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Hi family,I guess you've noticed that I've been posting constantly these past

months or so and you may be getting tired of me but I'm trying to be supportive.

I've noticed there are just a handful of our group posting and I'm hoping many

are out feeling well but we have many new members that haven't posted

either.Some history here is that I joined in 2001 and this group has always been

a family from all around the world. There is a very interesting home page at the

yahoo site that has files, photo albums, maps of where members live, articles

and many faces of members that aren't here. We've always cared for our family

and I'm worried. If you ever read the past posts you'll see we used to play

cyber games. Make believe parties and laugh ourselves silly.If you are out there

reading would you check in? If you're real sick and would just like a hello or

private chat or card please feel free to write me at windsinging@.... We

do that here, it's ok to write privately. Or if your new and have questions,

need to vent, share stories, or just tell us how your doing, please do.Well

that's all for now, lol.Lots of love. Yea you know who's posting ;0)

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,

 

I'm here...just recovering from " I way over did it itis " between the move and us

being super short handed at the office just in time for cold/flu season and most

of the patients coming in with temps running 102 or higher every day I am

either in bed or sitting on my back porch(when home) watching the  cows

trying to " save spoons " and rest all while praying my messed up immune system

does not let me down during this critical time at work.... Once I feel a little

more spunky I will be more active. I see my Rheumy later this week and I think

we have to have another one of those dreaded work talks since I am back to doing

the job of 3 and that was something we agreeded would not happen again.

 

Hugs,

  Kimberlee

To: stillsdisease

Sent: Monday, September 12, 2011 6:16 PM

Subject: Where is everybody?

 

Hi family,I guess you've noticed that I've been posting constantly these past

months or so and you may be getting tired of me but I'm trying to be supportive.

I've noticed there are just a handful of our group posting and I'm hoping many

are out feeling well but we have many new members that haven't posted

either.Some history here is that I joined in 2001 and this group has always been

a family from all around the world. There is a very interesting home page at the

yahoo site that has files, photo albums, maps of where members live, articles

and many faces of members that aren't here. We've always cared for our family

and I'm worried. If you ever read the past posts you'll see we used to play

cyber games. Make believe parties and laugh ourselves silly.If you are out there

reading would you check in? If you're real sick and would just like a hello or

private chat or card please feel free to write me at windsinging@.... We

do that here, it's ok to

write privately. Or if your new and have questions, need to vent, share

stories, or just tell us how your doing, please do.Well that's all for now,

lol.Lots of love. Yea you know who's posting ;0)

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greetings melly and all,

i'm here but quiet these days. i have had a lot i've been dealing with outside

of the stills and most of the time just dont have the energy to post. for those

who know me, feel free to email me off list. it may take a day or two but i will

get back to you. 

for those who don't know me, hello. i'm elizabeth. i was diagnosed with stills

at about the age of 8 and that was some 30ish years ago. i have a number of

other health issues as well. i flaired really badly a little over a year and a

half ago after an almost 6 year remission. things have mellowed a bit since the

flair but the dragon is back and looks like it plans to stick around for a

while. 

I am also the single mom of a 14 yo daughter who also has a number of health

issues and in fact has her first rheumy appt on wednesday. also, since i'm sure

most everyone has noticed, i rarely use caps in typing. it involves extra key

strokes and just typing can be a chore for me on bad days.

so to everyone new, welcome. to everyone old, howdy. hope everyone is doing at

least ok. and remember, today is an awesome day because you woke up and you

weren't dead.

blessings,elizabeth

Subject: Where is everybody?

To: stillsdisease

Date: Monday, September 12, 2011, 6:16 PM

 

Hi family,I guess you've noticed that I've been posting constantly these past

months or so and you may be getting tired of me but I'm trying to be supportive.

I've noticed there are just a handful of our group posting and I'm hoping many

are out feeling well but we have many new members that haven't posted

either.Some history here is that I joined in 2001 and this group has always been

a family from all around the world. There is a very interesting home page at the

yahoo site that has files, photo albums, maps of where members live, articles

and many faces of members that aren't here. We've always cared for our family

and I'm worried. If you ever read the past posts you'll see we used to play

cyber games. Make believe parties and laugh ourselves silly.If you are out there

reading would you check in? If you're real sick and would just like a hello or

private chat or card please feel free to write me at windsinging@.... We

do that here, it's ok to

write privately. Or if your new and have questions, need to vent, share

stories, or just tell us how your doing, please do.Well that's all for now,

lol.Lots of love. Yea you know who's posting ;0)

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I am also guilt of being very quiet lately. I feel awful still and crashed again

when I got home from the hospital. I will try to stay more on top of emails

again, although I can’t really promise anything. I saw my Doc yesterday and

was told to not expect to feel (normal…) for at least another 10-14 days…

ugh…

Hugs to all,

Alli

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I am also guilt of being very quiet lately. I feel awful still and crashed again

when I got home from the hospital. I will try to stay more on top of emails

again, although I can’t really promise anything. I saw my Doc yesterday and

was told to not expect to feel (normal…) for at least another 10-14 days…

ugh…

Hugs to all,

Alli

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