressure medication that at most only lowers BP by 10-12 units of mercury (I forget the exact label BP is measured in). Also, it maxed out at 20-40 mg of Benicar a day. Any higher doses or more frequent dosing does not lower BP. Just don't get up anymore than necessary, get up very slowly, and be prepared to sit back down even on the floor when you start seeing black. I found drinking lots and lots of water helped and even adding salt to that water for the fist couple of weeks. Just make sure it is a high quality salt.Praying Health to You,>> Dear > > I am going to forward this to my son ,who started the MP about 2 weeks ago -- but is having real difficulties with the Benicar (called Olmesarten here in the UK), as his blood pressure has dropped so low he fainted. He has to stop Olmesarten (benicar) now, and is feeling very despondent. Like you, he has been ill since birth, and we have tried literally hundreds of different treatments and remedies. > > Dan is 24 years old, and too ill to work. He had great hopes for the MP as it activates the innate immune system. > > Are you in the US? Like Marie, we have had difficulty finding a Dr who knows anything about this, but have seen one who is at least prepared to give it a try, and given Dan the prescriptions. > > I am glad you had the courage to post your improvemnt and success with the MP -- it may be the cure for some people.> > Hopefully, Dan will email you himself.> > thanks again,> > Debra Freechild> OT: Marshall Protocol> > > Hello all! It's been a long time since I have posted. I have been reluctant because I haven't wanted to alienate myself because I love everyone here. I forget that I haven't actually met anyone here, but I miss them if I don't get to my emails for a while. I realize that many people are opposed to the Marshall Protocol, but I felt like a hypocrite not saying anything because I am on the Marshall Protocol. It is ironic because I have never been a fan of western medicine but here I am healing because of it.> > I am 32 years old and became debilitated by Lyme for at least the past 9 years but have had symptoms since grade school. I may have been born with it and I was not a healthy child. I did the whole antibiotics for a year including IV rocephin. I herxed at first then nothing, just sicker. No surprise to anyone, antibiotics failed. I have done so many herbs and natural remedies I can't even remember what they all were. I started the Marshall Protocol in April 09 and I finally feel like I have a future.> > I have done a ton of research for the MP and every other treatment I could. I have not found any that has no one who doesn't claim horror stories. No one method is universally curing.> > I realize that the Marshall Protocol is not for everyone but it was the right choice for me. I was rather sensitive to the sun before the MP and so avoiding sun was already something I did. The extreme low light I live with seemed very difficult going in but the lessening of symptoms gave me such hope that I don't mind at all anymore.> > I am just on the Benicar alone as I am trying to wean off of Cortef before I even consider adding abx. I had addisons and never thought I could get off of Cortef (trust me I tried every which way in about 15 attempts to wean over the years). I was on a minimum daily dose of 20mg per day. Now I am less than half that and not dead yet or close ;)I posted previously that I had daily fevers. My temp was getting 101 and over every day never a day without it. Now, not only have I had a few days with out a fever, I even had weeks without it going over 100. It is one of the biggest reliefs of my life! I am also happy to report that the brain fog is lifting and I am getting myself back. I can even read books again.> > I still have symptoms of the spirochetes. I still had the fall cyst busting flair. But I am once again getting the exact same herx symptoms that I had at the beginning of the antibiotics when I was killing the bugs. I really do believe that the science behind the MP is correct, assuming you have a Vitamin D dysregulation in the first place. I definitely do.> > The Marshall Protocol is like every other method for treating lyme out there. No one protocol works all the time for all people. Antibiotics work for some and not others. You have to be open and find what works for you. If anyone has any questions, feel free to email me. I really hope you all won't be upset with me, it took all of the courage I could muster to write. I wish everyone a health-filled day!> > Thanks,> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2010 Report Share Posted December 10, 2010 Thank you very much I am going to look at all this Marie To: Lyme_and_Rife Sent: Wed, December 8, 2010 7:27:40 PMSubject: Re: OT: Marshall Protocol Here is where to find some great info on the Marshall Protocol. The following site is the Marshall Protocol Knowledge Base and is a good place to dive in http://mpkb.org/It has sections for patients as well as for doctors. The following document is the actual guidelines for Phase 1 http://autoimmunityresearch.org/phase1.pdfIf you are wanting to check your vitamin D levels to see if your ratio of D25 to D1,25 indicates a Th1 disease (what they call the sum of diseases caused by cell-wall deficient bacteria). Be sure that the lab follows the instructions on the web site for proper handling of the blood from the following pagehttp://mpkb.org/home/tests/dtestingIf the instructions for the D1,25 are not handled and frozen properly, you will get a false normal result when it is actually quite high. For this reason, I did the therapeutic probe to find out for sure how I would react to it. I didn't do the antibiotics, just Benicar and no Vitamin D (and NoIR glasses before you take the first pill)The other site I rely on is the forums at http://www.curemyth1.org/It is the place to go when you get your Vitamin D metabolites test back, need to find a doctor, or have any questions. Be sure you put in what country you are from as we are a very international group. The people who are most likely to succeed are the ones who report weekly on their own thread. They are like this group in that they are a caring group of people who just want to be healthy and see others get healthy too. Also like this group they say go slow and keep the herxes tolerable. Marie, These two sites will have all of the information you and your doctor will need. There is also a separate forum for doctors to get their questions answered. I printed out the whole mpkb.org for my doctor.Debra and , I too had severe dizziness when starting Benicar. I quite literally stayed in bed for at least two weeks while my body adjusted to the Benicar. I already had quite low blood pressure and worried about taking a blood pressure medication and struggled the first couple of weeks. Then it got better little by little and now my blood pressure is in low-normal range. I asked my pharmacist about the effects of taking a blood pressure medication 4 times a day and he gave me all the data he could find on it. It is a very weak blood pressure medication that at most only lowers BP by 10-12 units of mercury (I forget the exact label BP is measured in). Also, it maxed out at 20-40 mg of Benicar a day. Any higher doses or more frequent dosing does not lower BP. Just don't get up anymore than necessary, get up very slowly, and be prepared to sit back down even on the floor when you start seeing black. I found drinking lots and lots of water helped and even adding salt to that water for the fist couple of weeks. Just make sure it is a high quality salt.Praying Health to You,>> Dear > > I am going to forward this to my son ,who started the MP about 2 weeks ago -- but is having real difficulties with the Benicar (called Olmesarten here in the UK), as his blood pressure has dropped so low he fainted. He has to stop Olmesarten (benicar) now, and is feeling very despondent. Like you, he has been ill since birth, and we have tried literally hundreds of different treatments and remedies. > > Dan is 24 years old, and too ill to work. He had great hopes for the MP as it activates the innate immune system. > > Are you in the US? Like Marie, we have had difficulty finding a Dr who knows anything about this, but have seen one who is at least prepared to give it a try, and given Dan the prescriptions. > > I am glad you had the courage to post your improvemnt and success with the MP -- it may be the cure for some people.> > Hopefully, Dan will email you himself.> > thanks again,> > Debra Freechild> OT: Marshall Protocol> > > Hello all! It's been a long time since I have posted. I have been reluctant because I haven't wanted to alienate myself because I love everyone here. I forget that I haven't actually met anyone here, but I miss them if I don't get to my emails for a while. I realize that many people are opposed to the Marshall Protocol, but I felt like a hypocrite not saying anything because I am on the Marshall Protocol. It is ironic because I have never been a fan of western medicine but here I am healing because of it.> > I am 32 years old and became debilitated by Lyme for at least the past 9 years but have had symptoms since grade school. I may have been born with it and I was not a healthy child. I did the whole antibiotics for a year including IV rocephin. I herxed at first then nothing, just sicker. No surprise to anyone, antibiotics failed. I have done so many herbs and natural remedies I can't even remember what they all were. I started the Marshall Protocol in April 09 and I finally feel like I have a future.> > I have done a ton of research for the MP and every other treatment I could. I have not found any that has no one who doesn't claim horror stories. No one method is universally curing.> > I realize that the Marshall Protocol is not for everyone but it was the right choice for me. I was rather sensitive to the sun before the MP and so avoiding sun was already something I did. The extreme low light I live with seemed very difficult going in but the lessening of symptoms gave me such hope that I don't mind at all anymore.> > I am just on the Benicar alone as I am trying to wean off of Cortef before I even consider adding abx. I had addisons and never thought I could get off of Cortef (trust me I tried every which way in about 15 attempts to wean over the years). I was on a minimum daily dose of 20mg per day. Now I am less than half that and not dead yet or close ;)I posted previously that I had daily fevers. My temp was getting 101 and over every day never a day without it. Now, not only have I had a few days with out a fever, I even had weeks without it going over 100. It is one of the biggest reliefs of my life! I am also happy to report that the brain fog is lifting and I am getting myself back. I can even read books again.> > I still have symptoms of the spirochetes. I still had the fall cyst busting flair. But I am once again getting the exact same herx symptoms that I had at the beginning of the antibiotics when I was killing the bugs. I really do believe that the science behind the MP is correct, assuming you have a Vitamin D dysregulation in the first place. I definitely do.> > The Marshall Protocol is like every other method for treating lyme out there. No one protocol works all the time for all people. Antibiotics work for some and not others. You have to be open and find what works for you. If anyone has any questions, feel free to email me. I really hope you all won't be upset with me, it took all of the courage I could muster to write. I wish everyone a health-filled day!> > Thanks,> > Quote Link to comment Share on other sites More sharing options...
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