Re: Re: Question for - PLEASE read!

December 11, 2011

- I don't know about the others but, I don't fully understand all of the technical terms you use. Can you explain some of these things any other way? On another note- I had a hearing and balance test done this past Friday because I have had issues with dizziness for about 8-10 years. I have had misophonia though for roughly 25 years. Anyway, I have no idea if these two are connected but I went for this test because of the dizziness. I found out that I have unilateral weakness of the right ear. I guess this is a vestibular disorder? And they said I need physical therapy to work on this. Are you very familiar with this? The audiologist explained very little to me but, I have some answers now at least about my dizziness.

To: Soundsensitivity Sent: Sunday, December 11, 2011 12:12 PM Subject: Re: Question for

I have no idea what I have written that contradicts Adah's post below. I have published in the medical literature many examples of reflex responses; eg Young children will not do (voluntary) pure tone audiometry until they show an Orienting Reflex to sound (Sokolov); phonophobia is a conditioned fear reflex to unduly loud sound; all audiosensitive persons have abnormal stapedial muscle reflexes; musical hallucinations are a very low level reflex response to confusing tinnitus; jangling keys near certain hearing-impaired rodent strains induce reflex epileptic convulsions; total temporary blindness after minor head injury can be due to disrupted vestibular reflexes; knockouts, as in boxers, are nothing to do with the brain, but due to overstimulated inner ears, and blocked vestibulo-spinal reflexes; startle reflex; disordered vestibulo-spatial reflexes, leading to conditioned fear and anxiety (agoraphobia); etc.

If misophonis has nothing to do with past or present ear disorders, then the incidence of these should be the same or lower than for the population in general. Is is perfectly clear that even on this highly selective site they are in fact far commoner. Before we get neuroscientists involved, we need to sort out this vital clue.

*********************************************************************

> > > > > > > >

> > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

December 12, 2011

, Do you or do you not have misophonia? Or are you just watching/writing/commenting on the sidelines-I don't know-I'm new to the group. I have about as much anxiety and fatigue as the next person. I do not have any other problems you listed, except those caused by aging. I do not have any ear or sound problems and the only instrument I've played is the radio. I have misophonia. I can't stand certain sounds-not all-just the ones that I personally can't stand. Some of which are what I have in common with the others, others have it much worse, or milder. Again, I do not have a hearing problem, but the list of sounds that drive me crazy has grown since I was young, and mine started about age 4-because I was not in school yet. I am

thinking of quitting this group because, (you) keep mis-diagnosing (me). Since we are a large group, yes, certain people will have some same tendencies and others some different similar tendencies.. I could ask the same amount of people who don't have misophonia and they will probably have about the same amount of ear problems. I know there is a certain amount of "weeding out" to find the root of the problem. It's too bad we all can't be "hooked up" to watch/listen to all the disgusting sounds at the same time to see how our brains function when exposed to the sounds/actions of the perpetrators. To: Soundsensitivity Sent: Mon, December 12, 2011 10:05:39 AMSubject: Re: Question for - PLEASE read!

I use technical terms to be precise and concise, but even so I still seem to have been misunderstood on this site! I assume that nowadays suitable definitions of techical terms can be found on Wikipedia. Beware, though, that different dictionaries give quite contradictory and confusing definition of sound sensitivity terms.

Your case illustrates prefectly the point I have been trying to make that the incidence of undoubted ear problems on this site is far in excess of that in the population in general, so is giving us a priceless clue as to the genesis of sound perceptual difficulties. I agree with the Jastreboffs (2004) who say hyperacusis and misophonia frequently occur together in clinical practice. So establishing the cause of the first must help understanding the second.

The vestibular test(? water in the ear canal) shows that part(s) of the vestibular organs in one(?) ear are damaged. If one ear is severely and permanently damaged (vestibular neuritis) you would feel very dizzy, off-balance and sick for weeks, but would then recover as the nervous system reprogrammed itself and readjusted to the residual asymmetrical but constant vestibular input. So I do not think the fixed weakness directly explains 10 years of intermittent dizziness. By far the most likely, if not only cause, is inner ear pressure changes due to frequent changes in body weight, dehydration, etc., leading to Meniere Spectrum Disorder, in which case many other symptoms could be present, including

1. Audiosensitivity, ie over-sensitivity to LOUD sounds.

2. Pure tone hearing loss, especially if fluctuant and first seen at low frequencies.

3. Tinnitus.

4. Feeling of pressure/pain in your ears/head.

5. Misophonia confined to or worse in the bad ear.

6. Nausea, motion sickness.

7. Poor concentration, anxiety, fatigue, etc.

It would be very helpful if you could confirm to the group if you have had any of the above, and provide any other relevant medical information (including, possibly, the address of the clinic you went to so others can avoid it!).

**********************************************************************

> > > > > > > > >

> > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

December 12, 2011

It seems as though the areas which function in the emotional response to these sounds also functions in learning, memory and the limbic systems. We have subconsciously identified these sounds as sounds that harm us and our bodies set off the "fight or flight" response to these sounds. It seems to me we have to retrain our brains to say that these sounds aren't going to hurt us and it's okay not increase anxiety, heart rate, blood pressure. also the areas that control rage and anxiety are closely related to this and im not sure if there is medication that can control those areas or not as im not a doctor. i'm sure there are medication out there that do, but whether or not it helps with this disorder is the question. To: Soundsensitivity Sent: Monday, December 12, 2011 4:15 PM Subject: Re: Re: Question for - PLEASE read!

, Do you or do you not have misophonia? Or are you just watching/writing/commenting on the sidelines-I don't know-I'm new to the group. I have about as much anxiety and fatigue as the next person. I do not have any other problems you listed, except those caused by aging. I do not have any ear or sound problems and the only instrument I've played is the radio. I have misophonia. I can't stand certain sounds-not all-just the ones that I personally can't stand. Some of which are what I have in common with the others, others have it much worse, or milder. Again, I do not have a hearing problem, but the list of sounds that drive me crazy has grown since I was young, and mine started about age 4-because I was not in school yet. I am

thinking of quitting this group because, (you) keep mis-diagnosing (me). Since we are a large group, yes, certain people will have some same tendencies and others some different similar tendencies.. I could ask the same amount of people who don't have misophonia and they will probably have about the same amount of ear problems. I know there is a certain amount of "weeding out" to find the root of the problem. It's too bad we all can't be "hooked up" to watch/listen to all the disgusting sounds at the same time to see how our brains function when exposed to the sounds/actions of the perpetrators. To: Soundsensitivity Sent: Mon, December 12, 2011 10:05:39 AMSubject: Re: Question for - PLEASE read!

I use technical terms to be precise and concise, but even so I still seem to have been misunderstood on this site! I assume that nowadays suitable definitions of techical terms can be found on Wikipedia. Beware, though, that different dictionaries give quite contradictory and confusing definition of sound sensitivity terms.

Your case illustrates prefectly the point I have been trying to make that the incidence of undoubted ear problems on this site is far in excess of that in the population in general, so is giving us a priceless clue as to the genesis of sound perceptual difficulties. I agree with the Jastreboffs (2004) who say hyperacusis and misophonia frequently occur together in clinical practice. So establishing the cause of the first must help understanding the second.

The vestibular test(? water in the ear canal) shows that part(s) of the vestibular organs in one(?) ear are damaged. If one ear is severely and permanently damaged (vestibular neuritis) you would feel very dizzy, off-balance and sick for weeks, but would then recover as the nervous system reprogrammed itself and readjusted to the residual asymmetrical but constant vestibular input. So I do not think the fixed weakness directly explains 10 years of intermittent dizziness. By far the most likely, if not only cause, is inner ear pressure changes due to frequent changes in body weight, dehydration, etc., leading to Meniere Spectrum Disorder, in which case many other symptoms could be present, including

1. Audiosensitivity, ie over-sensitivity to LOUD sounds.

2. Pure tone hearing loss, especially if fluctuant and first seen at low frequencies.

3. Tinnitus.

4. Feeling of pressure/pain in your ears/head.

5. Misophonia confined to or worse in the bad ear.

6. Nausea, motion sickness.

7. Poor concentration, anxiety, fatigue, etc.

It would be very helpful if you could confirm to the group if you have had any of the above, and provide any other relevant medical information (including, possibly, the address of the clinic you went to so others can avoid it!).

**********************************************************************

> > > > > > > > >

> > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

December 12, 2011

Totally Clueless

To: Soundsensitivity Sent: Monday, December 12, 2011 1:05 PMSubject: Re: Question for - PLEASE read!

I use technical terms to be precise and concise, but even so I still seem to have been misunderstood on this site! I assume that nowadays suitable definitions of techical terms can be found on Wikipedia. Beware, though, that different dictionaries give quite contradictory and confusing definition of sound sensitivity terms. Your case illustrates prefectly the point I have been trying to make that the incidence of undoubted ear problems on this site is far in excess of that in the population in general, so is giving us a priceless clue as to the genesis of sound perceptual difficulties. I agree with the Jastreboffs (2004) who say hyperacusis and misophonia frequently occur together in clinical practice. So establishing the cause of the first must help understanding the second. The vestibular test(? water in the ear canal) shows that part(s) of the vestibular organs in one(?) ear are damaged. If one ear is severely and permanently damaged

(vestibular neuritis) you would feel very dizzy, off-balance and sick for weeks, but would then recover as the nervous system reprogrammed itself and readjusted to the residual asymmetrical but constant vestibular input. So I do not think the fixed weakness directly explains 10 years of intermittent dizziness. By far the most likely, if not only cause, is inner ear pressure changes due to frequent changes in body weight, dehydration, etc., leading to Meniere Spectrum Disorder, in which case many other symptoms could be present, including1. Audiosensitivity, ie over-sensitivity to LOUD sounds.2. Pure tone hearing loss, especially if fluctuant and first seen at low frequencies.3. Tinnitus. 4. Feeling of pressure/pain in your ears/head.5. Misophonia confined to or worse in the bad ear.6. Nausea, motion sickness.7. Poor concentration, anxiety, fatigue, etc.It would be very helpful if you could confirm to the group if you have

had any of the above, and provide any other relevant medical information (including, possibly, the address of the clinic you went to so others can avoid it!). **********************************************************************> > > > > > > > >> > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > > >me to see her cry, wondering why she has to feel this way. I can

only offer > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

December 12, 2011

Not necessarily. Ruling out the improbables will leave us with the possibilities. When we can eliminate all the things we know are NOT the cause of misophonia, we'll see that what remains is most likely our common problem.

Totally Clueless

To: Soundsensitivity Sent: Monday, December 12, 2011 1:05 PMSubject: Re: Question for - PLEASE read!

I use technical terms to be precise and concise, but even so I still seem to have been misunderstood on this site! I assume that nowadays suitable definitions of techical terms can be found on Wikipedia. Beware, though, that different dictionaries give quite contradictory and confusing definition of sound sensitivity terms. Your case illustrates prefectly the point I have been trying to make that the incidence of undoubted ear problems on this site is far in excess of that in the population in general, so is giving us a priceless clue as to the genesis of sound perceptual difficulties. I agree with the Jastreboffs (2004) who say hyperacusis and misophonia frequently occur together in clinical practice. So establishing the cause of the first must help understanding the second. The vestibular test(? water in the ear canal) shows that part(s) of the vestibular organs in one(?) ear are damaged. If one ear is severely and permanently damaged

(vestibular neuritis) you would feel very dizzy, off-balance and sick for weeks, but would then recover as the nervous system reprogrammed itself and readjusted to the residual asymmetrical but constant vestibular input. So I do not think the fixed weakness directly explains 10 years of intermittent dizziness. By far the most likely, if not only cause, is inner ear pressure changes due to frequent changes in body weight, dehydration, etc., leading to Meniere Spectrum Disorder, in which case many other symptoms could be present, including1. Audiosensitivity, ie over-sensitivity to LOUD sounds.2. Pure tone hearing loss, especially if fluctuant and first seen at low frequencies.3. Tinnitus. 4. Feeling of pressure/pain in your ears/head.5. Misophonia confined to or worse in the bad ear.6. Nausea, motion sickness.7. Poor concentration, anxiety, fatigue, etc.It would be very helpful if you could confirm to the group if you have

had any of the above, and provide any other relevant medical information (including, possibly, the address of the clinic you went to so others can avoid it!). **********************************************************************> > > > > > > > >> > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > > >me to see her cry, wondering why she has to feel this way. I can

only offer > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

December 12, 2011

purpl_barbi you not only described yourself but me to a " T " . I also suffer from

SPD and believe that it's all related.

>I've read the posts and responses concerning the origin of our misophonia and

it's interesting to hear people's opinions and ideas. For myself, I'm convinced

that it's an offshoot of my SPD. I do have audiosensitivity...which is part of

my SPD...and I've had that ever since I can remember. The misophonia began (so

far as I've noticed) in my teens, which is why it leads me to believe it's an

offshoot. People with SPD do have the " fight or flight " response to certain

sounds, too, and it's not just loud ones. It's where your brain is not wired to

properly filter sensory input, so we can get overloaded easily from certain

sounds, bright lights, too many people talking at once, loud noises, itchy

fabric or clothing tags, smells, the texture of certain foods, certain types of

touches...it's a long list...but you can see how people with SPD really need

their quiet, alone time, too. I think my misophonia zeroes in on particular

sounds (for me it's gum

snapping, whistling, sucking air between the teeth, etc) that annoy me and my

SPD can't filter it out like " normal " people can. I personally don't think it

has to do with ear damage.

>

>> > > > > > > > > >

>> > > > > > > > > > I am very concerned about how upset my 11 year old daughter

is

>> > > > > > >getting...more so each day, it seems...with her sensitivity to

sounds. It pains

>> > > > > > >me to see her cry, wondering why she has to feel this way. I can

only offer

>> > > > > > >suggestions, but because it's so new to her, and she's so young, I

know, to her,

>> > > > > > >it seems hopeless right now. Can any of you offer me advice about

where to start

>> > > > > > >with getting her help outside of our home? Do we talk to her

regular doctor

>> > > > > > >initially? I'm just not sure where to begin Thank you all.

>> > > > > > > > > >

>> > > > > > > > >

>> > > > > > > >

>> > > > > > >

>> > > > > >

>> > > > >

>> > > >

>> > >

>> >

>>

>

December 12, 2011

This a reply to the previous posting about having testing done and yes you can have testing done like a video monitored EEG, but if it is not considered medically necessary then ins. might not pay for it.Subject: Re: Re: Question for - PLEASE read!To: "Soundsensitivity " <Soundsensitivity >Date: Monday, December 12, 2011, 3:44 PM

It seems as though the areas which function in the emotional response to these sounds also functions in learning, memory and the limbic systems. We have subconsciously identified these sounds as sounds that harm us and our bodies set off the "fight or flight" response to these sounds. It seems to me we have to retrain our brains to say that these sounds aren't going to hurt us and it's okay not increase anxiety, heart rate, blood pressure. also the areas that control rage and anxiety are closely related to this and im not sure if there is medication that can control those areas or not as im not a doctor. i'm sure there are medication out there that do, but whether or not it helps with this disorder is the question. To: Soundsensitivity Sent: Monday, December 12, 2011 4:15 PM Subject: Re: Re: Question for - PLEASE read!

, Do you or do you not have misophonia? Or are you just watching/writing/commenting on the sidelines-I don't know-I'm new to the group. I have about as much anxiety and fatigue as the next person. I do not have any other problems you listed, except those caused by aging. I do not have any ear or sound problems and the only instrument I've played is the radio. I have misophonia. I can't stand certain sounds-not all-just the ones that I personally can't stand. Some of which are what I have in common with the others, others have it much worse, or milder. Again, I do not have a hearing problem, but the list of sounds that drive me crazy has grown since I was young, and mine started about age 4-because I was not in school yet. I am

thinking of quitting this group because, (you) keep mis-diagnosing (me). Since we are a large group, yes, certain people will have some same tendencies and others some different similar tendencies.. I could ask the same amount of people who don't have misophonia and they will probably have about the same amount of ear problems. I know there is a certain amount of "weeding out" to find the root of the problem. It's too bad we all can't be "hooked up" to watch/listen to all the disgusting sounds at the same time to see how our brains function when exposed to the sounds/actions of the perpetrators. From: anthony g

To: Soundsensitivity Sent: Mon, December 12, 2011 10:05:39 AMSubject: Re: Question for - PLEASE read!

I use technical terms to be precise and concise, but even so I still seem to have been misunderstood on this site! I assume that nowadays suitable definitions of techical terms can be found on Wikipedia. Beware, though, that different dictionaries give quite contradictory and confusing definition of sound sensitivity terms.

Your case illustrates prefectly the point I have been trying to make that the incidence of undoubted ear problems on this site is far in excess of that in the population in general, so is giving us a priceless clue as to the genesis of sound perceptual difficulties. I agree with the Jastreboffs (2004) who say hyperacusis and misophonia frequently occur together in clinical practice. So establishing the cause of the first must help understanding the second.

The vestibular test(? water in the ear canal) shows that part(s) of the vestibular organs in one(?) ear are damaged. If one ear is severely and permanently damaged (vestibular neuritis) you would feel very dizzy, off-balance and sick for weeks, but would then recover as the nervous system reprogrammed itself and readjusted to the residual asymmetrical but constant vestibular input. So I do not think the fixed weakness directly explains 10 years of intermittent dizziness. By far the most likely, if not only cause, is inner ear pressure changes due to frequent changes in body weight, dehydration, etc., leading to Meniere Spectrum Disorder, in which case many other symptoms could be present, including

1. Audiosensitivity, ie over-sensitivity to LOUD sounds.

2. Pure tone hearing loss, especially if fluctuant and first seen at low frequencies.

3. Tinnitus.

4. Feeling of pressure/pain in your ears/head.

5. Misophonia confined to or worse in the bad ear.

6. Nausea, motion sickness.

7. Poor concentration, anxiety, fatigue, etc.

It would be very helpful if you could confirm to the group if you have had any of the above, and provide any other relevant medical information (including, possibly, the address of the clinic you went to so others can avoid it!).

**********************************************************************

> > > > > > > > >

> > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

December 12, 2011

Purpl, what is SPD?

To: Soundsensitivity Sent: Mon, December 12, 2011 7:08:43 PMSubject: Re: Question for - PLEASE read!

I've read the posts and responses concerning the origin of our misophonia and it's interesting to hear people's opinions and ideas. For myself, I'm convinced that it's an offshoot of my SPD. I do have audiosensitivity...which is part of my SPD...and I've had that ever since I can remember. The misophonia began (so far as I've noticed) in my teens, which is why it leads me to believe it's an offshoot. People with SPD do have the "fight or flight" response to certain sounds, too, and it's not just loud ones. It's where your brain is not wired to properly filter sensory input, so we can get overloaded easily from certain sounds, bright lights, too many people talking at once, loud noises, itchy fabric or clothing tags, smells, the texture of certain foods, certain types of touches...it's a long list...but you can see how people with SPD really need their quiet, alone time, too. I think my misophonia zeroes in on particular sounds (for me it's gum

snapping, whistling, sucking air between the teeth, etc) that annoy me and my SPD can't filter it out like "normal" people can. I personally don't think it has to do with ear damage. > > > > > > > > > >> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > > > >it seems hopeless right now. Can

any of you offer me advice about where to start > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

p

December 12, 2011

I also have SPD. I have not been formally diagnosed but I KNOW i have it. My daughter was diagnosed with it today actually... To: Soundsensitivity Sent: Monday, December 12, 2011 10:02 PM Subject: Re: Question for - PLEASE read!

,

SPD is Sensory Processing Disorder. Many SPDers also have ADD (ADHD), but you certainly don't have to have one to have the other.

Vicki

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter

> >is

> >

> > > > > > > >getting...more so each day, it seems...with her sensitivity to

> >sounds. It pains

> >

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> >only offer

> >

> > > > > > > >suggestions, but because it's so new to her, and she's so young, I

> >know, to her,

> >

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about

> >where to start

> >

> > > > > > > >with getting her help outside of our home? Do we talk to her regular

> >doctor

> >

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

> p

>

December 12, 2011

I also have SPD. I have not been formally diagnosed but I KNOW i have it. My daughter was diagnosed with it today actually... To: Soundsensitivity Sent: Monday, December 12, 2011 10:02 PM Subject: Re: Question for - PLEASE read!

,

SPD is Sensory Processing Disorder. Many SPDers also have ADD (ADHD), but you certainly don't have to have one to have the other.

Vicki

> > > > > > > > > > >

> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter

> >is

> >

> > > > > > > >getting...more so each day, it seems...with her sensitivity to

> >sounds. It pains

> >

> > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> >only offer

> >

> > > > > > > >suggestions, but because it's so new to her, and she's so young, I

> >know, to her,

> >

> > > > > > > >it seems hopeless right now. Can any of you offer me advice about

> >where to start

> >

> > > > > > > >with getting her help outside of our home? Do we talk to her regular

> >doctor

> >

> > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

> p

>

December 12, 2011

Vicki,

Does SPD involve all the senses? touch as well?

To: Soundsensitivity Sent: Mon, December 12, 2011 9:02:41 PMSubject: Re: Question for - PLEASE read!

, SPD is Sensory Processing Disorder. Many SPDers also have ADD (ADHD), but you certainly don't have to have one to have the other.Vicki> > > > > > > > > > >> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter > >is > >> > > > > > > >getting...more so each day, it seems...with her sensitivity to > >sounds. It pains > >> > > > > > > >me to see her cry, wondering why she has to feel this way. I can > >only offer > >> > > > > > > >suggestions, but because it's so new to her, and she's so young, I > >know, to her, > >> > > > > > > >it seems hopeless right now. Can any of you

offer me advice about > >where to start > >> > > > > > > >with getting her help outside of our home? Do we talk to her regular > >doctor > >> > > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> > > p>

December 12, 2011

Vicki,

Does SPD involve all the senses? touch as well?

To: Soundsensitivity Sent: Mon, December 12, 2011 9:02:41 PMSubject: Re: Question for - PLEASE read!

, SPD is Sensory Processing Disorder. Many SPDers also have ADD (ADHD), but you certainly don't have to have one to have the other.Vicki> > > > > > > > > > >> > > > > > > > > > > I am very concerned about how upset my 11 year old daughter > >is > >> > > > > > > >getting...more so each day, it seems...with her sensitivity to > >sounds. It pains > >> > > > > > > >me to see her cry, wondering why she has to feel this way. I can > >only offer > >> > > > > > > >suggestions, but because it's so new to her, and she's so young, I > >know, to her, > >> > > > > > > >it seems hopeless right now. Can any of you

offer me advice about > >where to start > >> > > > > > > >with getting her help outside of our home? Do we talk to her regular > >doctor > >> > > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> > > p>

December 13, 2011

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems??????? To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AM Subject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is inescapable.

**********************************************************************

> > > > > > > > > >

> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

December 13, 2011

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems??????? To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AM Subject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is inescapable.

**********************************************************************

> > > > > > > > > >

> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

December 13, 2011

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems??????? To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AM Subject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is inescapable.

**********************************************************************

> > > > > > > > > >

> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is

> > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains

> > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer

> > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her,

> > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start

> > > > > > >with getting her help outside of our home? Do we talk to her regular doctor

> > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

December 13, 2011

Vicki, she is actually only 4 years old and we caught it early! I knew very early on that something wasn't quite right. So, I am hoping with therapy 2-3 times a week, she will get the help she needs! And yes, she most certainly got it from me. I got it from my mom. But, it seems to get worse down the line. So many of us have these issues and many people just don't have the resources to get the help they need. Everyone has something...that's what I believe! From: purpl_barbi

To: Soundsensitivity Sent: Tuesday, December 13, 2011 8:33 AM Subject: Re: Question for - PLEASE read!

Marnie, talk about timing! Your daughter just got diagnosed...it looks like she probably got her SPD from you then, though obviously I'm guessing. How does she feel about the diagnosis? For me, finding out about the ADD and SPD (in my 40s no less) answered a lot of questions. I was so relieved there were actual labels for what I have. I grew up thinking I was the only one with these issues, like some crazy pod-person from another planet!

Vicki

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter

> > >is

> > >

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > >sounds. It pains

> > >

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> > >only offer

> > >

> > > > > > > > >suggestions, but because it's so new to her, and she's so young, I

> > >know, to her,

> > >

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice about

> > >where to start

> > >

> > > > > > > > >with getting her help outside of our home? Do we talk to her regular

> > >doctor

> > >

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> > p

> >

>

December 13, 2011

Vicki, she is actually only 4 years old and we caught it early! I knew very early on that something wasn't quite right. So, I am hoping with therapy 2-3 times a week, she will get the help she needs! And yes, she most certainly got it from me. I got it from my mom. But, it seems to get worse down the line. So many of us have these issues and many people just don't have the resources to get the help they need. Everyone has something...that's what I believe! From: purpl_barbi

To: Soundsensitivity Sent: Tuesday, December 13, 2011 8:33 AM Subject: Re: Question for - PLEASE read!

Marnie, talk about timing! Your daughter just got diagnosed...it looks like she probably got her SPD from you then, though obviously I'm guessing. How does she feel about the diagnosis? For me, finding out about the ADD and SPD (in my 40s no less) answered a lot of questions. I was so relieved there were actual labels for what I have. I grew up thinking I was the only one with these issues, like some crazy pod-person from another planet!

Vicki

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter

> > >is

> > >

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > >sounds. It pains

> > >

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> > >only offer

> > >

> > > > > > > > >suggestions, but because it's so new to her, and she's so young, I

> > >know, to her,

> > >

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice about

> > >where to start

> > >

> > > > > > > > >with getting her help outside of our home? Do we talk to her regular

> > >doctor

> > >

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> > p

> >

>

December 13, 2011

Vicki, she is actually only 4 years old and we caught it early! I knew very early on that something wasn't quite right. So, I am hoping with therapy 2-3 times a week, she will get the help she needs! And yes, she most certainly got it from me. I got it from my mom. But, it seems to get worse down the line. So many of us have these issues and many people just don't have the resources to get the help they need. Everyone has something...that's what I believe! From: purpl_barbi

To: Soundsensitivity Sent: Tuesday, December 13, 2011 8:33 AM Subject: Re: Question for - PLEASE read!

Marnie, talk about timing! Your daughter just got diagnosed...it looks like she probably got her SPD from you then, though obviously I'm guessing. How does she feel about the diagnosis? For me, finding out about the ADD and SPD (in my 40s no less) answered a lot of questions. I was so relieved there were actual labels for what I have. I grew up thinking I was the only one with these issues, like some crazy pod-person from another planet!

Vicki

> > > > > > > > > > > >

> > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter

> > >is

> > >

> > > > > > > > >getting...more so each day, it seems...with her sensitivity to

> > >sounds. It pains

> > >

> > > > > > > > >me to see her cry, wondering why she has to feel this way. I can

> > >only offer

> > >

> > > > > > > > >suggestions, but because it's so new to her, and she's so young, I

> > >know, to her,

> > >

> > > > > > > > >it seems hopeless right now. Can any of you offer me advice about

> > >where to start

> > >

> > > > > > > > >with getting her help outside of our home? Do we talk to her regular

> > >doctor

> > >

> > > > > > > > >initially? I'm just not sure where to begin Thank you all.

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> > p

> >

>

December 13, 2011

Thank you for explaining, Vicki.

To: Soundsensitivity Sent: Mon, December 12, 2011 11:20:04 PMSubject: Re: Question for - PLEASE read!

Yes, , all of the senses including touch. They are not all necessarily equal in how much of a problem they cause, but all the senses are involved to some extent. One person may say their worst problem is sounds, one may say it's the fabric of their clothes against their skin, while another may say it's the smells that no one else seems to notice. All I know is that at the end of the day I'm pretty much exhausted from the overload!Vicki> > > >

> > > > > > > >> > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter > >> > >is > > >> > > > > > > > >getting...more so each day, it seems...with her sensitivity to > > >sounds. It pains > > >> > > > > > > > >me to see her cry, wondering why she has to feel this way. I can > > >only offer > > >> > > > > > > > >suggestions, but because it's so new to her, and she's so young, I > >> > >know, to her, > > >> > > > > > > > >it seems hopeless right now. Can any of you offer me advice about > > > >where to start > > >> > > > > > > > >with getting her help

outside of our home? Do we talk to her > >regular > >> > >doctor > > >> > > > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> > > > > > p> >>

December 13, 2011

Thank you for explaining, Vicki.

To: Soundsensitivity Sent: Mon, December 12, 2011 11:20:04 PMSubject: Re: Question for - PLEASE read!

Yes, , all of the senses including touch. They are not all necessarily equal in how much of a problem they cause, but all the senses are involved to some extent. One person may say their worst problem is sounds, one may say it's the fabric of their clothes against their skin, while another may say it's the smells that no one else seems to notice. All I know is that at the end of the day I'm pretty much exhausted from the overload!Vicki> > > >

> > > > > > > >> > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter > >> > >is > > >> > > > > > > > >getting...more so each day, it seems...with her sensitivity to > > >sounds. It pains > > >> > > > > > > > >me to see her cry, wondering why she has to feel this way. I can > > >only offer > > >> > > > > > > > >suggestions, but because it's so new to her, and she's so young, I > >> > >know, to her, > > >> > > > > > > > >it seems hopeless right now. Can any of you offer me advice about > > > >where to start > > >> > > > > > > > >with getting her help

outside of our home? Do we talk to her > >regular > >> > >doctor > > >> > > > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> > > > > > p> >>

December 13, 2011

Thank you for explaining, Vicki.

To: Soundsensitivity Sent: Mon, December 12, 2011 11:20:04 PMSubject: Re: Question for - PLEASE read!

Yes, , all of the senses including touch. They are not all necessarily equal in how much of a problem they cause, but all the senses are involved to some extent. One person may say their worst problem is sounds, one may say it's the fabric of their clothes against their skin, while another may say it's the smells that no one else seems to notice. All I know is that at the end of the day I'm pretty much exhausted from the overload!Vicki> > > >

> > > > > > > >> > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter > >> > >is > > >> > > > > > > > >getting...more so each day, it seems...with her sensitivity to > > >sounds. It pains > > >> > > > > > > > >me to see her cry, wondering why she has to feel this way. I can > > >only offer > > >> > > > > > > > >suggestions, but because it's so new to her, and she's so young, I > >> > >know, to her, > > >> > > > > > > > >it seems hopeless right now. Can any of you offer me advice about > > > >where to start > > >> > > > > > > > >with getting her help

outside of our home? Do we talk to her > >regular > >> > >doctor > > >> > > > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> > > > > > p> >>

December 13, 2011

Marnie, on occasions I do. Nothing awful, but it makes me wonder.

To: "Soundsensitivity " <Soundsensitivity >Sent: Tue, December 13, 2011 10:56:29 AMSubject: Re: Re: Question for - PLEASE read!

I was hoping in the past to see that others suffered with dizziness along with misophonia however I have not found anyone else on here who has related to me as of yet. I clearly have both but the onset of the misophonia was in childhood while the dizziness was in adulthood. I am open to any possibilities and to think that the two could be linked together somehow. One thing I know for sure is that the dizziness certainly aggravates the misophonia even more.

So my question to everyone----Does anyone else in this support group suffer from dizziness, motion sickness, vertigo, or balance problems???????

To: Soundsensitivity Sent: Tuesday, December 13, 2011 9:29 AMSubject: Re: Question for - PLEASE read!

The finding of unilateral weakness confirms beyond doubt that there is an ear problem, and the origin of the dizziness. I worked for years in the hospital where the Cawthorne-Cooksey exercises were developed, but they seemed to have been abandoned. One reason may have been that they were not very effective for fluctuating vestibular disorders, which presented a moving target so to speak. In patients with Meniere's disease or Meniere Spectrum Disorder I invariably found bilateral audiosensitity, no matter how unilateral the disease seemed to be. This to me indicates a general body hydration problem, not that there must be a central brain cause for AS as others assume. In an individual case it may be unclear what the relation of the misophonia to the ear may be, but once one sees many people with a similar story, even on this site, the conclusion of some sort of link is

inescapable.**********************************************************************> > > > > > > > > >> > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > > > >> > > >

> > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

December 13, 2011