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Re: Re: HELP!!!!!!!!! PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!

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Hi na,This condition made high school really tough for me, too.  I know that ear plugs are not a perfect solution because they make it harder to hear the teacher, but they still can help a little.  In college I started using them as needed (so if there were triggering noises on my right I just plugged that ear).  Also, sitting near the front corner of the room helped me a lot, since it limited the directions that triggering noises could come at me (and it also makes it easier to hear the teacher even with ear plugs).  I don't know if you have assigned seating or not, but I think most teachers would be pretty receptive to placing you near the front of the class to help accommodate your condition.  Beyond that, do your best to get lots of rest and exercise, meditate or just practice deep breathing, and try not to get too tense about dreading your triggers.  I know that the more I'm anticipating them, the worse they get to me.  Best of luck!

 

thanks u all for the help and unfortanlty i can't have my Ipod at school and if i wear earplugs than i can't hear the teacher i also don't have a school physiologist near by and its has been efecting my learning at school well tomorrow was my first day and it was ghorible and today was worse i have thought about ear generators but idk who to see about that or how much it costs :( i also can't do homeschooling cuz my parents work and they don't offer online home schooling where i live

>

> Hi brianna. I'm 16 and have this too. I'm really dreading going back to school next week. But just take it day by day. Plug your ears or take your I pod to school if you can. You could talk to your school counselor if you want to. :). Good luck!

> Sent from my BlackBerry Smartphone provided by Alltel

>

> HELP!!!!!!!!! PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!

>

> im 13 years and has this syndrome and is barly serviving at school with all the sounds does anyone know what do to do school to help me servive class when ppl are contantly making the sounds that im sensitive too or doesn anyone know what therepy i can do to help with this syndrome and if i don't get help then idk what to do if it has to come to that

>

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Another thing I do is to try and sit in the back. Becuse then no one can sit behind you nd be annoying Sent from my BlackBerry Smartphone provided by AlltelSender: Soundsensitivity Date: Tue, 17 Aug 2010 23:33:11 -0000To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: HELP!!!!!!!!! PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!! thanks u all for the help and unfortanlty i can't have my Ipod at school and if i wear earplugs than i can't hear the teacher i also don't have a school physiologist near by and its has been efecting my learning at school well tomorrow was my first day and it was ghorible and today was worse i have thought about ear generators but idk who to see about that or how much it costs :( i also can't do homeschooling cuz my parents work and they don't offer online home schooling where i live>> Hi brianna. I'm 16 and have this too. I'm really dreading going back to school next week. But just take it day by day. Plug your ears or take your I pod to school if you can. You could talk to your school counselor if you want to. :). Good luck!> Sent from my BlackBerry Smartphone provided by Alltel> > HELP!!!!!!!!! PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!> > im 13 years and has this syndrome and is barly serviving at school with all the sounds does anyone know what do to do school to help me servive class when ppl are contantly making the sounds that im sensitive too or doesn anyone know what therepy i can do to help with this syndrome and if i don't get help then idk what to do if it has to come to that>

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Hi na,Sorry to hear you are having such a hard time with school. Have you talked to your parents about it? Maybe it would be helpful if you showed them these webpages so they can understand what you struggling with. Also they might be able to help with getting permission with wearing the ipod in class. I hope you will show them the webpages. : ) http://audiology.advanceweb.com/Article/Selective-Sound-Sensitivity-Syndrome.aspxhttp://www.tinnitus-audiology.com/softsound.htmlFrom: na To: Soundsensitivity Sent: Tue, August 17, 2010 6:33:11 PMSubject: Re: HELP!!!!!!!!! PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!

thanks u all for the help and unfortanlty i can't have my Ipod at school and if i wear earplugs than i can't hear the teacher i also don't have a school physiologist near by and its has been efecting my learning at school well tomorrow was my first day and it was ghorible and today was worse i have thought about ear generators but idk who to see about that or how much it costs :( i also can't do homeschooling cuz my parents work and they don't offer online home schooling where i live

>

> Hi brianna. I'm 16 and have this too. I'm really dreading going back to school next week. But just take it day by day. Plug your ears or take your I pod to school if you can. You could talk to your school counselor if you want to. :). Good luck!

> Sent from my BlackBerry Smartphone provided by Alltel

>

> HELP!!!!!!!!! PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!

>

> im 13 years and has this syndrome and is barly serviving at school with all the sounds does anyone know what do to do school to help me servive class when ppl are contantly making the sounds that im sensitive too or doesn anyone know what therepy i can do to help with this syndrome and if i don't get help then idk what to do if it has to come to that

>

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Hi na,

When I was in school, this condition did affect me too. I could have

been a much better student if I weren't battling sounds everyday as

well. I found writing to be my best subject because I could do most of

it at home by myself, where I had more control over the sounds around

me.

My suggestion for you, since you have to go to school, is to try and

sit as far back in your classroom as you can so the sounds are in front

of you and not behind. I found that when the sounds were in back of me,

then I would always be startled by them which would leave that weird

uncomfortable sensation in the back of my head and down my spine. Many

of us in this group also have visual discomfort in addition to the

sound sensitivity, so it might be hard having everyone sitting in front

of you, but do try and figure out what would be best for you.

If you have a school counselor go talk to them. If you don't have a

counselor, then talk to your principle. I know that

can seem daunting, but they have an obligation to do something as far

as I'm concerned. At lease

acknowledge your concern about not being able to focus on your

schoolwork because of the sound sensitivity. The more they are aware of

this condition, perhaps the more they'd be able to help you and maybe

other students suffering the same as you.

Take these websites with you, as a way to prove that this condition is

very real:

http://www.tinnitus-audiology.com/

http://www.tinnitus-audiology.com/resources.html -- This page has

additional websites and resources including a link to our Yahoo! Group.

Tell your counselor that you are a part of our group.

Remember that you aren't the only one out there dealing with this

everyday. Once I realized that (and that wasn't until much later in my

life) I have been able to be more up front with people about this

condition and how it affects me. Instead of trying to hide it and seem

normal. But don't go around telling the other students what you are

dealing with, many are still immature and not always kind to others.

But do talk to your school's counselor or principle, every middle

school and high school, should have one.

I regret that I did not do that. I felt that I had to endure this

problem and that I wasn't suppose to have it. I'm 33 today, and I now

finally have a therapist I see on a regular basis and she councils me

in finding ways to cope with this condition better and not feel so

depressed over it.

I really do wish you all the best, I've been where you are and I know

how much it sucks. All I can do now is share my experiences and try to

be helpful as best I can.

Take care,

Randall

thanks u all for the help and unfortanlty i can't have my Ipod at

school and if i wear earplugs than i can't hear the teacher i also

don't have a school physiologist near by and its has been efecting my

learning at school well tomorrow was my first day and it was ghorible

and today was worse i have thought about ear generators but idk who to

see about that or how much it costs :( i also can't do homeschooling

cuz my parents work and they don't offer online home schooling where i

live

>

> Hi brianna. I'm 16 and have this too. I'm really dreading going

back to school next week. But just take it day by day. Plug your ears

or take your I pod to school if you can. You could talk to your school

counselor if you want to. :). Good luck!

> Sent from my BlackBerry Smartphone provided by Alltel

>

> HELP!!!!!!!!! PLEASE HELP

ME!!!!!!!!!!!!!!!!!!!!!!!!

>

> im 13 years and has this syndrome and is barly serviving at school

with all the sounds does anyone know what do to do school to help me

servive class when ppl are contantly making the sounds that im

sensitive too or doesn anyone know what therepy i can do to help with

this syndrome and if i don't get help then idk what to do if it has to

come to that

>

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It's all about the coping mechanisms. Find what works for you. Some things that have worked for me:Sitting in a spot that, while not necessarily in back, minimizes my closeness to sources of noise.

MASKING- Take jolly ranchers or other hard candies. If you can't have candy, get breath mints. Nobody argues about breath mints. Chew on them very slowly, make noise. It will not only cover up the other sounds but it will relieve your physical pain and frustration.

Tap it out/write it out. I find that jiggly my foot or tapping my pencil against the desk also covers the sounds somewhat and helps dissipate all that pent up tension from hearing the sounds. THe sounds, to me, build up in your system like an electric static charge. You have to find your own way of letting that energy disperse out of you such as tapping or even writing in your notebook but making all your lines really heavy and dark. Scraping your pen against the paper and making your markings really thick will again help relieve the charge and also help with sounds. Throughout my college career, I tried to sit on the right hand side of the room so that nobody was on my right. This meant all the noises were on my left which freed to me to write with my right hand while tucking my left hand under my hair and plugging my ear with a finger.

Also, another great way that I survived- make a list of all the noises you hear that offend you. Then keep a tally of every time you hear it. Hear a noise, make a check by it. Keep count. It sounds silly but it worked really well for me. And, this sounds horrible, but on Mythbusters, they proved that swearing helps alleviate pain. So what I did was, as I kept count, I was writing not so nice words on my notebook. Now, I am NOT telling you to swear. BUT it IS good to write out your feelings. Write out things like THIS HURTS or THIS SUCKS or I can't wait to get out of here!! Doing things like this actually worked really well for me.

Also, and people might think you are spastic for this which is a price you must pay for sanity, I occasionally hit something. Like, every so often, pick up your back pack pretending your looking for something. Rummage around in it making enough noise to help mask for a few precious seconds then, none too gently, set it roughly back down on the floor. These are all great ways of secretly releasing that pent up negative energy which helps!!

GOOD LUCK!!!

Tammy

To: "Soundsensitivity " <Soundsensitivity >Sent: Wed, August 18, 2010 1:18:40 PMSubject: Re: Re: HELP!!!!!!!!! PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!

I'm so sorry your suffering You might consider going to the principal with your parents and making an Americans with Disability reasonable accomodation request that due to your misphonia no one should be able to chew gum in your classes. It's certainly worth a try. Just be positive and firm that it's your right. Don't waiver and you stand a better chance if getting your request granted. Good luck and the tan earplugs do help. I used them all through college. Sent from my iPhone

So sorry girl!

I tried to sit in the back rows when I could so people were not smacking their gum behind me, etc. Most important though were my neutral colored ear plugs. U can still hear the teacher but not every tiny other noise. They are cheap and sold at most pharmacies like rite aide, wal mart, etc.

GOOD LUCK!!!

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Wow! These seem like really good tips. I'll have to try some myself. Thanks, Tammy!

So sorry girl!

I tried to sit in the back rows when I could so people were not smacking their gum behind me, etc. Most important though were my neutral colored ear plugs. U can still hear the teacher but not every tiny other noise. They are cheap and sold at most pharmacies like rite aide, wal mart, etc.

GOOD LUCK!!!

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I still sit on the right side of rooms and plug my left ear with my knuckle under my hair almost everywhere I go. And yes in classes I would always have something in my mouth to make noise inmy head to cancel out the noises coming in my right ear. So interesting how we've all found similar ways to cope. It still blows my mind that I'm not the only person with this. Sent from my iPhone

It's all about the coping mechanisms. Find what works for you. Some things that have worked for me:Sitting in a spot that, while not necessarily in back, minimizes my closeness to sources of noise.

MASKING- Take jolly ranchers or other hard candies. If you can't have candy, get breath mints. Nobody argues about breath mints. Chew on them very slowly, make noise. It will not only cover up the other sounds but it will relieve your physical pain and frustration.

Tap it out/write it out. I find that jiggly my foot or tapping my pencil against the desk also covers the sounds somewhat and helps dissipate all that pent up tension from hearing the sounds. THe sounds, to me, build up in your system like an electric static charge. You have to find your own way of letting that energy disperse out of you such as tapping or even writing in your notebook but making all your lines really heavy and dark. Scraping your pen against the paper and making your markings really thick will again help relieve the charge and also help with sounds. Throughout my college career, I tried to sit on the right hand side of the room so that nobody was on my right. This meant all the noises were on my left which freed to me to write with my right hand while tucking my left hand under my hair and plugging my ear with a finger.

Also, another great way that I survived- make a list of all the noises you hear that offend you. Then keep a tally of every time you hear it. Hear a noise, make a check by it. Keep count. It sounds silly but it worked really well for me. And, this sounds horrible, but on Mythbusters, they proved that swearing helps alleviate pain. So what I did was, as I kept count, I was writing not so nice words on my notebook. Now, I am NOT telling you to swear. BUT it IS good to write out your feelings. Write out things like THIS HURTS or THIS SUCKS or I can't wait to get out of here!! Doing things like this actually worked really well for me.

Also, and people might think you are spastic for this which is a price you must pay for sanity, I occasionally hit something. Like, every so often, pick up your back pack pretending your looking for something. Rummage around in it making enough noise to help mask for a few precious seconds then, none too gently, set it roughly back down on the floor. These are all great ways of secretly releasing that pent up negative energy which helps!!

GOOD LUCK!!!

Tammy

To: "Soundsensitivity " <Soundsensitivity >Sent: Wed, August 18, 2010 1:18:40 PMSubject: Re: Re: HELP!!!!!!!!! PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!

I'm so sorry your suffering You might consider going to the principal with your parents and making an Americans with Disability reasonable accomodation request that due to your misphonia no one should be able to chew gum in your classes. It's certainly worth a try. Just be positive and firm that it's your right. Don't waiver and you stand a better chance if getting your request granted. Good luck and the tan earplugs do help. I used them all through college. Sent from my iPhone

So sorry girl!

I tried to sit in the back rows when I could so people were not smacking their gum behind me, etc. Most important though were my neutral colored ear plugs. U can still hear the teacher but not every tiny other noise. They are cheap and sold at most pharmacies like rite aide, wal mart, etc.

GOOD LUCK!!!

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I just finished grad school up last year and I always put thought into where I would sit in class. I'm left handed so I would try to sit so I could plug my right ear with my right hand and keep the wall to my left. I would also get to class early on the first day and watch to see wear the offending gum chewers would sit. If I could I would get up and move away from them. At one point, I was put into a group with a lady and she had been popping her gum the entire night. I finally just said "if we are going to work in a group, you are going to have to stop popping that gum or I will have to run screaming from the room." Kinda made it a joke (even though we all know that is how we feel). She tried to stop a little but it was such a habit she didn't even know she was doing it. Weeks later she started popping it and I turned and gave her a look and she mouthed "sorry" but kept it up. Of course I felt bad for giving her a dirty look but the stress and anxiety is soooo strong and overpowering. I'd leave class just mentally exhausted. I've never tried the hard candy trick but will be to see if that helps.

I still sit on the right side of rooms and plug my left ear with my knuckle under my hair almost everywhere I go. And yes in classes I would always have something in my mouth to make noise inmy head to cancel out the noises coming in my right ear. So interesting how we've all found similar ways to cope. It still blows my mind that I'm not the only person with this. Sent from my iPhone

It's all about the coping mechanisms. Find what works for you. Some things that have worked for me:Sitting in a spot that, while not necessarily in back, minimizes my closeness to sources of noise.

MASKING- Take jolly ranchers or other hard candies. If you can't have candy, get breath mints. Nobody argues about breath mints. Chew on them very slowly, make noise. It will not only cover up the other sounds but it will relieve your physical pain and frustration.

Tap it out/write it out. I find that jiggly my foot or tapping my pencil against the desk also covers the sounds somewhat and helps dissipate all that pent up tension from hearing the sounds. THe sounds, to me, build up in your system like an electric static charge. You have to find your own way of letting that energy disperse out of you such as tapping or even writing in your notebook but making all your lines really heavy and dark. Scraping your pen against the paper and making your markings really thick will again help relieve the charge and also help with sounds. Throughout my college career, I tried to sit on the right hand side of the room so that nobody was on my right. This meant all the noises were on my left which freed to me to write with my right hand while tucking my left hand under my hair and plugging my ear with a finger.

Also, another great way that I survived- make a list of all the noises you hear that offend you. Then keep a tally of every time you hear it. Hear a noise, make a check by it. Keep count. It sounds silly but it worked really well for me. And, this sounds horrible, but on Mythbusters, they proved that swearing helps alleviate pain. So what I did was, as I kept count, I was writing not so nice words on my notebook. Now, I am NOT telling you to swear. BUT it IS good to write out your feelings. Write out things like THIS HURTS or THIS SUCKS or I can't wait to get out of here!! Doing things like this actually worked really well for me.

Also, and people might think you are spastic for this which is a price you must pay for sanity, I occasionally hit something. Like, every so often, pick up your back pack pretending your looking for something. Rummage around in it making enough noise to help mask for a few precious seconds then, none too gently, set it roughly back down on the floor. These are all great ways of secretly releasing that pent up negative energy which helps!!

GOOD LUCK!!!

Tammy

To: "Soundsensitivity " <Soundsensitivity >Sent: Wed, August 18, 2010 1:18:40 PMSubject: Re: Re: HELP!!!!!!!!! PLEASE HELP ME!!!!!!!!!!!!!!!!!!!!!!!!

I'm so sorry your suffering You might consider going to the principal with your parents and making an Americans with Disability reasonable accomodation request that due to your misphonia no one should be able to chew gum in your classes. It's certainly worth a try. Just be positive and firm that it's your right. Don't waiver and you stand a better chance if getting your request granted. Good luck and the tan earplugs do help. I used them all through college. Sent from my iPhone

So sorry girl!I tried to sit in the back rows when I could so people were not smacking their gum behind me, etc. Most important though were my neutral colored ear plugs. U can still hear the teacher but not every tiny other noise. They are cheap and sold at most pharmacies like rite aide, wal mart, etc.GOOD LUCK!!!

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