Re: Milk formula substitute

July 7, 2005

My kids love Blue Diamond almond milk, original flavor. Any milk sub that

they like and doesn't have too much sugar would be a good sub, since there

don't seem to be gluten issues. Rice milk is well tolerated by most.

(Although anyone with a milk problem probably also has a wheat problem,

IMO.)

Any kid who is addicted to milk is going to reject a sub at first, though.

I'd suggest cold turkey from milk and milk products with no sub for a few

weeks, long enough for the memory of the taste to fade.

I would certainly make those two weeks fun and full of other foods the child

likes, as well as a time when I had complete control over the diet. It's

hugely important to have everyone else who feeds the child on board, or it

will fail (as you, of course, know).

Good luck to your friend.

Liz

>

> Reply-To: csb-autism-rx

> Date: Thu, 7 Jul 2005 11:46:49 -0700

> To: " csb autism group " <csb-autism-rx >

> Subject: Milk formula substitute

>

> A close friend whose little two-year old is addicted to

> large quantities of milk has asked me for a milk sub-

> stitute formula, as he has been showing behavior issues

> and crying for milk all the time. I have suggested some

> testing (he does not seem to be on the spectrum, but I

> suspect a milk allergy). Anyone have any suggestions?

> Dr. JM

>

July 7, 2005

My kids love Blue Diamond almond milk, original flavor. Any milk sub that

they like and doesn't have too much sugar would be a good sub, since there

don't seem to be gluten issues. Rice milk is well tolerated by most.

(Although anyone with a milk problem probably also has a wheat problem,

IMO.)

Any kid who is addicted to milk is going to reject a sub at first, though.

I'd suggest cold turkey from milk and milk products with no sub for a few

weeks, long enough for the memory of the taste to fade.

I would certainly make those two weeks fun and full of other foods the child

likes, as well as a time when I had complete control over the diet. It's

hugely important to have everyone else who feeds the child on board, or it

will fail (as you, of course, know).

Good luck to your friend.

Liz

>

> Reply-To: csb-autism-rx

> Date: Thu, 7 Jul 2005 11:46:49 -0700

> To: " csb autism group " <csb-autism-rx >

> Subject: Milk formula substitute

>

> A close friend whose little two-year old is addicted to

> large quantities of milk has asked me for a milk sub-

> stitute formula, as he has been showing behavior issues

> and crying for milk all the time. I have suggested some

> testing (he does not seem to be on the spectrum, but I

> suspect a milk allergy). Anyone have any suggestions?

> Dr. JM

>

July 7, 2005

i know this is not the answer you want to hear, but i have found that

those that are avialable commercially(rice, almond, potato) all have

something objectional in them(some sort of sugar) or allergen.

my kid can't have rice or almonds. put i would suggest making her own

horchota(sorry mispelling-rice milk) and i think if you google it

you'll find recipes.

and the almond milk recipe is available at pecanbread.com

we are pretty fond of water and highly diluted blueberry juice.

roz

> A close friend whose little two-year old is addicted to

> large quantities of milk has asked me for a milk sub-

> stitute formula, as he has been showing behavior issues

> and crying for milk all the time. I have suggested some

> testing (he does not seem to be on the spectrum, but I

> suspect a milk allergy). Anyone have any suggestions?

> Dr. JM

>

July 7, 2005

I second on Blue Diamond. My typical 4 year was addicted

to milk also and when we went GF/CF/SF/CF that ment for the whole

family. I tried every brand(even though my ASD child hated milk

anyway and never drank it before)before he would drink any substitute.

Blue diamond was the only one he liked and he is defiantly picker

than my ASD child.

Margie

> My kids love Blue Diamond almond milk, original flavor. Any milk

sub that

> they like and doesn't have too much sugar would be a good sub,

since there

> don't seem to be gluten issues. Rice milk is well tolerated by most.

> (Although anyone with a milk problem probably also has a wheat

problem,

> IMO.)

>

> Any kid who is addicted to milk is going to reject a sub at first,

though.

> I'd suggest cold turkey from milk and milk products with no sub for

a few

> weeks, long enough for the memory of the taste to fade.

>

> I would certainly make those two weeks fun and full of other foods

the child

> likes, as well as a time when I had complete control over the diet.

It's

> hugely important to have everyone else who feeds the child on

board, or it

> will fail (as you, of course, know).

>

> Good luck to your friend.

>

> Liz

>

> > From: " Jaquelyn McCandless " <JMcCandless@p...>

> > Reply-To: csb-autism-rx

> > Date: Thu, 7 Jul 2005 11:46:49 -0700

> > To: " csb autism group " <csb-autism-rx >

> > Subject: Milk formula substitute

> >

> > A close friend whose little two-year old is addicted to

> > large quantities of milk has asked me for a milk sub-

> > stitute formula, as he has been showing behavior issues

> > and crying for milk all the time. I have suggested some

> > testing (he does not seem to be on the spectrum, but I

> > suspect a milk allergy). Anyone have any suggestions?

> > Dr. JM

> >

July 7, 2005

I second on Blue Diamond. My typical 4 year was addicted

to milk also and when we went GF/CF/SF/CF that ment for the whole

family. I tried every brand(even though my ASD child hated milk

anyway and never drank it before)before he would drink any substitute.

Blue diamond was the only one he liked and he is defiantly picker

than my ASD child.

Margie

> My kids love Blue Diamond almond milk, original flavor. Any milk

sub that

> they like and doesn't have too much sugar would be a good sub,

since there

> don't seem to be gluten issues. Rice milk is well tolerated by most.

> (Although anyone with a milk problem probably also has a wheat

problem,

> IMO.)

>

> Any kid who is addicted to milk is going to reject a sub at first,

though.

> I'd suggest cold turkey from milk and milk products with no sub for

a few

> weeks, long enough for the memory of the taste to fade.

>

> I would certainly make those two weeks fun and full of other foods

the child

> likes, as well as a time when I had complete control over the diet.

It's

> hugely important to have everyone else who feeds the child on

board, or it

> will fail (as you, of course, know).

>

> Good luck to your friend.

>

> Liz

>

> > From: " Jaquelyn McCandless " <JMcCandless@p...>

> > Reply-To: csb-autism-rx

> > Date: Thu, 7 Jul 2005 11:46:49 -0700

> > To: " csb autism group " <csb-autism-rx >

> > Subject: Milk formula substitute

> >

> > A close friend whose little two-year old is addicted to

> > large quantities of milk has asked me for a milk sub-

> > stitute formula, as he has been showing behavior issues

> > and crying for milk all the time. I have suggested some

> > testing (he does not seem to be on the spectrum, but I

> > suspect a milk allergy). Anyone have any suggestions?

> > Dr. JM

> >

July 7, 2005

>

> Any kid who is addicted to milk is going to reject a sub at first,

though.

> I'd suggest cold turkey from milk and milk products with no sub

for a few

> weeks, long enough for the memory of the taste to fade.

> Liz

What worked for us was slowly adding in the new and decreasing the

old in their cups. At times we just went cold turkey on things (like

when we cut out diluted pear juice and went 100% water). At the

beginning though I inched my way into it by combining the two

products. Worked well for us and no fussing. And it only took a few

days actually.

Every child is different though!

Best,

>

> > From: " Jaquelyn McCandless " <JMcCandless@p...>

> > Reply-To: csb-autism-rx

> > Date: Thu, 7 Jul 2005 11:46:49 -0700

> > To: " csb autism group " <csb-autism-rx >

> > Subject: Milk formula substitute

> >

> > A close friend whose little two-year old is addicted to

> > large quantities of milk has asked me for a milk sub-

> > stitute formula, as he has been showing behavior issues

> > and crying for milk all the time. I have suggested some

> > testing (he does not seem to be on the spectrum, but I

> > suspect a milk allergy). Anyone have any suggestions?

> > Dr. JM

> >

July 7, 2005

Vance's Dari Fee is good.contains as much calcium as milk and is free

of soy, rice, casein and gluten, great for baking.

www.vancesfoods.com. mostly made from potato starch, and added

vitamins.

v

> A close friend whose little two-year old is addicted to

> large quantities of milk has asked me for a milk sub-

> stitute formula, as he has been showing behavior issues

> and crying for milk all the time. I have suggested some

> testing (he does not seem to be on the spectrum, but I

> suspect a milk allergy). Anyone have any suggestions?

> Dr. JM

>

July 7, 2005

When we first went casein free, Jack was addicted to milk too. We

tried all the prepared rice milks and he wouldn't touch any of them.

We tried the Dari-Free potato milk and he hated it too. We let him

have diluted juice for a couple of weeks and then I found Better than

Milk, rice milk powder. You mix it as strong or as weak as you like

(I dilute it a lot). It contains calcium and some other vitamins as

well. It has less sugar than all the other milk subs. Since I

dilute ours quiet a bit, I add some additional calcium.

The rice original is the best one, the lite versions are bad.

It has to be mixed in a blender, but it's not that hard. I make a

big batch at a time. I also use it to make ice cream.

Sharon

ps. I hate it when I tell people about this because then it sells

out at our Whole Foods store and I can't get it when I need it!!!

> A close friend whose little two-year old is addicted to

> large quantities of milk has asked me for a milk sub-

> stitute formula, as he has been showing behavior issues

> and crying for milk all the time. I have suggested some

> testing (he does not seem to be on the spectrum, but I

> suspect a milk allergy). Anyone have any suggestions?

> Dr. JM

>

July 7, 2005

Another milk subsittue for kids with extreme gastro issues or

allergy issues is Neocate. They have four different products for

over one year olds: Neocate One+, Neocate Junior,Pediatric E028

and Pepdite. I don't know the difference as our Neocate child is

still under one. This is very expensive though... Maybe their

pediatrician can give it to them on perscription and hopefully their

insurance will cover it.

Vance's Dari Free was actually terrible for my older child (though I

know for many GFCF kids, this is great). He's one of the odd ones

who tolerated corn and not potato (this is before he went SCD).

Sally

> > A close friend whose little two-year old is addicted to

> > large quantities of milk has asked me for a milk sub-

> > stitute formula, as he has been showing behavior issues

> > and crying for milk all the time. I have suggested some

> > testing (he does not seem to be on the spectrum, but I

> > suspect a milk allergy). Anyone have any suggestions?

> > Dr. JM

> >

July 7, 2005

Neocate can be purchased on EBay for about $5 a can with a little

patience.

> > > A close friend whose little two-year old is addicted to

> > > large quantities of milk has asked me for a milk sub-

> > > stitute formula, as he has been showing behavior issues

> > > and crying for milk all the time. I have suggested some

> > > testing (he does not seem to be on the spectrum, but I

> > > suspect a milk allergy). Anyone have any suggestions?

> > > Dr. JM

> > >

July 7, 2005

Neocate can be purchased on EBay for about $5 a can with a little

patience.

> > > A close friend whose little two-year old is addicted to

> > > large quantities of milk has asked me for a milk sub-

> > > stitute formula, as he has been showing behavior issues

> > > and crying for milk all the time. I have suggested some

> > > testing (he does not seem to be on the spectrum, but I

> > > suspect a milk allergy). Anyone have any suggestions?

> > > Dr. JM

> > >

July 7, 2005

Neocate can be purchased on EBay for about $5 a can with a little

patience.

> > > A close friend whose little two-year old is addicted to

> > > large quantities of milk has asked me for a milk sub-

> > > stitute formula, as he has been showing behavior issues

> > > and crying for milk all the time. I have suggested some

> > > testing (he does not seem to be on the spectrum, but I

> > > suspect a milk allergy). Anyone have any suggestions?

> > > Dr. JM

> > >

July 7, 2005

We used Pacifc PLAIN rice milk to soften the blow to our son when we

snatched his beloved cow juice. It is the lowest in sugar of all the

commercial faux milks and it found it to be far more palatable than

other rice or potato milks.

> A close friend whose little two-year old is addicted to

> large quantities of milk has asked me for a milk sub-

> stitute formula, as he has been showing behavior issues

> and crying for milk all the time. I have suggested some

> testing (he does not seem to be on the spectrum, but I

> suspect a milk allergy). Anyone have any suggestions?

> Dr. JM

>

July 7, 2005

We used Pacifc PLAIN rice milk to soften the blow to our son when we

snatched his beloved cow juice. It is the lowest in sugar of all the

commercial faux milks and it found it to be far more palatable than

other rice or potato milks.

> A close friend whose little two-year old is addicted to

> large quantities of milk has asked me for a milk sub-

> stitute formula, as he has been showing behavior issues

> and crying for milk all the time. I have suggested some

> testing (he does not seem to be on the spectrum, but I

> suspect a milk allergy). Anyone have any suggestions?

> Dr. JM

>

July 7, 2005

We used Pacifc PLAIN rice milk to soften the blow to our son when we

snatched his beloved cow juice. It is the lowest in sugar of all the

commercial faux milks and it found it to be far more palatable than

other rice or potato milks.

> A close friend whose little two-year old is addicted to

> large quantities of milk has asked me for a milk sub-

> stitute formula, as he has been showing behavior issues

> and crying for milk all the time. I have suggested some

> testing (he does not seem to be on the spectrum, but I

> suspect a milk allergy). Anyone have any suggestions?

> Dr. JM

>

July 7, 2005

> A close friend whose little two-year old is addicted to

> large quantities of milk has asked me for a milk sub-

> stitute formula, as he has been showing behavior issues

> and crying for milk all the time. I have suggested some

> testing (he does not seem to be on the spectrum, but I

> suspect a milk allergy). Anyone have any suggestions?

I've hardly ever used nut milks because they all have added sweeteners.

However, the sweetness does make them more popular with the little ones.

I think Lundberg organic rice milk (original) is best. It's the highest in

fat and calcium and lowest in carbs of all the rice milk brands that I have

seen. It uses safflower oil, which isn't great, but better than canola.

If this kid loves milk, I recommend slowly introducing the rice milk in the

cow's milk. Every day she can up the ratio of rice milk to cow's milk.

If that doesn't work, then I would recommend completely forgoing any milk

sub. Sometimes kids need to forget the taste of the original before they

will take the substitute. It took nearly a year before my son had any

interest in rice milk.

If this mom is up for labor-intensive milk subs, fresh young coconut milk is

very, very good. My kids love it so much that they are like lions watching

the butcher while we get the coconuts open.

Lynne

July 7, 2005