Re: Re: Hospice for Sheila's mom

[Guest guest]

sheila,

first sending you a big HUGGGGGGG of understanding.

second i completely agree with robin see if your doctor can refer you to another

hospice organizeation. 

also it is the federal government and state's new fiscal year.

call the area of aging or called council of aging in some states, and ask for a

caseworker,

also call the elders affairs office they work hand in hand and if one doesnt

have a program ofr you then maybe the other does. this may include bathing

assistance, meal assistance like meals on wheels, etc. sometimes they even have

programs for supplies and respite  i had a wonderufl program that dad qualified

for that included 24 hours a week respite for me /dad.  taht was so wonderful.  

dont stop asking for help the right place will come along when you dont expect

it, dont give up becuase one um 'person' doesnt care to find out what lbd is.

hugs to you sharon

Subject: Re: Hospice for Sheila's mom

To: LBDcaregivers

Date: Friday, August 8, 2008, 11:28 PM

Sheila,

Perhaps you can ask the MD to recommend a specific hospice

organization and request that the MD call that hospice to speak with

their medical director. Not all hospice organizations are alike.

Robin

>

> My mom is doing worse. the Dr. suggested Hospice. They came to

> evaluate her and they said that since she could speak and

understood what we were saying she probably wouldn't qualify. I

don't understand, she can not walk without assistance, she can't do

anything without assistance, Her tremors are so bad she can't eat or

brush her teeth. She is delusional, thinks dad is trying to hurt her,

and she get upset if I'm not there. Has anyone else had problems

with people not understanding about LBD? They think it is like

Alzhiemers, with the memory problems, mom doesn't have that problem,

but her symptoms are just as bad. It gets so frustrating. I don't

know what to do. I would also like to know what to expect. All the

DR's say is that there is no cure and she will go down hill fast. I

feel like no one understands what I am going thru. I'm worried I

can't do it but I have to because there is no one else except Dad and

he is not well either. thanks for listening!

> Sheila

>