Re: Common thread among us

[Guest guest]

I have to agree that stress certainly makes VV worse, but I, too, am uncertain

about a particular traumatic event starting the whole thing in my case. Now,

of course, everything seems traumatic....ha ha. I look back at things and

classify them as BVV and AVV (before vulvodynia and after). Heidi, if I

remember correctly, wasn't someone polling us a while back about things we had

in common. For example, many of us have fibromyalgia, mitral valve prolapse,

TMJ, tailbone problems, etc., etc. Also, I THINK I read somewhere that it

particularly affects caucasion women. In my case, I believe that it has

something to do with hormones and perimenopause (I will be 47 next month).

But, obviously there are many of us on this list who are a lot younger or

older so there has to be other reasons, too. Anyway, I feel stress is big

cause of its continuation anyway. Kathy

[Guest guest]

I have to agree that stress certainly makes VV worse, but I, too, am uncertain

about a particular traumatic event starting the whole thing in my case. Now,

of course, everything seems traumatic....ha ha. I look back at things and

classify them as BVV and AVV (before vulvodynia and after). Heidi, if I

remember correctly, wasn't someone polling us a while back about things we had

in common. For example, many of us have fibromyalgia, mitral valve prolapse,

TMJ, tailbone problems, etc., etc. Also, I THINK I read somewhere that it

particularly affects caucasion women. In my case, I believe that it has

something to do with hormones and perimenopause (I will be 47 next month).

But, obviously there are many of us on this list who are a lot younger or

older so there has to be other reasons, too. Anyway, I feel stress is big

cause of its continuation anyway. Kathy

[Guest guest]

I had to kind of chuckle when Michele ended this with ... " Heidi? " I

don't know but it just came off kind of funny to me.

Anyway, boy! that is kind of a tough question. My whole childhood was

traumatic, to be honest, but I do not remember an isolated incident that

correlated with the onset of vulvar pain and burning. I guess for me I

would say 'no' as to whether trauma has played a role in my pain.

However, stress definitely does exacerbate my symptoms.

Heidi

mailto:dwalsh@...

http://www.angelfire.com/md/vulvardisorders

> I too wondered about this when I joined the list. I have had yeast

> infections in the past but the burning and itching started when I had a

> traumatic thing happen in my life. I don't know if my vv was caused by

> this or it was just a coincidence but I think some others on the list

> have had traumatic things happen to them too....Heidi?

[Guest guest]

I had to kind of chuckle when Michele ended this with ... " Heidi? " I

don't know but it just came off kind of funny to me.

Anyway, boy! that is kind of a tough question. My whole childhood was

traumatic, to be honest, but I do not remember an isolated incident that

correlated with the onset of vulvar pain and burning. I guess for me I

would say 'no' as to whether trauma has played a role in my pain.

However, stress definitely does exacerbate my symptoms.

Heidi

mailto:dwalsh@...

http://www.angelfire.com/md/vulvardisorders

> I too wondered about this when I joined the list. I have had yeast

> infections in the past but the burning and itching started when I had a

> traumatic thing happen in my life. I don't know if my vv was caused by

> this or it was just a coincidence but I think some others on the list

> have had traumatic things happen to them too....Heidi?

[Guest guest]

I belong to the group of women who started all this history with a

candidiasis, a yeast infection. I think there are few main groups like

women who had an injury (sp?), yeast infection, women who always had it

since the childhood. What I've noticed is a different thing: when I entered

in the list I thought that all we were with the same pain but now I think

there are two main group: the vulvodynia's sufferers and the vestibulitis

ones. Both can have relief from some non medical tricks but the medicine

are different. What I am trying to say is that to me vestibulitis and

vulvodynia are 2 separate things. I have POC and for what I can do I never

have the symptoms people with vulvodynia have.

just my morning thoughts...

Chiara

[Guest guest]

I agree with you Chiara. I have purely vulvodynia. I am not currently

seually active, but it doesn't hurt to insert a tampon. The thing that

confuses me, however, is that I am bright red, and from what I have read,

I thought that redness is associated with vestibulitis, and vulvodynia

sufferers have no color change.

I hardly slept at all last ngith because of the pain. I had to take a

codiene to knowck me out. I just don't know how much longer I can deal

with this...

Christy

[Guest guest]

Christy,

I am sorry that you are in so much pain. I know many on this list seem to

have a yeast problem which I am not that familiar with. However if you want

to try the low oxalate diet to see if it helps you here is the link. I am

sending a couple others that may give you some more ideas.

<A HREF= " aol://5863:126/mB:108463 " >AOL: Vulvodynia & Vestibulitis</A>

<A HREF= " http://www.branwen.com/rowan/oxalate.htm " >The Low Oxalate Diet</A>

<A HREF= " http://www.vulvarpainfoundation.org./Low_oxalate_treatment.htm " >Low

Oxalate Treatment</A>

<A HREF= " http://www.angelfire.com/hi/HeidiHomePage/index1.html " >Vulvar

Vestibulitis & Vulvodynia Resource Guide</A>

<A HREF= " http://www.vulvarpainfoundation.org/ " >Welcome to The Vulvar Pain

Foundation's Website</A>

Darlene

[Guest guest]

Christy,

I am sorry that you are in so much pain. I know many on this list seem to

have a yeast problem which I am not that familiar with. However if you want

to try the low oxalate diet to see if it helps you here is the link. I am

sending a couple others that may give you some more ideas.

<A HREF= " aol://5863:126/mB:108463 " >AOL: Vulvodynia & Vestibulitis</A>

<A HREF= " http://www.branwen.com/rowan/oxalate.htm " >The Low Oxalate Diet</A>

<A HREF= " http://www.vulvarpainfoundation.org./Low_oxalate_treatment.htm " >Low

Oxalate Treatment</A>

<A HREF= " http://www.angelfire.com/hi/HeidiHomePage/index1.html " >Vulvar

Vestibulitis & Vulvodynia Resource Guide</A>

<A HREF= " http://www.vulvarpainfoundation.org/ " >Welcome to The Vulvar Pain

Foundation's Website</A>

Darlene

[Guest guest]

Christy,

I am sorry that you are in so much pain. I know many on this list seem to

have a yeast problem which I am not that familiar with. However if you want

to try the low oxalate diet to see if it helps you here is the link. I am

sending a couple others that may give you some more ideas.

<A HREF= " aol://5863:126/mB:108463 " >AOL: Vulvodynia & Vestibulitis</A>

<A HREF= " http://www.branwen.com/rowan/oxalate.htm " >The Low Oxalate Diet</A>

<A HREF= " http://www.vulvarpainfoundation.org./Low_oxalate_treatment.htm " >Low

Oxalate Treatment</A>

<A HREF= " http://www.angelfire.com/hi/HeidiHomePage/index1.html " >Vulvar

Vestibulitis & Vulvodynia Resource Guide</A>

<A HREF= " http://www.vulvarpainfoundation.org/ " >Welcome to The Vulvar Pain

Foundation's Website</A>

Darlene

[Guest guest]

I am really sorry and I wish i could say something helpful to you but the

fact is that i have a complete different disorder so I don't know what

could you take. I remember few weeks or days ago someone posted picture of

how should look a vulvodynia's vagina because someone asked about the

color: can someone remeber this for Christy? If nobody has those

informations try to look in the archives maybe the messages about this

topic are already (...wait I have to see the dictionary for this word...)

filed;

the only help that I can give you is a pray from Italy

Chiara

[Guest guest]

My gyno said the VV can be caused by HPV, or chronic yeast infections. It

makes sense with the yeast infections and all those harsh creams we end up

using. I don't know about anyone else, but I always burnt more after it.

That's why I switched to my natural product. My VV really kicked in after tons

of antibs., yeast infections and EXTREME stress, trauma. Lainey

[Guest guest]

My gyno said the VV can be caused by HPV, or chronic yeast infections. It

makes sense with the yeast infections and all those harsh creams we end up

using. I don't know about anyone else, but I always burnt more after it.

That's why I switched to my natural product. My VV really kicked in after tons

of antibs., yeast infections and EXTREME stress, trauma. Lainey

[Guest guest]

My gyno said the VV can be caused by HPV, or chronic yeast infections. It

makes sense with the yeast infections and all those harsh creams we end up

using. I don't know about anyone else, but I always burnt more after it.

That's why I switched to my natural product. My VV really kicked in after tons

of antibs., yeast infections and EXTREME stress, trauma. Lainey

[Guest guest]

I thank you all so much for responding to my question: what is common

about all of us. It is clear to me that there are several different

disorders here. Some have the vestibulitis which is the pain

associated with touch. Then, others, myself included have just

burning and redness. I realize too that the term vulvodynia is a

blanket term for pain of the vulva. It is like saying, " I have a

headache. " Of course, we all know there are many different kinds and

causes of headaches. Just as there are different causes and symptoms

of vulvodynia. I am sure that is why there are so many different

kinds of treatments that we all can testify to that works on such an

individual basis. Not everyone takes tylenol for a headache and gets

relief.

Heidi, your post re: Common Conditons/Causes, etc. was so

comprehensive and very informative. I thank you for taking the time

to send that out to us. I agree with alot of your assumptions and

agree that if we can help researchers figure out the " Why " it can be

nipped in the bud before it escalates to middle of the night emergency

room visits and years of a celibate existence.

--- " Loebach, " wrote:

>

>

>

> I agree with you Chiara. I have purely vulvodynia. I am not

currently

> seually active, but it doesn't hurt to insert a tampon. The thing

that

> confuses me, however, is that I am bright red, and from what I have

read,

> I thought that redness is associated with vestibulitis, and

vulvodynia

> sufferers have no color change.

>

> I hardly slept at all last ngith because of the pain. I had to take

a

> codiene to knowck me out. I just don't know how much longer I can

deal

> with this...

> Christy

>

>

------------------------------------------------------------------------

> Did you know that we have over 85,000 e-mail communities at Onelist?

> http://www.onelist.com

> Come visit our new web site and explore a new interest

>

------------------------------------------------------------------------

>

[Guest guest]

I thank you all so much for responding to my question: what is common

about all of us. It is clear to me that there are several different

disorders here. Some have the vestibulitis which is the pain

associated with touch. Then, others, myself included have just

burning and redness. I realize too that the term vulvodynia is a

blanket term for pain of the vulva. It is like saying, " I have a

headache. " Of course, we all know there are many different kinds and

causes of headaches. Just as there are different causes and symptoms

of vulvodynia. I am sure that is why there are so many different

kinds of treatments that we all can testify to that works on such an

individual basis. Not everyone takes tylenol for a headache and gets

relief.

Heidi, your post re: Common Conditons/Causes, etc. was so

comprehensive and very informative. I thank you for taking the time

to send that out to us. I agree with alot of your assumptions and

agree that if we can help researchers figure out the " Why " it can be

nipped in the bud before it escalates to middle of the night emergency

room visits and years of a celibate existence.

--- " Loebach, " wrote:

>

>

>

> I agree with you Chiara. I have purely vulvodynia. I am not

currently

> seually active, but it doesn't hurt to insert a tampon. The thing

that

> confuses me, however, is that I am bright red, and from what I have

read,

> I thought that redness is associated with vestibulitis, and

vulvodynia

> sufferers have no color change.

>

> I hardly slept at all last ngith because of the pain. I had to take

a

> codiene to knowck me out. I just don't know how much longer I can

deal

> with this...

> Christy

>

>

------------------------------------------------------------------------

> Did you know that we have over 85,000 e-mail communities at Onelist?

> http://www.onelist.com

> Come visit our new web site and explore a new interest

>

------------------------------------------------------------------------

>

[Guest guest]

Yes, Yes, Yes, Lainey - My instincts tell me that this is related to

yeast also. One yeast specialist I had a consultation with, Dr.

Crandall said, and I would have to agree, is that the yeast is in the

epitheial (sp) layers of the tissue. The burning and the irritation

is from residual inflamation caused by enzymes that the yeast is

throwing off. We could have 100 cultures and they would all be

negative because the yeast is not in the vagina (where most of the

doctors get the specimen swabs from). I don't have VVS just the

burning and she insists that long term oral antifungals will get rid

of this. By using the topical antifungals, all you do is irritate the

already burning tissue and that is not going to get anywhere near the

cellular layers anyway. She just got back from a big yeast conference

that was held two weeks ago in ton, S.C. where many researchers

presented new information. I wonder if there is any new info that

will help us?? By the way, I never had yeast infections. I got ONE

and here I am with this thing!!

---Lainey9911@... wrote:

>

> From: Lainey9911@...

>

> My gyno said the VV can be caused by HPV, or chronic yeast

infections. It

> makes sense with the yeast infections and all those harsh creams we

end up

> using. I don't know about anyone else, but I always burnt more after

it.

> That's why I switched to my natural product. My VV really kicked in

after tons

> of antibs., yeast infections and EXTREME stress, trauma. Lainey

>

>

------------------------------------------------------------------------

> We have a new web site!

> http://www.onelist.com

> Onelist: The leading provider of free email community services

>

------------------------------------------------------------------------

>

[Guest guest]

Yes, Yes, Yes, Lainey - My instincts tell me that this is related to

yeast also. One yeast specialist I had a consultation with, Dr.

Crandall said, and I would have to agree, is that the yeast is in the

epitheial (sp) layers of the tissue. The burning and the irritation

is from residual inflamation caused by enzymes that the yeast is

throwing off. We could have 100 cultures and they would all be

negative because the yeast is not in the vagina (where most of the

doctors get the specimen swabs from). I don't have VVS just the

burning and she insists that long term oral antifungals will get rid

of this. By using the topical antifungals, all you do is irritate the

already burning tissue and that is not going to get anywhere near the

cellular layers anyway. She just got back from a big yeast conference

that was held two weeks ago in ton, S.C. where many researchers

presented new information. I wonder if there is any new info that

will help us?? By the way, I never had yeast infections. I got ONE

and here I am with this thing!!

---Lainey9911@... wrote:

>

> From: Lainey9911@...

>

> My gyno said the VV can be caused by HPV, or chronic yeast

infections. It

> makes sense with the yeast infections and all those harsh creams we

end up

> using. I don't know about anyone else, but I always burnt more after

it.

> That's why I switched to my natural product. My VV really kicked in

after tons

> of antibs., yeast infections and EXTREME stress, trauma. Lainey

>

>

------------------------------------------------------------------------

> We have a new web site!

> http://www.onelist.com

> Onelist: The leading provider of free email community services

>

------------------------------------------------------------------------

>

[Guest guest]

Try this URL.. http://www.howdyneighbor.com/jbayliss

>

>

>Yes, Yes, Yes, Lainey - My instincts tell me that this is related to

>yeast also. One yeast specialist I had a consultation with, Dr.

>Crandall said, and I would have to agree, is that the yeast is in the

>epitheial (sp) layers of the tissue. The burning and the irritation

>is from residual inflamation caused by enzymes that the yeast is

---Lainey9911@... wrote:

>>

>> From: Lainey9911@...

>>

>> My gyno said the VV can be caused by HPV, or chronic yeast

>infections. It

>> makes sense with the yeast infections and all those harsh creams we

>end up

..

[Guest guest]

Try this URL.. http://www.howdyneighbor.com/jbayliss

>

>

>Yes, Yes, Yes, Lainey - My instincts tell me that this is related to

>yeast also. One yeast specialist I had a consultation with, Dr.

>Crandall said, and I would have to agree, is that the yeast is in the

>epitheial (sp) layers of the tissue. The burning and the irritation

>is from residual inflamation caused by enzymes that the yeast is

---Lainey9911@... wrote:

>>

>> From: Lainey9911@...

>>

>> My gyno said the VV can be caused by HPV, or chronic yeast

>infections. It

>> makes sense with the yeast infections and all those harsh creams we

>end up

..

[Guest guest]

Try this URL.. http://www.howdyneighbor.com/jbayliss

>

>

>Yes, Yes, Yes, Lainey - My instincts tell me that this is related to

>yeast also. One yeast specialist I had a consultation with, Dr.

>Crandall said, and I would have to agree, is that the yeast is in the

>epitheial (sp) layers of the tissue. The burning and the irritation

>is from residual inflamation caused by enzymes that the yeast is

---Lainey9911@... wrote:

>>

>> From: Lainey9911@...

>>

>> My gyno said the VV can be caused by HPV, or chronic yeast

>infections. It

>> makes sense with the yeast infections and all those harsh creams we

>end up

..

[Guest guest]

Yes, I too must say that I had lots of problems with yeast infections, but the

vulvar pain only started

immediately after a traumatic thing. And, as life gets better, i feel like I am

becoming more and more

pain free--or, the pain is less concentrated in the vulvar region. For example,

I will have burnign and

itching on my soles of feet and legs (which is much more tolerable than

vulvar!!). But, I have also been using Calcium citrate regularly. SO, I don't

know what's going on. SOme aspects are definitely much much

better, and then there are the seemingly new or related effects/pains in other

parts of teh body.

??

Vira

michele duke wrote:

> Dear Michele,

>

> I too wondered about this when I joined the list. I have had yeast

> infections in the past but the burning and itching started when I had a

> traumatic thing happen in my life. I don't know if my vv was caused by

> this or it was just a coincidence but I think some others on the list

> have had traumatic things happen to them too....Heidi?

>

> Sincerely,

> Michele D

>

> ------------------------------------------------------------------------

>

> Subject: Common thread among us

> Date: Wed, 17 Mar 1999 14:28:51 -0800 (PST)

>

> Reply-To: VulvarDisordersonelist

> To: VulvarDisordersonelist

>

>

>

> Hi All,

>

> I have been thinking alot these last 2 weeks since signing up on the

> list, are there some common links that we all share? For instance,

> did our condition start out acutely or gradually? Was there something

> that we all have that predisposes us? Were most of us treated for

> yeast prior to the vulvodynia and vvs? I was just wondering,

> especially I guess for the women who have been on the list longer,

> have you all discussed YOUR theories on what is not different but the

> same about us? Maybe there is no answer but it perplexes me when I

> know so many others who DON'T have this and I wonder why we do. Out

> of the blue. Anyone with any thoughts? I was hoping it could help

> guide me in chosing treatments and doctors etc...

>

> ------------------------------------------------------------------------

>

[Guest guest]

Yes, I too must say that I had lots of problems with yeast infections, but the

vulvar pain only started

immediately after a traumatic thing. And, as life gets better, i feel like I am

becoming more and more

pain free--or, the pain is less concentrated in the vulvar region. For example,

I will have burnign and

itching on my soles of feet and legs (which is much more tolerable than

vulvar!!). But, I have also been using Calcium citrate regularly. SO, I don't

know what's going on. SOme aspects are definitely much much

better, and then there are the seemingly new or related effects/pains in other

parts of teh body.

??

Vira

michele duke wrote:

> Dear Michele,

>

> I too wondered about this when I joined the list. I have had yeast

> infections in the past but the burning and itching started when I had a

> traumatic thing happen in my life. I don't know if my vv was caused by

> this or it was just a coincidence but I think some others on the list

> have had traumatic things happen to them too....Heidi?

>

> Sincerely,

> Michele D

>

> ------------------------------------------------------------------------

>

> Subject: Common thread among us

> Date: Wed, 17 Mar 1999 14:28:51 -0800 (PST)

>

> Reply-To: VulvarDisordersonelist

> To: VulvarDisordersonelist

>

>

>

> Hi All,

>

> I have been thinking alot these last 2 weeks since signing up on the

> list, are there some common links that we all share? For instance,

> did our condition start out acutely or gradually? Was there something

> that we all have that predisposes us? Were most of us treated for

> yeast prior to the vulvodynia and vvs? I was just wondering,

> especially I guess for the women who have been on the list longer,

> have you all discussed YOUR theories on what is not different but the

> same about us? Maybe there is no answer but it perplexes me when I

> know so many others who DON'T have this and I wonder why we do. Out

> of the blue. Anyone with any thoughts? I was hoping it could help

> guide me in chosing treatments and doctors etc...

>

> ------------------------------------------------------------------------

>

[Guest guest]

Christy are you seeing a specialist? Redness is a sign of inflamation.

Try the Aveeno sitz baths for at least 20 minutes 2x a day. Or use a

cold compress. I have even used ice wrapped in a paper towel to relieve

the pain.

Michele D

[Guest guest]

I was just reading one of the posts and found my mouth wide open. I never knew

there was a connection with our symptoms. I have TMJ, FM, tailbone pain (lower

back) and multra valve prolapse, plus yeast infections and bladder infections

and high stress. Interesting how all this connects. Lainey

[Guest guest]

I was just reading one of the posts and found my mouth wide open. I never knew

there was a connection with our symptoms. I have TMJ, FM, tailbone pain (lower

back) and multra valve prolapse, plus yeast infections and bladder infections

and high stress. Interesting how all this connects. Lainey