Guest guest Posted December 14, 2011 Report Share Posted December 14, 2011 My heart goes out to you and your daughter.I relate to what you shared. I have yet to find a Dr. or mental help professional that is knowelable and sympathetic to our condition. I relate Misophonia to OCD and other anxiety type malidies, and the technique many therapists use for these is Cognitive Behavioral Therapy, I imagine you are already familiar with this. Well, I figured rather than laying myself bare for yet another therapist who may or may not be supportive, i would get books and learn CBT techniques on my own. It is very draining for me to explain this condition to a new theripist and there is the fear of judgement attatched. Odd...one would think that would be a safe envirionment, but it often is not. As you and your daughter have found. Im sorry. If i was able to go to school I would wish to become a therapist and help people like us.....but school wasnt in the cards for me, too many triggers there. I too " crash " after stressfull events. If I have a day that is exceptionally stressfull the next day I will often feel physical pain in my whole body, like a flu..but not have any virus. I think Mysophonia can be especially hard on women because of hormone fluctuations around our menstrual cycle. Oh Lord, does that wind me up ! >_< I wish I had more in the way of answers for you, I think we are all searching for answers, but I can give you the assurance that your daughter is not alone in this. I can also say that though life hasnt gone exactly as I had imagined or dreamt when i was a little girl, it hasnt all been terrible. Those of us with Misophonia have a rough road to walk, but there are still blessings along the way.I have found a wonderful partner in life and he has known about my condition all along, as do my children. Living with a mom with Misophonia has its challenges, as does being a mom with Misophonia...but that a subject for another post. Having this forum is huge for her. Having the support and the awareness that you are not alone in this battle is huge for you both. I am very graetfull for it and happy that you are here and that you are soo very supportive of your child. <3 p.s. she is welcome to email me as well if she would care to..I am a mother of 4 ,two daughters 20 and 12, and I also remember being 14 myself , with Misophonia. Take care! > > > > > > > > Hi Bernadette, > > > > It sounds to me like you are getting some very bad professional > > help. > > > I am shocked! that doctors are turning her away because she is too > > " high > > > risk " ? Is that legal? > > > > > > > > > > > > I am one in the minority who can get suicidal thoughts while > > > transitioning onto some medications. It has to do with the serotonin > > as > > > I understand it, I am very sensitive to serotonin. (this is a real > > > oversimplication of the chemical problem I am sure). People who are > > > sensitive to serotonin can also experience an increase anxiety instead > > > of a decrease with the medication. After a bad episode with the drug > > > effexor, my Doctor put me on an older medication, a tricyclic > > > anti-depressant, which were the type of antidepressants used before > > the > > > SSRIs came out. It has less of an effect on serotonin which is why I > > > could tolerate it better. If you wean her off the meds she is on now, > > I > > > would suggest going very very slowly down on the dosages, I used to > > even > > > split pills into little fragments. My doctor said I have a very > > reactive > > > system, the doctor before him did not believe this was > > > possible(obviously it was and is) I am now on a SSRI called Celexa, > > > which has a much > > > > more selective action on the serotonin probably why I don't have > > the > > > side effects of suicidal thoughts or anxiety. Of course everyone > > reacts > > > to the drugs differently > > > > > > > > > > > > If your daughter does go back onto a new med, I would suggest doing > > it > > > very very slowly, now that I understand how sensitive I am to > > serotonin, > > > I understand why I sometimes initially feel worse transitioning onto a > > > med, and tell myself it will eventually go away once I adjust, which > > it > > > usually does. If it doesn't go away or it is way to strong of a > > > reaction, then it is not the drug for me and I have to tell the doctor > > > right away. > > > > > > > > You are such a great mother for listening and believing your > > daughter > > > when the doctors are telling you otherwise. I hope you can find a > > > doctor who is a better fit or a therapist who is willing to work with > > > your daughter without her being medicated, if medication is only > > making > > > her worse. Maybe insisting that the current or next doctor/therapist > > > speak to Dr. , will help plead your case. > > > > > > > > I am only sharing my own experience as a patient here, so please do > > > not take anything i say as medical advice for your daughter. I know > > how > > > frustating it is trying to find treatment for this what can be a very > > > incapacitating sound sensitivity. > > > > > > > > I do have the problem with crashing after stressful times. though > > > since my moods have been stablizied on medication, it is less of a > > > problem for me, this probably has more to do with an underlying mood > > > disorder in my case. I do permit myself to have time to decompress in > > > solitude rather than trying to force myself to go until I crash. For > > > example I can't go from family/friends holiday event to event to > > event. > > > I just have to insist on staying at home alone with a good book > > > sometimes, even if people give me flack for it. > > > > > > > > I pray you find some relief for your daughter soon. > > > > > > > > > > > > > > > > ________________________________ > > > > From: wouldlovetofindacurefor4s wouldlovetofindacurefor4s@ > > > > To: Soundsensitivity > > > > Sent: Tuesday, December 13, 2011 7:42 AM > > > > Subject: I am so sad!! > > > > > > > > > > > > > > > > My name is Bernadette. I have been a member now for over a year. I > > > have written my story about my > > > > daughter who is now 14 before on this site. Wow things keep > > changing > > > so rapidly. As of last November 2010 she no longer goes to school. > > > While talking to my daughter with the tv on, the Today Show story came > > > on and we couldn't believe it. We both watched in tears. Since then > > > she has really > > > > tried to stop isolating herself which she was doing daily. She was > > > just living > > > > in her bed and wouldn't come out. After the Today show, she got the > > > courage to > > > > start to go out a little more with some friends. She started > > tutering > > > and her quality of life > > > > started to improve. Anyway she also agreed to go back to > > counseling. > > > She finally found a therapist she really liked. They also made her > > see > > > a psychiatrist in the > > > > same practice. The doctor wanted to start my daughter back on meds > > > for her anxiety. Well > > > > my daughter agreed and after 3 weeks on the medicine she felt like > > she > > > wanted to > > > > kill herself. We put her in the hospital to wean her off but to > > keep > > > her there > > > > they said she had to be put back on medicine otherwise insurance > > > wouldn't cover > > > > it. (which we finally got because she was always denied insurance) > > > Anyway she > > > > started a new med and now the place where she goes to therapy and > > > really likes, > > > > has refused to take her back. They said she is too high risk. Who > > do > > > therapists > > > > help?...people who bite their nails? She needs help and they are > > > denying > > > > her to return. So she is coming out of the hospital on meds and I > > > have to start all over > > > > again looking for help. They are the ones that started her on > > > medicine!! She > > > > is that percent of people who get suicidal thoughts when on > > > antidepressants. > > > > I am so sad for her, She has seen soooooo many doctors and has been > > > laughed at > > > > by so many and has been asked never to return by 3. You would not > > > believe what they have said to her this time too. Two > > > > doctors at the hospital asked if she was doing this for attention. > > > When I told the doctor at the hospital she called > > > > me to come home from work because she said the medicine was giving > > her > > > the > > > > courage to kill herself..... the doctor said that it sounded too > > > textbook and that > > > > there was no way she said that herself. I told him, why would she > > lie > > > about how > > > > she feels?? On the plus side the medicine gave her the courage to > > eat > > > with me > > > > for the first time in about 4 or 5 years. Anyway my daughter is so > > > strong and I > > > > am so proud of her. Here is my question for all of you. This was > > her > > > pattern > > > > even not on meds....My daughter stresses out so much about events > > she > > > has to attend (if > > > > she has the courage to leave the house and go) but it takes sooo > > much > > > courage that she crashes the > > > > very next day for days or weeks. Does this happen to anyone > > > else?...where you > > > > hold it together so well that you crash immediately after?? (I > > wrote > > > up to this part the other day) Well they released her out of the > > > hospital yesterday. My husband and I went to meet with another Doctor > > > who specializes in DBT last night. Anyway it was horrific!!!!!! She > > > did not believe any word we said, she couldn't believe my daughter > > > doesn't eat with me. She also said that the people who appeared on > > the > > > today show might have had other motives like money. I was like, > > > WHAT????? She also said to me, " boy you irritate alot of people in > > your > > > family. " I said I would never give up on my daughter but OMG all the > > > professionals I have met frustrate me so much. I feel so sorry for my > > > daughter and all of you who suffer with this. I can't find any help > > out > > > there. They sent her home on meds but now I can't find a doctor who > > > wants to see her because they said she is high risk and they don't > > know > > > how to help her. She only has 30 days of > > > > medicine then what? I have to wean her off myself without help > > > because no one wants to see her. I am so sad. I don't even know if > > > this makes any sense but I had to vent...because no one else will > > > believe us or help us. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2011 Report Share Posted December 14, 2011 I'm so glad you're managing to laugh! Reading your response made my day. I think laughter makes misophonia a little easier to bear, just like it eases physical pain sometimes. Hang tough! -Kate K. > > > > > > Hi Bernadette, > > > It sounds to me like you are getting some very bad professional > help. > > I am shocked! that doctors are turning her away because she is too > " high > > risk " ? Is that legal? > > > > > > > > > I am one in the minority who can get suicidal thoughts while > > transitioning onto some medications. It has to do with the serotonin > as > > I understand it, I am very sensitive to serotonin. (this is a real > > oversimplication of the chemical problem I am sure). People who are > > sensitive to serotonin can also experience an increase anxiety instead > > of a decrease with the medication. After a bad episode with the drug > > effexor, my Doctor put me on an older medication, a tricyclic > > anti-depressant, which were the type of antidepressants used before > the > > SSRIs came out. It has less of an effect on serotonin which is why I > > could tolerate it better. If you wean her off the meds she is on now, > I > > would suggest going very very slowly down on the dosages, I used to > even > > split pills into little fragments. My doctor said I have a very > reactive > > system, the doctor before him did not believe this was > > possible(obviously it was and is) I am now on a SSRI called Celexa, > > which has a much > > > more selective action on the serotonin probably why I don't have > the > > side effects of suicidal thoughts or anxiety. Of course everyone > reacts > > to the drugs differently > > > > > > > > > If your daughter does go back onto a new med, I would suggest doing > it > > very very slowly, now that I understand how sensitive I am to > serotonin, > > I understand why I sometimes initially feel worse transitioning onto a > > med, and tell myself it will eventually go away once I adjust, which > it > > usually does. If it doesn't go away or it is way to strong of a > > reaction, then it is not the drug for me and I have to tell the doctor > > right away. > > > > > > You are such a great mother for listening and believing your > daughter > > when the doctors are telling you otherwise. I hope you can find a > > doctor who is a better fit or a therapist who is willing to work with > > your daughter without her being medicated, if medication is only > making > > her worse. Maybe insisting that the current or next doctor/therapist > > speak to Dr. , will help plead your case. > > > > > > I am only sharing my own experience as a patient here, so please do > > not take anything i say as medical advice for your daughter. I know > how > > frustating it is trying to find treatment for this what can be a very > > incapacitating sound sensitivity. > > > > > > I do have the problem with crashing after stressful times. though > > since my moods have been stablizied on medication, it is less of a > > problem for me, this probably has more to do with an underlying mood > > disorder in my case. I do permit myself to have time to decompress in > > solitude rather than trying to force myself to go until I crash. For > > example I can't go from family/friends holiday event to event to > event. > > I just have to insist on staying at home alone with a good book > > sometimes, even if people give me flack for it. > > > > > > I pray you find some relief for your daughter soon. > > > > > > > > > > > > ________________________________ > > > From: wouldlovetofindacurefor4s wouldlovetofindacurefor4s@ > > > To: Soundsensitivity > > > Sent: Tuesday, December 13, 2011 7:42 AM > > > Subject: I am so sad!! > > > > > > > > > > > > My name is Bernadette. I have been a member now for over a year. I > > have written my story about my > > > daughter who is now 14 before on this site. Wow things keep > changing > > so rapidly. As of last November 2010 she no longer goes to school. > > While talking to my daughter with the tv on, the Today Show story came > > on and we couldn't believe it. We both watched in tears. Since then > > she has really > > > tried to stop isolating herself which she was doing daily. She was > > just living > > > in her bed and wouldn't come out. After the Today show, she got the > > courage to > > > start to go out a little more with some friends. She started > tutering > > and her quality of life > > > started to improve. Anyway she also agreed to go back to > counseling. > > She finally found a therapist she really liked. They also made her > see > > a psychiatrist in the > > > same practice. The doctor wanted to start my daughter back on meds > > for her anxiety. Well > > > my daughter agreed and after 3 weeks on the medicine she felt like > she > > wanted to > > > kill herself. We put her in the hospital to wean her off but to > keep > > her there > > > they said she had to be put back on medicine otherwise insurance > > wouldn't cover > > > it. (which we finally got because she was always denied insurance) > > Anyway she > > > started a new med and now the place where she goes to therapy and > > really likes, > > > has refused to take her back. They said she is too high risk. Who > do > > therapists > > > help?...people who bite their nails? She needs help and they are > > denying > > > her to return. So she is coming out of the hospital on meds and I > > have to start all over > > > again looking for help. They are the ones that started her on > > medicine!! She > > > is that percent of people who get suicidal thoughts when on > > antidepressants. > > > I am so sad for her, She has seen soooooo many doctors and has been > > laughed at > > > by so many and has been asked never to return by 3. You would not > > believe what they have said to her this time too. Two > > > doctors at the hospital asked if she was doing this for attention. > > When I told the doctor at the hospital she called > > > me to come home from work because she said the medicine was giving > her > > the > > > courage to kill herself..... the doctor said that it sounded too > > textbook and that > > > there was no way she said that herself. I told him, why would she > lie > > about how > > > she feels?? On the plus side the medicine gave her the courage to > eat > > with me > > > for the first time in about 4 or 5 years. Anyway my daughter is so > > strong and I > > > am so proud of her. Here is my question for all of you. This was > her > > pattern > > > even not on meds....My daughter stresses out so much about events > she > > has to attend (if > > > she has the courage to leave the house and go) but it takes sooo > much > > courage that she crashes the > > > very next day for days or weeks. Does this happen to anyone > > else?...where you > > > hold it together so well that you crash immediately after?? (I > wrote > > up to this part the other day) Well they released her out of the > > hospital yesterday. My husband and I went to meet with another Doctor > > who specializes in DBT last night. Anyway it was horrific!!!!!! She > > did not believe any word we said, she couldn't believe my daughter > > doesn't eat with me. She also said that the people who appeared on > the > > today show might have had other motives like money. I was like, > > WHAT????? She also said to me, " boy you irritate alot of people in > your > > family. " I said I would never give up on my daughter but OMG all the > > professionals I have met frustrate me so much. I feel so sorry for my > > daughter and all of you who suffer with this. I can't find any help > out > > there. They sent her home on meds but now I can't find a doctor who > > wants to see her because they said she is high risk and they don't > know > > how to help her. She only has 30 days of > > > medicine then what? I have to wean her off myself without help > > because no one wants to see her. I am so sad. I don't even know if > > this makes any sense but I had to vent...because no one else will > > believe us or help us. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2011 Report Share Posted December 14, 2011 Your daughter probably it sounds like isn't in sp ed, but if there is any diagnosed disability and maybe Misophoina qualifies as it relates to anxiety and is causing her to miss school that she might be eligible for homebound instruction??? Anyway anyone eligible for sp ed...and it doesn't just have to be students with developmental disorders, can graduate with their peers even if they are not finished with high school. My daughter who does have a dev. disability, did graduate with her peers and could have stayed in school until 21. But due to 4s, we decided that last year would be her last year in school...it made her so miserable everyday to go to school. So, we were done.Subject: Re: I am so sad!!To: Soundsensitivity Date: Wednesday, December 14, 2011, 9:43 AM I have done the same thing, sending old doctors the articles and trying to spread the word as well. I too, see my daughter not finishing school. I will fight for her to finish since she loves to learn but I am also open to the fact that she has to do it when she is ready. They told me she has until she is 21 to get her high school diploma or if she is eager she could even graduate earlier. Her dream is to graduate with her friends. At this rate with her missing so much school,I don't know how it is possible. I think your son will do the same, do it in his own time and when ready. It's never to late to go back. Does he work? Is he able to? > > > > > > > > > > Hi Bernadette, > > > > > It sounds to me like you are getting some very bad professional > > help. > > > > I am shocked! that doctors are turning her away because she is too > > "high > > > > risk" ? Is that legal? > > > > > > > > > > > > > > > I am one in the minority who can get suicidal thoughts while > > > > transitioning onto some medications. It has to do with the > serotonin > > as > > > > I understand it, I am very sensitive to serotonin. (this is a real > > > > oversimplication of the chemical problem I am sure). People who > are > > > > sensitive to serotonin can also experience an increase anxiety > > instead > > > > of a decrease with the medication. After a bad episode with the > drug > > > > effexor, my Doctor put me on an older medication, a tricyclic > > > > anti-depressant, which were the type of antidepressants used > before > > the > > > > SSRIs came out. It has less of an effect on serotonin which is why > I > > > > could tolerate it better. If you wean her off the meds she is on > > now, I > > > > would suggest going very very slowly down on the dosages, I used > to > > even > > > > split pills into little fragments. My doctor said I have a very > > reactive > > > > system, the doctor before him did not believe this was > > > > possible(obviously it was and is) I am now on a SSRI called > Celexa, > > > > which has a much > > > > > more selective action on the serotonin probably why I don't have > > the > > > > side effects of suicidal thoughts or anxiety. Of course everyone > > reacts > > > > to the drugs differently > > > > > > > > > > > > > > > If your daughter does go back onto a new med, I would suggest > > doing it > > > > very very slowly, now that I understand how sensitive I am to > > serotonin, > > > > I understand why I sometimes initially feel worse transitioning > onto > > a > > > > med, and tell myself it will eventually go away once I adjust, > which > > it > > > > usually does. If it doesn't go away or it is way to strong of a > > > > reaction, then it is not the drug for me and I have to tell the > > doctor > > > > right away. > > > > > > > > > > You are such a great mother for listening and believing your > > daughter > > > > when the doctors are telling you otherwise. I hope you can find a > > > > doctor who is a better fit or a therapist who is willing to work > > with > > > > your daughter without her being medicated, if medication is only > > making > > > > her worse. Maybe insisting that the current or next > doctor/therapist > > > > speak to Dr. , will help plead your case. > > > > > > > > > > I am only sharing my own experience as a patient here, so please > > do > > > > not take anything i say as medical advice for your daughter. I > know > > how > > > > frustating it is trying to find treatment for this what can be a > > very > > > > incapacitating sound sensitivity. > > > > > > > > > > I do have the problem with crashing after stressful times. > though > > > > since my moods have been stablizied on medication, it is less of a > > > > problem for me, this probably has more to do with an underlying > mood > > > > disorder in my case. I do permit myself to have time to decompress > > in > > > > solitude rather than trying to force myself to go until I crash. > For > > > > example I can't go from family/friends holiday event to event to > > event. > > > > I just have to insist on staying at home alone with a good book > > > > sometimes, even if people give me flack for it. > > > > > > > > > > I pray you find some relief for your daughter soon. > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > From: wouldlovetofindacurefor4s wouldlovetofindacurefor4s@ > > > > > To: Soundsensitivity > <mailto:Soundsensitivity%40yahoogroups.com> > > <mailto:Soundsensitivity%40yahoogroups.com> > > > > > Sent: Tuesday, December 13, 2011 7:42 AM > > > > > Subject: I am so sad!! > > > > > > > > > > > > > > > > > > > > My name is Bernadette. I have been a member now for over a year. > I > > > > have written my story about my > > > > > daughter who is now 14 before on this site. Wow things keep > > changing > > > > so rapidly. As of last November 2010 she no longer goes to school. > > > > While talking to my daughter with the tv on, the Today Show story > > came > > > > on and we couldn't believe it. We both watched in tears. Since > then > > > > she has really > > > > > tried to stop isolating herself which she was doing daily. She > was > > > > just living > > > > > in her bed and wouldn't come out. After the Today show, she got > > the > > > > courage to > > > > > start to go out a little more with some friends. She started > > tutering > > > > and her quality of life > > > > > started to improve. Anyway she also agreed to go back to > > counseling. > > > > She finally found a therapist she really liked. They also made her > > see > > > > a psychiatrist in the > > > > > same practice. The doctor wanted to start my daughter back on > meds > > > > for her anxiety. Well > > > > > my daughter agreed and after 3 weeks on the medicine she felt > like > > she > > > > wanted to > > > > > kill herself. We put her in the hospital to wean her off but to > > keep > > > > her there > > > > > they said she had to be put back on medicine otherwise insurance > > > > wouldn't cover > > > > > it. (which we finally got because she was always denied > insurance) > > > > Anyway she > > > > > started a new med and now the place where she goes to therapy > and > > > > really likes, > > > > > has refused to take her back. They said she is too high risk. > Who > > do > > > > therapists > > > > > help?...people who bite their nails? She needs help and they are > > > > denying > > > > > her to return. So she is coming out of the hospital on meds and > I > > > > have to start all over > > > > > again looking for help. They are the ones that started her on > > > > medicine!! She > > > > > is that percent of people who get suicidal thoughts when on > > > > antidepressants. > > > > > I am so sad for her, She has seen soooooo many doctors and has > > been > > > > laughed at > > > > > by so many and has been asked never to return by 3. You would > not > > > > believe what they have said to her this time too. Two > > > > > doctors at the hospital asked if she was doing this for > attention. > > > > When I told the doctor at the hospital she called > > > > > me to come home from work because she said the medicine was > giving > > her > > > > the > > > > > courage to kill herself..... the doctor said that it sounded too > > > > textbook and that > > > > > there was no way she said that herself. I told him, why would > she > > lie > > > > about how > > > > > she feels?? On the plus side the medicine gave her the courage > to > > eat > > > > with me > > > > > for the first time in about 4 or 5 years. Anyway my daughter is > so > > > > strong and I > > > > > am so proud of her. Here is my question for all of you. This was > > her > > > > pattern > > > > > even not on meds....My daughter stresses out so much about > events > > she > > > > has to attend (if > > > > > she has the courage to leave the house and go) but it takes sooo > > much > > > > courage that she crashes the > > > > > very next day for days or weeks. Does this happen to anyone > > > > else?...where you > > > > > hold it together so well that you crash immediately after?? (I > > wrote > > > > up to this part the other day) Well they released her out of the > > > > hospital yesterday. My husband and I went to meet with another > > Doctor > > > > who specializes in DBT last night. Anyway it was horrific!!!!!! > She > > > > did not believe any word we said, she couldn't believe my daughter > > > > doesn't eat with me. She also said that the people who appeared on > > the > > > > today show might have had other motives like money. I was like, > > > > WHAT????? She also said to me," boy you irritate alot of people in > > your > > > > family." I said I would never give up on my daughter but OMG all > the > > > > professionals I have met frustrate me so much. I feel so sorry for > > my > > > > daughter and all of you who suffer with this. I can't find any > help > > out > > > > there. They sent her home on meds but now I can't find a doctor > who > > > > wants to see her because they said she is high risk and they don't > > know > > > > how to help her. She only has 30 days of > > > > > medicine then what? I have to wean her off myself without help > > > > because no one wants to see her. I am so sad. I don't even know if > > > > this makes any sense but I had to vent...because no one else will > > > > believe us or help us. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2011 Report Share Posted December 14, 2011 Your daughter probably it sounds like isn't in sp ed, but if there is any diagnosed disability and maybe Misophoina qualifies as it relates to anxiety and is causing her to miss school that she might be eligible for homebound instruction??? Anyway anyone eligible for sp ed...and it doesn't just have to be students with developmental disorders, can graduate with their peers even if they are not finished with high school. My daughter who does have a dev. disability, did graduate with her peers and could have stayed in school until 21. But due to 4s, we decided that last year would be her last year in school...it made her so miserable everyday to go to school. So, we were done.Subject: Re: I am so sad!!To: Soundsensitivity Date: Wednesday, December 14, 2011, 9:43 AM I have done the same thing, sending old doctors the articles and trying to spread the word as well. I too, see my daughter not finishing school. I will fight for her to finish since she loves to learn but I am also open to the fact that she has to do it when she is ready. They told me she has until she is 21 to get her high school diploma or if she is eager she could even graduate earlier. Her dream is to graduate with her friends. At this rate with her missing so much school,I don't know how it is possible. I think your son will do the same, do it in his own time and when ready. It's never to late to go back. Does he work? Is he able to? > > > > > > > > > > Hi Bernadette, > > > > > It sounds to me like you are getting some very bad professional > > help. > > > > I am shocked! that doctors are turning her away because she is too > > "high > > > > risk" ? Is that legal? > > > > > > > > > > > > > > > I am one in the minority who can get suicidal thoughts while > > > > transitioning onto some medications. It has to do with the > serotonin > > as > > > > I understand it, I am very sensitive to serotonin. (this is a real > > > > oversimplication of the chemical problem I am sure). People who > are > > > > sensitive to serotonin can also experience an increase anxiety > > instead > > > > of a decrease with the medication. After a bad episode with the > drug > > > > effexor, my Doctor put me on an older medication, a tricyclic > > > > anti-depressant, which were the type of antidepressants used > before > > the > > > > SSRIs came out. It has less of an effect on serotonin which is why > I > > > > could tolerate it better. If you wean her off the meds she is on > > now, I > > > > would suggest going very very slowly down on the dosages, I used > to > > even > > > > split pills into little fragments. My doctor said I have a very > > reactive > > > > system, the doctor before him did not believe this was > > > > possible(obviously it was and is) I am now on a SSRI called > Celexa, > > > > which has a much > > > > > more selective action on the serotonin probably why I don't have > > the > > > > side effects of suicidal thoughts or anxiety. Of course everyone > > reacts > > > > to the drugs differently > > > > > > > > > > > > > > > If your daughter does go back onto a new med, I would suggest > > doing it > > > > very very slowly, now that I understand how sensitive I am to > > serotonin, > > > > I understand why I sometimes initially feel worse transitioning > onto > > a > > > > med, and tell myself it will eventually go away once I adjust, > which > > it > > > > usually does. If it doesn't go away or it is way to strong of a > > > > reaction, then it is not the drug for me and I have to tell the > > doctor > > > > right away. > > > > > > > > > > You are such a great mother for listening and believing your > > daughter > > > > when the doctors are telling you otherwise. I hope you can find a > > > > doctor who is a better fit or a therapist who is willing to work > > with > > > > your daughter without her being medicated, if medication is only > > making > > > > her worse. Maybe insisting that the current or next > doctor/therapist > > > > speak to Dr. , will help plead your case. > > > > > > > > > > I am only sharing my own experience as a patient here, so please > > do > > > > not take anything i say as medical advice for your daughter. I > know > > how > > > > frustating it is trying to find treatment for this what can be a > > very > > > > incapacitating sound sensitivity. > > > > > > > > > > I do have the problem with crashing after stressful times. > though > > > > since my moods have been stablizied on medication, it is less of a > > > > problem for me, this probably has more to do with an underlying > mood > > > > disorder in my case. I do permit myself to have time to decompress > > in > > > > solitude rather than trying to force myself to go until I crash. > For > > > > example I can't go from family/friends holiday event to event to > > event. > > > > I just have to insist on staying at home alone with a good book > > > > sometimes, even if people give me flack for it. > > > > > > > > > > I pray you find some relief for your daughter soon. > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > From: wouldlovetofindacurefor4s wouldlovetofindacurefor4s@ > > > > > To: Soundsensitivity > <mailto:Soundsensitivity%40yahoogroups.com> > > <mailto:Soundsensitivity%40yahoogroups.com> > > > > > Sent: Tuesday, December 13, 2011 7:42 AM > > > > > Subject: I am so sad!! > > > > > > > > > > > > > > > > > > > > My name is Bernadette. I have been a member now for over a year. > I > > > > have written my story about my > > > > > daughter who is now 14 before on this site. Wow things keep > > changing > > > > so rapidly. As of last November 2010 she no longer goes to school. > > > > While talking to my daughter with the tv on, the Today Show story > > came > > > > on and we couldn't believe it. We both watched in tears. Since > then > > > > she has really > > > > > tried to stop isolating herself which she was doing daily. She > was > > > > just living > > > > > in her bed and wouldn't come out. After the Today show, she got > > the > > > > courage to > > > > > start to go out a little more with some friends. She started > > tutering > > > > and her quality of life > > > > > started to improve. Anyway she also agreed to go back to > > counseling. > > > > She finally found a therapist she really liked. They also made her > > see > > > > a psychiatrist in the > > > > > same practice. The doctor wanted to start my daughter back on > meds > > > > for her anxiety. Well > > > > > my daughter agreed and after 3 weeks on the medicine she felt > like > > she > > > > wanted to > > > > > kill herself. We put her in the hospital to wean her off but to > > keep > > > > her there > > > > > they said she had to be put back on medicine otherwise insurance > > > > wouldn't cover > > > > > it. (which we finally got because she was always denied > insurance) > > > > Anyway she > > > > > started a new med and now the place where she goes to therapy > and > > > > really likes, > > > > > has refused to take her back. They said she is too high risk. > Who > > do > > > > therapists > > > > > help?...people who bite their nails? She needs help and they are > > > > denying > > > > > her to return. So she is coming out of the hospital on meds and > I > > > > have to start all over > > > > > again looking for help. They are the ones that started her on > > > > medicine!! She > > > > > is that percent of people who get suicidal thoughts when on > > > > antidepressants. > > > > > I am so sad for her, She has seen soooooo many doctors and has > > been > > > > laughed at > > > > > by so many and has been asked never to return by 3. You would > not > > > > believe what they have said to her this time too. Two > > > > > doctors at the hospital asked if she was doing this for > attention. > > > > When I told the doctor at the hospital she called > > > > > me to come home from work because she said the medicine was > giving > > her > > > > the > > > > > courage to kill herself..... the doctor said that it sounded too > > > > textbook and that > > > > > there was no way she said that herself. I told him, why would > she > > lie > > > > about how > > > > > she feels?? On the plus side the medicine gave her the courage > to > > eat > > > > with me > > > > > for the first time in about 4 or 5 years. Anyway my daughter is > so > > > > strong and I > > > > > am so proud of her. Here is my question for all of you. This was > > her > > > > pattern > > > > > even not on meds....My daughter stresses out so much about > events > > she > > > > has to attend (if > > > > > she has the courage to leave the house and go) but it takes sooo > > much > > > > courage that she crashes the > > > > > very next day for days or weeks. Does this happen to anyone > > > > else?...where you > > > > > hold it together so well that you crash immediately after?? (I > > wrote > > > > up to this part the other day) Well they released her out of the > > > > hospital yesterday. My husband and I went to meet with another > > Doctor > > > > who specializes in DBT last night. Anyway it was horrific!!!!!! > She > > > > did not believe any word we said, she couldn't believe my daughter > > > > doesn't eat with me. She also said that the people who appeared on > > the > > > > today show might have had other motives like money. I was like, > > > > WHAT????? She also said to me," boy you irritate alot of people in > > your > > > > family." I said I would never give up on my daughter but OMG all > the > > > > professionals I have met frustrate me so much. I feel so sorry for > > my > > > > daughter and all of you who suffer with this. I can't find any > help > > out > > > > there. They sent her home on meds but now I can't find a doctor > who > > > > wants to see her because they said she is high risk and they don't > > know > > > > how to help her. She only has 30 days of > > > > > medicine then what? I have to wean her off myself without help > > > > because no one wants to see her. I am so sad. I don't even know if > > > > this makes any sense but I had to vent...because no one else will > > > > believe us or help us. > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 I’m sorry it took a while to reply . . . No, my son does not work (has never worked) and is on disability, officially for severe OCD and severe anxiety. He really does not like being on disability and would prefer to work. He could possibly work, but only if accomodations were made, mostly for his misophonia which isn’t even part of his official diagnosis/disability. Also, although he is very smart, would like to work, and would be a very good and honest employee, most employers would not hire him as they would perceive him to be “odd” or “different” (particularly during an interview) – such a shame. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of wouldlovetofindacurefor4sSent: Wednesday, December 14, 2011 7:43 AMTo: Soundsensitivity Subject: Re: I am so sad!!Importance: High I have done the same thing, sending old doctors the articles and trying to spread the word as well. I too, see my daughter not finishing school. I will fight for her to finish since she loves to learn but I am also open to the fact that she has to do it when she is ready. They told me she has until she is 21 to get her high school diploma or if she is eager she could even graduate earlier. Her dream is to graduate with her friends. At this rate with her missing so much school,I don't know how it is possible. I think your son will do the same, do it in his own time and when ready. It's never to late to go back. Does he work? Is he able to?> > > > >> > > > > Hi Bernadette,> > > > > It sounds to me like you are getting some very bad professional> > help.> > > > I am shocked! that doctors are turning her away because she is too> > " high> > > > risk " ? Is that legal?> > > > >> > > > >> > > > > I am one in the minority who can get suicidal thoughts while> > > > transitioning onto some medications. It has to do with the> serotonin> > as> > > > I understand it, I am very sensitive to serotonin. (this is a real> > > > oversimplication of the chemical problem I am sure). People who> are> > > > sensitive to serotonin can also experience an increase anxiety> > instead> > > > of a decrease with the medication. After a bad episode with the> drug> > > > effexor, my Doctor put me on an older medication, a tricyclic> > > > anti-depressant, which were the type of antidepressants used> before> > the> > > > SSRIs came out. It has less of an effect on serotonin which is why> I> > > > could tolerate it better. If you wean her off the meds she is on> > now, I> > > > would suggest going very very slowly down on the dosages, I used> to> > even> > > > split pills into little fragments. My doctor said I have a very> > reactive> > > > system, the doctor before him did not believe this was> > > > possible(obviously it was and is) I am now on a SSRI called> Celexa,> > > > which has a much> > > > > more selective action on the serotonin probably why I don't have> > the> > > > side effects of suicidal thoughts or anxiety. Of course everyone> > reacts> > > > to the drugs differently> > > > >> > > > >> > > > > If your daughter does go back onto a new med, I would suggest> > doing it> > > > very very slowly, now that I understand how sensitive I am to> > serotonin,> > > > I understand why I sometimes initially feel worse transitioning> onto> > a> > > > med, and tell myself it will eventually go away once I adjust,> which> > it> > > > usually does. If it doesn't go away or it is way to strong of a> > > > reaction, then it is not the drug for me and I have to tell the> > doctor> > > > right away.> > > > >> > > > > You are such a great mother for listening and believing your> > daughter> > > > when the doctors are telling you otherwise. I hope you can find a> > > > doctor who is a better fit or a therapist who is willing to work> > with> > > > your daughter without her being medicated, if medication is only> > making> > > > her worse. Maybe insisting that the current or next> doctor/therapist> > > > speak to Dr. , will help plead your case.> > > > >> > > > > I am only sharing my own experience as a patient here, so please> > do> > > > not take anything i say as medical advice for your daughter. I> know> > how> > > > frustating it is trying to find treatment for this what can be a> > very> > > > incapacitating sound sensitivity.> > > > >> > > > > I do have the problem with crashing after stressful times.> though> > > > since my moods have been stablizied on medication, it is less of a> > > > problem for me, this probably has more to do with an underlying> mood> > > > disorder in my case. I do permit myself to have time to decompress> > in> > > > solitude rather than trying to force myself to go until I crash.> For> > > > example I can't go from family/friends holiday event to event to> > event.> > > > I just have to insist on staying at home alone with a good book> > > > sometimes, even if people give me flack for it.> > > > >> > > > > I pray you find some relief for your daughter soon.> > > > >> > > > >> > > > >> > > > > ________________________________> > > > > From: wouldlovetofindacurefor4s wouldlovetofindacurefor4s@> > > > > To: Soundsensitivity > <mailto:Soundsensitivity%40yahoogroups.com> > > <mailto:Soundsensitivity%40yahoogroups.com>> > > > > Sent: Tuesday, December 13, 2011 7:42 AM> > > > > Subject: I am so sad!!> > > > >> > > > >> > > > >> > > > > My name is Bernadette. I have been a member now for over a year.> I> > > > have written my story about my> > > > > daughter who is now 14 before on this site. Wow things keep> > changing> > > > so rapidly. As of last November 2010 she no longer goes to school.> > > > While talking to my daughter with the tv on, the Today Show story> > came> > > > on and we couldn't believe it. We both watched in tears. Since> then> > > > she has really> > > > > tried to stop isolating herself which she was doing daily. She> was> > > > just living> > > > > in her bed and wouldn't come out. After the Today show, she got> > the> > > > courage to> > > > > start to go out a little more with some friends. She started> > tutering> > > > and her quality of life> > > > > started to improve. Anyway she also agreed to go back to> > counseling.> > > > She finally found a therapist she really liked. They also made her> > see> > > > a psychiatrist in the> > > > > same practice. The doctor wanted to start my daughter back on> meds> > > > for her anxiety. Well> > > > > my daughter agreed and after 3 weeks on the medicine she felt> like> > she> > > > wanted to> > > > > kill herself. We put her in the hospital to wean her off but to> > keep> > > > her there> > > > > they said she had to be put back on medicine otherwise insurance> > > > wouldn't cover> > > > > it. (which we finally got because she was always denied> insurance)> > > > Anyway she> > > > > started a new med and now the place where she goes to therapy> and> > > > really likes,> > > > > has refused to take her back. They said she is too high risk.> Who> > do> > > > therapists> > > > > help?...people who bite their nails? She needs help and they are> > > > denying> > > > > her to return. So she is coming out of the hospital on meds and> I> > > > have to start all over> > > > > again looking for help. They are the ones that started her on> > > > medicine!! She> > > > > is that percent of people who get suicidal thoughts when on> > > > antidepressants.> > > > > I am so sad for her, She has seen soooooo many doctors and has> > been> > > > laughed at> > > > > by so many and has been asked never to return by 3. You would> not> > > > believe what they have said to her this time too. Two> > > > > doctors at the hospital asked if she was doing this for> attention.> > > > When I told the doctor at the hospital she called> > > > > me to come home from work because she said the medicine was> giving> > her> > > > the> > > > > courage to kill herself..... the doctor said that it sounded too> > > > textbook and that> > > > > there was no way she said that herself. I told him, why would> she> > lie> > > > about how> > > > > she feels?? On the plus side the medicine gave her the courage> to> > eat> > > > with me> > > > > for the first time in about 4 or 5 years. Anyway my daughter is> so> > > > strong and I> > > > > am so proud of her. Here is my question for all of you. This was> > her> > > > pattern> > > > > even not on meds....My daughter stresses out so much about> events> > she> > > > has to attend (if> > > > > she has the courage to leave the house and go) but it takes sooo> > much> > > > courage that she crashes the> > > > > very next day for days or weeks. Does this happen to anyone> > > > else?...where you> > > > > hold it together so well that you crash immediately after?? (I> > wrote> > > > up to this part the other day) Well they released her out of the> > > > hospital yesterday. My husband and I went to meet with another> > Doctor> > > > who specializes in DBT last night. Anyway it was horrific!!!!!!> She> > > > did not believe any word we said, she couldn't believe my daughter> > > > doesn't eat with me. She also said that the people who appeared on> > the> > > > today show might have had other motives like money. I was like,> > > > WHAT????? She also said to me, " boy you irritate alot of people in> > your> > > > family. " I said I would never give up on my daughter but OMG all> the> > > > professionals I have met frustrate me so much. I feel so sorry for> > my> > > > daughter and all of you who suffer with this. I can't find any> help> > out> > > > there. They sent her home on meds but now I can't find a doctor> who> > > > wants to see her because they said she is high risk and they don't> > know> > > > how to help her. She only has 30 days of> > > > > medicine then what? I have to wean her off myself without help> > > > because no one wants to see her. I am so sad. I don't even know if> > > > this makes any sense but I had to vent...because no one else will> > > > believe us or help us.> > > > >> > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2011 Report Share Posted December 31, 2011 Often employers will accomodate this issue, they are more sympathetic for a valued employee that we might suspect. This last week had a young man who was given a private office at his work due to this, very nice employer and of course, he can do his work so much better. Dr. J > > > > > > > > > > > > Hi Bernadette, > > > > > > It sounds to me like you are getting some very bad > professional > > > help. > > > > > I am shocked! that doctors are turning her away because she is > too > > > " high > > > > > risk " ? Is that legal? > > > > > > > > > > > > > > > > > > I am one in the minority who can get suicidal thoughts while > > > > > transitioning onto some medications. It has to do with the > > serotonin > > > as > > > > > I understand it, I am very sensitive to serotonin. (this is a > real > > > > > oversimplication of the chemical problem I am sure). People who > > are > > > > > sensitive to serotonin can also experience an increase anxiety > > > instead > > > > > of a decrease with the medication. After a bad episode with the > > drug > > > > > effexor, my Doctor put me on an older medication, a tricyclic > > > > > anti-depressant, which were the type of antidepressants used > > before > > > the > > > > > SSRIs came out. It has less of an effect on serotonin which is > why > > I > > > > > could tolerate it better. If you wean her off the meds she is on > > > now, I > > > > > would suggest going very very slowly down on the dosages, I used > > to > > > even > > > > > split pills into little fragments. My doctor said I have a very > > > reactive > > > > > system, the doctor before him did not believe this was > > > > > possible(obviously it was and is) I am now on a SSRI called > > Celexa, > > > > > which has a much > > > > > > more selective action on the serotonin probably why I don't > have > > > the > > > > > side effects of suicidal thoughts or anxiety. Of course everyone > > > reacts > > > > > to the drugs differently > > > > > > > > > > > > > > > > > > If your daughter does go back onto a new med, I would suggest > > > doing it > > > > > very very slowly, now that I understand how sensitive I am to > > > serotonin, > > > > > I understand why I sometimes initially feel worse transitioning > > onto > > > a > > > > > med, and tell myself it will eventually go away once I adjust, > > which > > > it > > > > > usually does. If it doesn't go away or it is way to strong of a > > > > > reaction, then it is not the drug for me and I have to tell the > > > doctor > > > > > right away. > > > > > > > > > > > > You are such a great mother for listening and believing your > > > daughter > > > > > when the doctors are telling you otherwise. I hope you can find > a > > > > > doctor who is a better fit or a therapist who is willing to work > > > with > > > > > your daughter without her being medicated, if medication is only > > > making > > > > > her worse. Maybe insisting that the current or next > > doctor/therapist > > > > > speak to Dr. , will help plead your case. > > > > > > > > > > > > I am only sharing my own experience as a patient here, so > please > > > do > > > > > not take anything i say as medical advice for your daughter. I > > know > > > how > > > > > frustating it is trying to find treatment for this what can be a > > > very > > > > > incapacitating sound sensitivity. > > > > > > > > > > > > I do have the problem with crashing after stressful times. > > though > > > > > since my moods have been stablizied on medication, it is less of > a > > > > > problem for me, this probably has more to do with an underlying > > mood > > > > > disorder in my case. I do permit myself to have time to > decompress > > > in > > > > > solitude rather than trying to force myself to go until I crash. > > For > > > > > example I can't go from family/friends holiday event to event to > > > event. > > > > > I just have to insist on staying at home alone with a good book > > > > > sometimes, even if people give me flack for it. > > > > > > > > > > > > I pray you find some relief for your daughter soon. > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > From: wouldlovetofindacurefor4s wouldlovetofindacurefor4s@ > > > > > > To: Soundsensitivity > <mailto:Soundsensitivity%40yahoogroups.com> > > <mailto:Soundsensitivity%40yahoogroups.com> > > > <mailto:Soundsensitivity%40yahoogroups.com> > > > > > > Sent: Tuesday, December 13, 2011 7:42 AM > > > > > > Subject: I am so sad!! > > > > > > > > > > > > > > > > > > > > > > > > My name is Bernadette. I have been a member now for over a > year. > > I > > > > > have written my story about my > > > > > > daughter who is now 14 before on this site. Wow things keep > > > changing > > > > > so rapidly. As of last November 2010 she no longer goes to > school. > > > > > While talking to my daughter with the tv on, the Today Show > story > > > came > > > > > on and we couldn't believe it. We both watched in tears. Since > > then > > > > > she has really > > > > > > tried to stop isolating herself which she was doing daily. She > > was > > > > > just living > > > > > > in her bed and wouldn't come out. After the Today show, she > got > > > the > > > > > courage to > > > > > > start to go out a little more with some friends. She started > > > tutering > > > > > and her quality of life > > > > > > started to improve. Anyway she also agreed to go back to > > > counseling. > > > > > She finally found a therapist she really liked. They also made > her > > > see > > > > > a psychiatrist in the > > > > > > same practice. The doctor wanted to start my daughter back on > > meds > > > > > for her anxiety. Well > > > > > > my daughter agreed and after 3 weeks on the medicine she felt > > like > > > she > > > > > wanted to > > > > > > kill herself. We put her in the hospital to wean her off but > to > > > keep > > > > > her there > > > > > > they said she had to be put back on medicine otherwise > insurance > > > > > wouldn't cover > > > > > > it. (which we finally got because she was always denied > > insurance) > > > > > Anyway she > > > > > > started a new med and now the place where she goes to therapy > > and > > > > > really likes, > > > > > > has refused to take her back. They said she is too high risk. > > Who > > > do > > > > > therapists > > > > > > help?...people who bite their nails? She needs help and they > are > > > > > denying > > > > > > her to return. So she is coming out of the hospital on meds > and > > I > > > > > have to start all over > > > > > > again looking for help. They are the ones that started her on > > > > > medicine!! She > > > > > > is that percent of people who get suicidal thoughts when on > > > > > antidepressants. > > > > > > I am so sad for her, She has seen soooooo many doctors and has > > > been > > > > > laughed at > > > > > > by so many and has been asked never to return by 3. You would > > not > > > > > believe what they have said to her this time too. Two > > > > > > doctors at the hospital asked if she was doing this for > > attention. > > > > > When I told the doctor at the hospital she called > > > > > > me to come home from work because she said the medicine was > > giving > > > her > > > > > the > > > > > > courage to kill herself..... the doctor said that it sounded > too > > > > > textbook and that > > > > > > there was no way she said that herself. I told him, why would > > she > > > lie > > > > > about how > > > > > > she feels?? On the plus side the medicine gave her the courage > > to > > > eat > > > > > with me > > > > > > for the first time in about 4 or 5 years. Anyway my daughter > is > > so > > > > > strong and I > > > > > > am so proud of her. Here is my question for all of you. This > was > > > her > > > > > pattern > > > > > > even not on meds....My daughter stresses out so much about > > events > > > she > > > > > has to attend (if > > > > > > she has the courage to leave the house and go) but it takes > sooo > > > much > > > > > courage that she crashes the > > > > > > very next day for days or weeks. Does this happen to anyone > > > > > else?...where you > > > > > > hold it together so well that you crash immediately after?? (I > > > wrote > > > > > up to this part the other day) Well they released her out of the > > > > > hospital yesterday. My husband and I went to meet with another > > > Doctor > > > > > who specializes in DBT last night. Anyway it was horrific!!!!!! > > She > > > > > did not believe any word we said, she couldn't believe my > daughter > > > > > doesn't eat with me. She also said that the people who appeared > on > > > the > > > > > today show might have had other motives like money. I was like, > > > > > WHAT????? She also said to me, " boy you irritate alot of people > in > > > your > > > > > family. " I said I would never give up on my daughter but OMG all > > the > > > > > professionals I have met frustrate me so much. I feel so sorry > for > > > my > > > > > daughter and all of you who suffer with this. I can't find any > > help > > > out > > > > > there. They sent her home on meds but now I can't find a doctor > > who > > > > > wants to see her because they said she is high risk and they > don't > > > know > > > > > how to help her. She only has 30 days of > > > > > > medicine then what? I have to wean her off myself without help > > > > > because no one wants to see her. I am so sad. I don't even know > if > > > > > this makes any sense but I had to vent...because no one else > will > > > > > believe us or help us. > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2012 Report Share Posted January 2, 2012 Thank you for your words of encouragement, Dr. J. Now if I can just figure out how to get someone to accept and hire him in the first place, especially because he does have issues (e.g. OCD) other than misophonia that make surviving an interview extremely difficult and being accepted/hired through the interview process highly unlikely. He would need a special “personal connection” through a nearby place of employment, which we do not have – someone who would be willing to take a chance on him outside of the normal hiring process. Still, it’s good to hear about instances where some employers have been understanding in making accomodations for misophonia! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of MSent: Saturday, December 31, 2011 8:13 PMTo: Soundsensitivity Subject: Re: I am so sad!! Often employers will accomodate this issue, they are more sympathetic for a valued employee that we might suspect.This last week had a young man who was given a private office at his work due to this, very nice employer and of course, he can do his work so much better.Dr. J> > > > > >> > > > > > Hi Bernadette,> > > > > > It sounds to me like you are getting some very bad> professional> > > help.> > > > > I am shocked! that doctors are turning her away because she is> too> > > " high> > > > > risk " ? Is that legal?> > > > > >> > > > > >> > > > > > I am one in the minority who can get suicidal thoughts while> > > > > transitioning onto some medications. It has to do with the> > serotonin> > > as> > > > > I understand it, I am very sensitive to serotonin. (this is a> real> > > > > oversimplication of the chemical problem I am sure). People who> > are> > > > > sensitive to serotonin can also experience an increase anxiety> > > instead> > > > > of a decrease with the medication. After a bad episode with the> > drug> > > > > effexor, my Doctor put me on an older medication, a tricyclic> > > > > anti-depressant, which were the type of antidepressants used> > before> > > the> > > > > SSRIs came out. It has less of an effect on serotonin which is> why> > I> > > > > could tolerate it better. If you wean her off the meds she is on> > > now, I> > > > > would suggest going very very slowly down on the dosages, I used> > to> > > even> > > > > split pills into little fragments. My doctor said I have a very> > > reactive> > > > > system, the doctor before him did not believe this was> > > > > possible(obviously it was and is) I am now on a SSRI called> > Celexa,> > > > > which has a much> > > > > > more selective action on the serotonin probably why I don't> have> > > the> > > > > side effects of suicidal thoughts or anxiety. Of course everyone> > > reacts> > > > > to the drugs differently> > > > > >> > > > > >> > > > > > If your daughter does go back onto a new med, I would suggest> > > doing it> > > > > very very slowly, now that I understand how sensitive I am to> > > serotonin,> > > > > I understand why I sometimes initially feel worse transitioning> > onto> > > a> > > > > med, and tell myself it will eventually go away once I adjust,> > which> > > it> > > > > usually does. If it doesn't go away or it is way to strong of a> > > > > reaction, then it is not the drug for me and I have to tell the> > > doctor> > > > > right away.> > > > > >> > > > > > You are such a great mother for listening and believing your> > > daughter> > > > > when the doctors are telling you otherwise. I hope you can find> a> > > > > doctor who is a better fit or a therapist who is willing to work> > > with> > > > > your daughter without her being medicated, if medication is only> > > making> > > > > her worse. Maybe insisting that the current or next> > doctor/therapist> > > > > speak to Dr. , will help plead your case.> > > > > >> > > > > > I am only sharing my own experience as a patient here, so> please> > > do> > > > > not take anything i say as medical advice for your daughter. I> > know> > > how> > > > > frustating it is trying to find treatment for this what can be a> > > very> > > > > incapacitating sound sensitivity.> > > > > >> > > > > > I do have the problem with crashing after stressful times.> > though> > > > > since my moods have been stablizied on medication, it is less of> a> > > > > problem for me, this probably has more to do with an underlying> > mood> > > > > disorder in my case. I do permit myself to have time to> decompress> > > in> > > > > solitude rather than trying to force myself to go until I crash.> > For> > > > > example I can't go from family/friends holiday event to event to> > > event.> > > > > I just have to insist on staying at home alone with a good book> > > > > sometimes, even if people give me flack for it.> > > > > >> > > > > > I pray you find some relief for your daughter soon.> > > > > >> > > > > >> > > > > >> > > > > > ________________________________> > > > > > From: wouldlovetofindacurefor4s wouldlovetofindacurefor4s@> > > > > > To: Soundsensitivity > <mailto:Soundsensitivity%40yahoogroups.com> > > <mailto:Soundsensitivity%40yahoogroups.com> > > > <mailto:Soundsensitivity%40yahoogroups.com>> > > > > > Sent: Tuesday, December 13, 2011 7:42 AM> > > > > > Subject: I am so sad!!> > > > > >> > > > > >> > > > > >> > > > > > My name is Bernadette. I have been a member now for over a> year.> > I> > > > > have written my story about my> > > > > > daughter who is now 14 before on this site. Wow things keep> > > changing> > > > > so rapidly. As of last November 2010 she no longer goes to> school.> > > > > While talking to my daughter with the tv on, the Today Show> story> > > came> > > > > on and we couldn't believe it. We both watched in tears. Since> > then> > > > > she has really> > > > > > tried to stop isolating herself which she was doing daily. She> > was> > > > > just living> > > > > > in her bed and wouldn't come out. After the Today show, she> got> > > the> > > > > courage to> > > > > > start to go out a little more with some friends. She started> > > tutering> > > > > and her quality of life> > > > > > started to improve. Anyway she also agreed to go back to> > > counseling.> > > > > She finally found a therapist she really liked. They also made> her> > > see> > > > > a psychiatrist in the> > > > > > same practice. The doctor wanted to start my daughter back on> > meds> > > > > for her anxiety. Well> > > > > > my daughter agreed and after 3 weeks on the medicine she felt> > like> > > she> > > > > wanted to> > > > > > kill herself. We put her in the hospital to wean her off but> to> > > keep> > > > > her there> > > > > > they said she had to be put back on medicine otherwise> insurance> > > > > wouldn't cover> > > > > > it. (which we finally got because she was always denied> > insurance)> > > > > Anyway she> > > > > > started a new med and now the place where she goes to therapy> > and> > > > > really likes,> > > > > > has refused to take her back. They said she is too high risk.> > Who> > > do> > > > > therapists> > > > > > help?...people who bite their nails? She needs help and they> are> > > > > denying> > > > > > her to return. So she is coming out of the hospital on meds> and> > I> > > > > have to start all over> > > > > > again looking for help. They are the ones that started her on> > > > > medicine!! She> > > > > > is that percent of people who get suicidal thoughts when on> > > > > antidepressants.> > > > > > I am so sad for her, She has seen soooooo many doctors and has> > > been> > > > > laughed at> > > > > > by so many and has been asked never to return by 3. You would> > not> > > > > believe what they have said to her this time too. Two> > > > > > doctors at the hospital asked if she was doing this for> > attention.> > > > > When I told the doctor at the hospital she called> > > > > > me to come home from work because she said the medicine was> > giving> > > her> > > > > the> > > > > > courage to kill herself..... the doctor said that it sounded> too> > > > > textbook and that> > > > > > there was no way she said that herself. I told him, why would> > she> > > lie> > > > > about how> > > > > > she feels?? On the plus side the medicine gave her the courage> > to> > > eat> > > > > with me> > > > > > for the first time in about 4 or 5 years. Anyway my daughter> is> > so> > > > > strong and I> > > > > > am so proud of her. Here is my question for all of you. This> was> > > her> > > > > pattern> > > > > > even not on meds....My daughter stresses out so much about> > events> > > she> > > > > has to attend (if> > > > > > she has the courage to leave the house and go) but it takes> sooo> > > much> > > > > courage that she crashes the> > > > > > very next day for days or weeks. Does this happen to anyone> > > > > else?...where you> > > > > > hold it together so well that you crash immediately after?? (I> > > wrote> > > > > up to this part the other day) Well they released her out of the> > > > > hospital yesterday. My husband and I went to meet with another> > > Doctor> > > > > who specializes in DBT last night. Anyway it was horrific!!!!!!> > She> > > > > did not believe any word we said, she couldn't believe my> daughter> > > > > doesn't eat with me. She also said that the people who appeared> on> > > the> > > > > today show might have had other motives like money. I was like,> > > > > WHAT????? She also said to me, " boy you irritate alot of people> in> > > your> > > > > family. " I said I would never give up on my daughter but OMG all> > the> > > > > professionals I have met frustrate me so much. I feel so sorry> for> > > my> > > > > daughter and all of you who suffer with this. I can't find any> > help> > > out> > > > > there. They sent her home on meds but now I can't find a doctor> > who> > > > > wants to see her because they said she is high risk and they> don't> > > know> > > > > how to help her. She only has 30 days of> > > > > > medicine then what? I have to wean her off myself without help> > > > > because no one wants to see her. I am so sad. I don't even know> if> > > > > this makes any sense but I had to vent...because no one else> will> > > > > believe us or help us.> > > > > >> > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2012 Report Share Posted January 2, 2012 Thank you for your words of encouragement, Dr. J. Now if I can just figure out how to get someone to accept and hire him in the first place, especially because he does have issues (e.g. OCD) other than misophonia that make surviving an interview extremely difficult and being accepted/hired through the interview process highly unlikely. He would need a special “personal connection” through a nearby place of employment, which we do not have – someone who would be willing to take a chance on him outside of the normal hiring process. Still, it’s good to hear about instances where some employers have been understanding in making accomodations for misophonia! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of MSent: Saturday, December 31, 2011 8:13 PMTo: Soundsensitivity Subject: Re: I am so sad!! Often employers will accomodate this issue, they are more sympathetic for a valued employee that we might suspect.This last week had a young man who was given a private office at his work due to this, very nice employer and of course, he can do his work so much better.Dr. J> > > > > >> > > > > > Hi Bernadette,> > > > > > It sounds to me like you are getting some very bad> professional> > > help.> > > > > I am shocked! that doctors are turning her away because she is> too> > > " high> > > > > risk " ? Is that legal?> > > > > >> > > > > >> > > > > > I am one in the minority who can get suicidal thoughts while> > > > > transitioning onto some medications. It has to do with the> > serotonin> > > as> > > > > I understand it, I am very sensitive to serotonin. (this is a> real> > > > > oversimplication of the chemical problem I am sure). People who> > are> > > > > sensitive to serotonin can also experience an increase anxiety> > > instead> > > > > of a decrease with the medication. After a bad episode with the> > drug> > > > > effexor, my Doctor put me on an older medication, a tricyclic> > > > > anti-depressant, which were the type of antidepressants used> > before> > > the> > > > > SSRIs came out. It has less of an effect on serotonin which is> why> > I> > > > > could tolerate it better. If you wean her off the meds she is on> > > now, I> > > > > would suggest going very very slowly down on the dosages, I used> > to> > > even> > > > > split pills into little fragments. My doctor said I have a very> > > reactive> > > > > system, the doctor before him did not believe this was> > > > > possible(obviously it was and is) I am now on a SSRI called> > Celexa,> > > > > which has a much> > > > > > more selective action on the serotonin probably why I don't> have> > > the> > > > > side effects of suicidal thoughts or anxiety. Of course everyone> > > reacts> > > > > to the drugs differently> > > > > >> > > > > >> > > > > > If your daughter does go back onto a new med, I would suggest> > > doing it> > > > > very very slowly, now that I understand how sensitive I am to> > > serotonin,> > > > > I understand why I sometimes initially feel worse transitioning> > onto> > > a> > > > > med, and tell myself it will eventually go away once I adjust,> > which> > > it> > > > > usually does. If it doesn't go away or it is way to strong of a> > > > > reaction, then it is not the drug for me and I have to tell the> > > doctor> > > > > right away.> > > > > >> > > > > > You are such a great mother for listening and believing your> > > daughter> > > > > when the doctors are telling you otherwise. I hope you can find> a> > > > > doctor who is a better fit or a therapist who is willing to work> > > with> > > > > your daughter without her being medicated, if medication is only> > > making> > > > > her worse. Maybe insisting that the current or next> > doctor/therapist> > > > > speak to Dr. , will help plead your case.> > > > > >> > > > > > I am only sharing my own experience as a patient here, so> please> > > do> > > > > not take anything i say as medical advice for your daughter. I> > know> > > how> > > > > frustating it is trying to find treatment for this what can be a> > > very> > > > > incapacitating sound sensitivity.> > > > > >> > > > > > I do have the problem with crashing after stressful times.> > though> > > > > since my moods have been stablizied on medication, it is less of> a> > > > > problem for me, this probably has more to do with an underlying> > mood> > > > > disorder in my case. I do permit myself to have time to> decompress> > > in> > > > > solitude rather than trying to force myself to go until I crash.> > For> > > > > example I can't go from family/friends holiday event to event to> > > event.> > > > > I just have to insist on staying at home alone with a good book> > > > > sometimes, even if people give me flack for it.> > > > > >> > > > > > I pray you find some relief for your daughter soon.> > > > > >> > > > > >> > > > > >> > > > > > ________________________________> > > > > > From: wouldlovetofindacurefor4s wouldlovetofindacurefor4s@> > > > > > To: Soundsensitivity > <mailto:Soundsensitivity%40yahoogroups.com> > > <mailto:Soundsensitivity%40yahoogroups.com> > > > <mailto:Soundsensitivity%40yahoogroups.com>> > > > > > Sent: Tuesday, December 13, 2011 7:42 AM> > > > > > Subject: I am so sad!!> > > > > >> > > > > >> > > > > >> > > > > > My name is Bernadette. I have been a member now for over a> year.> > I> > > > > have written my story about my> > > > > > daughter who is now 14 before on this site. Wow things keep> > > changing> > > > > so rapidly. As of last November 2010 she no longer goes to> school.> > > > > While talking to my daughter with the tv on, the Today Show> story> > > came> > > > > on and we couldn't believe it. We both watched in tears. Since> > then> > > > > she has really> > > > > > tried to stop isolating herself which she was doing daily. She> > was> > > > > just living> > > > > > in her bed and wouldn't come out. After the Today show, she> got> > > the> > > > > courage to> > > > > > start to go out a little more with some friends. She started> > > tutering> > > > > and her quality of life> > > > > > started to improve. Anyway she also agreed to go back to> > > counseling.> > > > > She finally found a therapist she really liked. They also made> her> > > see> > > > > a psychiatrist in the> > > > > > same practice. The doctor wanted to start my daughter back on> > meds> > > > > for her anxiety. Well> > > > > > my daughter agreed and after 3 weeks on the medicine she felt> > like> > > she> > > > > wanted to> > > > > > kill herself. We put her in the hospital to wean her off but> to> > > keep> > > > > her there> > > > > > they said she had to be put back on medicine otherwise> insurance> > > > > wouldn't cover> > > > > > it. (which we finally got because she was always denied> > insurance)> > > > > Anyway she> > > > > > started a new med and now the place where she goes to therapy> > and> > > > > really likes,> > > > > > has refused to take her back. They said she is too high risk.> > Who> > > do> > > > > therapists> > > > > > help?...people who bite their nails? She needs help and they> are> > > > > denying> > > > > > her to return. So she is coming out of the hospital on meds> and> > I> > > > > have to start all over> > > > > > again looking for help. They are the ones that started her on> > > > > medicine!! She> > > > > > is that percent of people who get suicidal thoughts when on> > > > > antidepressants.> > > > > > I am so sad for her, She has seen soooooo many doctors and has> > > been> > > > > laughed at> > > > > > by so many and has been asked never to return by 3. You would> > not> > > > > believe what they have said to her this time too. Two> > > > > > doctors at the hospital asked if she was doing this for> > attention.> > > > > When I told the doctor at the hospital she called> > > > > > me to come home from work because she said the medicine was> > giving> > > her> > > > > the> > > > > > courage to kill herself..... the doctor said that it sounded> too> > > > > textbook and that> > > > > > there was no way she said that herself. I told him, why would> > she> > > lie> > > > > about how> > > > > > she feels?? On the plus side the medicine gave her the courage> > to> > > eat> > > > > with me> > > > > > for the first time in about 4 or 5 years. Anyway my daughter> is> > so> > > > > strong and I> > > > > > am so proud of her. Here is my question for all of you. This> was> > > her> > > > > pattern> > > > > > even not on meds....My daughter stresses out so much about> > events> > > she> > > > > has to attend (if> > > > > > she has the courage to leave the house and go) but it takes> sooo> > > much> > > > > courage that she crashes the> > > > > > very next day for days or weeks. Does this happen to anyone> > > > > else?...where you> > > > > > hold it together so well that you crash immediately after?? (I> > > wrote> > > > > up to this part the other day) Well they released her out of the> > > > > hospital yesterday. My husband and I went to meet with another> > > Doctor> > > > > who specializes in DBT last night. Anyway it was horrific!!!!!!> > She> > > > > did not believe any word we said, she couldn't believe my> daughter> > > > > doesn't eat with me. She also said that the people who appeared> on> > > the> > > > > today show might have had other motives like money. I was like,> > > > > WHAT????? She also said to me, " boy you irritate alot of people> in> > > your> > > > > family. " I said I would never give up on my daughter but OMG all> > the> > > > > professionals I have met frustrate me so much. I feel so sorry> for> > > my> > > > > daughter and all of you who suffer with this. I can't find any> > help> > > out> > > > > there. They sent her home on meds but now I can't find a doctor> > who> > > > > wants to see her because they said she is high risk and they> don't> > > know> > > > > how to help her. She only has 30 days of> > > > > > medicine then what? I have to wean her off myself without help> > > > > because no one wants to see her. I am so sad. I don't even know> if> > > > > this makes any sense but I had to vent...because no one else> will> > > > > believe us or help us.> > > > > >> > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2012 Report Share Posted January 2, 2012 hi there, this is intended for the lady with the 14 yo daughter.... first off god bless you and your daughter. and you are a great parent..iam brand new to this and iam not a good writer but me and my twin brother have lived with this weird disorder for the past 35 years.(extreme) well anybody with miso is extreme... (so grateful for this group) .. iam a leval headed guy and have never taken any prescibed drugs ....when i wass younger 9 thru the teens was by far the hardest times everybody including family members just thought we where crazy or very sensitive...the hardest part was school , i would get so frustrated with other classmates and freinds. i would take it to a personel level(direct threat)whenever someone would sniff,click pens, breath hard , tap anything,rub there feet on the ground , even visually, people mouths moving while chewing,fingers wiggleing,and the list goes on...thru my long experiiance with this is(IT HAS NOTHING TO DO WITH PHYSCOLOGICAL ISSUES OR MENTAL ISSUES)iam not a doctor nor have i studied anything medical.but i dont know the word but something diddnt get wired right .....to everyday normal people they would just think its some kind of phobia that can be fixed with (THERAPY or DRUGS)NOT THE CASE.........................I LAUGH AT THE THOUGHT...IVE SOMEHOW FIGUERD OUT HOW TO MANAGE LIFE.. I WORK IN CONSTRUCTION WICH IS TOLERABLE BECAUSE IAM ALWAYS MOVING AROUND AND NOT STUCK IN OFFICES OR ENVIROMENTS THAT DOESNT ALLOW ME TO ESCPE IMMEDIATELY, I KNOW YOU HAVE A DAUGHTER , . THE BEST THING I CAN THINK OF IS ONLINE SCHOOLING ....WICH IAM URE YOU HAVE LOOKED INTO ... BUT I WOULD STEER CLEAR OF MEDICATIONS AND PHYSIKIATRIST AND TRY TO LEED A NORMAL LIFE AS POSSIBLE...(UNTIL THEY FINID A CURE FOR MISO)...AT LEAST SHE HAS A GREAT FAMILY THAT SUPPORTS HER) I COMMEND YOU...I KNOW ITS HARD ON THE FAMILY ALSO.. WE PUT OUR S THRU HELL. I JUST GAVE MY MOM THE WEB SIGHT ON CHRISTMAS WHEN WE WHERE VISITING .. SURE CALLED A COUPLE OF DAYS AFTER IN TEARS... BUT I JUST WANT TO SAY STAY STRONG AND I LOVE WHAT YOU ARE DOING..THANKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2012 Report Share Posted January 13, 2012 Hi , Your notes made me so happy. I feel inspired from you. You have given me hope. You have found a job that works for you. You have found a way to manage. I read both your notes and they made me smile because you figured out a way to live with this. I appreciate you taking the time to write what has worked for you. I'm so sorry you had to struggle too growing up but you gave me hope that things can improve after my daughter's teen years. I am taking your advice about the medicine, they are still trying to force me to give her new meds. They think I am a bad parent because I won't try another med. I'm so glad your mom knows what it is now, that there is a name for this terrible condition. That must have been a great christmas present for both of you. I hope your brother is doing well also. I loved hearing your story, thanks for sharing and taking the time to write. > > hi there, this is intended for the lady with the 14 yo daughter.... first off god bless you and your daughter. and you are a great parent..iam brand new to this and iam not a good writer but me and my twin brother have lived with this weird disorder for the past 35 years.(extreme) well anybody with miso is extreme... (so grateful for this group) .. iam a leval headed guy and have never taken any prescibed drugs ....when i wass younger 9 thru the teens was by far the hardest times everybody including family members just thought we where crazy or very sensitive...the hardest part was school , i would get so frustrated with other classmates and freinds. i would take it to a personel level(direct threat)whenever someone would sniff,click pens, breath hard , tap anything,rub there feet on the ground , even visually, people mouths moving while chewing,fingers wiggleing,and the list goes on...thru my long experiiance with this is(IT HAS NOTHING TO DO WITH > PHYSCOLOGICAL ISSUES OR MENTAL ISSUES)iam not a doctor nor have i studied anything medical.but i dont know the word but something diddnt get wired right .....to everyday normal people they would just think its some kind of phobia that can be fixed with (THERAPY or DRUGS)NOT THE CASE.........................I LAUGH AT THE THOUGHT...IVE SOMEHOW FIGUERD OUT HOW TO MANAGE LIFE.. I WORK IN CONSTRUCTION WICH IS TOLERABLE BECAUSE IAM ALWAYS MOVING AROUND AND NOT STUCK IN OFFICES OR ENVIROMENTS THAT DOESNT ALLOW ME TO ESCPE IMMEDIATELY, I KNOW YOU HAVE A DAUGHTER , . THE BEST THING I CAN THINK OF IS ONLINE SCHOOLING ....WICH IAM URE YOU HAVE LOOKED INTO ... BUT I WOULD STEER CLEAR OF MEDICATIONS AND PHYSIKIATRIST AND TRY TO LEED A NORMAL LIFE AS POSSIBLE...(UNTIL THEY FINID A CURE FOR MISO)...AT LEAST SHE HAS A GREAT FAMILY THAT SUPPORTS HER) I COMMEND YOU...I KNOW ITS HARD ON THE FAMILY ALSO.. WE PUT OUR S THRU HELL. I JUST GAVE MY MOM THE WEB SIGHT ON > CHRISTMAS WHEN WE WHERE VISITING .. SURE CALLED A COUPLE OF DAYS AFTER IN TEARS... BUT I JUST WANT TO SAY STAY STRONG AND I LOVE WHAT YOU ARE DOING..THANKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2012 Report Share Posted January 13, 2012 Hi , Your notes made me so happy. I feel inspired from you. You have given me hope. You have found a job that works for you. You have found a way to manage. I read both your notes and they made me smile because you figured out a way to live with this. I appreciate you taking the time to write what has worked for you. I'm so sorry you had to struggle too growing up but you gave me hope that things can improve after my daughter's teen years. I am taking your advice about the medicine, they are still trying to force me to give her new meds. They think I am a bad parent because I won't try another med. I'm so glad your mom knows what it is now, that there is a name for this terrible condition. That must have been a great christmas present for both of you. I hope your brother is doing well also. I loved hearing your story, thanks for sharing and taking the time to write. > > hi there, this is intended for the lady with the 14 yo daughter.... first off god bless you and your daughter. and you are a great parent..iam brand new to this and iam not a good writer but me and my twin brother have lived with this weird disorder for the past 35 years.(extreme) well anybody with miso is extreme... (so grateful for this group) .. iam a leval headed guy and have never taken any prescibed drugs ....when i wass younger 9 thru the teens was by far the hardest times everybody including family members just thought we where crazy or very sensitive...the hardest part was school , i would get so frustrated with other classmates and freinds. i would take it to a personel level(direct threat)whenever someone would sniff,click pens, breath hard , tap anything,rub there feet on the ground , even visually, people mouths moving while chewing,fingers wiggleing,and the list goes on...thru my long experiiance with this is(IT HAS NOTHING TO DO WITH > PHYSCOLOGICAL ISSUES OR MENTAL ISSUES)iam not a doctor nor have i studied anything medical.but i dont know the word but something diddnt get wired right .....to everyday normal people they would just think its some kind of phobia that can be fixed with (THERAPY or DRUGS)NOT THE CASE.........................I LAUGH AT THE THOUGHT...IVE SOMEHOW FIGUERD OUT HOW TO MANAGE LIFE.. I WORK IN CONSTRUCTION WICH IS TOLERABLE BECAUSE IAM ALWAYS MOVING AROUND AND NOT STUCK IN OFFICES OR ENVIROMENTS THAT DOESNT ALLOW ME TO ESCPE IMMEDIATELY, I KNOW YOU HAVE A DAUGHTER , . THE BEST THING I CAN THINK OF IS ONLINE SCHOOLING ....WICH IAM URE YOU HAVE LOOKED INTO ... BUT I WOULD STEER CLEAR OF MEDICATIONS AND PHYSIKIATRIST AND TRY TO LEED A NORMAL LIFE AS POSSIBLE...(UNTIL THEY FINID A CURE FOR MISO)...AT LEAST SHE HAS A GREAT FAMILY THAT SUPPORTS HER) I COMMEND YOU...I KNOW ITS HARD ON THE FAMILY ALSO.. WE PUT OUR S THRU HELL. I JUST GAVE MY MOM THE WEB SIGHT ON > CHRISTMAS WHEN WE WHERE VISITING .. SURE CALLED A COUPLE OF DAYS AFTER IN TEARS... BUT I JUST WANT TO SAY STAY STRONG AND I LOVE WHAT YOU ARE DOING..THANKS > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.