Re: Question for - PLEASE read!

[Guest guest]

I use technical terms to be precise and concise, but even so I still seem

to have been misunderstood on this site! I assume that nowadays suitable

definitions of techical terms can be found on Wikipedia. Beware, though, that

different dictionaries give quite contradictory and confusing definition of

sound sensitivity terms.

Your case illustrates prefectly the point I have been trying to make that

the incidence of undoubted ear problems on this site is far in excess of that in

the population in general, so is giving us a priceless clue as to the genesis of

sound perceptual difficulties. I agree with the Jastreboffs (2004) who say

hyperacusis and misophonia frequently occur together in clinical practice. So

establishing the cause of the first must help understanding the second.

The vestibular test(? water in the ear canal) shows that part(s) of the

vestibular organs in one(?) ear are damaged. If one ear is severely and

permanently damaged (vestibular neuritis) you would feel very dizzy, off-balance

and sick for weeks, but would then recover as the nervous system reprogrammed

itself and readjusted to the residual asymmetrical but constant vestibular

input. So I do not think the fixed weakness directly explains 10 years of

intermittent dizziness. By far the most likely, if not only cause, is inner ear

pressure changes due to frequent changes in body weight, dehydration, etc.,

leading to Meniere Spectrum Disorder, in which case many other symptoms could be

present, including

1. Audiosensitivity, ie over-sensitivity to LOUD sounds.

2. Pure tone hearing loss, especially if fluctuant and first seen at low

frequencies.

3. Tinnitus.

4. Feeling of pressure/pain in your ears/head.

5. Misophonia confined to or worse in the bad ear.

6. Nausea, motion sickness.

7. Poor concentration, anxiety, fatigue, etc.

It would be very helpful if you could confirm to the group if you have

had any of the above, and provide any other relevant medical information

(including, possibly, the address of the clinic you went to so others can avoid

it!).

**********************************************************************

> > > > > > > > >

> > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > >getting...more so each day, it seems...with her sensitivity to

sounds. It pains

> > > > > >me to see her cry, wondering why she has to feel this way. I can only

offer

> > > > > >suggestions, but because it's so new to her, and she's so young, I

know, to her,

> > > > > >it seems hopeless right now. Can any of you offer me advice about

where to start

> > > > > >with getting her help outside of our home? Do we talk to her regular

doctor

> > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I've read the posts and responses concerning the origin of our misophonia and

it's interesting to hear people's opinions and ideas. For myself, I'm convinced

that it's an offshoot of my SPD. I do have audiosensitivity...which is part of

my SPD...and I've had that ever since I can remember. The misophonia began (so

far as I've noticed) in my teens, which is why it leads me to believe it's an

offshoot. People with SPD do have the " fight or flight " response to certain

sounds, too, and it's not just loud ones. It's where your brain is not wired to

properly filter sensory input, so we can get overloaded easily from certain

sounds, bright lights, too many people talking at once, loud noises, itchy

fabric or clothing tags, smells, the texture of certain foods, certain types of

touches...it's a long list...but you can see how people with SPD really need

their quiet, alone time, too. I think my misophonia zeroes in on particular

sounds (for me it's gum snapping, whistling, sucking air between the teeth, etc)

that annoy me and my SPD can't filter it out like " normal " people can. I

personally don't think it has to do with ear damage.

> > > > > > > > > >

> > > > > > > > > > I am very concerned about how upset my 11 year old daughter

is

> > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds. It pains

> > > > > > >me to see her cry, wondering why she has to feel this way. I can

only offer

> > > > > > >suggestions, but because it's so new to her, and she's so young, I

know, to her,

> > > > > > >it seems hopeless right now. Can any of you offer me advice about

where to start

> > > > > > >with getting her help outside of our home? Do we talk to her

regular doctor

> > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

,

SPD is Sensory Processing Disorder. Many SPDers also have ADD (ADHD), but you

certainly don't have to have one to have the other.

Vicki

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter

> >is

> >

> > > > > > > >getting...more so each day, it seems...with her sensitivity to

> >sounds. It pains

> >

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> >only offer

> >

> > > > > > > >suggestions, but because it's so new to her, and she's so young,

I

> >know, to her,

> >

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about

> >where to start

> >

> > > > > > > >with getting her help outside of our home? Do we talk to her

regular

> >doctor

> >

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

>

> p

>

[Guest guest]

Hi Amelia, it's great to hear from a fellow SPDer!!

Vicki

> >> > > > > > > > > >

> >> > > > > > > > > > I am very concerned about how upset my 11 year old

daughter is

> >> > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds. It pains

> >> > > > > > >me to see her cry, wondering why she has to feel this way. I can

only offer

> >> > > > > > >suggestions, but because it's so new to her, and she's so young,

I know, to her,

> >> > > > > > >it seems hopeless right now. Can any of you offer me advice

about where to start

> >> > > > > > >with getting her help outside of our home? Do we talk to her

regular doctor

> >> > > > > > >initially? I'm just not sure where to begin Thank you all.

> >> > > > > > > > > >

> >> > > > > > > > >

> >> > > > > > > >

> >> > > > > > >

> >> > > > > >

> >> > > > >

> >> > > >

> >> > >

> >> >

> >>

> >

> >

>

[Guest guest]

Hi Amelia, it's great to hear from a fellow SPDer!!

Vicki

> >> > > > > > > > > >

> >> > > > > > > > > > I am very concerned about how upset my 11 year old

daughter is

> >> > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds. It pains

> >> > > > > > >me to see her cry, wondering why she has to feel this way. I can

only offer

> >> > > > > > >suggestions, but because it's so new to her, and she's so young,

I know, to her,

> >> > > > > > >it seems hopeless right now. Can any of you offer me advice

about where to start

> >> > > > > > >with getting her help outside of our home? Do we talk to her

regular doctor

> >> > > > > > >initially? I'm just not sure where to begin Thank you all.

> >> > > > > > > > > >

> >> > > > > > > > >

> >> > > > > > > >

> >> > > > > > >

> >> > > > > >

> >> > > > >

> >> > > >

> >> > >

> >> >

> >>

> >

> >

>

[Guest guest]

Yes, , all of the senses including touch. They are not all necessarily

equal in how much of a problem they cause, but all the senses are involved to

some extent. One person may say their worst problem is sounds, one may say it's

the fabric of their clothes against their skin, while another may say it's the

smells that no one else seems to notice. All I know is that at the end of the

day I'm pretty much exhausted from the overload!

Vicki

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter

> >

> > >is

> > >

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > >sounds. It pains

> > >

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I

can

> > >only offer

> > >

> > > > > > > > >suggestions, but because it's so new to her, and she's so

young, I

> >

> > >know, to her,

> > >

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice

about

>

> > >where to start

> > >

> > > > > > > > >with getting her help outside of our home? Do we talk to her

> >regular

> >

> > >doctor

> > >

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> > p

> >

>

[Guest guest]

Marnie, talk about timing! Your daughter just got diagnosed...it looks like

she probably got her SPD from you then, though obviously I'm guessing. How does

she feel about the diagnosis? For me, finding out about the ADD and SPD (in my

40s no less) answered a lot of questions. I was so relieved there were actual

labels for what I have. I grew up thinking I was the only one with these

issues, like some crazy pod-person from another planet!

Vicki

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter

> > >is

> > >

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > >sounds. It pains

> > >

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I

can

> > >only offer

> > >

> > > > > > > > >suggestions, but because it's so new to her, and she's so

young, I

> > >know, to her,

> > >

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice

about

> > >where to start

> > >

> > > > > > > > >with getting her help outside of our home? Do we talk to her

regular

> > >doctor

> > >

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> > p

> >

>

[Guest guest]

Marnie, talk about timing! Your daughter just got diagnosed...it looks like

she probably got her SPD from you then, though obviously I'm guessing. How does

she feel about the diagnosis? For me, finding out about the ADD and SPD (in my

40s no less) answered a lot of questions. I was so relieved there were actual

labels for what I have. I grew up thinking I was the only one with these

issues, like some crazy pod-person from another planet!

Vicki

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter

> > >is

> > >

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > >sounds. It pains

> > >

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I

can

> > >only offer

> > >

> > > > > > > > >suggestions, but because it's so new to her, and she's so

young, I

> > >know, to her,

> > >

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice

about

> > >where to start

> > >

> > > > > > > > >with getting her help outside of our home? Do we talk to her

regular

> > >doctor

> > >

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> > p

> >

>

[Guest guest]

Marnie, talk about timing! Your daughter just got diagnosed...it looks like

she probably got her SPD from you then, though obviously I'm guessing. How does

she feel about the diagnosis? For me, finding out about the ADD and SPD (in my

40s no less) answered a lot of questions. I was so relieved there were actual

labels for what I have. I grew up thinking I was the only one with these

issues, like some crazy pod-person from another planet!

Vicki

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter

> > >is

> > >

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > >sounds. It pains

> > >

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I

can

> > >only offer

> > >

> > > > > > > > >suggestions, but because it's so new to her, and she's so

young, I

> > >know, to her,

> > >

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice

about

> > >where to start

> > >

> > > > > > > > >with getting her help outside of our home? Do we talk to her

regular

> > >doctor

> > >

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> > p

> >

>

[Guest guest]

The finding of unilateral weakness confirms beyond doubt that there is an ear

problem, and the origin of the dizziness. I worked for years in the hospital

where the Cawthorne-Cooksey exercises were developed, but they seemed to have

been abandoned. One reason may have been that they were not very effective for

fluctuating vestibular disorders, which presented a moving target so to speak.

In patients with Meniere's disease or Meniere Spectrum Disorder I invariably

found bilateral audiosensitity, no matter how unilateral the disease seemed to

be. This to me indicates a general body hydration problem, not that there must

be a central brain cause for AS as others assume. In an individual case it may

be unclear what the relation of the misophonia to the ear may be, but once one

sees many people with a similar story, even on this site, the conclusion of some

sort of link is inescapable.

**********************************************************************

> > > > > > > > > >

> > > > > > > > > > I am very concerned about how upset my 11 year old daughter

is

> > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds. It pains

> > > > > > >me to see her cry, wondering why she has to feel this way. I can

only offer

> > > > > > >suggestions, but because it's so new to her, and she's so young, I

know, to her,

> > > > > > >it seems hopeless right now. Can any of you offer me advice about

where to start

> > > > > > >with getting her help outside of our home? Do we talk to her

regular doctor

> > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

The finding of unilateral weakness confirms beyond doubt that there is an ear

problem, and the origin of the dizziness. I worked for years in the hospital

where the Cawthorne-Cooksey exercises were developed, but they seemed to have

been abandoned. One reason may have been that they were not very effective for

fluctuating vestibular disorders, which presented a moving target so to speak.

In patients with Meniere's disease or Meniere Spectrum Disorder I invariably

found bilateral audiosensitity, no matter how unilateral the disease seemed to

be. This to me indicates a general body hydration problem, not that there must

be a central brain cause for AS as others assume. In an individual case it may

be unclear what the relation of the misophonia to the ear may be, but once one

sees many people with a similar story, even on this site, the conclusion of some

sort of link is inescapable.

**********************************************************************

> > > > > > > > > >

> > > > > > > > > > I am very concerned about how upset my 11 year old daughter

is

> > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds. It pains

> > > > > > >me to see her cry, wondering why she has to feel this way. I can

only offer

> > > > > > >suggestions, but because it's so new to her, and she's so young, I

know, to her,

> > > > > > >it seems hopeless right now. Can any of you offer me advice about

where to start

> > > > > > >with getting her help outside of our home? Do we talk to her

regular doctor

> > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I do not have misophonia, but sometimes if I wake up with a blocked ear I

find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am

pretty sure I know the cause of audiosensitivity, but even if I am wrong, it

must be far easier to find out the cause of AS than MA, and they are clearly

related in some way. I think the experts agree there is a much raised incidence

of ear problems in MA.

The reason I am on this site and not on the more ENT/medical/hyperacusis

sites is that I think it is vitally important for everyone, especially someone

like myself with unorthodox views, to avoid the " Filter Bubble " or Echo Chamber

effect. We all, patients and doctors need constant exposure to uncomfortable

ideas. So the quickest way to get me off this site is to start agreeing with my

theories, as I will then think that at long last they are being taken seriously

and my experimental AS results will be checked, so that I can then move on to

some other topic.

You say I am misdiagnosing you, yet you admit to having some of the

problems on my list below (which ones?), any one of which flags up the ear. It

makes no difference what the cause of any ear problem is, and loudness

perception in the cochlea changes with age.

Audiosensitivity involves aversion to loud sounds, but all sound are not

equal. It is always worse for sharp high-pitch sounds.

So if you are interested in trying to work out the cause of MA, and in

seeing things from a different angle, you should certainly stay on this site.

Misophonics are going to have to sort this out by themselves, as doctors are

years behind the curve.

**********************************************************************

> > > > > > > > > >

> > > > > > > > > > I am very concerned about how upset my 11 year old daughter

is

>

> > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds.

> >It pains

> >

> > > > > > >me to see her cry, wondering why she has to feel this way. I can

only

> >offer

> >

> > > > > > >suggestions, but because it's so new to her, and she's so young, I

> >know, to her,

> >

> > > > > > >it seems hopeless right now. Can any of you offer me advice about

> >where to start

> >

> > > > > > >with getting her help outside of our home? Do we talk to her

regular

> >doctor

> >

> > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Oh, that's great Marnie, I'm so glad you caught it so early!! It'll be that

much easier for her to deal with. And you know, you're right! I don't think it

ever registered, but I agree that it seems to get worse as it's passed along.

Regarding your other question... I am prone to motion sickness. I have a hard

time being in a car, bus, etc, unless I'm in the front. I also have a hard time

watching movies or computer games that show any kind of sweeping motion. I've

given up on the IMAX shows they have at museums!

Vicki

> > > > > > > > > > > > >

> > > > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter

> > > >is

> > > >

> > > > > > > > > >getting...more so each day, it seems...with her sensitivity

to

> > > >sounds. It pains

> > > >

> > > > > > > > > >me to see her cry, wondering why she has to feel this way. I

can

> > > >only offer

> > > >

> > > > > > > > > >suggestions, but because it's so new to her, and she's so

young, I

> > > >know, to her,

> > > >

> > > > > > > > > >it seems hopeless right now. Can any of you offer me advice

about

> > > >where to start

> > > >

> > > > > > > > > >with getting her help outside of our home? Do we talk to her

regular

> > > >doctor

> > > >

> > > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> > >

> > > p

> > >

> >

>

[Guest guest]

Oh, that's great Marnie, I'm so glad you caught it so early!! It'll be that

much easier for her to deal with. And you know, you're right! I don't think it

ever registered, but I agree that it seems to get worse as it's passed along.

Regarding your other question... I am prone to motion sickness. I have a hard

time being in a car, bus, etc, unless I'm in the front. I also have a hard time

watching movies or computer games that show any kind of sweeping motion. I've

given up on the IMAX shows they have at museums!

Vicki

> > > > > > > > > > > > >

> > > > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter

> > > >is

> > > >

> > > > > > > > > >getting...more so each day, it seems...with her sensitivity

to

> > > >sounds. It pains

> > > >

> > > > > > > > > >me to see her cry, wondering why she has to feel this way. I

can

> > > >only offer

> > > >

> > > > > > > > > >suggestions, but because it's so new to her, and she's so

young, I

> > > >know, to her,

> > > >

> > > > > > > > > >it seems hopeless right now. Can any of you offer me advice

about

> > > >where to start

> > > >

> > > > > > > > > >with getting her help outside of our home? Do we talk to her

regular

> > > >doctor

> > > >

> > > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> > >

> > > p

> > >

> >

>

[Guest guest]

Yes! As an adult (starting at 25) I started having problems with vertigo,

balance and dizziness (in addition to my sound sensitivity, which started as a

child). I was diagnosed with a severe vestibular imbalance in my right ear a

couple years ago, but my insurance wouldn't cover any treatment for it.

I also get migraines, and an audiologist friend thinks they could be vestibular

migraines, since I get dizzy/vertiginous when I get them. I've wondered if it's

all connected for me (as my sound sensitivity is terrible while I have a

migraine or dizziness), and was excited to see your question!

Katy

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can

only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young,

I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about

where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her

regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Perhaps the best use of your research, insights and talents is to hold workshops

and clinics for misophonics in your area. You'll have a group you can observe

(even setting up control groups if see the need to do so) and you'll have

firsthand inspections of ears and patients' descriptions of where they are on

the MAS. This would be incredible for you and for your patients, and would

offer something concrete to our community.

I will not/cannot go to a doctor and ask for a specific test based on another

doctor's thoughts for several reasons:

**Doctors tend to resent this and see it as an assault on their (usually

over-sized) ego.

**A doctor cannot just authorize tests without their own first second third and

fourth steps.

**I do not have insurance to squander: I am still paying off last's years'

bills.

If anyone here on this page sees the benefit of any of the tests/ideas you

suggest they most certainly will tell their healthcare provider(s)and pursue

such care.

Personally, I find your ideas most mundane and orthodox when compared to what I

have seen and am currently pursuing in my search for a cure.

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter is

> >

> > > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds.

> > >It pains

> > >

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can

only

> > >offer

> > >

> > > > > > > >suggestions, but because it's so new to her, and she's so young,

I

> > >know, to her,

> > >

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about

> > >where to start

> > >

> > > > > > > >with getting her help outside of our home? Do we talk to her

regular

> > >doctor

> > >

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I am sorry you feel like leaving, especially as it is my fault for not making

myself clear. Most, though probably not all, on this site with misophonia do

not have discomfort in the ear. Some also have discomfort to loud sounds, in

which case they also have audiosensitivity. Inner ear disorders like

audiosensitivity, vertigo, tinnitus, and ear fullness often cause EXTREME mental

discomfort, which is largely misunderstood, ignored or denied. For many reasons

it is unhelpful to regard these as primary psychiatric disorders.

Thank you for noting your history of misophonia from age 9, which confirms that

misophonia should be understood as a developmental disorder. In my 1986 paper

where I showed that middle ear stapedial reflexes were abnormal in

audiosensitivity (AS), my sample was of children of that age being assessed for

dyslexia. AS was very common, almost certainly as a sequel to previous ear

infections in infancy. Interestingly, subtle ear abnormalities were much

commoner in right than left ears.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter

> >is

> >

> >

> > > > > > > >getting...more so each day, it seems...with her sensitivity to

> >sounds.

> >

> > >It pains

> > >

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> >only

> >

> > >offer

> > >

> > > > > > > >suggestions, but because it's so new to her, and she's so young,

I

> > >know, to her,

> > >

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about

> > >where to start

> > >

> > > > > > > >with getting her help outside of our home? Do we talk to her

regular

> >

> > >doctor

> > >

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Sorry, MA=Misophonia, AS=Audiosensitivity

This page alone is full of people with current inner ear problems, let alone

previous problems that might be more relevant. I cannot check this right now,

but I think the Jastreboffs have good data confirming the ear-MA link (whatever

the reason). We don't see people on this site discussing back pain, eye disease,

hypertension, etc.

I have spent so much time on this site lately, that I am afraid I have not

yet got back to Google about their making public my definitive list of

publications. I have to convince them I am a bona fide researcher!

I am putting forward my ideas here as I believe they are very important, if

true. They lie somewhere on the continuum from crank to genius, but it is quite

impossible for me to work out where, and I have to rely on feedback from others

to tell me. I have had more useful feedback in the last months here than in 35

years in the scientific literature.

I think you have identified the weakest point in my theories, possibly the

reason they are immediately dismissed, that is, how do I explain multisensory

disorders? This shows the theories are incomplete, but not erroneous, since

there are many neuroscientific and anatomic data to show intersensory

connections and processes. I am still trying to work out whcih may be involved

when the ear is upset. The vestibular system has a strong influence on the

visual

system, and can cause temporary blindness, migraine aura, visual hallucinations,

blurred vision, etc. Some visual triggers can upset the vestibular system, see

Motion Sickness on Wikipedia. Darwin was upset by the water flowing in a river.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter

> >is

> >

> >

> > > > > > > >getting...more so each day, it seems...with her sensitivity to

> >sounds.

> >

> > >It pains

> > >

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> >only

> >

> > >offer

> > >

> > > > > > > >suggestions, but because it's so new to her, and she's so young,

I

> > >know, to her,

> > >

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about

> > >where to start

> > >

> > > > > > > >with getting her help outside of our home? Do we talk to her

regular

> >

> > >doctor

> > >

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Sorry, MA=Misophonia, AS=Audiosensitivity

This page alone is full of people with current inner ear problems, let alone

previous problems that might be more relevant. I cannot check this right now,

but I think the Jastreboffs have good data confirming the ear-MA link (whatever

the reason). We don't see people on this site discussing back pain, eye disease,

hypertension, etc.

I have spent so much time on this site lately, that I am afraid I have not

yet got back to Google about their making public my definitive list of

publications. I have to convince them I am a bona fide researcher!

I am putting forward my ideas here as I believe they are very important, if

true. They lie somewhere on the continuum from crank to genius, but it is quite

impossible for me to work out where, and I have to rely on feedback from others

to tell me. I have had more useful feedback in the last months here than in 35

years in the scientific literature.

I think you have identified the weakest point in my theories, possibly the

reason they are immediately dismissed, that is, how do I explain multisensory

disorders? This shows the theories are incomplete, but not erroneous, since

there are many neuroscientific and anatomic data to show intersensory

connections and processes. I am still trying to work out whcih may be involved

when the ear is upset. The vestibular system has a strong influence on the

visual

system, and can cause temporary blindness, migraine aura, visual hallucinations,

blurred vision, etc. Some visual triggers can upset the vestibular system, see

Motion Sickness on Wikipedia. Darwin was upset by the water flowing in a river.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter

> >is

> >

> >

> > > > > > > >getting...more so each day, it seems...with her sensitivity to

> >sounds.

> >

> > >It pains

> > >

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> >only

> >

> > >offer

> > >

> > > > > > > >suggestions, but because it's so new to her, and she's so young,

I

> > >know, to her,

> > >

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about

> > >where to start

> > >

> > > > > > > >with getting her help outside of our home? Do we talk to her

regular

> >

> > >doctor

> > >

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

You have really hit the nail on the head here Marnie, and elegantly highlighted

why ear issues like dizziness are not being dealt with properly. I cannot find

evidence that anxiety, stress or fatigue directly cause dizziness, despite a

long search in the medical literature. (Hyperventilation, however, is an

underdiagnosed cause of dizziness). I think that most doctors, apart from top

specialists, still buy into the psychosomatic model, so if they cannot find any

definite medical abnormality, it must be a mental or psychological problem. If

in doubt, blame the patient.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can

only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young,

I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about

where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her

regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > >

> > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

You have really hit the nail on the head here Marnie, and elegantly highlighted

why ear issues like dizziness are not being dealt with properly. I cannot find

evidence that anxiety, stress or fatigue directly cause dizziness, despite a

long search in the medical literature. (Hyperventilation, however, is an

underdiagnosed cause of dizziness). I think that most doctors, apart from top

specialists, still buy into the psychosomatic model, so if they cannot find any

definite medical abnormality, it must be a mental or psychological problem. If

in doubt, blame the patient.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can

only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young,

I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about

where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her

regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > >

> > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

You have made a really crucial observation here Katy, as this unambiguously ties

down the sound sensitivity to an ear disorder. Marnie's observation that

dizziness aggravates her misophonia also clearly implicates the ear. I do not

necessarily believe that misophonics have current ear problems, though if so

this clearly supports the view that they may have had them in the distant past

when misophonia started. The sort of sound sensitivity associated with the

Meniere type problems described here is normally audiosensitivity, ie aversion

to loud and/or high-pitched noises, so I would be interested to know if this was

not the case, and if other quieter sounds were implicated here.

**********************************************************************

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter is

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds. It pains

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I

can only offer

> > > > > > > > >suggestions, but because it's so new to her, and she's so

young, I know, to her,

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice

about where to start

> > > > > > > > >with getting her help outside of our home? Do we talk to her

regular doctor

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

You have made a really crucial observation here Katy, as this unambiguously ties

down the sound sensitivity to an ear disorder. Marnie's observation that

dizziness aggravates her misophonia also clearly implicates the ear. I do not

necessarily believe that misophonics have current ear problems, though if so

this clearly supports the view that they may have had them in the distant past

when misophonia started. The sort of sound sensitivity associated with the

Meniere type problems described here is normally audiosensitivity, ie aversion

to loud and/or high-pitched noises, so I would be interested to know if this was

not the case, and if other quieter sounds were implicated here.

**********************************************************************

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter is

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds. It pains

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I

can only offer

> > > > > > > > >suggestions, but because it's so new to her, and she's so

young, I know, to her,

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice

about where to start

> > > > > > > > >with getting her help outside of our home? Do we talk to her

regular doctor

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Thank you very much for noting that my ideas are mundane. That is precisely what

they are. The history of medical advance shows that mundane ideas win out time

and again. Thus we all " knew " that stress caused ulcers, and a whole industry

was built around this. Then a doctor in Australia deduced that ulcers were in

fact caused by a bacterium, and it is now treated with antibiotics. Medicine

advances not so much by finding unknown knowns, or even unknown unknowns, but by

challenging supposedly known knowns, which was the hard part for him.

The mundane idea in sound sensitivity is therefore that if someone is

oversensitive to loud sound, then the organ registering the sound is not working

properly. One needs to be very very sure this simple explanation in incorrect

before moving on to more complex, vague and hard to test alternatives, like some

sort of brain damage. It is actually arrogant of otologists to pretend their

knowledge of cochlear function is so good that they can state categorically that

because a patient passes test A,B or C, then that proves there can be nothing

wrong with the cochlea. For a start, the condition may fluctuate but the doctor

has caught them on a good day.

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter is

> > >

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds.

> > > >It pains

> > > >

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I

can only

> > > >offer

> > > >

> > > > > > > > >suggestions, but because it's so new to her, and she's so

young, I

> > > >know, to her,

> > > >

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice

about

> > > >where to start

> > > >

> > > > > > > > >with getting her help outside of our home? Do we talk to her

regular

> > > >doctor

> > > >

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Thank you very much for noting that my ideas are mundane. That is precisely what

they are. The history of medical advance shows that mundane ideas win out time

and again. Thus we all " knew " that stress caused ulcers, and a whole industry

was built around this. Then a doctor in Australia deduced that ulcers were in

fact caused by a bacterium, and it is now treated with antibiotics. Medicine

advances not so much by finding unknown knowns, or even unknown unknowns, but by

challenging supposedly known knowns, which was the hard part for him.

The mundane idea in sound sensitivity is therefore that if someone is

oversensitive to loud sound, then the organ registering the sound is not working

properly. One needs to be very very sure this simple explanation in incorrect

before moving on to more complex, vague and hard to test alternatives, like some

sort of brain damage. It is actually arrogant of otologists to pretend their

knowledge of cochlear function is so good that they can state categorically that

because a patient passes test A,B or C, then that proves there can be nothing

wrong with the cochlea. For a start, the condition may fluctuate but the doctor

has caught them on a good day.

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old

daughter is

> > >

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds.

> > > >It pains

> > > >

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I

can only

> > > >offer

> > > >

> > > > > > > > >suggestions, but because it's so new to her, and she's so

young, I

> > > >know, to her,

> > > >

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice

about

> > > >where to start

> > > >

> > > > > > > > >with getting her help outside of our home? Do we talk to her

regular

> > > >doctor

> > > >

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>