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I received this letter the other day. Can anyone help this poor girl?

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Date: Thu, 6 May 1999 10:25:21 -0700 (PDT)

From: Nargiza Rustam <nargizar@...>

Subject: Can you give me advice ?

Chrys <75014.3010@...>

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Dear Chrys,

First of all, I want to tell about myself. I am Dilfusa and I am from

Uzbekistan, Tashkent . Now I study in Germany, I have sister Nargiza,

she has been suffering from ChronicPolyartrit since 12 year ago. She is

29 year old and live in Tashkent now.In Uzbeksitan she was in many

Hospital long time, but this teraphy doesn´t help her. After that I

tried long times to contact with people Who have the same diseases

also and to have some advices for helping her. I read in Internet

Reumatic homepage many information also.I hope you are familiar with

the health problem of my sister.I want to tell you a little about her

health problem. Maybe you can help me with your advise. Internet is my

last chance because we have tried all possibilities but it did not make

my sister health better.

At the age of 18 she got fever and it getting worse and worse. Her

walking ability was getting poorer and poorer. We took her to the

hospital. There she had to take lots of antibiotics but it did not make

her better. She was getting thinner. Every two months she had to go to

the hospital for inspection.

After 2 years suffering from the disease (20 year old) she had to stay

at the hospitral because the whole part of her body was painfull, pain

at all joints and even could hardly move. The fever also was still

there. She was operated for blood cancer test but the result was

negative. She has no leukimia. She could only take medicine. Lots of

medicine. Her blood had also tobe cleaned (washed). She had to stay 6

months at the hospital. Doctor had done all the possibilities to make

her better, In this time we thought that she did not have chance to

live because her body was smaller and smaller. One of her lung (right)

was found invalid and it filled with liquid and had to be taken out

using kateter for three months. Then the lung had to be operated to

take out the liquid inside.

After that doctors couldn´t identify the deseases, therefor she was in

many Hospitals to identify her deseases. In every Hospital she got

infections, and we were busy to handel the infection

and doctor didn´t pay more attention on her main deseases , After that

the Reuma was getting worse . When all infection was dissapeared then

all her joints were swollen, and the joints began to deform . Her knee

was swollen, bigger and much liquid in the join, very painfull.The

liquid had to be taken our regularly every 2 months. Every 6 months had

to go to the hospital to take out the liquid. At the age of 23, time

after time all joins could not be moved anymore because it was very

painfull. Age 24 we were told that she have Rheumatoid poly arthrid,

pulmarit, neorit and kahepsia and had to go again to the hospital.

Totaly could not walk. All finger joins were unstable and can be moved

to all directions. She took many Kenalog and Pregnisalon. At 26 of age

she stopped taking Pregnisalon. But still could not move. All joins

contain much liquid. After taking out the liquid then the knee and

elbow joins became " dry " and " connected " . She cannot move her knee and

elbow. As a result the joins can not be bend. First it occured at the

knee join, then elbow join. Now she has been complaining about her

backbone and neck. She is able to speak but can not open her mouth too

wide. The eyes getting worse because hardly see the sunlight, tears

flow always. We have tried to give some medicine for her eyes but it

did not work.The eyes was chronic also and antibiotic didn´t work

anymore.

She has problem also with her listening ability. The ear was operated

and cleaned ,but sometimes it hurts also. Fortunatelly she can still

eat food.

Can you try to understand my sisters health problem and to advice us.

We will be doing all your advice. I am hoping also that you have an

idea about the antibiotic effect on her colon. I and my familie will be

very happy and thankfull to hear your advise.

Best Regards

Dilfusa Rustam

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