Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 Hey group how is everyone doing. I just wanted to give you an update from my RA appointment. I don't know if you remember me posting about how my regular doctor kept being very unprofessional. Well I went to my RA the other day and she referred me to a new doctor, did a lot of blood work which was a job since my port isn't wanting to work. Well the following morning she called me and told me one of my inflammation markers was really high and that my WBC is really high and she is thinking that something is going on with my belly. So she is thinking that I need a colonscopy. So I have to wait until September to start seeing my new doctor. At the moment, I am still having trouble eating certain things and at times having an appetite. The nurse practioner claims that I could have gastroparesis since I do have diabetes and diabetes can cause gastroparesis. So now I have to work on getting my blood sugar under control which I have added a cinnamon tablet to my morning tablets. Well I hope things look up for those that are having a rough time at the moment. Try not to lose hope. Hugs and blessings, man Corpus Christi, tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2011 Report Share Posted November 1, 2011 Hey there you onery man. I hope you're getting better? I'm very sorry avout the nurse giving out your information like that. It wasn't right but I think you did the right thing by reporting her. It could have been a much more serious situation she caused or a next time. Please know we are thinking of you and feel better soon. Lots of love and hugs, Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html The materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form. MARKETPLACE Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now. Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2011 Report Share Posted November 3, 2011 I am soooo glad to see that people are starting to realize that they have rights that need to be protected, and that they should insist on proper care and attention from doctors and health care peeps. You go Larry, you rock! > > Hey Folks! > Saying hello to my bestest family outside my wonderful wife and children of course! But you guys are the best! This lil chapter begins a week from this past Monday when i took my first injection of Enbrel....now i am one to always always research.....Enbrel carries a " Severe to Fatal Interaction " warning with two of my other major medicines......BUT...the usual....your physician thinks the potential benefits outweigh the potential risks.....he did and i hoped it would be that way....wellllllllllll......by Saturday i was sick.....Sunday pretty much out of it......by Monday...out of it! God bless my dear wife, Patty B......she RUSHED me to our doctor in a neighboring city.....he sent us back to a town just North of us to my favorite Horsenpital.....seriously, these guys are the best....they have saved my life a number of times over the last few years! So, i was admitted on Moday with this really funky systemic infection mostly centered in my > lungs as is usual for me.....i had yellow puss-like material draining from both eyes! So here it is Friday....following massive amounts of antibiotics....IV and Oral....by God's Grace, I am much better though weak as you can imagine.....but, one thing that impressed me.....My doctors, from the ER doc to my hospitalist were familiar with AOSD and the dangers of Enbrel.....of course AOSD is in my records from having been here an average of two weeks a year since 2008....then i was here for nearly the entire summer! Now to a little " Family " matter...growllllllllll.....there was a volunteer here with a very big mouth.....on Monday, before I could even think of calling my parents or sister who were all out of town...this lady takes it upon herself to call them...not the first time this has happened......she also goes to church with them.....well i did not not want them to know i was in until we had something to tell them....i also didn't want my oldest > daughter knowing i was here....well she was told too....for those of you who are familiar with HIPAA....well you know she violated that Federal Law....not the first time....i was furious as was Patty....so I reported her to the HIPAA Compliance Officer here who confronted this lady who admitted the violations and was promptly asked to leave immediately.....wellllllll, now the damndest thing is my sister phones me this morning and proceeds to chew me out for reporting this person....and my so called parents i am told are so angry at me for reporting her that they are not even calling me or seeing me while i am here....hell they are all about image anyway....so....you see why you guys are my family! I am done with my biological family! I love and appreciate you guys! I hope you are all as well as can be.....oh I am due to be discharged to home tomorrow! No more Enbrel for me......i think i just chill for awhile! God bless! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2011 Report Share Posted November 4, 2011 I'm so gratefull with all of you, and especially with you Cat, that was a really clear imformation. But for the appointment of appeal, are, there going to be a public lawyer or I will have to take one? Re: Update > > Hi my name is , I usually don't post that often, but I think I'll be doing it more often even do I'm very shy. I apply for SS and they denied my benefits, so I'm going to appeal. Do you believe my doctors said that I could lift weight up to 50 pounds, that's crazy! If I'm bromine or moping my arms start hurting allot imagine lifting up all that weight. So I'm really upset. With my health I'm sore of my legs and really tire. I have appointment with my reumatologist until December. I don't know if he is going to start me in a new medication. What I'm starting to have is allot of allergy in may face, and sometimes I feel like my face is burning. Hopefully it goes away when I wash my face and lubricated. But sometimes I feel my face so super dry, I don't know if this happens to any one else, and what do you do about it. Well good to have post thank you. > > > Hi , i don't post hardly ever myself. But in rep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2011 Report Share Posted November 5, 2011 ,So good to see you post here again!Please don't be so shy. We are family you know and welcome all to share their life, experiences and anything they are doing bad or good with. I just wanted to say hi again and I have missed you here.Hugs, What I'm starting to have is allot of allergy in may face, and sometimes I feel like my face is burning. Hopefully it goes away when I wash my face and lubricated. But sometimes I feel my face so super dry, I don't know if this happens to any one else, and what do you do about it. Well good to have post thank you. > > > Hi , i don't post hardly ever myself. But in reply to your situation, i recently applied for ss disability myself. I used Allsup, you can google them to find out if you want to use them. Quote Link to comment Share on other sites More sharing options...
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