- welcome

[Guest guest]

,

You must have hit us at a bad time, I know I for one have had problems

sitting (a muscle problem not having anything to do with PSC)so I've been

skimming more and not taking the time to welcome new people. Normally a new

person would be bomb-barded with welcomes. So please forgive us and

consider yourself welcomed. I am a spouse of a PSCer and am more on the

support side than knowledge side. We need all the personalities we have in

this group for where one person is technically knowledgable or may be an

excellent writer that can represent us to UNOS or ALF, another may have the

sense of humor we need to get through a day and another my give comfort to

someone who needs a special hug.

I also think that some of us have been in the group a long time (I've been

here for 1 1/2 years) and don't think as much about how a brand new person

may feel. We need everyone. I think 's comments were misinterpreted

from what she meant. And if we are careful about changing the subject line

people can skip messages that are of a personal nature or a subject that

doesn't interest them.

We will step on someones toes sometimes and it's okay to express the hurt,

give the person a chance to appologize or explain and then forget it and go

on. We want to be there for every one.

My husband Phil is a lurker he reads, I write. He, unlike me is able to let

things go by much better than I can. And we can't keep people from dropping

out. Not everyone will get what they need here. All we can do is try and

that is what we are doing.

Peg, wife of Phil(57), UC 30 yrs, dx PSC 12/98, listed 2/2000-status 3, live

in So. Calif.

Re: Lurkers and Window Peekers

>

> > We're a very large, very diverse group of people. It would be

> extremely

> > surprising if there weren't things said that bothered someone from

> time

> > to time, but if we don't allow those things to drag us down, we can

> use

> > that same diversity as a strength.

> >

> > athan

>

> Writes

>

> Well said athon.

> I e-mailed personnaly and asked her not to leave us. She is

> funny & I enjoy her stories. We need funny poeple.

> When Debbie expressed her feelings I thought it was the right time to

> express mine cause I feel like she does. I also didn't feel

> welcomed. I didn't know what kind of response to expect when I wrote

> Tony's story but I thought I would have gotten more than 2

> responses.

>

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