Guest guest Posted July 4, 2011 Report Share Posted July 4, 2011 Hi everyone-I have been a member of this group for quite some time but have never posted. I was dx'd in 06 but have been in remission since 07. Although I haven't had a flare I still do have symptoms that come and go. I've been getting pins and needles on just the bottoms of my feet and sometimes in my fingertips. Please tell me someone else has had this. I find that a lot of symptoms from this disease are strange and often make me feel like I'm crazy or worry me so much that I lose sleep over it. Thanks for letting me vent. Lexy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2011 Report Share Posted July 4, 2011 Hi Lexy, I know just what you are talking about. I started with having Reynaud's syndrome years ago. That is where cold causes your blood vessels in the hands and feet to contract and cut off circulation. Now it's turned into peripheral neuropathy. I have the pins and needles feeling in my fingers and bottoms of my feet but it can also be a burning sensation that can get very painful at times. It keeps me awake at night a lot. There are medicines you can take if it's neuropathy. Lyrica for example, but I've had bad reactions to them and can't take them. I 've tried the more natural route over the years, massage helps a lot as it gets the circulation going. And I've been taking vitamins that seem to help. someone told me to take pre-natal gummy chewables and it would help with the neuropathy and it has actually helped a lot. It may be the B vitamins and folic acid, who knows but it can't hurt. I'd rather take extra vitamins than more prescription drugs anyway. Aleeta -- mareed561@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2011 Report Share Posted July 5, 2011 I have that too Lexy...the finger tingling has gone away, but the feet are still doing it. Hurts to walk sometimes. I've told the dr and he doesn't seem too concerned. I do take B vitamins and folic acid and D vitamins (all prescribed doses). I think you should check with your dr. Don't lose sleep over it. It's just another one of those Still's things I think. I find I get these weird symptoms and sometimes they last a few hours...sometimes a few months...but always always tell your Dr. He or she needs to know. BTW..my rheumy has written a short book on living with chronic pain. It's only in e versions...I guess that's what you call it...you know kindle and such and costs 2.99. I bought it and found it very helpful...and he says I can lend it out on the e version. I don't know how, but if you any of you do know what to do and want to borrow it, I'll be glad to lend it to you. It's a very quick and easy read from someone who understands living with pain and treating it. Just let me know if you'd like to borrow it. weird symptoms Hi everyone-I have been a member of this group for quite some time but have never posted. I was dx'd in 06 but have been in remission since 07. Although I haven't had a flare I still do have symptoms that come and go. I've been getting pins and needles on just the bottoms of my feet and sometimes in my fingertips. Please tell me someone else has had this. I find that a lot of symptoms from this disease are strange and often make me feel like I'm crazy or worry me so much that I lose sleep over it. Thanks for letting me vent. Lexy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2011 Report Share Posted July 5, 2011 if the tingling in fingers continues you should with a foot dr mine has been helpful wth foot problems >I have that too Lexy...the finger tingling has gone away, but the feet are still doing it. Hurts to walk sometimes. I've told the dr and he doesn't seem too concerned. I do take B vitamins and folic acid and D vitamins (all prescribed doses). I think you should check with your dr. Don't lose sleep over it. It's just another one of those Still's things I think. I find I get these weird symptoms and sometimes they last a few hours...sometimes a few months...but always always tell your Dr. He or she needs to know. >BTW..my rheumy has written a short book on living with chronic pain. It's only in e versions...I guess that's what you call it...you know kindle and such and costs 2.99. I bought it and found it very helpful...and he says I can lend it out on the e version. I don't know how, but if you any of you do know what to do and want to borrow it, I'll be glad to lend it to you. It's a very quick and easy read from someone who understands living with pain and treating it. Just let me know if you'd like to borrow it. > > weird symptoms > > > > Hi everyone-I have been a member of this group for quite some time but have never posted. I was dx'd in 06 but have been in remission since 07. Although I haven't had a flare I still do have symptoms that come and go. I've been getting pins and needles on just the bottoms of my feet and sometimes in my fingertips. Please tell me someone else has had this. I find that a lot of symptoms from this disease are strange and often make me feel like I'm crazy or worry me so much that I lose sleep over it. Thanks for letting me vent. > Lexy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2011 Report Share Posted July 6, 2011 Hi Lexy, I am Kathleen. Yes, Stills does sometimes plague us with some " weird " symptoms. You do need to discuss with your physician the symptoms of pins and needles you're having. This could possibly be related to the disease affecting your nerve pathways, or could possibly be a side effect of the steroid causing you to have diabetes. Both need treatment. It is also possible this could be caused by some other system of your body. With all of these factors being a possibility, you do need to see your doctor. My doctor prescribed Neurontin when I became totally numb in some of the areas of my feet and hands; though I cannot take it as all it makes me do is sleep 24-7. I prefer to be awake when I can and not sleep my way through life. lol... Do you have a doctor? Kathleen I haven't had a flare I still do have symptoms that come and go. I've been getting pins and needles on just the bottoms of my feet and sometimes in my fingertips. Please tell me someone else has had this. I find that a lot of symptoms from this disease are strange and often make me feel like I'm crazy or worry me so much that I lose sleep over it. Thanks for letting me vent. Lexy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2011 Report Share Posted July 6, 2011 Hi Lexy, I also have weird symptoms like the pins and needles; mine turned out to be a combination of Trigeminal Neuralgia (from Shingles) and Neurapathy from muscles and nerves. But checking for Diabetes is important. I used Neurontin for a while, but it didn't work after a while and the doctor changed to Topomax (used for same thing). Neurontin is less expensive, so it is usually the first choice. But it is good to know about Topomax, especially if you start to gain weight with Nuerontin. Because Topomax doesn't make you gain weight. So that is one plus for Topomax . Hugs, Alli Quote Link to comment Share on other sites More sharing options...
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