Guest guest Posted December 24, 2011 Report Share Posted December 24, 2011 As I sit here alone on Christmas Eve, I watch the S.D. Chargers on t.v. playing ing Detroit. I love football, however prefer to be with family and friends to watch it. My daughter with Still's was going to come over and we were going to do our Christmas but she isn't feeling well. I'm not the greatest today either. I have to be up at my Dad's house by 9 a.m. ready to open gifts with the immediate family. I can never do enough to rest up for those kind of days, but I will try to enjoy every minute there is that is positive. My sister has her Husband's family over for Christmas Eve's, and usually she has our family over for Charger games. For some reason by brother gets to be invited but I am left out when it isn't just a regular game. So I'm a little sad. They don't recognize my or my daughter's illnesses. Nor do they have much compassion about what it's like to be isolalted and not have many friends because you cannot go out and socialize much. So I hope that one day she will realize that they leave me sitting home alone, with my thoughts and it's not ok. I would do anything for them. Somehow the family dynamics changed for the worse when my daughter and I quit working and now their philosophy is pretty much you don't pay, you don't play. I'm trying not to have my own private pitty party, but if I had a magic wand right now, I would use it!! Thanks to know that there is a group of people out there who I can let know my feelings, and there is Jesus Christ. He said he will never leave us alone or forsake us. Now, I need to remember, no over doing it. It may look like I am a lazy moocher, but I will not jump up after Christmas dinner and do dishes unless I feel some unexpected energy. I will not get sucked into drama that also zaps my energy. I will back away from situations which may potentially leed to craziness as being around my family, it is so posssible. I will plan on the day after Christmas as a rest day. If someone hurts my feelings, I will give it to God and not let it affect my illness. I will if I have to call it a day early and not feel guilty and just excuse myself, explain I'm not feeling well and leave to go home. Thos of you who pray, please pray for peace for the entire group, and some JOY! I need to find my own private joy because it doesn't come from others. It's a joy to have found new friends like you all. Thanks, for this group I am grateful! xoxo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2011 Report Share Posted December 24, 2011 ....I too am alone tonight and my birth family just don't get it either! But you are right in that you and I and others here have Jesus! I am praying for you tonight and into tomorrow! And I love football too! God bless you ! Merry Christmas! Larry Sent from my Verizon Wireless Phone ginabomp wrote: >As I sit here alone on Christmas Eve, I watch the S.D. Chargers on t.v. playing ing Detroit. I love football, however prefer to be with family and friends to watch it. My daughter with Still's was going to come over and we were going to do our Christmas but she isn't feeling well. I'm not the greatest today either. I have to be up at my Dad's house by 9 a.m. ready to open gifts with the immediate family. I can never do enough to rest up for those kind of days, but I will try to enjoy every minute there is that is positive. My sister has her Husband's family over for Christmas Eve's, and usually she has our family over for Charger games. For some reason by brother gets to be invited but I am left out when it isn't just a regular game. So I'm a little sad. They don't recognize my or my daughter's illnesses. Nor do they have much compassion about what it's like to be isolalted and not have many friends because you cannot go out and socialize much. So I hope that one day she will realize that they leave me sitting home alone, with my thoughts and it's not ok. I would do anything for them. Somehow the family dynamics changed for the worse when my daughter and I quit working and now their philosophy is pretty much you don't pay, you don't play. I'm trying not to have my own private pitty party, but if I had a magic wand right now, I would use it!! Thanks to know that there is a group of people out there who I can let know my feelings, and there is Jesus Christ. He said he will never leave us alone or forsake us. Now, I need to remember, no over doing it. It may look like I am a lazy moocher, but I will not jump up after Christmas dinner and do dishes unless I feel some unexpected energy. I will not get sucked into drama that also zaps my energy. I will back away from situations which may potentially leed to craziness as being around my family, it is so posssible. I will plan on the day after Christmas as a rest day. If someone hurts my feelings, I will give it to God and not let it affect my illness. I will if I have to call it a day early and not feel guilty and just excuse myself, explain I'm not feeling well and leave to go home. Thos of you who pray, please pray for peace for the entire group, and some JOY! I need to find my own private joy because it doesn't come from others. It's a joy to have found new friends like you all. Thanks, for this group I am grateful! xoxo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2011 Report Share Posted December 24, 2011 Dear , Due to unexpected circumstances, I too am alone this eve for the first time in my life. I am not crying but am sad as well. I am not stressing as I have the last few days and I'm just about OVER it. It makes me ill too. I baked pine cones today, lol. Yes, if you bake them on low the sap melts to a pretty glaze and then I decorate them a little with some clear glitter and ribbons for gifts. I went to a town down the mountain on an errand and the shop was closed five minutes before so I came home and cleaned for the last three hours. I am having loving friends over for dinner tomorrow and will visit a couple tomorrow for a few minutes in the morning but will wake up alone as my family is far away. I understand where you are at emotionally my friend and just want you to know I realize how hard it is. I too am so grateful for the loving members and family of this group. People often do not understand what the emotional turmoil does to us physically. I have night fevers, more pain because of tense muscles and the ever present fear of increased illness returning because of it. I am blessed and have had some wonderful people support me through much this past year but it is very hard and I pray it's finally to a close. Please remember that there is fun in our future in just comes in spurts. I will be home tomorrow evening and maybe we can visit on the phone. I will be taking to my bed early tonight if I can sleep. Thank you for posting because it has helped me know I'm able to share too. Many blessings for you and yours. As I sit here alone on Christmas Eve, I watch the S.D. Chargers on t.v. Playing ing Detroit. I love football, however prefer to be with family and friends to watch it Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (1) Recent Activity: New Members 1 Visit Your Group Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. Ion by any person following the information offered or provided within this support form. MARKETPLACE Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now. Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use. Quote Link to comment Share on other sites More sharing options...
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