Re: Re: Question for - PLEASE read!

[Guest guest]

My daughter has episodes of dizziness that are directly related to her 4s. When exposed to a trigger sound one of the responses she has is to experience anxiety which causes her to experience dizziness. It then takes awhile for the dizziness to subside, but it does as some time elapses after being away from the trigger sound/situation.Subject: Re: Question for - PLEASE read!To: Soundsensitivity Date: Thursday, December 15, 2011, 5:02 AM

You have really hit the nail on the head here Marnie, and elegantly highlighted why ear issues like dizziness are not being dealt with properly. I cannot find evidence that anxiety, stress or fatigue directly cause dizziness, despite a long search in the medical literature. (Hyperventilation, however, is an underdiagnosed cause of dizziness). I think that most doctors, apart from top specialists, still buy into the psychosomatic model, so if they cannot find any definite medical abnormality, it must be a mental or psychological problem. If in doubt, blame the patient.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > >

> > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Dizziness is quite common with an anxiety attack. I do not experience dizziness with my triggers but have experienced this with social anxiety. Maybe you know this already, but when people go into panic mode, they tend to take shorter

shallower breaths than normal which can result in an excessive loss

of carbon dioxide from the blood (hyperventilation) This can cause blood pressure to

drop so the brain is getting less oxygen. If you can teach her to take longer deep breaths where she inflates her belly and instead of short breaths from upper chest area during the anxiety episodes, it might help with the dizziness. Just a suggestion...not a prescription. : ) worth a shot and no expensive tests are involved. To: Soundsensitivity Sent: Thursday, December 15, 2011 6:33 PM Subject: Re: Re: Question for - PLEASE read!

My daughter has episodes of dizziness that are directly related to her 4s. When exposed to a trigger sound one of the responses she has is to experience anxiety which causes her to experience dizziness. It then takes awhile for the dizziness to subside, but it does as some time elapses after being away from the trigger sound/situation.Subject: Re: Question for - PLEASE read!To:

Soundsensitivity Date: Thursday, December 15, 2011, 5:02 AM

You have really hit the nail on the head here Marnie, and elegantly highlighted why ear issues like dizziness are not being dealt with properly. I cannot find evidence that anxiety, stress or fatigue directly cause dizziness, despite a long search in the medical literature. (Hyperventilation, however, is an underdiagnosed cause of dizziness). I think that most doctors, apart from top specialists, still buy into the psychosomatic model, so if they cannot find any definite medical abnormality, it must be a mental or psychological problem. If in doubt, blame the patient.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

..

[Guest guest]

Dizziness is quite common with an anxiety attack. I do not experience dizziness with my triggers but have experienced this with social anxiety. Maybe you know this already, but when people go into panic mode, they tend to take shorter

shallower breaths than normal which can result in an excessive loss

of carbon dioxide from the blood (hyperventilation) This can cause blood pressure to

drop so the brain is getting less oxygen. If you can teach her to take longer deep breaths where she inflates her belly and instead of short breaths from upper chest area during the anxiety episodes, it might help with the dizziness. Just a suggestion...not a prescription. : ) worth a shot and no expensive tests are involved. To: Soundsensitivity Sent: Thursday, December 15, 2011 6:33 PM Subject: Re: Re: Question for - PLEASE read!

My daughter has episodes of dizziness that are directly related to her 4s. When exposed to a trigger sound one of the responses she has is to experience anxiety which causes her to experience dizziness. It then takes awhile for the dizziness to subside, but it does as some time elapses after being away from the trigger sound/situation.Subject: Re: Question for - PLEASE read!To:

Soundsensitivity Date: Thursday, December 15, 2011, 5:02 AM

You have really hit the nail on the head here Marnie, and elegantly highlighted why ear issues like dizziness are not being dealt with properly. I cannot find evidence that anxiety, stress or fatigue directly cause dizziness, despite a long search in the medical literature. (Hyperventilation, however, is an underdiagnosed cause of dizziness). I think that most doctors, apart from top specialists, still buy into the psychosomatic model, so if they cannot find any definite medical abnormality, it must be a mental or psychological problem. If in doubt, blame the patient.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

..

[Guest guest]

Dizziness is quite common with an anxiety attack. I do not experience dizziness with my triggers but have experienced this with social anxiety. Maybe you know this already, but when people go into panic mode, they tend to take shorter

shallower breaths than normal which can result in an excessive loss

of carbon dioxide from the blood (hyperventilation) This can cause blood pressure to

drop so the brain is getting less oxygen. If you can teach her to take longer deep breaths where she inflates her belly and instead of short breaths from upper chest area during the anxiety episodes, it might help with the dizziness. Just a suggestion...not a prescription. : ) worth a shot and no expensive tests are involved. To: Soundsensitivity Sent: Thursday, December 15, 2011 6:33 PM Subject: Re: Re: Question for - PLEASE read!

My daughter has episodes of dizziness that are directly related to her 4s. When exposed to a trigger sound one of the responses she has is to experience anxiety which causes her to experience dizziness. It then takes awhile for the dizziness to subside, but it does as some time elapses after being away from the trigger sound/situation.Subject: Re: Question for - PLEASE read!To:

Soundsensitivity Date: Thursday, December 15, 2011, 5:02 AM

You have really hit the nail on the head here Marnie, and elegantly highlighted why ear issues like dizziness are not being dealt with properly. I cannot find evidence that anxiety, stress or fatigue directly cause dizziness, despite a long search in the medical literature. (Hyperventilation, however, is an underdiagnosed cause of dizziness). I think that most doctors, apart from top specialists, still buy into the psychosomatic model, so if they cannot find any definite medical abnormality, it must be a mental or psychological problem. If in doubt, blame the patient.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

..

[Guest guest]

C,

I don't feel upset over or any other point of view because it's just that. I believe it's people trying to get a better understanding of misophonia and where it might be coming from. If we can't express our views and/or opinions and ask question, what good is this site? We need to be able to disagree because we are all looking for the same results in the end, and that's "Where is this "condition" coming from, and how to I make it stop?"

Also, we're all at different levels with different needs, and came to this website at different times. Some people have been on this site for years (is what I understnand) and some people just got here a few days ago. It's throwing thoughts out there in hopes we can find a common thread.

To: "Soundsensitivity " <Soundsensitivity >Sent: Thu, December 15, 2011 5:13:59 PMSubject: Re: Re: Question for - PLEASE read!

No one should EVER be diagnosed from an email – G is a nut case, stay away.

I can’t believe all this self diagnosing, in just the last few weeks here is what some believe we have Aspergers PET, SSCDS, Meniere Spectrum Disorder, audiosensitivity, ADD, schizophrenia , Hyperacusis, Autism etc, etc etc.

Like many other conditions there can be several causes and different degrees of the condition.

I will take a break from this site because I’m not sure I can handle one more person asking if they should go to an ENT or one more self diagnosis. Again, an ENT or Audiologist is for hearing or auditory related problems they know NOTHING about 4S especially those also who have Visual Sensitivities.

I hope some common sense returns so we can move towards helping find some relief instead of listening to people who are long on opinions but short rational thinking.

An example of moving in the right direction is probably to see someone who specializes in Neurology.

To: Soundsensitivity Sent: Thursday, December 15, 2011 5:59 PMSubject: Re: Question for - PLEASE read!

hi maikaefer, yes aage moeller is the neuroscientist. i located his email address in texas and fired him an email to see if he could help all of the people(including my son) who suffer with misophonia daily. he was nice enough to answer my questions promptly and courteously,mentioning he had written a book on tinnitus which included a section on misophonia. he was consulted in joyce cohens article in the nytimes. i asked him if an audiologist or a psychologist would be more benefit and he said the psych dr. he also promised he would bring up misophonia and need for research at the next int'l conference he is attending. he is extremely intelligent and told me he will try to help. > > > > >> > > > > I do not have misophonia, but sometimes if I wake up with a blocked ear I > > > >find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am > > > >pretty sure I know the cause of audiosensitivity, but even if I am wrong, it > > > >must be far easier to find out the cause of AS than MA, and they are clearly > > > >related in some way. I think the experts agree there is a much raised incidence > > > >of ear problems in MA.> > > > > The reason I am on this site and not on the more ENT/medical/hyperacusis > > > >sites is that I think it is vitally important for everyone, especially someone > > > >like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber > > > >effect. We all, patients and

doctors need constant exposure to uncomfortable > > > >ideas. So the quickest way to get me off this site is to start agreeing with my > > > >theories, as I will then think that at long last they are being taken seriously > > > >and my experimental AS results will be checked, so that I can then move on to > > > >some other topic. > > > >> > > > > You say I am misdiagnosing you, yet you admit to having some of the problems > > > >on my list below (which ones?), any one of which flags up the ear. It makes no > > > >difference what the cause of any ear problem is, and loudness perception in the > > > >cochlea changes with age.> > > > > Audiosensitivity involves aversion to loud sounds, but all sound are not > > > >equal. It is always worse for sharp high-pitch sounds.>

> > > > So if you are interested in trying to work out the cause of MA, and in seeing > > > >things from a different angle, you should certainly stay on this site. > > > >Misophonics are going to have to sort this out by themselves, as doctors are > > > >years behind the curve. > > > >>

[Guest guest]

C,

I don't feel upset over or any other point of view because it's just that. I believe it's people trying to get a better understanding of misophonia and where it might be coming from. If we can't express our views and/or opinions and ask question, what good is this site? We need to be able to disagree because we are all looking for the same results in the end, and that's "Where is this "condition" coming from, and how to I make it stop?"

Also, we're all at different levels with different needs, and came to this website at different times. Some people have been on this site for years (is what I understnand) and some people just got here a few days ago. It's throwing thoughts out there in hopes we can find a common thread.

To: "Soundsensitivity " <Soundsensitivity >Sent: Thu, December 15, 2011 5:13:59 PMSubject: Re: Re: Question for - PLEASE read!

No one should EVER be diagnosed from an email – G is a nut case, stay away.

I can’t believe all this self diagnosing, in just the last few weeks here is what some believe we have Aspergers PET, SSCDS, Meniere Spectrum Disorder, audiosensitivity, ADD, schizophrenia , Hyperacusis, Autism etc, etc etc.

Like many other conditions there can be several causes and different degrees of the condition.

I will take a break from this site because I’m not sure I can handle one more person asking if they should go to an ENT or one more self diagnosis. Again, an ENT or Audiologist is for hearing or auditory related problems they know NOTHING about 4S especially those also who have Visual Sensitivities.

I hope some common sense returns so we can move towards helping find some relief instead of listening to people who are long on opinions but short rational thinking.

An example of moving in the right direction is probably to see someone who specializes in Neurology.

To: Soundsensitivity Sent: Thursday, December 15, 2011 5:59 PMSubject: Re: Question for - PLEASE read!

hi maikaefer, yes aage moeller is the neuroscientist. i located his email address in texas and fired him an email to see if he could help all of the people(including my son) who suffer with misophonia daily. he was nice enough to answer my questions promptly and courteously,mentioning he had written a book on tinnitus which included a section on misophonia. he was consulted in joyce cohens article in the nytimes. i asked him if an audiologist or a psychologist would be more benefit and he said the psych dr. he also promised he would bring up misophonia and need for research at the next int'l conference he is attending. he is extremely intelligent and told me he will try to help. > > > > >> > > > > I do not have misophonia, but sometimes if I wake up with a blocked ear I > > > >find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am > > > >pretty sure I know the cause of audiosensitivity, but even if I am wrong, it > > > >must be far easier to find out the cause of AS than MA, and they are clearly > > > >related in some way. I think the experts agree there is a much raised incidence > > > >of ear problems in MA.> > > > > The reason I am on this site and not on the more ENT/medical/hyperacusis > > > >sites is that I think it is vitally important for everyone, especially someone > > > >like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber > > > >effect. We all, patients and

doctors need constant exposure to uncomfortable > > > >ideas. So the quickest way to get me off this site is to start agreeing with my > > > >theories, as I will then think that at long last they are being taken seriously > > > >and my experimental AS results will be checked, so that I can then move on to > > > >some other topic. > > > >> > > > > You say I am misdiagnosing you, yet you admit to having some of the problems > > > >on my list below (which ones?), any one of which flags up the ear. It makes no > > > >difference what the cause of any ear problem is, and loudness perception in the > > > >cochlea changes with age.> > > > > Audiosensitivity involves aversion to loud sounds, but all sound are not > > > >equal. It is always worse for sharp high-pitch sounds.>

> > > > So if you are interested in trying to work out the cause of MA, and in seeing > > > >things from a different angle, you should certainly stay on this site. > > > >Misophonics are going to have to sort this out by themselves, as doctors are > > > >years behind the curve. > > > >>

[Guest guest]

C,

I don't feel upset over or any other point of view because it's just that. I believe it's people trying to get a better understanding of misophonia and where it might be coming from. If we can't express our views and/or opinions and ask question, what good is this site? We need to be able to disagree because we are all looking for the same results in the end, and that's "Where is this "condition" coming from, and how to I make it stop?"

Also, we're all at different levels with different needs, and came to this website at different times. Some people have been on this site for years (is what I understnand) and some people just got here a few days ago. It's throwing thoughts out there in hopes we can find a common thread.

To: "Soundsensitivity " <Soundsensitivity >Sent: Thu, December 15, 2011 5:13:59 PMSubject: Re: Re: Question for - PLEASE read!

No one should EVER be diagnosed from an email – G is a nut case, stay away.

I can’t believe all this self diagnosing, in just the last few weeks here is what some believe we have Aspergers PET, SSCDS, Meniere Spectrum Disorder, audiosensitivity, ADD, schizophrenia , Hyperacusis, Autism etc, etc etc.

Like many other conditions there can be several causes and different degrees of the condition.

I will take a break from this site because I’m not sure I can handle one more person asking if they should go to an ENT or one more self diagnosis. Again, an ENT or Audiologist is for hearing or auditory related problems they know NOTHING about 4S especially those also who have Visual Sensitivities.

I hope some common sense returns so we can move towards helping find some relief instead of listening to people who are long on opinions but short rational thinking.

An example of moving in the right direction is probably to see someone who specializes in Neurology.

To: Soundsensitivity Sent: Thursday, December 15, 2011 5:59 PMSubject: Re: Question for - PLEASE read!

hi maikaefer, yes aage moeller is the neuroscientist. i located his email address in texas and fired him an email to see if he could help all of the people(including my son) who suffer with misophonia daily. he was nice enough to answer my questions promptly and courteously,mentioning he had written a book on tinnitus which included a section on misophonia. he was consulted in joyce cohens article in the nytimes. i asked him if an audiologist or a psychologist would be more benefit and he said the psych dr. he also promised he would bring up misophonia and need for research at the next int'l conference he is attending. he is extremely intelligent and told me he will try to help. > > > > >> > > > > I do not have misophonia, but sometimes if I wake up with a blocked ear I > > > >find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am > > > >pretty sure I know the cause of audiosensitivity, but even if I am wrong, it > > > >must be far easier to find out the cause of AS than MA, and they are clearly > > > >related in some way. I think the experts agree there is a much raised incidence > > > >of ear problems in MA.> > > > > The reason I am on this site and not on the more ENT/medical/hyperacusis > > > >sites is that I think it is vitally important for everyone, especially someone > > > >like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber > > > >effect. We all, patients and

doctors need constant exposure to uncomfortable > > > >ideas. So the quickest way to get me off this site is to start agreeing with my > > > >theories, as I will then think that at long last they are being taken seriously > > > >and my experimental AS results will be checked, so that I can then move on to > > > >some other topic. > > > >> > > > > You say I am misdiagnosing you, yet you admit to having some of the problems > > > >on my list below (which ones?), any one of which flags up the ear. It makes no > > > >difference what the cause of any ear problem is, and loudness perception in the > > > >cochlea changes with age.> > > > > Audiosensitivity involves aversion to loud sounds, but all sound are not > > > >equal. It is always worse for sharp high-pitch sounds.>

> > > > So if you are interested in trying to work out the cause of MA, and in seeing > > > >things from a different angle, you should certainly stay on this site. > > > >Misophonics are going to have to sort this out by themselves, as doctors are > > > >years behind the curve. > > > >>

[Guest guest]

Greg,

Thank you for writing Dr. Moller on behalf of your son and all of us.

And that was very gracious of Dr. Moeller to respond to your email and

address your questions.Did he have anything more to share about his thoughts on the “physiological abnormality" as he referred to it in the Times article. Knowing more about the abnormality might help with choosing the best course of psychological treatment I would think.

I am very happy to hear that Dr.

Moller has expressed a need for research into misophonia.. But am also

well aware of the countless hoops to jump through and wheels to get

turning before expensive neurological research gets underway. For

now, I wager it is best to rely on guidance of my physician and as well as my own best judgement when

considering the options for getting some relief for my sound

sensitivity. Also it does also help a lot to read the ancedotal reports from

others on this site as to what helps and not, since so little is known fact wise. To: Soundsensitivity Sent: Thursday, December 15, 2011 4:59 PM Subject: Re: Question for - PLEASE read!

hi maikaefer, yes aage moeller is the neuroscientist. i located his email address in texas and fired him an email to see if he could help all of the people(including my son) who suffer with misophonia daily. he was nice enough to answer my questions promptly and courteously,mentioning he had written a book on tinnitus which included a section on misophonia. he was consulted in joyce cohens article in the nytimes. i asked him if an audiologist or a psychologist would be more benefit and he said the psych dr. he also promised he would bring up misophonia and need for research at the next int'l conference he is attending. he is extremely intelligent and told me he will try to help.

> > > > >

> > > > > I do not have misophonia, but sometimes if I wake up with a blocked ear I

> > > >find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am

> > > >pretty sure I know the cause of audiosensitivity, but even if I am wrong, it

> > > >must be far easier to find out the cause of AS than MA, and they are clearly

> > > >related in some way. I think the experts agree there is a much raised incidence

> > > >of ear problems in MA.

> > > > > The reason I am on this site and not on the more ENT/medical/hyperacusis

> > > >sites is that I think it is vitally important for everyone, especially someone

> > > >like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber

> > > >effect. We all, patients and doctors need constant exposure to uncomfortable

> > > >ideas. So the quickest way to get me off this site is to start agreeing with my

> > > >theories, as I will then think that at long last they are being taken seriously

> > > >and my experimental AS results will be checked, so that I can then move on to

> > > >some other topic.

> > > >

> > > > > You say I am misdiagnosing you, yet you admit to having some of the problems

> > > >on my list below (which ones?), any one of which flags up the ear. It makes no

> > > >difference what the cause of any ear problem is, and loudness perception in the

> > > >cochlea changes with age.

> > > > > Audiosensitivity involves aversion to loud sounds, but all sound are not

> > > >equal. It is always worse for sharp high-pitch sounds.

> > > > > So if you are interested in trying to work out the cause of MA, and in seeing

> > > >things from a different angle, you should certainly stay on this site.

> > > >Misophonics are going to have to sort this out by themselves, as doctors are

> > > >years behind the curve.

> > > >

>

[Guest guest]

Greg,

Thank you for writing Dr. Moller on behalf of your son and all of us.

And that was very gracious of Dr. Moeller to respond to your email and

address your questions.Did he have anything more to share about his thoughts on the “physiological abnormality" as he referred to it in the Times article. Knowing more about the abnormality might help with choosing the best course of psychological treatment I would think.

I am very happy to hear that Dr.

Moller has expressed a need for research into misophonia.. But am also

well aware of the countless hoops to jump through and wheels to get

turning before expensive neurological research gets underway. For

now, I wager it is best to rely on guidance of my physician and as well as my own best judgement when

considering the options for getting some relief for my sound

sensitivity. Also it does also help a lot to read the ancedotal reports from

others on this site as to what helps and not, since so little is known fact wise. To: Soundsensitivity Sent: Thursday, December 15, 2011 4:59 PM Subject: Re: Question for - PLEASE read!

hi maikaefer, yes aage moeller is the neuroscientist. i located his email address in texas and fired him an email to see if he could help all of the people(including my son) who suffer with misophonia daily. he was nice enough to answer my questions promptly and courteously,mentioning he had written a book on tinnitus which included a section on misophonia. he was consulted in joyce cohens article in the nytimes. i asked him if an audiologist or a psychologist would be more benefit and he said the psych dr. he also promised he would bring up misophonia and need for research at the next int'l conference he is attending. he is extremely intelligent and told me he will try to help.

> > > > >

> > > > > I do not have misophonia, but sometimes if I wake up with a blocked ear I

> > > >find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am

> > > >pretty sure I know the cause of audiosensitivity, but even if I am wrong, it

> > > >must be far easier to find out the cause of AS than MA, and they are clearly

> > > >related in some way. I think the experts agree there is a much raised incidence

> > > >of ear problems in MA.

> > > > > The reason I am on this site and not on the more ENT/medical/hyperacusis

> > > >sites is that I think it is vitally important for everyone, especially someone

> > > >like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber

> > > >effect. We all, patients and doctors need constant exposure to uncomfortable

> > > >ideas. So the quickest way to get me off this site is to start agreeing with my

> > > >theories, as I will then think that at long last they are being taken seriously

> > > >and my experimental AS results will be checked, so that I can then move on to

> > > >some other topic.

> > > >

> > > > > You say I am misdiagnosing you, yet you admit to having some of the problems

> > > >on my list below (which ones?), any one of which flags up the ear. It makes no

> > > >difference what the cause of any ear problem is, and loudness perception in the

> > > >cochlea changes with age.

> > > > > Audiosensitivity involves aversion to loud sounds, but all sound are not

> > > >equal. It is always worse for sharp high-pitch sounds.

> > > > > So if you are interested in trying to work out the cause of MA, and in seeing

> > > >things from a different angle, you should certainly stay on this site.

> > > >Misophonics are going to have to sort this out by themselves, as doctors are

> > > >years behind the curve.

> > > >

>

[Guest guest]

Greg,

Thank you for writing Dr. Moller on behalf of your son and all of us.

And that was very gracious of Dr. Moeller to respond to your email and

address your questions.Did he have anything more to share about his thoughts on the “physiological abnormality" as he referred to it in the Times article. Knowing more about the abnormality might help with choosing the best course of psychological treatment I would think.

I am very happy to hear that Dr.

Moller has expressed a need for research into misophonia.. But am also

well aware of the countless hoops to jump through and wheels to get

turning before expensive neurological research gets underway. For

now, I wager it is best to rely on guidance of my physician and as well as my own best judgement when

considering the options for getting some relief for my sound

sensitivity. Also it does also help a lot to read the ancedotal reports from

others on this site as to what helps and not, since so little is known fact wise. To: Soundsensitivity Sent: Thursday, December 15, 2011 4:59 PM Subject: Re: Question for - PLEASE read!

hi maikaefer, yes aage moeller is the neuroscientist. i located his email address in texas and fired him an email to see if he could help all of the people(including my son) who suffer with misophonia daily. he was nice enough to answer my questions promptly and courteously,mentioning he had written a book on tinnitus which included a section on misophonia. he was consulted in joyce cohens article in the nytimes. i asked him if an audiologist or a psychologist would be more benefit and he said the psych dr. he also promised he would bring up misophonia and need for research at the next int'l conference he is attending. he is extremely intelligent and told me he will try to help.

> > > > >

> > > > > I do not have misophonia, but sometimes if I wake up with a blocked ear I

> > > >find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am

> > > >pretty sure I know the cause of audiosensitivity, but even if I am wrong, it

> > > >must be far easier to find out the cause of AS than MA, and they are clearly

> > > >related in some way. I think the experts agree there is a much raised incidence

> > > >of ear problems in MA.

> > > > > The reason I am on this site and not on the more ENT/medical/hyperacusis

> > > >sites is that I think it is vitally important for everyone, especially someone

> > > >like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber

> > > >effect. We all, patients and doctors need constant exposure to uncomfortable

> > > >ideas. So the quickest way to get me off this site is to start agreeing with my

> > > >theories, as I will then think that at long last they are being taken seriously

> > > >and my experimental AS results will be checked, so that I can then move on to

> > > >some other topic.

> > > >

> > > > > You say I am misdiagnosing you, yet you admit to having some of the problems

> > > >on my list below (which ones?), any one of which flags up the ear. It makes no

> > > >difference what the cause of any ear problem is, and loudness perception in the

> > > >cochlea changes with age.

> > > > > Audiosensitivity involves aversion to loud sounds, but all sound are not

> > > >equal. It is always worse for sharp high-pitch sounds.

> > > > > So if you are interested in trying to work out the cause of MA, and in seeing

> > > >things from a different angle, you should certainly stay on this site.

> > > >Misophonics are going to have to sort this out by themselves, as doctors are

> > > >years behind the curve.

> > > >

>

[Guest guest]

I get dizziness from anxiety as well but I know when the dizziness I get is separate from anxiety. It is a little different. It's always worth checking out when you have dizziness because from what I have learned it can be a symptom of many different things. I am relieved to have finally found out that my dizziness is directly related to a vestibular disorder. My misophonia is unfortunately aggravated further by my dizziness. To: "Soundsensitivity "

<Soundsensitivity > Sent: Thursday, December 15, 2011 8:05 PM Subject: Re: Re: Question for - PLEASE read!

Dizziness is quite common with an anxiety attack. I do not experience dizziness with my triggers but have experienced this with social anxiety. Maybe you know this already, but when people go into panic mode, they tend to take shorter

shallower breaths than normal which can result in an excessive loss

of carbon dioxide from the blood (hyperventilation) This can cause blood pressure to

drop so the brain is getting less oxygen. If you can teach her to take longer deep breaths where she inflates her belly and instead of short breaths from upper chest area during the anxiety episodes, it might help with the dizziness. Just a suggestion...not a prescription. : ) worth a shot and no expensive tests are involved. To: Soundsensitivity Sent: Thursday, December 15, 2011 6:33 PM Subject: Re: Re: Question for - PLEASE read!

My daughter has episodes of dizziness that are directly related to her 4s. When exposed to a trigger sound one of the responses she has is to experience anxiety which causes her to experience dizziness. It then takes awhile for the dizziness to subside, but it does as some time elapses after being away from the trigger sound/situation.Subject: Re: Question for - PLEASE read!To:

Soundsensitivity Date: Thursday, December 15, 2011, 5:02 AM

You have really hit the nail on the head here Marnie, and elegantly highlighted why ear issues like dizziness are not being dealt with properly. I cannot find evidence that anxiety, stress or fatigue directly cause dizziness, despite a long search in the medical literature. (Hyperventilation, however, is an underdiagnosed cause of dizziness). I think that most doctors, apart from top specialists, still buy into the psychosomatic model, so if they cannot find any definite medical abnormality, it must be a mental or psychological problem. If in doubt, blame the patient.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

..

[Guest guest]

- I am by no means an expert but it never hurts to get dizziness checked out. For years everyone dismissed my dizziness as just anxiety and I knew that it was more than that (even though I do have anxiety). I am now going to be getting treatment for it and will hopefully see some positive change. I will update... To: Soundsensitivity Sent: Thursday, December 15, 2011 7:33

PM Subject: Re: Re: Question for - PLEASE read!

My daughter has episodes of dizziness that are directly related to her 4s. When exposed to a trigger sound one of the responses she has is to experience anxiety which causes her to experience dizziness. It then takes awhile for the dizziness to subside, but it does as some time elapses after being away from the trigger sound/situation.Subject: Re: Question for - PLEASE read!To: Soundsensitivity Date: Thursday, December 15, 2011, 5:02 AM

You have really hit the nail on the head here Marnie, and elegantly highlighted why ear issues like dizziness are not being dealt with properly. I cannot find evidence that anxiety, stress or fatigue directly cause dizziness, despite a long search in the medical literature. (Hyperventilation, however, is an underdiagnosed cause of dizziness). I think that most doctors, apart from top specialists, still buy into the psychosomatic model, so if they cannot find any definite medical abnormality, it must be a mental or psychological problem. If in doubt, blame the patient.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > >

> > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

- I am by no means an expert but it never hurts to get dizziness checked out. For years everyone dismissed my dizziness as just anxiety and I knew that it was more than that (even though I do have anxiety). I am now going to be getting treatment for it and will hopefully see some positive change. I will update... To: Soundsensitivity Sent: Thursday, December 15, 2011 7:33

PM Subject: Re: Re: Question for - PLEASE read!

My daughter has episodes of dizziness that are directly related to her 4s. When exposed to a trigger sound one of the responses she has is to experience anxiety which causes her to experience dizziness. It then takes awhile for the dizziness to subside, but it does as some time elapses after being away from the trigger sound/situation.Subject: Re: Question for - PLEASE read!To: Soundsensitivity Date: Thursday, December 15, 2011, 5:02 AM

You have really hit the nail on the head here Marnie, and elegantly highlighted why ear issues like dizziness are not being dealt with properly. I cannot find evidence that anxiety, stress or fatigue directly cause dizziness, despite a long search in the medical literature. (Hyperventilation, however, is an underdiagnosed cause of dizziness). I think that most doctors, apart from top specialists, still buy into the psychosomatic model, so if they cannot find any definite medical abnormality, it must be a mental or psychological problem. If in doubt, blame the patient.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > >

> > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

- I am by no means an expert but it never hurts to get dizziness checked out. For years everyone dismissed my dizziness as just anxiety and I knew that it was more than that (even though I do have anxiety). I am now going to be getting treatment for it and will hopefully see some positive change. I will update... To: Soundsensitivity Sent: Thursday, December 15, 2011 7:33

PM Subject: Re: Re: Question for - PLEASE read!

My daughter has episodes of dizziness that are directly related to her 4s. When exposed to a trigger sound one of the responses she has is to experience anxiety which causes her to experience dizziness. It then takes awhile for the dizziness to subside, but it does as some time elapses after being away from the trigger sound/situation.Subject: Re: Question for - PLEASE read!To: Soundsensitivity Date: Thursday, December 15, 2011, 5:02 AM

You have really hit the nail on the head here Marnie, and elegantly highlighted why ear issues like dizziness are not being dealt with properly. I cannot find evidence that anxiety, stress or fatigue directly cause dizziness, despite a long search in the medical literature. (Hyperventilation, however, is an underdiagnosed cause of dizziness). I think that most doctors, apart from top specialists, still buy into the psychosomatic model, so if they cannot find any definite medical abnormality, it must be a mental or psychological problem. If in doubt, blame the patient.

**********************************************************************

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > >

> > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I just want to first say that I am on everyone's side here...To me misophonia is just somewhat of a medical mystery right now. I am open to the possibility that misophonia could be related to something neurological but I just can't dismiss the possibility that it isn't related to something an ENT or audiologist could one day help us with. I have suffered from misophonia since I was a child. I am open to hearing everyone's theories. To: "Soundsensitivity "

<Soundsensitivity > Sent: Thursday, December 15, 2011 6:13 PM Subject: Re: Re: Question for - PLEASE read!

No one should EVER be diagnosed from an email – G is a nut case, stay away. I can’t believe all this self diagnosing, in just the last few weeks here is what some believe we have Aspergers PET, SSCDS, Meniere Spectrum Disorder, audiosensitivity, ADD, schizophrenia , Hyperacusis, Autism etc, etc etc. Like many other conditions there can be several causes and different degrees of the condition. I will take a break from this site because I’m not sure I can handle one more person asking if they should go to an ENT or one more self diagnosis. Again, an ENT or Audiologist is for hearing or auditory related problems they know NOTHING about 4S especially those also who have Visual Sensitivities. I hope some common sense returns so we can move towards helping find some relief instead of listening to people who are long on opinions but short rational thinking. An example of moving in the right direction is probably to see someone who specializes in Neurology.

To: Soundsensitivity Sent: Thursday, December 15, 2011 5:59 PMSubject: Re: Question for - PLEASE read!

hi maikaefer, yes aage moeller is the neuroscientist. i located his email address in texas and fired him an email to see if he could help all of the people(including my son) who suffer with misophonia daily. he was nice enough to answer my questions promptly and courteously,mentioning he had written a book on tinnitus which included a section on misophonia. he was consulted in joyce cohens article in the nytimes. i asked him if an audiologist or a psychologist would be more benefit and he said the psych dr. he also promised he would bring up misophonia and need for research at the next int'l conference he is attending. he is extremely intelligent and told me he will try to help. > > > > >> > > > > I do not have misophonia, but sometimes if I wake up with a blocked ear I > > > >find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am > > > >pretty sure I know the cause of audiosensitivity, but even if I am wrong, it > > > >must be far easier to find out the cause of AS than MA, and they are clearly > > > >related in some way. I think the experts agree there is a much raised incidence > > > >of ear problems in MA.> > > > > The reason I am on this site and not on the more ENT/medical/hyperacusis > > > >sites is that I think it is vitally important for everyone, especially someone > > > >like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber > > > >effect. We all, patients and

doctors need constant exposure to uncomfortable > > > >ideas. So the quickest way to get me off this site is to start agreeing with my > > > >theories, as I will then think that at long last they are being taken seriously > > > >and my experimental AS results will be checked, so that I can then move on to > > > >some other topic. > > > >> > > > > You say I am misdiagnosing you, yet you admit to having some of the problems > > > >on my list below (which ones?), any one of which flags up the ear. It makes no > > > >difference what the cause of any ear problem is, and loudness perception in the > > > >cochlea changes with age.> > > > > Audiosensitivity involves aversion to loud sounds, but all sound are not > > > >equal. It is always worse for sharp high-pitch sounds.>

> > > > So if you are interested in trying to work out the cause of MA, and in seeing > > > >things from a different angle, you should certainly stay on this site. > > > >Misophonics are going to have to sort this out by themselves, as doctors are > > > >years behind the curve. > > > >>

[Guest guest]

I just want to first say that I am on everyone's side here...To me misophonia is just somewhat of a medical mystery right now. I am open to the possibility that misophonia could be related to something neurological but I just can't dismiss the possibility that it isn't related to something an ENT or audiologist could one day help us with. I have suffered from misophonia since I was a child. I am open to hearing everyone's theories. To: "Soundsensitivity "

<Soundsensitivity > Sent: Thursday, December 15, 2011 6:13 PM Subject: Re: Re: Question for - PLEASE read!

No one should EVER be diagnosed from an email – G is a nut case, stay away. I can’t believe all this self diagnosing, in just the last few weeks here is what some believe we have Aspergers PET, SSCDS, Meniere Spectrum Disorder, audiosensitivity, ADD, schizophrenia , Hyperacusis, Autism etc, etc etc. Like many other conditions there can be several causes and different degrees of the condition. I will take a break from this site because I’m not sure I can handle one more person asking if they should go to an ENT or one more self diagnosis. Again, an ENT or Audiologist is for hearing or auditory related problems they know NOTHING about 4S especially those also who have Visual Sensitivities. I hope some common sense returns so we can move towards helping find some relief instead of listening to people who are long on opinions but short rational thinking. An example of moving in the right direction is probably to see someone who specializes in Neurology.

To: Soundsensitivity Sent: Thursday, December 15, 2011 5:59 PMSubject: Re: Question for - PLEASE read!

hi maikaefer, yes aage moeller is the neuroscientist. i located his email address in texas and fired him an email to see if he could help all of the people(including my son) who suffer with misophonia daily. he was nice enough to answer my questions promptly and courteously,mentioning he had written a book on tinnitus which included a section on misophonia. he was consulted in joyce cohens article in the nytimes. i asked him if an audiologist or a psychologist would be more benefit and he said the psych dr. he also promised he would bring up misophonia and need for research at the next int'l conference he is attending. he is extremely intelligent and told me he will try to help. > > > > >> > > > > I do not have misophonia, but sometimes if I wake up with a blocked ear I > > > >find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am > > > >pretty sure I know the cause of audiosensitivity, but even if I am wrong, it > > > >must be far easier to find out the cause of AS than MA, and they are clearly > > > >related in some way. I think the experts agree there is a much raised incidence > > > >of ear problems in MA.> > > > > The reason I am on this site and not on the more ENT/medical/hyperacusis > > > >sites is that I think it is vitally important for everyone, especially someone > > > >like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber > > > >effect. We all, patients and

doctors need constant exposure to uncomfortable > > > >ideas. So the quickest way to get me off this site is to start agreeing with my > > > >theories, as I will then think that at long last they are being taken seriously > > > >and my experimental AS results will be checked, so that I can then move on to > > > >some other topic. > > > >> > > > > You say I am misdiagnosing you, yet you admit to having some of the problems > > > >on my list below (which ones?), any one of which flags up the ear. It makes no > > > >difference what the cause of any ear problem is, and loudness perception in the > > > >cochlea changes with age.> > > > > Audiosensitivity involves aversion to loud sounds, but all sound are not > > > >equal. It is always worse for sharp high-pitch sounds.>

> > > > So if you are interested in trying to work out the cause of MA, and in seeing > > > >things from a different angle, you should certainly stay on this site. > > > >Misophonics are going to have to sort this out by themselves, as doctors are > > > >years behind the curve. > > > >>

[Guest guest]

I have this weird thing with dishes. I cannot dry dishes off. The feeling of the towel rubbing against the dishes makes me so irritated i feel nauseous. To: Soundsensitivity Sent: Tuesday, December 13, 2011 12:20 AM Subject: Re: Question for - PLEASE read!

Yes, , all of the senses including touch. They are not all necessarily equal in how much of a problem they cause, but all the senses are involved to some extent. One person may say their worst problem is sounds, one may say it's the fabric of their clothes against their skin, while another may say it's the smells that no one else seems to notice. All I know is that at the end of the day I'm pretty much exhausted from the overload!

Vicki

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter

> >

> > >is

> > >

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > >sounds. It pains

> > >

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> > >only offer

> > >

> > > > > > > > >suggestions, but because it's so new to her, and she's so young, I

> >

> > >know, to her,

> > >

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice about

>

> > >where to start

> > >

> > > > > > > > >with getting her help outside of our home? Do we talk to her

> >regular

> >

> > >doctor

> > >

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> > p

> >

>

[Guest guest]

I have this weird thing with dishes. I cannot dry dishes off. The feeling of the towel rubbing against the dishes makes me so irritated i feel nauseous. To: Soundsensitivity Sent: Tuesday, December 13, 2011 12:20 AM Subject: Re: Question for - PLEASE read!

Yes, , all of the senses including touch. They are not all necessarily equal in how much of a problem they cause, but all the senses are involved to some extent. One person may say their worst problem is sounds, one may say it's the fabric of their clothes against their skin, while another may say it's the smells that no one else seems to notice. All I know is that at the end of the day I'm pretty much exhausted from the overload!

Vicki

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter

> >

> > >is

> > >

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > >sounds. It pains

> > >

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> > >only offer

> > >

> > > > > > > > >suggestions, but because it's so new to her, and she's so young, I

> >

> > >know, to her,

> > >

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice about

>

> > >where to start

> > >

> > > > > > > > >with getting her help outside of our home? Do we talk to her

> >regular

> >

> > >doctor

> > >

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> > p

> >

>

[Guest guest]

I am not diagnosed with SPD. I am a sufferer of misophonia. To: Soundsensitivity Sent: Wednesday, December 14, 2011 9:29 AM Subject: Re: Re: Question for - PLEASE read!

, may I ask how you were diagnossed with SPD? Is it through a regular physician?

To: "Soundsensitivity " <Soundsensitivity >Sent: Wed, December 14, 2011 8:26:09 AMSubject: Re: Re: Question for - PLEASE read!

I agree with you purpl_barbi.

To: Soundsensitivity Sent: Monday, December 12, 2011 8:08 PMSubject: Re: Question for - PLEASE read!

I've read the posts and responses concerning the origin of our misophonia and it's interesting to hear people's opinions and ideas. For myself, I'm convinced that it's an offshoot of my SPD. I do have audiosensitivity...which is part of my SPD...and I've had that ever since I can remember. The misophonia began (so far as I've noticed) in my teens, which is why it leads me to believe it's an offshoot. People with SPD do have the "fight or flight" response to certain sounds, too, and it's not just loud ones. It's where your brain is not wired to properly filter sensory input, so we can get overloaded easily from certain sounds, bright lights, too many people talking at once, loud noises, itchy fabric or clothing tags, smells, the texture of certain foods, certain types of touches...it's a long list...but you can see how people with SPD really need their quiet, alone time, too. I think my misophonia zeroes in on particular sounds (for me it's gum

snapping, whistling, sucking air between the teeth, etc) that annoy me and my SPD can't filter it out like "normal" people can. I personally don't think it has to do with ear damage. > > > > > > > > > >> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > > > >it seems hopeless right now.

Can

any of you offer me advice about where to start > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

i completely agree with this last post! To: Soundsensitivity Sent: Thursday, December 15, 2011 11:24 AM Subject: Re: Question for - PLEASE read!

anthony has not yet addressed misophonia in his responses. and its not in the 19th century textbooks. we must move on. ENT's and neuroscientists don't believe its a hearing problem. innocuous soft sounds are incorrectly interpreted(in the brain) as "danger" leading to a fight/flight fear response which becomes conditioned over time. this fear conditioning leads to a whole host of secondary psych issues which need to be treated. a neuroscientist told me a psychologist would be much more helpful than an audiologist. he contributed to the nytimes article of joyce cohen.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > I am very concerned about how upset my 11 year old

> > >daughter is

> > >

> > > > >

> > > > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > >sounds.

> > >

> > > > > >It pains

> > > > > >

> > > > > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> > >only

> > >

> > > > > >offer

> > > > > >

> > > > > > > > > > >suggestions, but because it's so new to her, and she's so young,

> > >I

> > >

> > > > > >know, to her,

> > > > > >

> > > > > > > > > > >it seems hopeless right now. Can any of you offer me advice

> > >about

> > >

> > > > > >where to start

> > > > > >

> > > > > > > > > > >with getting her help outside of our home? Do we talk to her

> > >regular

> > >

> > > > > >doctor

> > > > > >

> > > > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

i completely agree with this last post! To: Soundsensitivity Sent: Thursday, December 15, 2011 11:24 AM Subject: Re: Question for - PLEASE read!

anthony has not yet addressed misophonia in his responses. and its not in the 19th century textbooks. we must move on. ENT's and neuroscientists don't believe its a hearing problem. innocuous soft sounds are incorrectly interpreted(in the brain) as "danger" leading to a fight/flight fear response which becomes conditioned over time. this fear conditioning leads to a whole host of secondary psych issues which need to be treated. a neuroscientist told me a psychologist would be much more helpful than an audiologist. he contributed to the nytimes article of joyce cohen.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > I am very concerned about how upset my 11 year old

> > >daughter is

> > >

> > > > >

> > > > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > >sounds.

> > >

> > > > > >It pains

> > > > > >

> > > > > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> > >only

> > >

> > > > > >offer

> > > > > >

> > > > > > > > > > >suggestions, but because it's so new to her, and she's so young,

> > >I

> > >

> > > > > >know, to her,

> > > > > >

> > > > > > > > > > >it seems hopeless right now. Can any of you offer me advice

> > >about

> > >

> > > > > >where to start

> > > > > >

> > > > > > > > > > >with getting her help outside of our home? Do we talk to her

> > >regular

> > >

> > > > > >doctor

> > > > > >

> > > > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > > > >

> > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

A neurologist can definately help as well as a psychiatrist. To: "Soundsensitivity " <Soundsensitivity > Sent: Thursday, December 15, 2011 6:13 PM Subject: Re: Re: Question for - PLEASE read!

No one should EVER be diagnosed from an email – G is a nut case, stay away. I can’t believe all this self diagnosing, in just the last few weeks here is what some believe we have Aspergers PET, SSCDS, Meniere Spectrum Disorder, audiosensitivity, ADD, schizophrenia , Hyperacusis, Autism etc, etc etc. Like many other conditions there can be several causes and different degrees of the condition. I will take a break from this site because I’m not sure I can handle one more person asking if they should go to an ENT or one more self diagnosis. Again, an ENT or Audiologist is for hearing or auditory related problems they know NOTHING about 4S especially those also who have Visual Sensitivities. I hope some common sense returns so we can move towards helping find some relief instead of listening to people who are long on opinions but short rational thinking. An example of moving in the right direction is probably to see someone who specializes in Neurology.

To: Soundsensitivity Sent: Thursday, December 15, 2011 5:59 PMSubject: Re: Question for - PLEASE read!

hi maikaefer, yes aage moeller is the neuroscientist. i located his email address in texas and fired him an email to see if he could help all of the people(including my son) who suffer with misophonia daily. he was nice enough to answer my questions promptly and courteously,mentioning he had written a book on tinnitus which included a section on misophonia. he was consulted in joyce cohens article in the nytimes. i asked him if an audiologist or a psychologist would be more benefit and he said the psych dr. he also promised he would bring up misophonia and need for research at the next int'l conference he is attending. he is extremely intelligent and told me he will try to help. > > > > >> > > > > I do not have misophonia, but sometimes if I wake up with a blocked ear I > > > >find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am > > > >pretty sure I know the cause of audiosensitivity, but even if I am wrong, it > > > >must be far easier to find out the cause of AS than MA, and they are clearly > > > >related in some way. I think the experts agree there is a much raised incidence > > > >of ear problems in MA.> > > > > The reason I am on this site and not on the more ENT/medical/hyperacusis > > > >sites is that I think it is vitally important for everyone, especially someone > > > >like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber > > > >effect. We all, patients and

doctors need constant exposure to uncomfortable > > > >ideas. So the quickest way to get me off this site is to start agreeing with my > > > >theories, as I will then think that at long last they are being taken seriously > > > >and my experimental AS results will be checked, so that I can then move on to > > > >some other topic. > > > >> > > > > You say I am misdiagnosing you, yet you admit to having some of the problems > > > >on my list below (which ones?), any one of which flags up the ear. It makes no > > > >difference what the cause of any ear problem is, and loudness perception in the > > > >cochlea changes with age.> > > > > Audiosensitivity involves aversion to loud sounds, but all sound are not > > > >equal. It is always worse for sharp high-pitch sounds.>

> > > > So if you are interested in trying to work out the cause of MA, and in seeing > > > >things from a different angle, you should certainly stay on this site. > > > >Misophonics are going to have to sort this out by themselves, as doctors are > > > >years behind the curve. > > > >>