Re: Re: Question for - PLEASE read!

[Guest guest]

Have you gotten it checked out ever? To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, December 13, 2011 2:10 PM Subject: Re: Re: Question for - PLEASE read!

I do have some dizziness and definitely motion sickness! Sent from my iPhone

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems??????? To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AM Subject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is inescapable.

**********************************************************************

> > > > > >

> > > > > > , can I ask if you if you see any benefits in going to an ENT for 4S?

> > > > > & g

[Guest guest]

, have you ever had this checked out? To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:08 PM Subject: Re: Re: Question for - PLEASE read!

Marnie, on occasions I do. Nothing awful, but it makes me wonder.

To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 10:56:29 AMSubject: Re: Re: Question for - PLEASE read!

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is

inescapable.**********************************************************************> > > > > > > > > >> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > > >> > > >

> > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

No I never have.. I probably should. I just dealt with it.. but now that you point this out, I wonder if they are related in any way?

Have you gotten it checked out ever?

To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, December 13, 2011 2:10 PMSubject: Re: Re: Question for - PLEASE read!

I do have some dizziness and definitely motion sickness!

Sent from my iPhone

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is inescapable.**********************************************************************> > > > > >> > > > > > , can I ask if you if you see any benefits in going to an ENT for 4S?> > > > > & g

[Guest guest]

Thanks! I will look into it.

I took a hearing and balance test done by an audiologist. It's worth it to check it out!!

To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:28 PMSubject: Re: Re: Question for - PLEASE read!

No I never have.. I probably should. I just dealt with it.. but now that you point this out, I wonder if they are related in any way?

Have you gotten it checked out ever?

To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, December 13, 2011 2:10 PMSubject: Re: Re: Question for - PLEASE read!

I do have some dizziness and definitely motion sickness!

Sent from my iPhone

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is inescapable.**********************************************************************> > > > > >> > > > > > , can I ask if you if you see any benefits in going to an ENT for 4S?> > > > > & g

[Guest guest]

I took a hearing and balance test done by an audiologist. It's worth it to check it out!! To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:28 PM Subject: Re: Re: Question for - PLEASE read!

No I never have.. I probably should. I just dealt with it.. but now that you point this out, I wonder if they are related in any way?

Have you gotten it checked out ever?

To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, December 13, 2011 2:10 PMSubject: Re: Re: Question for - PLEASE read!

I do have some dizziness and definitely motion sickness!

Sent from my iPhone

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is inescapable.**********************************************************************> > > > > >> > > > > > , can I ask if you if you see any benefits in going to an ENT for 4S?> > > > > & g

[Guest guest]

I took a hearing and balance test done by an audiologist. It's worth it to check it out!! To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:28 PM Subject: Re: Re: Question for - PLEASE read!

No I never have.. I probably should. I just dealt with it.. but now that you point this out, I wonder if they are related in any way?

Have you gotten it checked out ever?

To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, December 13, 2011 2:10 PMSubject: Re: Re: Question for - PLEASE read!

I do have some dizziness and definitely motion sickness!

Sent from my iPhone

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is inescapable.**********************************************************************> > > > > >> > > > > > , can I ask if you if you see any benefits in going to an ENT for 4S?> > > > > & g

[Guest guest]

I took a hearing and balance test done by an audiologist. It's worth it to check it out!! To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:28 PM Subject: Re: Re: Question for - PLEASE read!

No I never have.. I probably should. I just dealt with it.. but now that you point this out, I wonder if they are related in any way?

Have you gotten it checked out ever?

To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, December 13, 2011 2:10 PMSubject: Re: Re: Question for - PLEASE read!

I do have some dizziness and definitely motion sickness!

Sent from my iPhone

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is inescapable.**********************************************************************> > > > > >> > > > > > , can I ask if you if you see any benefits in going to an ENT for 4S?> > > > > & g

[Guest guest]

No. But I know that do not have good "spacial" sense. I am an awkward person.

To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 1:26:08 PMSubject: Re: Re: Question for - PLEASE read!

Have you gotten it checked out ever?

To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, December 13, 2011 2:10 PMSubject: Re: Re: Question for - PLEASE read!

I do have some dizziness and definitely motion sickness!

Sent from my iPhone

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is

inescapable.**********************************************************************> > > > > >> > > > > > , can I ask if you if you see any benefits in going to an ENT for 4S?> > > > >

& g

[Guest guest]

No. But I know that do not have good "spacial" sense. I am an awkward person.

To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 1:26:08 PMSubject: Re: Re: Question for - PLEASE read!

Have you gotten it checked out ever?

To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, December 13, 2011 2:10 PMSubject: Re: Re: Question for - PLEASE read!

I do have some dizziness and definitely motion sickness!

Sent from my iPhone

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is

inescapable.**********************************************************************> > > > > >> > > > > > , can I ask if you if you see any benefits in going to an ENT for 4S?> > > > >

& g

[Guest guest]

I just thought is was my brain being my brain. I know that sounds very lame.

To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 1:26:39 PMSubject: Re: Re: Question for - PLEASE read!

, have you ever had this checked out?

To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:08 PMSubject: Re: Re: Question for - PLEASE read!

Marnie, on occasions I do. Nothing awful, but it makes me wonder.

To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 10:56:29 AMSubject: Re: Re: Question for - PLEASE read!

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is

inescapable.**********************************************************************> > > > > > > > > >> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > > >> > > >

> > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

I have an appointment on January 10 with Dr. Meltzer. I will ask her about it. I never thought any thing of it.

To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 1:37:06 PMSubject: Re: Re: Question for - PLEASE read!

I took a hearing and balance test done by an audiologist. It's worth it to check it out!!

To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:28 PMSubject: Re: Re: Question for - PLEASE read!

No I never have.. I probably should. I just dealt with it.. but now that you point this out, I wonder if they are related in any way?

Have you gotten it checked out ever?

To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, December 13, 2011 2:10 PMSubject: Re: Re: Question for - PLEASE read!

I do have some dizziness and definitely motion sickness!

Sent from my iPhone

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar

story, even on this site, the conclusion of some sort of link is inescapable.**********************************************************************> > > > > >> > > > > > , can I ask if you if you see any benefits in going to an ENT for 4S?> > > > > & g

[Guest guest]

Marnie, what did the test results tell you about being dizzy?

To: Soundsensitivity Sent: Tue, December 13, 2011 1:37:55 PMSubject: Re: Re: Question for - PLEASE read!

Thanks! I will look into it.

I took a hearing and balance test done by an audiologist. It's worth it to check it out!!

To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:28 PMSubject: Re: Re: Question for - PLEASE read!

No I never have.. I probably should. I just dealt with it.. but now that you point this out, I wonder if they are related in any way?

Have you gotten it checked out ever?

To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, December 13, 2011 2:10 PMSubject: Re: Re: Question for - PLEASE read!

I do have some dizziness and definitely motion sickness!

Sent from my iPhone

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar

story, even on this site, the conclusion of some sort of link is inescapable.**********************************************************************> > > > > >> > > > > > , can I ask if you if you see any benefits in going to an ENT for 4S?> > > > > & g

[Guest guest]

MA? I am assuming that AS is audiosensitivity?, You claim the incidence of "undoubted" ear problems are worse here than in the population in general. Do you have data on this? I have not gotten that impression myself. Most members don't even post here, so how could either one of us know for sure anyway. Dr. is the one collecting clinical data, and she has not as yet mentioned a higher incidence of ear problems in our population that I know of.You have not as of yet given me a good answer on how visual and other sensory triggers unrelated to sound would be accounted for with your theories. You spoke of dizziness from seeing motion like waterfalls. This does not make sense to me because

waterfalls and such are not a problem for me, how could this explanation account for these very specific visual triggers that I have, but not all things that move.And I

hope this doesn't upset you, but I can't help but wonder if you aren't just putting us on with your "unorthodox" ideas, for fun maybe?. Sorry but this is the internet after all,

best to be skeptical. Do you have articles or your curriclum vitae on-line which you could give us a link to? Don't get me wrong I think it

is good to discuss ideas and have differing points of view bounced

around here, so please don't assume that I find this problematic or that I am being oversensitive.Barbara I do hope you stay on

this site, people can't really diagnose people over the

internet anyway. And this is after all a site has been set up by Dr. J for us to receive support, share anecdotal information and talk about coping strategies.

To: Soundsensitivity Sent: Tuesday, December 13, 2011 1:43 PM Subject: Re: Question for - PLEASE read!

I do not have misophonia, but sometimes if I wake up with a blocked ear I find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am pretty sure I know the cause of audiosensitivity, but even if I am wrong, it must be far easier to find out the cause of AS than MA, and they are clearly related in some way. I think the experts agree there is a much raised incidence of ear problems in MA.

The reason I am on this site and not on the more ENT/medical/hyperacusis sites is that I think it is vitally important for everyone, especially someone like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber effect. We all, patients and doctors need constant exposure to uncomfortable ideas. So the quickest way to get me off this site is to start agreeing with my theories, as I will then think that at long last they are being taken seriously and my experimental AS results will be checked, so that I can then move on to some other topic.

You say I am misdiagnosing you, yet you admit to having some of the problems on my list below (which ones?), any one of which flags up the ear. It makes no difference what the cause of any ear problem is, and loudness perception in the cochlea changes with age.

Audiosensitivity involves aversion to loud sounds, but all sound are not equal. It is always worse for sharp high-pitch sounds.

So if you are interested in trying to work out the cause of MA, and in seeing things from a different angle, you should certainly stay on this site. Misophonics are going to have to sort this out by themselves, as doctors are years behind the curve.

**********************************************************************

> > > > > > > > > >

> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

>

> > > > > > >getting...more so each day, it seems...with her sensitivity to sounds.

> >It pains

> >

> > > > > > >me to see her cry, wondering why she has to feel this way. I can only

> >offer

> >

> > > > > > >suggestions, but because it's so new to her, and she's so young, I

> >know, to her,

> >

> > > > > > >it seems hopeless right now. Can any of you offer me advice about

> >where to start

> >

> > > > > > >with getting her help outside of our home? Do we talk to her regular

> >doctor

> >

> > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Thank you Maikaefer for your reply and for "hearing/listening/understanding" what I wrote/felt. To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 3:36:36 PMSubject: Re: Re: Question for

- PLEASE read!

MA? I am assuming that AS is audiosensitivity?, You claim the incidence of "undoubted" ear problems are worse here than in the population in general. Do you have data on this? I have not gotten that impression myself. Most members don't even post here, so how could either one of us know for sure anyway. Dr. is the one collecting clinical data, and she has not as yet mentioned a higher incidence of ear problems in our population that I know of.You have not as of yet given me a good answer on how visual and other sensory triggers unrelated to sound would be accounted for with your theories. You spoke of dizziness from seeing motion like waterfalls. This does not

make sense to me because

waterfalls and such are not a problem for me, how could this explanation account for these very specific visual triggers that I have, but not all things that move.And I

hope this doesn't upset you, but I can't help but wonder if you aren't just putting us on with your "unorthodox" ideas, for fun maybe?. Sorry but this is the internet after all,

best to be skeptical. Do you have articles or your curriclum vitae on-line which you could give us a link to? Don't get me wrong I think it

is good to discuss ideas and have differing points of view bounced

around here, so please don't assume that I find this problematic or that I am being oversensitive.Barbara I do hope you stay on

this site, people can't really diagnose people over the

internet anyway. And this is after all a site has been set up by Dr. J for us to receive support, share anecdotal information and talk about coping strategies.

To: Soundsensitivity Sent: Tuesday, December 13, 2011 1:43 PM Subject: Re: Question for - PLEASE read!

I do not have misophonia, but sometimes if I wake up with a blocked ear I find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am pretty sure I know the cause of audiosensitivity, but even if I am wrong, it must be far easier to find out the cause of AS than MA, and they are clearly related in some way. I think the experts agree there is a much raised incidence of ear problems in MA.

The reason I am on this site and not on the more ENT/medical/hyperacusis sites is that I think it is vitally important for everyone, especially someone like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber effect. We all, patients and doctors need constant exposure to uncomfortable ideas. So the quickest way to get me off this site is to start agreeing with my theories, as I will then think that at long last they are being taken seriously and my experimental AS results will be checked, so that I can then move on to some other topic.

You say I am misdiagnosing you, yet you admit to having some of the problems on my list below (which ones?), any one of which flags up the ear. It makes no difference what the cause of any ear problem is, and loudness perception in the cochlea changes with age.

Audiosensitivity involves aversion to loud sounds, but all sound are not equal. It is always worse for sharp high-pitch sounds.

So if you are interested in trying to work out the cause of MA, and in seeing things from a different angle, you should certainly stay on this site. Misophonics are going to have to sort this out by themselves, as doctors are years behind the curve.

**********************************************************************

> > > > > > > > > >

> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

>

> > > > > > >getting...more so each day, it seems...with her sensitivity to sounds.

> >It pains

> >

> > > > > > >me to see her cry, wondering why she has to feel this way. I can only

> >offer

> >

> > > > > > >suggestions, but because it's so new to her, and she's so young, I

> >know, to her,

> >

> > > > > > >it seems hopeless right now. Can any of you offer me advice about

> >where to start

> >

> > > > > > >with getting her help outside of our home? Do we talk to her regular

> >doctor

> >

> > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I'm going to stop recieving emails from this group as well, it's too much to keep up with. While I appreciate any and all people looking into different angles of possible causes/treatments, I think it is important to be open minded for BOTH sufferers, AND Doctors. Here is my issue with your angle ....MOST of us as sufferers started experiencing this rage/panic reaction to certain sounds in childhood around 9 years old....this can NOT be caused by rapid weight gain/loss etc. Many of us had no issues with chronic ear infections, no issues in childbirth, etc. My hearing is fine, This is not a discomfort in the ear, or with the sounds, but a mental discomfort BECAUSE of the sounds. It's really hard to make that make sense to someone who has not

experienced it, because it doesn't make sense to those of us who experience it EVERY DAY.....many of us are finding it gets worse and worse, and that there are visual triggers as well as noise triggers. I would never want to tell someone to stop looking into misophonia, but at the same time, listen to what the people are saying to get the best information you can. I'm glad there is more attention being shed, and I hope you all continue to fight for understanding, and find peace in your own ways. I will remain on the miso/4s Facebook group where the vibe is a little more pleasant and less high maintanance, and will remain a member of this group, but will most likely not be posting very often. Best wishes to you all, sincerelyxoxo Kaci Anne McCall Professional FACE PAINTING, personalized crafts, and more! Please visit:http://www.MysticalRainbowCreations.com "What a privilege to be here on the planet to contribute your unique donation to humankind. Each face in the rainbow of colors that populate our world is precious and special." ~ Dees To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:43 PM Subject: Re: Question for - PLEASE read!

I do not have misophonia, but sometimes if I wake up with a blocked ear I find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am pretty sure I know the cause of audiosensitivity, but even if I am wrong, it must be far easier to find out the cause of AS than MA, and they are clearly related in some way. I think the experts agree there is a much raised incidence of ear problems in MA.

The reason I am on this site and not on the more ENT/medical/hyperacusis sites is that I think it is vitally important for everyone, especially someone like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber effect. We all, patients and doctors need constant exposure to uncomfortable ideas. So the quickest way to get me off this site is to start agreeing with my theories, as I will then think that at long last they are being taken seriously and my experimental AS results will be checked, so that I can then move on to some other topic.

You say I am misdiagnosing you, yet you admit to having some of the problems on my list below (which ones?), any one of which flags up the ear. It makes no difference what the cause of any ear problem is, and loudness perception in the cochlea changes with age.

Audiosensitivity involves aversion to loud sounds, but all sound are not equal. It is always worse for sharp high-pitch sounds.

So if you are interested in trying to work out the cause of MA, and in seeing things from a different angle, you should certainly stay on this site. Misophonics are going to have to sort this out by themselves, as doctors are years behind the curve.

**********************************************************************

> > > > > > > > > >

> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

>

> > > > > > >getting...more so each day, it seems...with her sensitivity to sounds.

> >It pains

> >

> > > > > > >me to see her cry, wondering why she has to feel this way. I can only

> >offer

> >

> > > > > > >suggestions, but because it's so new to her, and she's so young, I

> >know, to her,

> >

> > > > > > >it seems hopeless right now. Can any of you offer me advice about

> >where to start

> >

> > > > > > >with getting her help outside of our home? Do we talk to her regular

> >doctor

> >

> > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I'm going to stop recieving emails from this group as well, it's too much to keep up with. While I appreciate any and all people looking into different angles of possible causes/treatments, I think it is important to be open minded for BOTH sufferers, AND Doctors. Here is my issue with your angle ....MOST of us as sufferers started experiencing this rage/panic reaction to certain sounds in childhood around 9 years old....this can NOT be caused by rapid weight gain/loss etc. Many of us had no issues with chronic ear infections, no issues in childbirth, etc. My hearing is fine, This is not a discomfort in the ear, or with the sounds, but a mental discomfort BECAUSE of the sounds. It's really hard to make that make sense to someone who has not

experienced it, because it doesn't make sense to those of us who experience it EVERY DAY.....many of us are finding it gets worse and worse, and that there are visual triggers as well as noise triggers. I would never want to tell someone to stop looking into misophonia, but at the same time, listen to what the people are saying to get the best information you can. I'm glad there is more attention being shed, and I hope you all continue to fight for understanding, and find peace in your own ways. I will remain on the miso/4s Facebook group where the vibe is a little more pleasant and less high maintanance, and will remain a member of this group, but will most likely not be posting very often. Best wishes to you all, sincerelyxoxo Kaci Anne McCall Professional FACE PAINTING, personalized crafts, and more! Please visit:http://www.MysticalRainbowCreations.com "What a privilege to be here on the planet to contribute your unique donation to humankind. Each face in the rainbow of colors that populate our world is precious and special." ~ Dees To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:43 PM Subject: Re: Question for - PLEASE read!

I do not have misophonia, but sometimes if I wake up with a blocked ear I find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am pretty sure I know the cause of audiosensitivity, but even if I am wrong, it must be far easier to find out the cause of AS than MA, and they are clearly related in some way. I think the experts agree there is a much raised incidence of ear problems in MA.

The reason I am on this site and not on the more ENT/medical/hyperacusis sites is that I think it is vitally important for everyone, especially someone like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber effect. We all, patients and doctors need constant exposure to uncomfortable ideas. So the quickest way to get me off this site is to start agreeing with my theories, as I will then think that at long last they are being taken seriously and my experimental AS results will be checked, so that I can then move on to some other topic.

You say I am misdiagnosing you, yet you admit to having some of the problems on my list below (which ones?), any one of which flags up the ear. It makes no difference what the cause of any ear problem is, and loudness perception in the cochlea changes with age.

Audiosensitivity involves aversion to loud sounds, but all sound are not equal. It is always worse for sharp high-pitch sounds.

So if you are interested in trying to work out the cause of MA, and in seeing things from a different angle, you should certainly stay on this site. Misophonics are going to have to sort this out by themselves, as doctors are years behind the curve.

**********************************************************************

> > > > > > > > > >

> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

>

> > > > > > >getting...more so each day, it seems...with her sensitivity to sounds.

> >It pains

> >

> > > > > > >me to see her cry, wondering why she has to feel this way. I can only

> >offer

> >

> > > > > > >suggestions, but because it's so new to her, and she's so young, I

> >know, to her,

> >

> > > > > > >it seems hopeless right now. Can any of you offer me advice about

> >where to start

> >

> > > > > > >with getting her help outside of our home? Do we talk to her regular

> >doctor

> >

> > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Wow Katy! I know so few people who describe the same issues that I have! Can you think of any reason why this was triggered in you? I started having problems in my early 20's and now am in my early 30's. Too long to live like this. I am going to get the treatment and I will let you know how it goes....let's be in touch Katy! To: Soundsensitivity Sent: Tuesday, December 13,

2011 6:49 PM Subject: Re: Question for - PLEASE read!

Yes! As an adult (starting at 25) I started having problems with vertigo, balance and dizziness (in addition to my sound sensitivity, which started as a child). I was diagnosed with a severe vestibular imbalance in my right ear a couple years ago, but my insurance wouldn't cover any treatment for it.

I also get migraines, and an audiologist friend thinks they could be vestibular migraines, since I get dizzy/vertiginous when I get them. I've wondered if it's all connected for me (as my sound sensitivity is terrible while I have a migraine or dizziness), and was excited to see your question!

Katy

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Wow Katy! I know so few people who describe the same issues that I have! Can you think of any reason why this was triggered in you? I started having problems in my early 20's and now am in my early 30's. Too long to live like this. I am going to get the treatment and I will let you know how it goes....let's be in touch Katy! To: Soundsensitivity Sent: Tuesday, December 13,

2011 6:49 PM Subject: Re: Question for - PLEASE read!

Yes! As an adult (starting at 25) I started having problems with vertigo, balance and dizziness (in addition to my sound sensitivity, which started as a child). I was diagnosed with a severe vestibular imbalance in my right ear a couple years ago, but my insurance wouldn't cover any treatment for it.

I also get migraines, and an audiologist friend thinks they could be vestibular migraines, since I get dizzy/vertiginous when I get them. I've wondered if it's all connected for me (as my sound sensitivity is terrible while I have a migraine or dizziness), and was excited to see your question!

Katy

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

- the test results told me that I have a unilateral weakness in my right ear. It is a vestibular disorder. It really impairs my daily functioning. If you think you could have this then I would go and get tested.:)Marnie To: Soundsensitivity Sent: Tuesday, December 13, 2011 3:34 PM Subject: Re: Re: Question for -

PLEASE read!

Marnie, what did the test results tell you about being dizzy?

To: Soundsensitivity Sent: Tue, December 13, 2011 1:37:55 PMSubject: Re: Re: Question for - PLEASE read!

Thanks! I will look into it.

I took a hearing and balance test done by an audiologist. It's worth it to check it out!!

To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:28 PMSubject: Re: Re: Question for - PLEASE read!

No I never have.. I probably should. I just dealt with it.. but now that you point this out, I wonder if they are related in any way?

Have you gotten it checked out ever?

To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, December 13, 2011 2:10 PMSubject: Re: Re: Question for - PLEASE read!

I do have some dizziness and definitely motion sickness!

Sent from my iPhone

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a

central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar

story, even on this site, the conclusion of some sort of link is inescapable.**********************************************************************> > > > > >> > > > > > , can I ask if you if you see any benefits in going to an ENT for 4S?> > > > > & g

[Guest guest]

- the test results told me that I have a unilateral weakness in my right ear. It is a vestibular disorder. It really impairs my daily functioning. If you think you could have this then I would go and get tested.:)Marnie To: Soundsensitivity Sent: Tuesday, December 13, 2011 3:34 PM Subject: Re: Re: Question for -

PLEASE read!

Marnie, what did the test results tell you about being dizzy?

To: Soundsensitivity Sent: Tue, December 13, 2011 1:37:55 PMSubject: Re: Re: Question for - PLEASE read!

Thanks! I will look into it.

I took a hearing and balance test done by an audiologist. It's worth it to check it out!!

To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:28 PMSubject: Re: Re: Question for - PLEASE read!

No I never have.. I probably should. I just dealt with it.. but now that you point this out, I wonder if they are related in any way?

Have you gotten it checked out ever?

To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, December 13, 2011 2:10 PMSubject: Re: Re: Question for - PLEASE read!

I do have some dizziness and definitely motion sickness!

Sent from my iPhone

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a

central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar

story, even on this site, the conclusion of some sort of link is inescapable.**********************************************************************> > > > > >> > > > > > , can I ask if you if you see any benefits in going to an ENT for 4S?> > > > > & g

[Guest guest]

I have always just dismissed my dizziness as anxiety, stress, fatigue, and having sensory issues. But, I finally found the time to just go and get it checked out. There is always a reason for something going on in your body. No reason to suffer!! To: Soundsensitivity Sent: Tuesday, December 13, 2011 3:32 PM Subject: Re:

Re: Question for - PLEASE read!

I just thought is was my brain being my brain. I know that sounds very lame.

To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 1:26:39 PMSubject: Re: Re: Question for - PLEASE read!

, have you ever had this checked out?

To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:08 PMSubject: Re: Re: Question for - PLEASE read!

Marnie, on occasions I do. Nothing awful, but it makes me wonder.

To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 10:56:29 AMSubject: Re: Re: Question for - PLEASE read!

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is

inescapable.**********************************************************************> > > > > > > > > >> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > > >> > > >

> > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

I have always just dismissed my dizziness as anxiety, stress, fatigue, and having sensory issues. But, I finally found the time to just go and get it checked out. There is always a reason for something going on in your body. No reason to suffer!! To: Soundsensitivity Sent: Tuesday, December 13, 2011 3:32 PM Subject: Re:

Re: Question for - PLEASE read!

I just thought is was my brain being my brain. I know that sounds very lame.

To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 1:26:39 PMSubject: Re: Re: Question for - PLEASE read!

, have you ever had this checked out?

To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:08 PMSubject: Re: Re: Question for - PLEASE read!

Marnie, on occasions I do. Nothing awful, but it makes me wonder.

To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 10:56:29 AMSubject: Re: Re: Question for - PLEASE read!

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is

inescapable.**********************************************************************> > > > > > > > > >> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > > >> > > >

> > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

[Guest guest]

Hi Vicki. Yeah, I am looking forward to getting her the help she needs! Maybe you should just take a test just to make sure you don't have a vestibular issue that can be corrected. I also have problems with sweeping motions along with patterns on the floor and also lighting that flickers. To: Soundsensitivity Sent: Tuesday,

December 13, 2011 3:27 PM Subject: Re: Question for - PLEASE read!

Oh, that's great Marnie, I'm so glad you caught it so early!! It'll be that much easier for her to deal with. And you know, you're right! I don't think it ever registered, but I agree that it seems to get worse as it's passed along.

Regarding your other question... I am prone to motion sickness. I have a hard time being in a car, bus, etc, unless I'm in the front. I also have a hard time watching movies or computer games that show any kind of sweeping motion. I've given up on the IMAX shows they have at museums!

Vicki

> > > > > > > > > > > > >

> > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter

> > > >is

> > > >

> > > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > > >sounds. It pains

> > > >

> > > > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> > > >only offer

> > > >

> > > > > > > > > >suggestions, but because it's so new to her, and she's so young, I

> > > >know, to her,

> > > >

> > > > > > > > > >it seems hopeless right now. Can any of you offer me advice about

> > > >where to start

> > > >

> > > > > > > > > >with getting her help outside of our home? Do we talk to her regular

> > > >doctor

> > > >

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[Guest guest]

Hi Vicki. Yeah, I am looking forward to getting her the help she needs! Maybe you should just take a test just to make sure you don't have a vestibular issue that can be corrected. I also have problems with sweeping motions along with patterns on the floor and also lighting that flickers. To: Soundsensitivity Sent: Tuesday,

December 13, 2011 3:27 PM Subject: Re: Question for - PLEASE read!

Oh, that's great Marnie, I'm so glad you caught it so early!! It'll be that much easier for her to deal with. And you know, you're right! I don't think it ever registered, but I agree that it seems to get worse as it's passed along.

Regarding your other question... I am prone to motion sickness. I have a hard time being in a car, bus, etc, unless I'm in the front. I also have a hard time watching movies or computer games that show any kind of sweeping motion. I've given up on the IMAX shows they have at museums!

Vicki

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> > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter

> > > >is

> > > >

> > > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > > >sounds. It pains

> > > >

> > > > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> > > >only offer

> > > >

> > > > > > > > > >suggestions, but because it's so new to her, and she's so young, I

> > > >know, to her,

> > > >

> > > > > > > > > >it seems hopeless right now. Can any of you offer me advice about

> > > >where to start

> > > >

> > > > > > > > > >with getting her help outside of our home? Do we talk to her regular

> > > >doctor

> > > >

> > > > > > > > > >initially? I'm just not sure where to begin Thank you all.

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[Guest guest]

Thank you Kaci and best wishes to you. Thank you for confirming my suspicions so eloquently.To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 7:13:56 PMSubject: Re: Re: Question for -

PLEASE read!

I'm going to stop recieving emails from this group as well, it's too much to keep up with. While I appreciate any and all people looking into different angles of possible causes/treatments, I think it is important to be open minded for BOTH sufferers, AND Doctors. Here is my issue with your angle ....MOST of us as sufferers started experiencing this rage/panic reaction to certain sounds in childhood around 9 years old....this can NOT be caused by rapid weight gain/loss etc. Many of us had no issues with chronic ear infections, no issues in childbirth, etc. My hearing is fine, This is not a discomfort in the ear, or with the sounds, but a mental discomfort BECAUSE of the sounds. It's really hard to make that make sense to

someone who has not

experienced it, because it doesn't make sense to those of us who experience it EVERY DAY.....many of us are finding it gets worse and worse, and that there are visual triggers as well as noise triggers. I would never want to tell someone to stop looking into misophonia, but at the same time, listen to what the people are saying to get the best information you can. I'm glad there is more attention being shed, and I hope you all continue to fight for understanding, and find peace in your own ways. I will remain on the miso/4s Facebook group where the vibe is a little more pleasant and less high maintanance, and will remain a member of this group, but will most likely not be posting very often. Best wishes to you all, sincerelyxoxo Kaci Anne McCall Professional FACE PAINTING, personalized crafts, and more! Please visit:http://www.MysticalRainbowCreations.com "What a privilege to be here on the planet to contribute your unique donation to humankind. Each face in the rainbow of colors that populate our world is precious and special." ~ Dees To: Soundsensitivity Sent: Tuesday, December 13, 2011 2:43 PM Subject: Re: Question for - PLEASE read!

I do not have misophonia, but sometimes if I wake up with a blocked ear I find the radio too loud (audiosensitivity, due to endolymphatic hydrops). I am pretty sure I know the cause of audiosensitivity, but even if I am wrong, it must be far easier to find out the cause of AS than MA, and they are clearly related in some way. I think the experts agree there is a much raised incidence of ear problems in MA.

The reason I am on this site and not on the more ENT/medical/hyperacusis sites is that I think it is vitally important for everyone, especially someone like myself with unorthodox views, to avoid the "Filter Bubble" or Echo Chamber effect. We all, patients and doctors need constant exposure to uncomfortable ideas. So the quickest way to get me off this site is to start agreeing with my theories, as I will then think that at long last they are being taken seriously and my experimental AS results will be checked, so that I can then move on to some other topic.

You say I am misdiagnosing you, yet you admit to having some of the problems on my list below (which ones?), any one of which flags up the ear. It makes no difference what the cause of any ear problem is, and loudness perception in the cochlea changes with age.

Audiosensitivity involves aversion to loud sounds, but all sound are not equal. It is always worse for sharp high-pitch sounds.

So if you are interested in trying to work out the cause of MA, and in seeing things from a different angle, you should certainly stay on this site. Misophonics are going to have to sort this out by themselves, as doctors are years behind the curve.

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> > > > > > > > > >

> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

>

> > > > > > >getting...more so each day, it seems...with her sensitivity to sounds.

> >It pains

> >

> > > > > > >me to see her cry, wondering why she has to feel this way. I can only

> >offer

> >

> > > > > > >suggestions, but because it's so new to her, and she's so young, I

> >know, to her,

> >

> > > > > > >it seems hopeless right now. Can any of you offer me advice about

> >where to start

> >

> > > > > > >with getting her help outside of our home? Do we talk to her regular

> >doctor

> >

> > > > > > >initially? I'm just not sure where to begin Thank you all.

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