Re: videos of my seizures OT

[Guest guest]

Hi Connie,I haven't watched the video yet, but there have been several members of this group who have suffered from seizures.  If I remember correctly, every time, it was caused by an overload of toxins.  This would make sense with you also, if  you started flagyl and it killed a bunch of stuff and your body got overloaded with die-off and toxins it may have caused these seizures. Everyone's seizure threshold is different.

Their remedies were always to stop the killing and detox, detox, detox.  I think everyone that had this problem and thoroughly detox was able to stop their seizures.  Then start kill slowly.I'm sorry you are going through this, it must be very difficult for you and also for your husband to watch.

Those who use abx are welcome here, but please try and remember that we are a " Lyme and Rife " group not a " Lyme and Abx " group. The Mainstream focus on treating Lyme is with abx - which often fails.  Doc's put their license at risk discussing alternative options (if they even know about them.)  There is a lot of info out there on abx usage.  Our focus is to discuss other treatments - please understand.

The reasons many chose not to use abx are plenty: abx carry many side effects - some permanent and devastating, abx will always contribute to increased candida problems, and abx will cause Lyme to encyst (and one spiro will make one cyst, but when that one cyst opens up it will be 4-6 spiros). Pulsing may or may not work. For chronic (late stage) Lyme they have not been proven effective.

ABX - are usually always recommended if you can start them within 3 days (to 4 months - depending on opinion) of being bit.  Hope this makes sense and I hope you start feeling better,

 

If you go to YouTube and put in momofyorkies it should bring up 3 videos. None of them are very clear since they were made with a cell phone.Hubby posted them in hopes it might help someone.

 

I saw Dr. J on Thursday and I really like him, this was my second appt. with them. I've had 16 seizures since lastThursday and one lasted an hour. It was the one in the video where hubby is holding my feet.

 

The flagyl is what caused it and I only took it for2 days. This round of treatment he has me taking it only 1 day. I really feel he knows what he's doing. That gives me so much hope. I don't start my new protocol till Monday. I do get ringers lacate on my days off of abx.He pulses the ABX and I feel thats the best way.

 

I know I have't been around much but it seems like taking ABX and not doing rife that I shouldn't be here. Sometimes ABX gets put down and that is very discouraging to me.

 

The only reason I'm posting this is that not everyone recognizes these as seizures. I posted them on lymenet and a few said now they know what's going on. Dr. J says they are def. seizures even though they didn't show up on the EEG.

 

They adjusted my seizure meds so hopefully that will help. I'm having to use a wheelchair as when I'm up even a few minutes I will have one. I had one in his office. This is so embarrassing  to do in front of anyone. Hopefully  the seizures will calm down soon.

 

Take care,-- Connie

[Guest guest]

Hi Connie,I haven't watched the video yet, but there have been several members of this group who have suffered from seizures.  If I remember correctly, every time, it was caused by an overload of toxins.  This would make sense with you also, if  you started flagyl and it killed a bunch of stuff and your body got overloaded with die-off and toxins it may have caused these seizures. Everyone's seizure threshold is different.

Their remedies were always to stop the killing and detox, detox, detox.  I think everyone that had this problem and thoroughly detox was able to stop their seizures.  Then start kill slowly.I'm sorry you are going through this, it must be very difficult for you and also for your husband to watch.

Those who use abx are welcome here, but please try and remember that we are a " Lyme and Rife " group not a " Lyme and Abx " group. The Mainstream focus on treating Lyme is with abx - which often fails.  Doc's put their license at risk discussing alternative options (if they even know about them.)  There is a lot of info out there on abx usage.  Our focus is to discuss other treatments - please understand.

The reasons many chose not to use abx are plenty: abx carry many side effects - some permanent and devastating, abx will always contribute to increased candida problems, and abx will cause Lyme to encyst (and one spiro will make one cyst, but when that one cyst opens up it will be 4-6 spiros). Pulsing may or may not work. For chronic (late stage) Lyme they have not been proven effective.

ABX - are usually always recommended if you can start them within 3 days (to 4 months - depending on opinion) of being bit.  Hope this makes sense and I hope you start feeling better,

 

If you go to YouTube and put in momofyorkies it should bring up 3 videos. None of them are very clear since they were made with a cell phone.Hubby posted them in hopes it might help someone.

 

I saw Dr. J on Thursday and I really like him, this was my second appt. with them. I've had 16 seizures since lastThursday and one lasted an hour. It was the one in the video where hubby is holding my feet.

 

The flagyl is what caused it and I only took it for2 days. This round of treatment he has me taking it only 1 day. I really feel he knows what he's doing. That gives me so much hope. I don't start my new protocol till Monday. I do get ringers lacate on my days off of abx.He pulses the ABX and I feel thats the best way.

 

I know I have't been around much but it seems like taking ABX and not doing rife that I shouldn't be here. Sometimes ABX gets put down and that is very discouraging to me.

 

The only reason I'm posting this is that not everyone recognizes these as seizures. I posted them on lymenet and a few said now they know what's going on. Dr. J says they are def. seizures even though they didn't show up on the EEG.

 

They adjusted my seizure meds so hopefully that will help. I'm having to use a wheelchair as when I'm up even a few minutes I will have one. I had one in his office. This is so embarrassing  to do in front of anyone. Hopefully  the seizures will calm down soon.

 

Take care,-- Connie

[Guest guest]

HI Connie,I just watched the videos.  How my heart aches for you.  Have you been detoxing?  Where are your mineral levels, especially magnesium? I'm also wondering about your ammonia levels. Do you need us all to post our best easiest ideas for detox and reducing ammonia?

My best detox has been green water:2 cups of DISTILLED water (must be distilled)1 cup ORGANIC greens (lettuce, celery, kale, collard greens, broccoli, spinach, -not cilantro as it is a chelator- etc)

Put in blender, blend a few second until chunky.  Strain and drink 1 cup mid morning on an empty stomach (put rest in fridge).  Mid afternoon drink the second strained glass on an empty stomach (30 minutes before a meal).

This will pull 20x the toxins from your system w/o really chelating.  Chelating maybe too strong for you right now, so you might think of focusing only on binders).Lots of fiber, cholestyramine, activated charcoal, bentonite clay or French green clay are gentle detox agents as they pretty much just grab what is in the intestine. And of course lots of good water!

Then down the road you might look into stronger detoxing/chelating agents such as adding chlorella with your green water (I swallow the pills).Other people have had great luck with pinella, pale spike lobelia, burbur, etc.

I am not sure on the ammonia issue because I haven't addressed it.The green water is so easy, and I have found it EXTREMELY effective.  I drank the amount above for a week or two, but now I drink 2 cups in the morning and 2 cups in the afternoon.  I purchase my greens at the grocery store, wash them and keep them in bowl in the refrigerator.  I also keep my distilled water in the fridge.  If you want, you can add a slice of organic lemon to the mixture. This is very inexpensive - even with organic veggies (I usually use organic celery $1.50 and a bag of organic romaine $3.00 and one other fresh looking organic green) they last 5-7 days.

Hang in there,

Hi Connie,I haven't watched the video yet, but there have been several members of this group who have suffered from seizures.  If I remember correctly, every time, it was caused by an overload of toxins.  This would make sense with you also, if  you started flagyl and it killed a bunch of stuff and your body got overloaded with die-off and toxins it may have caused these seizures. Everyone's seizure threshold is different.

Their remedies were always to stop the killing and detox, detox, detox.  I think everyone that had this problem and thoroughly detox was able to stop their seizures.  Then start kill slowly.I'm sorry you are going through this, it must be very difficult for you and also for your husband to watch.

Those who use abx are welcome here, but please try and remember that we are a " Lyme and Rife " group not a " Lyme and Abx " group. The Mainstream focus on treating Lyme is with abx - which often fails.  Doc's put their license at risk discussing alternative options (if they even know about them.)  There is a lot of info out there on abx usage.  Our focus is to discuss other treatments - please understand.

The reasons many chose not to use abx are plenty: abx carry many side effects - some permanent and devastating, abx will always contribute to increased candida problems, and abx will cause Lyme to encyst (and one spiro will make one cyst, but when that one cyst opens up it will be 4-6 spiros). Pulsing may or may not work. For chronic (late stage) Lyme they have not been proven effective.

ABX - are usually always recommended if you can start them within 3 days (to 4 months - depending on opinion) of being bit.  Hope this makes sense and I hope you start feeling better,

 

If you go to YouTube and put in momofyorkies it should bring up 3 videos. None of them are very clear since they were made with a cell phone.Hubby posted them in hopes it might help someone.

 

I saw Dr. J on Thursday and I really like him, this was my second appt. with them. I've had 16 seizures since lastThursday and one lasted an hour. It was the one in the video where hubby is holding my feet.

 

The flagyl is what caused it and I only took it for2 days. This round of treatment he has me taking it only 1 day. I really feel he knows what he's doing. That gives me so much hope. I don't start my new protocol till Monday. I do get ringers lacate on my days off of abx.He pulses the ABX and I feel thats the best way.

 

I know I have't been around much but it seems like taking ABX and not doing rife that I shouldn't be here. Sometimes ABX gets put down and that is very discouraging to me.

 

The only reason I'm posting this is that not everyone recognizes these as seizures. I posted them on lymenet and a few said now they know what's going on. Dr. J says they are def. seizures even though they didn't show up on the EEG.

 

They adjusted my seizure meds so hopefully that will help. I'm having to use a wheelchair as when I'm up even a few minutes I will have one. I had one in his office. This is so embarrassing  to do in front of anyone. Hopefully  the seizures will calm down soon.

 

Take care,-- Connie

[Guest guest]

Hi Connie,

Nice to see you posting again!! Sorry to hear about the seizures though brought

on by Flagyl, I think this is nasty stuff, I took it and would not want it

again....

Take care,

Jim

>

> If you go to YouTube and put in momofyorkies it should bring up 3 videos.

> None of them are very clear since they were made with a cell phone.Hubby

> posted them in hopes it might help someone.

>

> I saw Dr. J on Thursday and I really like him, this was my second appt. with

> them. I've had 16 seizures since lastThursday and one lasted an hour. It was

> the one in the video where hubby is holding my feet.

>

> The flagyl is what caused it and I only took it for2 days. This round of

> treatment he has me taking it only 1 day. I really feel he knows what he's

> doing. That gives me so much hope. I don't start my new protocol till

> Monday. I do get ringers lacate on my days off of abx.He pulses the ABX and

> I feel thats the best way.

>

> I know I have't been around much but it seems like taking ABX and not doing

> rife that I shouldn't be here. Sometimes ABX gets put down and that is very

> discouraging to me.

>

> The only reason I'm posting this is that not everyone recognizes these as

> seizures. I posted them on lymenet and a few said now they know what's going

> on. Dr. J says they are def. seizures even though they didn't show up on the

> EEG.

>

> They adjusted my seizure meds so hopefully that will help. I'm having to use

> a wheelchair as when I'm up even a few minutes I will have one. I had one in

> his office. This is so embarrassing to do in front of anyone. Hopefully

> the seizures will calm down soon.

>

> Take care,

>

> --

> Connie

>

[Guest guest]

Thanks for you input. I really do appreciate it. When the seizures started I wasn't on any killing protocol other than a very low dose of salt/C. I really don't think it was a build up of toxins as I was still doing detox.

 

I've been seeing Dr. J since May and just now was able to start abx 3 weeks ago. They did all kinds of tests on me before they would even start. They did 53 blood tests and I saw a neurologist, cardiologist, eye dr and hepatologist for a liver biopsy. They wouldn't even think of starting abx before all this was done. I do know it made me feel much better about taking them. I had several things out of whack.

 

The abx in the hospital in April is what calmed the seizures down so I didn't know any other way to go. I swore I would never take them again. I didn't have time to wait on anything else. I was very ill and my family told me later they thought I was going to die.

 

Dr. J has me on a lot of supplements and I asked if it was enough to detox and he said yes. I'm doing quite a bit of stuff. He told me what to take burbur when I have a seizure. I was already using it as a detox.

 

So if I decide to get a rife, which I'd like to do for my family, I will be back. I do appreciate all the help that has been given here. You all are a great bunch of people. I still might pop in once in a while to let everyone know how things are going.

 

Thanks to you all,

Connie

HI Connie,I just watched the videos.  How my heart aches for you.  Have you been detoxing?  Where are your mineral levels, especially magnesium? I'm also wondering about your ammonia levels.

Do you need us all to post our best easiest ideas for detox and reducing ammonia? My best detox has been green water:2 cups of DISTILLED water (must be distilled)1 cup ORGANIC greens (lettuce, celery, kale, collard greens, broccoli, spinach, -not cilantro as it is a chelator- etc)

Put in blender, blend a few second until chunky.  Strain and drink 1 cup mid morning on an empty stomach (put rest in fridge).  Mid afternoon drink the second strained glass on an empty stomach (30 minutes before a meal).

This will pull 20x the toxins from your system w/o really chelating.  Chelating maybe too strong for you right now, so you might think of focusing only on binders).Lots of fiber, cholestyramine, activated charcoal, bentonite clay or French green clay are gentle detox agents as they pretty much just grab what is in the intestine. And of course lots of good water!

Then down the road you might look into stronger detoxing/chelating agents such as adding chlorella with your green water (I swallow the pills).Other people have had great luck with pinella, pale spike lobelia, burbur, etc.

I am not sure on the ammonia issue because I haven't addressed it.The green water is so easy, and I have found it EXTREMELY effective.  I drank the amount above for a week or two, but now I drink 2 cups in the morning and 2 cups in the afternoon.  I purchase my greens at the grocery store, wash them and keep them in bowl in the refrigerator.  I also keep my distilled water in the fridge.  If you want, you can add a slice of organic lemon to the mixture. This is very inexpensive - even with organic veggies (I usually use organic celery $1.50 and a bag of organic romaine $3.00 and one other fresh looking organic green) they last 5-7 days.

Hang in there,

Hi Connie,I haven't watched the video yet, but there have been several members of this group who have suffered from seizures.  If I remember correctly, every time, it was caused by an overload of toxins.  This would make sense with you also, if  you started flagyl and it killed a bunch of stuff and your body got overloaded with die-off and toxins it may have caused these seizures. Everyone's seizure threshold is different.

Their remedies were always to stop the killing and detox, detox, detox.  I think everyone that had this problem and thoroughly detox was able to stop their seizures.  Then start kill slowly.I'm sorry you are going through this, it must be very difficult for you and also for your husband to watch.

Those who use abx are welcome here, but please try and remember that we are a " Lyme and Rife " group not a " Lyme and Abx " group. The Mainstream focus on treating Lyme is with abx - which often fails.  Doc's put their license at risk discussing alternative options (if they even know about them.)  There is a lot of info out there on abx usage.  Our focus is to discuss other treatments - please understand.

The reasons many chose not to use abx are plenty: abx carry many side effects - some permanent and devastating, abx will always contribute to increased candida problems, and abx will cause Lyme to encyst (and one spiro will make one cyst, but when that one cyst opens up it will be 4-6 spiros). Pulsing may or may not work. For chronic (late stage) Lyme they have not been proven effective.

ABX - are usually always recommended if you can start them within 3 days (to 4 months - depending on opinion) of being bit.  Hope this makes sense and I hope you start feeling better,

 

If you go to YouTube and put in momofyorkies it should bring up 3 videos. None of them are very clear since they were made with a cell phone.Hubby posted them in hopes it might help someone.

 

I saw Dr. J on Thursday and I really like him, this was my second appt. with them. I've had 16 seizures since lastThursday and one lasted an hour. It was the one in the video where hubby is holding my feet.

 

The flagyl is what caused it and I only took it for2 days. This round of treatment he has me taking it only 1 day. I really feel he knows what he's doing. That gives me so much hope. I don't start my new protocol till Monday. I do get ringers lacate on my days off of abx.He pulses the ABX and I feel thats the best way.

 

I know I have't been around much but it seems like taking ABX and not doing rife that I shouldn't be here. Sometimes ABX gets put down and that is very discouraging to me.

 

The only reason I'm posting this is that not everyone recognizes these as seizures. I posted them on lymenet and a few said now they know what's going on. Dr. J says they are def. seizures even though they didn't show up on the EEG.

 

They adjusted my seizure meds so hopefully that will help. I'm having to use a wheelchair as when I'm up even a few minutes I will have one. I had one in his office. This is so embarrassing  to do in front of anyone. Hopefully  the seizures will calm down soon.

 

Take care,-- Connie

-- Connie

[Guest guest]

Thanks for you input. I really do appreciate it. When the seizures started I wasn't on any killing protocol other than a very low dose of salt/C. I really don't think it was a build up of toxins as I was still doing detox.

 

I've been seeing Dr. J since May and just now was able to start abx 3 weeks ago. They did all kinds of tests on me before they would even start. They did 53 blood tests and I saw a neurologist, cardiologist, eye dr and hepatologist for a liver biopsy. They wouldn't even think of starting abx before all this was done. I do know it made me feel much better about taking them. I had several things out of whack.

 

The abx in the hospital in April is what calmed the seizures down so I didn't know any other way to go. I swore I would never take them again. I didn't have time to wait on anything else. I was very ill and my family told me later they thought I was going to die.

 

Dr. J has me on a lot of supplements and I asked if it was enough to detox and he said yes. I'm doing quite a bit of stuff. He told me what to take burbur when I have a seizure. I was already using it as a detox.

 

So if I decide to get a rife, which I'd like to do for my family, I will be back. I do appreciate all the help that has been given here. You all are a great bunch of people. I still might pop in once in a while to let everyone know how things are going.

 

Thanks to you all,

Connie

HI Connie,I just watched the videos.  How my heart aches for you.  Have you been detoxing?  Where are your mineral levels, especially magnesium? I'm also wondering about your ammonia levels.

Do you need us all to post our best easiest ideas for detox and reducing ammonia? My best detox has been green water:2 cups of DISTILLED water (must be distilled)1 cup ORGANIC greens (lettuce, celery, kale, collard greens, broccoli, spinach, -not cilantro as it is a chelator- etc)

Put in blender, blend a few second until chunky.  Strain and drink 1 cup mid morning on an empty stomach (put rest in fridge).  Mid afternoon drink the second strained glass on an empty stomach (30 minutes before a meal).

This will pull 20x the toxins from your system w/o really chelating.  Chelating maybe too strong for you right now, so you might think of focusing only on binders).Lots of fiber, cholestyramine, activated charcoal, bentonite clay or French green clay are gentle detox agents as they pretty much just grab what is in the intestine. And of course lots of good water!

Then down the road you might look into stronger detoxing/chelating agents such as adding chlorella with your green water (I swallow the pills).Other people have had great luck with pinella, pale spike lobelia, burbur, etc.

I am not sure on the ammonia issue because I haven't addressed it.The green water is so easy, and I have found it EXTREMELY effective.  I drank the amount above for a week or two, but now I drink 2 cups in the morning and 2 cups in the afternoon.  I purchase my greens at the grocery store, wash them and keep them in bowl in the refrigerator.  I also keep my distilled water in the fridge.  If you want, you can add a slice of organic lemon to the mixture. This is very inexpensive - even with organic veggies (I usually use organic celery $1.50 and a bag of organic romaine $3.00 and one other fresh looking organic green) they last 5-7 days.

Hang in there,

Hi Connie,I haven't watched the video yet, but there have been several members of this group who have suffered from seizures.  If I remember correctly, every time, it was caused by an overload of toxins.  This would make sense with you also, if  you started flagyl and it killed a bunch of stuff and your body got overloaded with die-off and toxins it may have caused these seizures. Everyone's seizure threshold is different.

Their remedies were always to stop the killing and detox, detox, detox.  I think everyone that had this problem and thoroughly detox was able to stop their seizures.  Then start kill slowly.I'm sorry you are going through this, it must be very difficult for you and also for your husband to watch.

Those who use abx are welcome here, but please try and remember that we are a " Lyme and Rife " group not a " Lyme and Abx " group. The Mainstream focus on treating Lyme is with abx - which often fails.  Doc's put their license at risk discussing alternative options (if they even know about them.)  There is a lot of info out there on abx usage.  Our focus is to discuss other treatments - please understand.

The reasons many chose not to use abx are plenty: abx carry many side effects - some permanent and devastating, abx will always contribute to increased candida problems, and abx will cause Lyme to encyst (and one spiro will make one cyst, but when that one cyst opens up it will be 4-6 spiros). Pulsing may or may not work. For chronic (late stage) Lyme they have not been proven effective.

ABX - are usually always recommended if you can start them within 3 days (to 4 months - depending on opinion) of being bit.  Hope this makes sense and I hope you start feeling better,

 

If you go to YouTube and put in momofyorkies it should bring up 3 videos. None of them are very clear since they were made with a cell phone.Hubby posted them in hopes it might help someone.

 

I saw Dr. J on Thursday and I really like him, this was my second appt. with them. I've had 16 seizures since lastThursday and one lasted an hour. It was the one in the video where hubby is holding my feet.

 

The flagyl is what caused it and I only took it for2 days. This round of treatment he has me taking it only 1 day. I really feel he knows what he's doing. That gives me so much hope. I don't start my new protocol till Monday. I do get ringers lacate on my days off of abx.He pulses the ABX and I feel thats the best way.

 

I know I have't been around much but it seems like taking ABX and not doing rife that I shouldn't be here. Sometimes ABX gets put down and that is very discouraging to me.

 

The only reason I'm posting this is that not everyone recognizes these as seizures. I posted them on lymenet and a few said now they know what's going on. Dr. J says they are def. seizures even though they didn't show up on the EEG.

 

They adjusted my seizure meds so hopefully that will help. I'm having to use a wheelchair as when I'm up even a few minutes I will have one. I had one in his office. This is so embarrassing  to do in front of anyone. Hopefully  the seizures will calm down soon.

 

Take care,-- Connie

-- Connie