Re: My son's huge appetite, and 2 other symptoms

[Guest guest]

YOu know, I know I can't answer that question besides the fact that you are

feeding him good food, so just keep feeding it. You are doing the best you can.

My son also complains of a stomach ache since starting DMPS, I know they say

that TDDMPS will not cause stomach problems, but he has never complained before,

and now it is only on the 'on' days.

My NT son (we have four boys) age 9, always complains of a stomach ache, and I

have taken him to different docs, and they just say they don't know. If I give

him prilosac (spelling?), he does not complain.

I know I need to take him somewhere too. But the money thing is so bad right

now. It is very depressing.

My son's huge appetite, and 2 other symptoms

Hi,

I know that many ASD kids have huge appetites, but my 3 year old is always

hungry. I

don't know what to feed him. I feed him very healthy food, mostly organic, but

I don't want

to give too much protein or too much starch or any fruit other than pears, but

what does

that leave? Since he wants to eat so much, he does end up getting a lot of

carbs and

protein.

Typical meal:

Millet (or quinoa, buckwheat, rice, teff) He'll eat a cup and a half or two

a day

Potatoes or sweet potatoes or winter squash He'll eat a ton of these too

Brocolli or collards or cauliflower etc Tons

Chicken or turkey usually, sometimes lamb Ditto, as much as I'll give him

(or legumes)

He eats almost every 2 hours. He rarely leaves food behind on the plate.

He tells me his throat hurts (every day), and his stomach (like his

intestines) too.

Sometimes he lies on the floor, but not like he used to. He has been on

caprystatin for

awhile. I don't want to get him scoped, don't think I'd survive it.

Ideas?

Jill

Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx<http://forums.autism-rxguideb\

ook.com/default.aspx>>

[Guest guest]

YOu know, I know I can't answer that question besides the fact that you are

feeding him good food, so just keep feeding it. You are doing the best you can.

My son also complains of a stomach ache since starting DMPS, I know they say

that TDDMPS will not cause stomach problems, but he has never complained before,

and now it is only on the 'on' days.

My NT son (we have four boys) age 9, always complains of a stomach ache, and I

have taken him to different docs, and they just say they don't know. If I give

him prilosac (spelling?), he does not complain.

I know I need to take him somewhere too. But the money thing is so bad right

now. It is very depressing.

My son's huge appetite, and 2 other symptoms

Hi,

I know that many ASD kids have huge appetites, but my 3 year old is always

hungry. I

don't know what to feed him. I feed him very healthy food, mostly organic, but

I don't want

to give too much protein or too much starch or any fruit other than pears, but

what does

that leave? Since he wants to eat so much, he does end up getting a lot of

carbs and

protein.

Typical meal:

Millet (or quinoa, buckwheat, rice, teff) He'll eat a cup and a half or two

a day

Potatoes or sweet potatoes or winter squash He'll eat a ton of these too

Brocolli or collards or cauliflower etc Tons

Chicken or turkey usually, sometimes lamb Ditto, as much as I'll give him

(or legumes)

He eats almost every 2 hours. He rarely leaves food behind on the plate.

He tells me his throat hurts (every day), and his stomach (like his

intestines) too.

Sometimes he lies on the floor, but not like he used to. He has been on

caprystatin for

awhile. I don't want to get him scoped, don't think I'd survive it.

Ideas?

Jill

Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx<http://forums.autism-rxguideb\

ook.com/default.aspx>>

[Guest guest]

YOu know, I know I can't answer that question besides the fact that you are

feeding him good food, so just keep feeding it. You are doing the best you can.

My son also complains of a stomach ache since starting DMPS, I know they say

that TDDMPS will not cause stomach problems, but he has never complained before,

and now it is only on the 'on' days.

My NT son (we have four boys) age 9, always complains of a stomach ache, and I

have taken him to different docs, and they just say they don't know. If I give

him prilosac (spelling?), he does not complain.

I know I need to take him somewhere too. But the money thing is so bad right

now. It is very depressing.

My son's huge appetite, and 2 other symptoms

Hi,

I know that many ASD kids have huge appetites, but my 3 year old is always

hungry. I

don't know what to feed him. I feed him very healthy food, mostly organic, but

I don't want

to give too much protein or too much starch or any fruit other than pears, but

what does

that leave? Since he wants to eat so much, he does end up getting a lot of

carbs and

protein.

Typical meal:

Millet (or quinoa, buckwheat, rice, teff) He'll eat a cup and a half or two

a day

Potatoes or sweet potatoes or winter squash He'll eat a ton of these too

Brocolli or collards or cauliflower etc Tons

Chicken or turkey usually, sometimes lamb Ditto, as much as I'll give him

(or legumes)

He eats almost every 2 hours. He rarely leaves food behind on the plate.

He tells me his throat hurts (every day), and his stomach (like his

intestines) too.

Sometimes he lies on the floor, but not like he used to. He has been on

caprystatin for

awhile. I don't want to get him scoped, don't think I'd survive it.

Ideas?

Jill

Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx<http://forums.autism-rxguideb\

ook.com/default.aspx>>

[Guest guest]

Have you seen this conference presentation on the gut?

http://www.autismwebsite.com/krigsman/

> YOu know, I know I can't answer that question besides the fact that you are

> feeding him good food, so just keep feeding it. You are doing the best you

> can.

> My son also complains of a stomach ache since starting DMPS, I know they say

> that TDDMPS will not cause stomach problems, but he has never complained

> before, and now it is only on the 'on' days.

> My NT son (we have four boys) age 9, always complains of a stomach ache, and

> I have taken him to different docs, and they just say they don't know. If I

> give him prilosac (spelling?), he does not complain.

> I know I need to take him somewhere too. But the money thing is so bad right

> now. It is very depressing.

> My son's huge appetite, and 2 other symptoms

>

>

> Hi,

> I know that many ASD kids have huge appetites, but my 3 year old is always

> hungry. I

> don't know what to feed him. I feed him very healthy food, mostly organic,

> but I don't want

> to give too much protein or too much starch or any fruit other than pears,

> but what does

> that leave? Since he wants to eat so much, he does end up getting a lot

> of carbs and

> protein.

>

> Typical meal:

>

> Millet (or quinoa, buckwheat, rice, teff) He'll eat a cup and a half or

> two a day

> Potatoes or sweet potatoes or winter squash He'll eat a ton of these too

> Brocolli or collards or cauliflower etc Tons

> Chicken or turkey usually, sometimes lamb Ditto, as much as I'll give

> him

> (or legumes)

>

> He eats almost every 2 hours. He rarely leaves food behind on the plate.

>

> He tells me his throat hurts (every day), and his stomach (like his

> intestines) too.

> Sometimes he lies on the floor, but not like he used to. He has been on

> caprystatin for

> awhile. I don't want to get him scoped, don't think I'd survive it.

>

> Ideas?

> Jill

>

>

>

>

> Many frequently asked questions and answers can be found at

>

<http://forums.autism-rxguidebook.com/default.aspx<http://forums.autism-rxguideb\

ook.com/default.aspx>>

>

>

[Guest guest]

I surely don't know if your son's appetite is related to my son's appetite

issues, but my son occasionally goes through stages where he can't eat enough

also. During these phases, he is also hyperactive, spacy and irritable. I have

learned that treating for yeast and hypoglycemia help my son get over this

hump.

Do you think it's possible your son has hypoglycemia, and that what he is

eating is not properly getting into his bloodstream? It was suggested that I

give

my son chromium for hypoglycemia, but he reacted poorly to chromium. However,

when he gets these hunger splurges, I give him some vanadium, and this seems

to help him metabolize his glucose.

Just " food " for thought,

Debbie

[Guest guest]

Hi fwiw, when Slater had the worst gut issues, he was hungry all the

time. He was not absorbing nutrients and I think had a constant

starving feeling. I think I recall Dr. JM explaining it to me that

way when he was so sick, losing weight and eating all day long

(literally putting his face into his food and acted at every meal

like he had never been fed). It's been a while and Dr. JM can

correct me if I an remembering this wrong.

Don't know if this pertains or not but that was our experience and

it did correct itself as the gut got better without a doubt. And got

worse again when it flared up.

All the best,

> I surely don't know if your son's appetite is related to my son's

appetite

> issues, but my son occasionally goes through stages where he can't

eat enough

> also. During these phases, he is also hyperactive, spacy and

irritable. I have

> learned that treating for yeast and hypoglycemia help my son get

over this

> hump.

>

> Do you think it's possible your son has hypoglycemia, and that

what he is

> eating is not properly getting into his bloodstream? It was

suggested that I give

> my son chromium for hypoglycemia, but he reacted poorly to

chromium. However,

> when he gets these hunger splurges, I give him some vanadium, and

this seems

> to help him metabolize his glucose.

>

> Just " food " for thought,

> Debbie

>

>

>

[Guest guest]

Jill,

We use the transdermal secretin for a long time. When his stomach pain

got so bad we had no choice as to scope him -the doctor then did the

IV secretin to measure enzymes etc.. The effect afterwards was

wonderful. Some kids I have heard possibly 20-40% respond very well to

secretin. What we found was that the trans dermal amount we were

giving him was not enough. So we are increasing his daily dosage. I

thought we could never live thru a scope but doing it was the best

thing we ever did. They found moderate esophagus inflammation- " I could

see it in the picutures they took " , they found he had the red nodules

that krigsman talks about, and also he has a triangle shape instead of

circle in his gut where food can get caught in the folds. Hard to

explain with out the photos. We thought we could never go thru scope

but all went soomthly. I did a lot of preperation and my DAN doc stood

in the procedure as well. He got Vallium and then sedation meds thru

IV. He was a sleep the whole time. We order t he secretin from

pharamacy in OH. Clinical Apothicaries, ...

4087 medina suite 200 He used to be constipated no matter what we did,

now he can actually tolerate more food and enzymes.

> I surely don't know if your son's appetite is related to my son's appetite

> issues, but my son occasionally goes through stages where he can't eat

> enough

> also. During these phases, he is also hyperactive, spacy and irritable. I

> have

> learned that treating for yeast and hypoglycemia help my son get over this

> hump.

>

> Do you think it's possible your son has hypoglycemia, and that what he is

> eating is not properly getting into his bloodstream? It was suggested that I

> give

> my son chromium for hypoglycemia, but he reacted poorly to chromium.

> However,

> when he gets these hunger splurges, I give him some vanadium, and this seems

> to help him metabolize his glucose.

>

> Just " food " for thought,

> Debbie

>

>

>

[Guest guest]

Jill,

I can totally relate! When my son first regressed his appetite went

totally through the roof. It was so hard to take him anywhere because

even though I fed him huge amounts he would try to take food from

other people when he was done. This huge appetite just got worse on

SCD and it was all super-healthy food we were feeding him. I remember

we would cook him 6 pounds of turkey and he would eat it all in 24

hours along with lots of other food. He would wake up in the middle

of the night screaming for food. A typical snack would be 10 large

carrots or 6 large zuccini and he still wanted more. He was only 2.5

years old. He would run and lie down in front of the fridge any chace

he got and just scream. His weight remained normal so it was a huge

mystery where it was all going. Someone suggested he might have a

tapeworm though now I don't think this was the case. While looking

into how to get rid of the hypothetical tapeworm though I spoke to an

ayurvedic specialist who said that we should give him 1 clove of raw

garlic per day for exactly one week and that would kill anything.

This caused severe headbanging and no improvement in autistic symptoms

but at the end of the week his appetite reduced to more manageable

levels. My son's appetite has gone up and down since then. It is

still high but closer to what a child his age should eat.

I honestly try to distract him after meals because me and my husband

became exhausted from all the cooking.

I eventually went off SCD because it made him worse and included

things that were easier as snacks in small quantities - pumpkin seeds

(high in zinc), rice crackers. I am also worried about giving him too

much of something that might be bad for him in some way.

With respect to his throat hurting, I took capryllic acid capsules

before and they caused severe pain in my eosophagus. Do you think he

is not tolerating the Caprystatin?

Good luck,

Hope

> Hi,

> I know that many ASD kids have huge appetites, but my 3 year old is

always hungry. I

> don't know what to feed him. I feed him very healthy food, mostly

organic, but I don't want

> to give too much protein or too much starch or any fruit other than

pears, but what does

> that leave? Since he wants to eat so much, he does end up getting a

lot of carbs and

> protein.

>

> Typical meal:

>

> Millet (or quinoa, buckwheat, rice, teff) He'll eat a cup and a

half or two a day

> Potatoes or sweet potatoes or winter squash He'll eat a ton of

these too

> Brocolli or collards or cauliflower etc Tons

> Chicken or turkey usually, sometimes lamb Ditto, as much as I'll

give him

> (or legumes)

>

> He eats almost every 2 hours. He rarely leaves food behind on the

plate.

>

> He tells me his throat hurts (every day), and his stomach (like his

intestines) too.

> Sometimes he lies on the floor, but not like he used to. He has

been on caprystatin for

> awhile. I don't want to get him scoped, don't think I'd survive it.

>

> Ideas?

> Jill

[Guest guest]

Hi,

Thanks for writing. I am so glad that your son has done so well! Always keeps

me going,

when I hear these tales.

I am petrified of anethesia and its possible aftereffects. That is my problem.

Esp. when it

comes to my son. Since I'm chemically sensitive, I've always been told that

being put to

sleep would seriously be bad for me, slow the detox pathways, etc.

I wonder if my son's sore throat is related to possible esophogeal inflammation.

So what else did you use besides secretin to help him?

Thanks so much!

Jill

> > I surely don't know if your son's appetite is related to my son's appetite

> > issues, but my son occasionally goes through stages where he can't eat

> > enough

> > also. During these phases, he is also hyperactive, spacy and irritable. I

> > have

> > learned that treating for yeast and hypoglycemia help my son get over this

> > hump.

> >

> > Do you think it's possible your son has hypoglycemia, and that what he is

> > eating is not properly getting into his bloodstream? It was suggested that I

> > give

> > my son chromium for hypoglycemia, but he reacted poorly to chromium.

> > However,

> > when he gets these hunger splurges, I give him some vanadium, and this seems

> > to help him metabolize his glucose.

> >

> > Just " food " for thought,

> > Debbie

> >

> >

> >

[Guest guest]

Hi Hope,

My son has always had a huge appetite, and never clearly regressed. I did

breastfeed him

without solids for a year, and have always wondered if that prevented him from

receiving

adequate nutrition, thus contributing to the ASD probs, and detox issues.

He has never loitered around the frig really.

He tests negative for yeast in the OAT and CDSA, though we're about to do a new

one. He

has tested for bacteria which as I said, we've been treating with Caprystatin.

I stopped the

Caprystatin yesterday. I don't remember if the throat stuff preceded the

Caprystatin, but

agree that this could be the throat culprit. Unless it's reflux or lyme...oh

this stuff makes

me so tired and sad.

Thank you!

Jill

> > Hi,

> > I know that many ASD kids have huge appetites, but my 3 year old is

> always hungry. I

> > don't know what to feed him. I feed him very healthy food, mostly

> organic, but I don't want

> > to give too much protein or too much starch or any fruit other than

> pears, but what does

> > that leave? Since he wants to eat so much, he does end up getting a

> lot of carbs and

> > protein.

> >

> > Typical meal:

> >

> > Millet (or quinoa, buckwheat, rice, teff) He'll eat a cup and a

> half or two a day

> > Potatoes or sweet potatoes or winter squash He'll eat a ton of

> these too

> > Brocolli or collards or cauliflower etc Tons

> > Chicken or turkey usually, sometimes lamb Ditto, as much as I'll

> give him

> > (or legumes)

> >

> > He eats almost every 2 hours. He rarely leaves food behind on the

> plate.

> >

> > He tells me his throat hurts (every day), and his stomach (like his

> intestines) too.

> > Sometimes he lies on the floor, but not like he used to. He has

> been on caprystatin for

> > awhile. I don't want to get him scoped, don't think I'd survive it.

> >

> > Ideas?

> > Jill