Guest guest Posted October 7, 1999 Report Share Posted October 7, 1999 Dawn, I can't speak for the group but my husband Ed is sensitive to the cold. Of course he works outside, but, when he comes home he is freezing all night and it takes a long time to go away! I'm sorry if some of us scared you. For the most part the disease doesn't bring us down. We fight back and kick its butt most of the time! Gracie and Ed Ed - dx '93, listed '98 dscala119-@... wrote: original article:/group//?start=5280 > To everyone in the group - > > I am overwhelmed with all the responses to my posting - I can't believe the > response I got. THANK YOU! I had tears in my eyes each time I opened an > e-mail from the group that was addressed to me. I am truly blessed to have > found this support group!!!!! > > As I do not really have any of the symptoms (such as the itching and URQ > pain), it is a little scary reading the postings and seeing what may lie > ahead for me, but I'd rather be prepared. I do have a few questions after > reading the postings: > > What is SAMe? > > Does anyone see a nutritionist? If yes, do you feel it has helped in any way? > > Is anyone very sensitive to the cold? Someone at another liver disease > support group had said that people with liver disease are more sensitive to > the cold? I do not know if this is true but I myself am very sensitive to > the cold - my fingernails turn blue! > > Anyway, thanks again for the response and I hope that someday I can return > the favor and be able to give you helpful information. > > Love, > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 Hi Dawn, You have just helped me. I have been intollerable to the cold over the last year. Even now at this time of year I have to jump into a hot bath to get warmed up. I never related intolerance to cold and liver disease but I believe it. 34, PSCdx97,CT >From: DScala1193@... >Reply-To: egroups >To: egroups >Subject: Blessing >Date: Wed, 6 Oct 1999 21:50:55 EDT > >To everyone in the group - > >I am overwhelmed with all the responses to my posting - I can't believe the >response I got. THANK YOU! I had tears in my eyes each time I opened an >e-mail from the group that was addressed to me. I am truly blessed to have >found this support group!!!!! > >As I do not really have any of the symptoms (such as the itching and URQ >pain), it is a little scary reading the postings and seeing what may lie >ahead for me, but I'd rather be prepared. I do have a few questions >after >reading the postings: > >What is SAMe? > >Does anyone see a nutritionist? If yes, do you feel it has helped in any >way? > >Is anyone very sensitive to the cold? Someone at another liver disease >support group had said that people with liver disease are more sensitive to >the cold? I do not know if this is true but I myself am very sensitive to >the cold - my fingernails turn blue! > >Anyway, thanks again for the response and I hope that someday I can return >the favor and be able to give you helpful information. > >Love, >Dawn > > >------------------------------------------------------------------------ >@Backup - The #1 Online Backup Service. Protect your files before >you lose them. Easy, Reliable, Secure online backups. INSTALL >today. http://clickhere./click/938 > > >eGroups.com home: /group/ > - Simplifying group communications > > > > ______________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 Marsha - I am constantly freezing at work - my coworkers think I am nuts!!!! And once I get cold, it takes along time for me to warm up. I wonder why that is a side effect? Strange. How did the ERCP go? I am not familiar with your situation - was it just a routine ERCP to see how things were going or were you having problems like pain or high liver function tests? Hope it was nothing major. Thanks for the info and have a good weekend! Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 Patti - Thanks for the info on the SAMe. I am going to bring it up with my gastroenterologist, and do some research. Sounds like a good thing. As for the Milk Thistle - has your husband experienced nausea with that? I had started taking it about two weeks ago and felt naseuse, so I stopped. I do not know if it was a coincidence. I may try it again next week. Hope your husband feels well and the UC stays in remission. Thanks again. Dawn :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 Peggy McG: Re: the cold - I am the same as you - when everyone else is warm, I am comfortable - everyone (including my hubby) thinks I am nuts. Right now it is 74 degrees in my house, my husband has on shorts and a t-shirt and I have on jeans, a t-shirt and a sweater.....and still my hands are cold. And I never understood why my tempurature never reached 98.6 degrees, usually I am around 97 degrees (when well). Well, at least now I know it could be because of the PSC. Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 1999 Report Share Posted October 8, 1999 Dawn, He did not experience nausea, but interestingly enough, my brother started taking it and felt nauseated so he stopped. Maybe it affects some people differently, I would try it again if I were you, maybe a different brand. I know some brands probably have alot of fillers, a pharmacist told me to make sure it says 'standardized' on the bottle, this ensures that each capsule contains the same amount of milk thistle. Patti DScala1193@... wrote: Patti - Thanks for the info on the SAMe. I am going to bring it up with my gastroenterologist, and do some research. Sounds like a good thing. As for the Milk Thistle - has your husband experienced nausea with that? I had started taking it about two weeks ago and felt naseuse, so I stopped. I do not know if it was a coincidence. I may try it again next week. Hope your husband feels well and the UC stays in remission. Thanks again. Dawn :-) ------------------------------------------------------------------------ eGroups.com home: /group/ - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 1999 Report Share Posted October 12, 1999 Marsha - It is wonderful news that the PSC stopped progressing. Is it normal that stents have to be changed? As you may have guessed, I know very LITTLE about the disease and treatments. So, since it seems you are doing something right, what exactly do you do? Right now I just take Actigall and get my blood test (liver function test) every 3 mos. I never had to get stents. I live in NYC (Queens) and the temp has been in the 60's for the past few days. Quote Link to comment Share on other sites More sharing options...
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