Guest guest Posted September 27, 1999 Report Share Posted September 27, 1999 Biddy, I have noticed just the last month since I have been on here that you really seem to be more down. I can not believe that the doctors are treating you like this ( even though I did have a bad experience) I pray that I get a better doctor when I go next month - I am praying for you and your doctor, like you said to get a conscience. Please don't give up, even if you are not afraid to die. I know that you have family and friends that would love to see you improve and have a better life (physically I mean) You are very special. I enjoy talking with you, and relating to what you are going through ( at least a little ) Talk with you soon, Love and Prayers Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 Hi Vicki! Thanks for the e-mail. I haven't said anything one way or another about the symptoms in the last 2 days because I am afraid to jinx it, but here goes -- I have not had any pain, nausea, the arthritis stuff -- anything!!!! I am so very excited and blessed. It is times like these that I feel as if I am on my way to recovery!!! One never knows -- since this disease makes no sense at all, symptoms, etc. You know, we don't know hardly anything about this disease and of course, the docs don't either. It may be that one day we will wake up and bingo! the disease is gone! I feel like that has happened to me. Now if I could lose this huge mass in my front (my fat stomach), everything would be perfect!!! I used to have these days so often and within the last year they haven't come along so often -- actually no good days at all. I feel so good and blessed. I am so blessed to have " friends " like you -- you and others have made this thing so much better to handle! Actually Vicki, I used to be upbeat all of the time and I think that just might return. Heck, I might even be able to do my column again! If there were anyone near me with this disease I could help them. However, as far as I know, there are no others! By the way, I have posted forever for someone to post if they are being treated at Duke University. No one has. See we are missing so many people. I do wish there was someway we could get in touch with these people and lead them to this fantastic site -- and all because of ! Hugs, Biddy Re: Biddy >Biddy, > I have noticed just the last month since I have been on here that you really >seem to be more down. I can not believe that the doctors are treating you >like this ( even though I did have a bad experience) I pray that I get a >better doctor when I go next month - I am praying for you and your doctor, >like you said to get a conscience. Please don't give up, even if you are not >afraid to die. I know that you have family and friends that would love to see >you improve and have a better life (physically I mean) You are very special. >I enjoy talking with you, and relating to what you are going through ( at >least a little ) >Talk with you soon, Love and Prayers >Vicki > >------------------------------------------------------------------------ > >eGroups.com home: /group/ > - Simplifying group communications > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 Biddy, You must feel like my mother did in December when she wrote in my baby book " finally had a good day. " (I was born in April). I'm sure all the parents can sympathize with enduring 8 months of a difficult baby on top of caring for 2 and 4 year olds. Tim --- Biddy Santon wrote: > Hi Vicki! > Thanks for the e-mail. I haven't said anything one way or > another about > the symptoms in the last 2 days because I am afraid to jinx > it, but here > goes -- I have not had any pain, nausea, the arthritis stuff > -- anything!!!! > I am so very excited and blessed. It is times like these > that I feel as > if I am on my way to recovery!!! One never knows -- since this > disease makes > no sense at all, symptoms, etc. > You know, we don't know hardly anything about this disease > and of > course, the docs don't either. It may be that one day we will > wake up and > bingo! the disease is gone! > I feel like that has happened to me. Now if I could lose > this huge mass > in my front (my fat stomach), everything would be perfect!!! > I used to have these days so often and within the last > year they haven't > come along so often -- actually no good days at all. I feel so > good and > blessed. I am so blessed to have " friends " like you -- you and > others have > made this thing so much better to handle! > Actually Vicki, I used to be upbeat all of the time and I > think that > just might return. Heck, I might even be able to do my column > again! If > there were anyone near me with this disease I could help them. > However, as > far as I know, there are no others! > By the way, I have posted forever for someone to post if > they are being > treated at Duke University. No one has. See we are missing so > many people. I > do wish there was someway we could get in touch with these > people and lead > them to this fantastic site -- and all because of ! > Hugs, > Biddy > -----Original Message----- > > To: egroups <egroups> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 That's good Biddy! Enjoy every minute while it lasts and we'll pray that it lasts a long time for you. Peg Biddy Santon wrote: > Hi Vicki! > Thanks for the e-mail. I haven't said anything one way or another about > the symptoms in the last 2 days because I am afraid to jinx it, but here > goes -- I have not had any pain, nausea, the arthritis stuff -- anything!!!! > I am so very excited and blessed. It is times like these that I feel as > if I am on my way to recovery!!! One never knows -- since this disease makes > no sense at all, symptoms, etc. > You know, we don't know hardly anything about this disease and of > course, the docs don't either. It may be that one day we will wake up and > bingo! the disease is gone! > I feel like that has happened to me. Now if I could lose this huge mass > in my front (my fat stomach), everything would be perfect!!! > I used to have these days so often and within the last year they haven't > come along so often -- actually no good days at all. I feel so good and > blessed. I am so blessed to have " friends " like you -- you and others have > made this thing so much better to handle! > Actually Vicki, I used to be upbeat all of the time and I think that > just might return. Heck, I might even be able to do my column again! If > there were anyone near me with this disease I could help them. However, as > far as I know, there are no others! > By the way, I have posted forever for someone to post if they are being > treated at Duke University. No one has. See we are missing so many people. I > do wish there was someway we could get in touch with these people and lead > them to this fantastic site -- and all because of ! > Hugs, > Biddy > Re: Biddy > > >Biddy, > > I have noticed just the last month since I have been on here that you > really > >seem to be more down. I can not believe that the doctors are treating you > >like this ( even though I did have a bad experience) I pray that I get a > >better doctor when I go next month - I am praying for you and your doctor, > >like you said to get a conscience. Please don't give up, even if you are > not > >afraid to die. I know that you have family and friends that would love to > see > >you improve and have a better life (physically I mean) You are very > special. > >I enjoy talking with you, and relating to what you are going through ( at > >least a little ) > >Talk with you soon, Love and Prayers > >Vicki > > > >------------------------------------------------------------------------ > > > >eGroups.com home: /group/ > > - Simplifying group communications > > > > > > > > > > > > ------------------------------------------------------------------------ > > eGroups.com home: /group/ > - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 PRAISE THE LORD! I know that a lot of people have been praying for you and I see that God has answer our prayers. I hope that you continue to have good days (a lot of them) it make the bad days easier to handle. I am so happy for you, I can see the smile on your face again. Thinking of you, Love, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 PRAISE THE LORD! I know that a lot of people have been praying for you and I see that God has answer our prayers. I hope that you continue to have good days (a lot of them) it make the bad days easier to handle. I am so happy for you, I can see the smile on your face again. Thinking of you, Love, Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 1999 Report Share Posted December 4, 1999 Hi I was concerned about Biddy too so I emailed her directly and she wrote back. She said she had been quite ill for the last few weeks but is not giving up " the fight " . We have been corresponding a bit and she seems to be ok. Maybe she will come back to the list soon. I told her we missed her and her emails. I got her email address off the egroups list for our group, only it says " Santo " and it's really " Santon " . Take Care, Dianne Arneill AIH/PSC/Lupus/Sjogren's Dpa1228@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 1999 Report Share Posted December 4, 1999 Hi I was concerned about Biddy too so I emailed her directly and she wrote back. She said she had been quite ill for the last few weeks but is not giving up " the fight " . We have been corresponding a bit and she seems to be ok. Maybe she will come back to the list soon. I told her we missed her and her emails. I got her email address off the egroups list for our group, only it says " Santo " and it's really " Santon " . Take Care, Dianne Arneill AIH/PSC/Lupus/Sjogren's Dpa1228@... Quote Link to comment Share on other sites More sharing options...
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