Re: Update on UCSD otoneurologist: A new splatter approach to research

[Guest guest]

Excellent excellent excellent!!Good job Adah. I know the emoticon :-DHeidi(also in San Diego)Sent from my iPhone

Here's the story so far (quickly)

About 9 months ago, Husband and I went to UCSD (research and medicine) to an otoneurologist at $250 per visit. It looked like he was eventually understanding it. We agreed that he would start by consulting with a synesthesia "expert" he knows but has still been unable to contact him(?!) Turns out the otoneurologist is not so much good for misophonia research. BUT UCSD has a research facility. So I kept on emailing him research ideas and papers I'd read on MedPage. AND Kept On Emailing And Kept On Emailing.

About 2 months ago, I emailed him the study done by one of his colleagues who found that autistic brains have more neurons than "normal" brains. I wrote to him that I know that autism may have a genetic link (Fragile X) and assuming that Misophonia has a genetic link and knowing that rodent brains/oto-systems are very much like human's (maturity is 6 to 8 days post-gestation and includes a neuronal die-off which would explain human average age of onset) I asked him if he would discuss Misophonia with his colleague.

At this point I do not care what the research is called, I want it to start!

I did not hear from him. Then I read the post here about the recent look into the Synesthetic brain (THANK YOU for posting that) and it's relation to an "overactive" state. I sent that bit to the otoneuro guy and asked if Synesthesia may also be the result of too many neurons due to a die-off failure in development. And asked him again if he'd been able to contact the autism guy.

HE DID!!!! I haven't been this hopeful in many many months. They will get together after the first of the year.

PS: He thanked me for my persistence. I don't know the emoticon for that . . .

[Guest guest]

Thanks for your persistence. I'll keep my fingers crossed as well.

Adah- You are AWESOME! I know we will get the research we need and thanks to persistent people like you, hopefully really soon! I’ll be praying that their meeting is enlightening and successful. Thanks!!! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Heidi SalernoSent: Monday, December 26, 2011 2:42 AMTo: Soundsensitivity Subject: Re: Update on UCSD otoneurologist: A new "splatter" approach to research Excellent excellent excellent!!Good job Adah. I know the emoticon :-DHeidi(also in San Diego)Sent from my iPhone Here's the story so far (quickly)About 9 months ago, Husband and I went to UCSD (research and medicine) to an otoneurologist at $250 per visit. It looked like he was eventually understanding it. We agreed that he would start by consulting with a synesthesia "expert" he knows but has still been unable to contact him(?!) Turns out the otoneurologist is not so much good for misophonia research. BUT UCSD has a research facility. So I kept on emailing him research ideas and papers I'd read on MedPage. AND Kept On Emailing And Kept On Emailing. About 2 months ago, I emailed him the study done by one of his colleagues who found that autistic brains have more neurons than "normal" brains. I wrote to him that I know that autism may have a genetic link (Fragile X) and assuming that Misophonia has a genetic link and knowing that rodent brains/oto-systems are very much like human's (maturity is 6 to 8 days post-gestation and includes a neuronal die-off which would explain human average age of onset) I asked him if he would discuss Misophonia with his colleague. At this point I do not care what the research is called, I want it to start!I did not hear from him. Then I read the post here about the recent look into the Synesthetic brain (THANK YOU for posting that) and it's relation to an "overactive" state. I sent that bit to the otoneuro guy and asked if Synesthesia may also be the result of too many neurons due to a die-off failure in development. And asked him again if he'd been able to contact the autism guy.HE DID!!!! I haven't been this hopeful in many many months. They will get together after the first of the year.PS: He thanked me for my persistence. I don't know the emoticon for that . . .