Yahoo! Finance Story - Congress Has Designated July 22 as National Fragile X Awareness Day and Declares Support for Increased Funding*

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Congress Has Designated July 22 as National Fragile X Awareness Day and Declares Support for Increased Funding*

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Press ReleaseSource:

National Fragile X Foundation

Congress Has Designated July 22 as National Fragile X Awareness Day and Declares Support for Increased Funding*Wednesday July 21, 9:04 am ET

SAN FRANCISCO, July 21 /PRNewswire/ -- In the true spirit of

bipartisanship, Democratic Vice-Presidential candidate, Senator

(D-NC) and Republican Senator, Chuck Hagel (R-NE), led the effort to declare

July 22 as National Fragile X Awareness Day in a year 2000 Congressional

proclamation.Five years later, in a time of increasing political polarization, that

bipartisanship has continued with both the House and Senate showing their

concern for individuals with fragile X syndrome, the world's leading cause of

genetically inherited mental impairment and the most common known cause of

autism. In an effort again led by Senators Hagel and , and with new

support from Representatives Radanovich (R-CA) and Sandlin (D-TX) in the

House, over 100 members of Congress have expressed their support for a

significant increase in research funds allocated for fragile X at the National

Institutes of Health, and the appropriation of five million dollars for the

establishment of a first-ever, public health program devoted to fragile X at

the Centers for Disease Control.

Fragile X Syndrome

-- Millions of Americans are impacted by the medical condition fragile X

syndrome.

-- Fragile X syndrome has been identified as the most common, known cause

of autism.

-- A mother or a father can be a carrier, and both boys and girls can have

fragile X syndrome.

-- There is a simple DNA blood test for fragile X syndrome.

-- Interventions exist that improve the lives of those affected by fragile

X syndrome.

-- Approximately one-third of male carriers of fragile X syndrome, above

the age of 50, may develop a recently discovered neurological condition

called Fragile X-associated Tremor Ataxia Syndrome (FXTAS) -- a

condition frequently misdiagnosed.

What is fragile X syndrome?Fragile X syndrome is the most common inherited form of learning

disabilities and mental impairment known. Inherited in an X-linked fashion,

fragile X syndrome can cause intellectual and cognitive deficits ranging from

subtle learning disabilities and a normal IQ, to severe mental retardation and

autistic behaviors. Approximately one in 250 women and 1 in 800 men carry the

gene that, when inherited by their children, can cause fragile X. In addition

to mental impairment, children with fragile X syndrome can be characterized by

a group of symptoms, including physical features, specific behavior patterns,

developmental delays, and speech/language delays.The vast majority of families affected by fragile X are unaware of its

presence and the majority of children and adults with fragile X have never

received a diagnosis. Individuals with mental retardation of unknown cause, or

learning and behavior problems combined with several of the symptoms described

above, should be tested for fragile X.Learn more about fragile X syndrome, or find a parent contact in your

area, by contacting the National Fragile X Foundation: /

NATLFX@... / www.FragileX.orgCongressional Record, 7/12/00, Volume 146, Number 89.

Source:

National Fragile X Foundation Email Story Set

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