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Hey Folks!

Saying hello to my bestest family outside my wonderful wife and children of

course!  But you guys are the best!  This lil chapter begins a week from this

past Monday when i took my first injection of Enbrel....now i am one to always

always research.....Enbrel carries a " Severe to Fatal Interaction " warning with

two of my other major medicines......BUT...the usual....your physician thinks

the potential benefits outweigh the potential risks.....he did and i hoped it

would be that way....wellllllllllll......by Saturday i was sick.....Sunday

pretty much out of it......by Monday...out of it!  God bless my dear wife, Patty

B......she RUSHED me to our doctor in a neighboring city.....he sent us back to

a town just North of us to my favorite Horsenpital.....seriously, these guys are

the best....they have saved my life a number of times over the last few years!  

So, i was admitted on Moday with this really funky systemic infection mostly

centered in my

lungs as is usual for me.....i had yellow puss-like material draining from both

eyes!   So here it is Friday....following massive amounts of antibiotics....IV

and Oral....by God's Grace, I am much better though weak as you can

imagine.....but, one thing that impressed me.....My doctors, from the ER doc to

my hospitalist were familiar with AOSD and the dangers of Enbrel.....of course

AOSD is in my records from having been here an average of two weeks a year since

2008....then i was here for nearly the entire summer!  Now to a little " Family "

matter...growllllllllll.....there was a volunteer here with a very big

mouth.....on Monday, before I could even think of calling my parents or sister

who were all out of town...this lady takes it upon herself to call them...not

the first time this has happened......she also goes to church with them.....well

i did not not want them to know i was in until we had something to tell

them....i also didn't want my oldest

daughter knowing i was here....well she was told too....for those of you who

are familiar with HIPAA....well you know she violated that Federal Law....not

the first time....i was furious as was Patty....so I reported her to the HIPAA

Compliance Officer here who confronted this lady who admitted the violations and

was promptly asked to leave immediately.....wellllllll, now the damndest thing

is my sister phones me this morning and proceeds to chew me out for reporting

this person....and my so called parents i am told are so angry at me for

reporting her that they are not even calling me or seeing me while i am

here....hell they are all about image anyway....so....you see why you guys are

my family!  I am done with my biological family!   I love and appreciate you

guys!  I hope you are all as well as can be.....oh I am due to be discharged to

home tomorrow!   No more Enbrel for me......i think i just chill for awhile! 

God bless!

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Glad to hear you are recovering. That is terrible that you are getting blamed

for turning the big mouth in for her violations. She should have known better.

If you had wanted your family to know, you or your wife would have called them.

She may have been well meaning, but it wasn't her place to make that kind of

decision. Hopefully everything will calm down for you soon.

Take Care,

Tracie in D.C.

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Glad to hear you are recovering. That is terrible that you are getting blamed

for turning the big mouth in for her violations. She should have known better.

If you had wanted your family to know, you or your wife would have called them.

She may have been well meaning, but it wasn't her place to make that kind of

decision. Hopefully everything will calm down for you soon.

Take Care,

Tracie in D.C.

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  • 1 month later...

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