Guest guest Posted December 10, 2011 Report Share Posted December 10, 2011 , can I ask if you if you see any benefits in going to an ENT for 4S? To: Soundsensitivity Sent: Sat, December 10, 2011 6:23:04 AMSubject: Re: Where to start? I am an audiologist and psychologist. You can find out more about me in Who's Who in America 2010, and very soon I hope to have my publication list up on Open Access on Google Scholar. I am not medical, but inevitably have to stray into medical territory, so it would be very helpful to have a medic on this site to challenge me if I am wrong. In general, I accept the vast majority of facts on ear disease as written up in medical journals, but my interpretation of them will often be quite different to those of otologists or ENTs. As part of my extensive background reading to ensure I am well-informed, I have just been reading Wilde's textbook (Aural Surgery, 1853). In relation to the previous difference of opinion between C and myself about otoslerosis, I now find Wilde confirms my account, ie OS may start and be worse in one ear, but is a bilateral condition. Like everyone else, he was puzzled as to why it often got worse with childbirth. He also confirms that there is often an intial stage of audiosensitivity with ear disease. ********************************************************************> > > >> > > > I am very concerned about how upset my 11 year old daughter is getting...more so each day, it seems...with her sensitivity to sounds. It pains me to see her cry, wondering why she has to feel this way. I can only offer suggestions, but because it's so new to her, and she's so young, I know, to her, it seems hopeless right now. Can any of you offer me advice about where to start with getting her help outside of our home? Do we talk to her regular doctor initially? I'm just not sure where to begin Thank you all.> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2011 Report Share Posted December 10, 2011 I have followed the other current thread on this topic, but had decided not to jump in as it is quite a complex issue, and probably different in UK and USA, so thanks !. First, I think it a waste of time going to an ENT/otologist who has not heard of Misophonia, Patulous Eustachian Tube, Superior Semicular Canal Dehiscence Syndrome. I can think of six reasons one would think of going to an ENT: 1. To check for an active medical condition causing sound sensitivity problems. PET and SSCDS may be treatable. 2. To get a diagnosis. This is risky, since the visit can be worse than useless. For example, it is all too easy to do a pure tone audiogram, find it normal, then conclude. illogically, that the condition cannot have an otological component. PET, SSCDS, Meniere Spectrum Disorder, audiosensitivity, and perilymph fistulas may all sometimes have normal PTAs. Personally, I do not think any number of negative investigations or tests trump a clinical history which clearly implicated the ear. 3. To throw light on the genesis of misophonia in an individual case. For example, scarring or chalk patches on the drum indicate previous ear disease, which may be long forgotten but which I think is highly relevant. 4. To promote research on the condition in general and improve awareness. ENTs need to be put on notice that they are going to get a lot of referrals re sound sensitivity, so they had better start reading up about it (starting with the old textbooks of Itard and Wilde). It would help if there were relevant articles in ENT journals. 5. To get treatment. In my experience, ENTs are very unpsychologically-minded. Thus, a middle-aged woman with otosclerosis and psychological or psychiatric symptoms, most likely a result of the condition, would not be offered a stapedectomy. Or someone with rhythmical tinnitus would be seen as falling into their discipline, but if this then morphed into music this would be labelled a hallucination and the patient sent off to a psychiatrist. 6. To get a morale boost. This varies enormously with the knowledge, experience and empathy of an individual doctor. If one goes to a psychologist first, any otological contribution will be ignored. They are very loth to accept simple " reductionist " explanations for complex problems, and even if they did, would rely on the patient or a doctor having " ruled out the ear " . Basically, no profession wants to accept responsibility for sound sensitive patients. ********************************************************************* > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > >me to see her cry, wondering why she has to feel this way. I can only offer > >suggestions, but because it's so new to her, and she's so young, I know, to her, > >it seems hopeless right now. Can any of you offer me advice about where to start > >with getting her help outside of our home? Do we talk to her regular doctor > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2011 Report Share Posted December 10, 2011 I am still not sure that you understand that the rage and panic are REFLEXES to sound. They are NOT emotions that we feel as a result of hearing a trigger. They are not a psychiatric issue brought about due to a dislike of sound. The hardest thing to grasp amongst the " normals " is that we do not feel rage or panic. Our brains register panic/rage at the sound. Our nervous systems register the " emotional response " as a physical reflex. It's a REFLEX, not a feeling. It's instantaneous. There's no " gap " between trigger/stimulus and reflex/response. Can someone else pitch in here and try to explain this? > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > >me to see her cry, wondering why she has to feel this way. I can only offer > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > >it seems hopeless right now. Can any of you offer me advice about where to start > > >with getting her help outside of our home? Do we talk to her regular doctor > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2011 Report Share Posted December 11, 2011 I make absolutely no apology for recommending these two old books. Doctors then had to rely on their wits, listen to patients and were not distracted by test results of dubious relevance. I have just checked out some modern textbooks which are likely to be consulted instead: 1. Oxford Textbook of Medicine 2010. No mention of Audiosensitivity, Hyperacusis, Misophonia or Phonophobia in 5518 pages of text. 2. Sadock: Comprehensive Textbook of Psychiatry 2009. Nil on AS, MA, PA. HA defined in Glossary, but no mention in 4520 pages of text. 3. Brain's Diseases of the Nervous System 2009. Nil on AS, HA, PA in 1456 pages. HA defined in Chapter on Hearing Disorders, but no example given. 4. Jackler, Brackman: Neurotology 2005. Nil on AS or MA in 1362 pages. PA is characterised as " some sounds can elicit fear in some individuals with pain " , and as a symptom of Migraine (along with other symptoms of Meniere's disease). HA is noted as an accompaniment of tinnitus and which may indicate a common cause, and as occurring in syndrome. I could find no mention of sound sensitivity in the 17-page chapter on Meniere's, though peripheral vestibular hyperactivity was mentioned. One reason I read these old books is because I learn things. For example, Wilde says that there may be a period of sound hypersensitivity after wax removal. Clearly something odd is happening in the ear, but at this stage I have no idea what. This tells me more about the likely cause of audiosensitivty than the 12856 pages in the above megatomes. So, to add to what I have said below about the likely reaction of doctors to someone presenting with sound sensitivity, you are likely to be met with blank stares or lack of interest from psychiatrists, neurologists, general practitioners and even many otologists. So the best bet is still a 200y old aural surgeon! ********************************************************************** > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > >me to see her cry, wondering why she has to feel this way. I can only offer > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > >it seems hopeless right now. Can any of you offer me advice about where to start > > >with getting her help outside of our home? Do we talk to her regular doctor > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2011 Report Share Posted December 11, 2011 I have no idea what I have written that contradicts Adah's post below. I have published in the medical literature many examples of reflex responses; eg Young children will not do (voluntary) pure tone audiometry until they show an Orienting Reflex to sound (Sokolov); phonophobia is a conditioned fear reflex to unduly loud sound; all audiosensitive persons have abnormal stapedial muscle reflexes; musical hallucinations are a very low level reflex response to confusing tinnitus; jangling keys near certain hearing-impaired rodent strains induce reflex epileptic convulsions; total temporary blindness after minor head injury can be due to disrupted vestibular reflexes; knockouts, as in boxers, are nothing to do with the brain, but due to overstimulated inner ears, and blocked vestibulo-spinal reflexes; startle reflex; disordered vestibulo-spatial reflexes, leading to conditioned fear and anxiety (agoraphobia); etc. If misophonis has nothing to do with past or present ear disorders, then the incidence of these should be the same or lower than for the population in general. Is is perfectly clear that even on this highly selective site they are in fact far commoner. Before we get neuroscientists involved, we need to sort out this vital clue. ********************************************************************* > > > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2011 Report Share Posted December 11, 2011 Perhaps you perceive an emotional connection. I think you will find that as she gets older and gets more and more triggers that it is ANY sound that is repeated over and over will become a trigger for her. > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2011 Report Share Posted December 12, 2011 this is definitely not a hearing problem. most persons who have misophonia have excellent hearing. there is a " wiring " problem in an area of the brain where the sound is being processed. an innocuous sound is wrongly interpreted as " danger " thereby illiciting an immediate,involuntary fear(fight/flight)response with anger/rage. this grp may have to hire a lobbyist to petition various teaching (medical) universities to get this in their research budget/schedule. > > > > > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2011 Report Share Posted December 12, 2011 I'm sorry. I wasn't clear. For most of us, the emotional component of misophonia IS the reaction to triggers. The rage and panic are the reflex/response to trigger sounds which have become trigger sounds due to exposure to those sounds being repeated over and over again. The emotional CAUSE of misophonia is something the psych community has been pushing for decades and many of us are continuuing to be improperly diagnosed with PTSD. They think we have the rage/panic response as a result of emotional damage somehow relating to the sounds themselves. I am not saying that this is never the case. I'm sure it could be. But I went through 20 years of psychotherapy (as have others) and relived and came to terms with every traumatic event of my life and triggers still multiply to things that have no meaning whatsoever. People who have never experienced trauma also have the exact same reactions that I have so . . . we don't know. > > > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2011 Report Share Posted December 12, 2011 I will now give yet more information on auditory sensitivity, but with some trepidation knowing where Maikaefer is going to store it! One place you won't find it is in DSM-IV (2000). I cannot find any mention of audiosensitivity, misophonia or phonophobia. Hyperacusis is " Painful sensitivity to sounds " . Five words in 943 pages, and even these are worse than useless. Surely they mean to loud sounds. A schoolteacher with auditory hyperesthesia such that she can hear the slightest whisper in class is hardly likely to go and complain to a psychiatrist, but if she has audiosensitivity, pain/distress to LOUD sounds, she is likely to off like a shot to the psychiatrist (or otologist if it is obviously the ear at fault). I have now reread Wilde more carefully, and realise that he did indeed give what I regard as the correct explanation for audiosensitivity. In some cases of complete and long-standing impaction of very hard wax, as soon as we have removed it " the hearing becomes exalted to a degree which is painful to the patient to bear " . I would regard this as audiosensitivity. The wax had produced a large conductive hearing loss, so when removed loud sounds could then pass through to the drum and ossicles. But Wilde noted there was also a sensorineural deafness in these cases due he supposed to the stapes being rammed into the cochlea by the wax. This is highly likely to alter inner ear pressure. Since the AS occurred upon wax removal, the stapes was then likely to move outwards, reducing the cochlear pressure, which I regard as the usual or indeed only cause of AS. Another good reason for reading Wilde is that the sort of patient he mentioned is not seen nowadays. I agree with you that neuroscientists are over-focussed on the visual system. Only last week I had this out with a distinguished schizophrenia researcher reporting visual studies in a scanner, pointing out that in schizophrenia auditory processing deficits are much commoner than visual ones, and auditory halucinations much more important than visual ones. I have had this same sort of conversation over many years, to no effect. ********************************************************************** > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I have now checked 's " definitive " Psychiatric Dictionary, 2009. No entry for audiosensitivity, misophonia in 1051 pages. Hyperacusis is " Inordinate acuteness of the sense of hearing " , ie hearing quieter sounds than normal. Note that this contradicts the DSM definition below. Phonophobia is: Fear of sounds: fear of one's own voice (!?). It is an old word, used by neurologists for migraine, when they surely mean that noises become uncomfortably loud (audiosensitivity), rather than feared. I have now discussed this confusion with an eminent psychiatrist and DSM expert. He did not correct me when I said I could find nothing about sound sensitivity in the DSM text or index. I suggested that in the first instance it would be a good idea to include short definitions of the four (or more) loudness terms in the upcoming DSM-V glossary. He thought this feasible, but very bureaucratic. So that is the easy bit. The hard bit will be getting all the loudness researchers and interest groups to agree on clear, non-overlapping and non-contradictory definitons. Wilde said the audiosensitivity after wax removal was temporary. Any auditory abnormality in childhood setting off misophonia would surely have to be intrusive, intermittent, long-lasting and unpredictable. I would not consider any ear as audiologically normal that had a chronic wax problem. ********************************************************************* > > > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I have now checked 's " definitive " Psychiatric Dictionary, 2009. No entry for audiosensitivity, misophonia in 1051 pages. Hyperacusis is " Inordinate acuteness of the sense of hearing " , ie hearing quieter sounds than normal. Note that this contradicts the DSM definition below. Phonophobia is: Fear of sounds: fear of one's own voice (!?). It is an old word, used by neurologists for migraine, when they surely mean that noises become uncomfortably loud (audiosensitivity), rather than feared. I have now discussed this confusion with an eminent psychiatrist and DSM expert. He did not correct me when I said I could find nothing about sound sensitivity in the DSM text or index. I suggested that in the first instance it would be a good idea to include short definitions of the four (or more) loudness terms in the upcoming DSM-V glossary. He thought this feasible, but very bureaucratic. So that is the easy bit. The hard bit will be getting all the loudness researchers and interest groups to agree on clear, non-overlapping and non-contradictory definitons. Wilde said the audiosensitivity after wax removal was temporary. Any auditory abnormality in childhood setting off misophonia would surely have to be intrusive, intermittent, long-lasting and unpredictable. I would not consider any ear as audiologically normal that had a chronic wax problem. ********************************************************************* > > > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 I have now checked 's " definitive " Psychiatric Dictionary, 2009. No entry for audiosensitivity, misophonia in 1051 pages. Hyperacusis is " Inordinate acuteness of the sense of hearing " , ie hearing quieter sounds than normal. Note that this contradicts the DSM definition below. Phonophobia is: Fear of sounds: fear of one's own voice (!?). It is an old word, used by neurologists for migraine, when they surely mean that noises become uncomfortably loud (audiosensitivity), rather than feared. I have now discussed this confusion with an eminent psychiatrist and DSM expert. He did not correct me when I said I could find nothing about sound sensitivity in the DSM text or index. I suggested that in the first instance it would be a good idea to include short definitions of the four (or more) loudness terms in the upcoming DSM-V glossary. He thought this feasible, but very bureaucratic. So that is the easy bit. The hard bit will be getting all the loudness researchers and interest groups to agree on clear, non-overlapping and non-contradictory definitons. Wilde said the audiosensitivity after wax removal was temporary. Any auditory abnormality in childhood setting off misophonia would surely have to be intrusive, intermittent, long-lasting and unpredictable. I would not consider any ear as audiologically normal that had a chronic wax problem. ********************************************************************* > > > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 , have you discussed your ideas at forums for hyperacusis? There are people with misophonia to be found at those forums as well and some of the participants have the ear knowledge to engage in more intellectual discourse on these matters than can I: http://www.chat-hyperacusis.net/ If I have time at my next psychiatrist's appointment, I will try bringing up these questions about sound sensitivity terminology in the DSM, although I predict he will probably be more interested in talking about me. To: Soundsensitivity Sent: Tuesday, December 13, 2011 8:05 AM Subject: Re: Question for I have now checked 's "definitive" Psychiatric Dictionary, 2009. No entry for audiosensitivity, misophonia in 1051 pages. Hyperacusis is "Inordinate acuteness of the sense of hearing", ie hearing quieter sounds than normal. Note that this contradicts the DSM definition below. Phonophobia is: Fear of sounds: fear of one's own voice (!?). It is an old word, used by neurologists for migraine, when they surely mean that noises become uncomfortably loud (audiosensitivity), rather than feared. I have now discussed this confusion with an eminent psychiatrist and DSM expert. He did not correct me when I said I could find nothing about sound sensitivity in the DSM text or index. I suggested that in the first instance it would be a good idea to include short definitions of the four (or more) loudness terms in the upcoming DSM-V glossary. He thought this feasible, but very bureaucratic. So that is the easy bit. The hard bit will be getting all the loudness researchers and interest groups to agree on clear, non-overlapping and non-contradictory definitons. Wilde said the audiosensitivity after wax removal was temporary. Any auditory abnormality in childhood setting off misophonia would surely have to be intrusive, intermittent, long-lasting and unpredictable. I would not consider any ear as audiologically normal that had a chronic wax problem. ********************************************************************* > > > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 , have you discussed your ideas at forums for hyperacusis? There are people with misophonia to be found at those forums as well and some of the participants have the ear knowledge to engage in more intellectual discourse on these matters than can I: http://www.chat-hyperacusis.net/ If I have time at my next psychiatrist's appointment, I will try bringing up these questions about sound sensitivity terminology in the DSM, although I predict he will probably be more interested in talking about me. To: Soundsensitivity Sent: Tuesday, December 13, 2011 8:05 AM Subject: Re: Question for I have now checked 's "definitive" Psychiatric Dictionary, 2009. No entry for audiosensitivity, misophonia in 1051 pages. Hyperacusis is "Inordinate acuteness of the sense of hearing", ie hearing quieter sounds than normal. Note that this contradicts the DSM definition below. Phonophobia is: Fear of sounds: fear of one's own voice (!?). It is an old word, used by neurologists for migraine, when they surely mean that noises become uncomfortably loud (audiosensitivity), rather than feared. I have now discussed this confusion with an eminent psychiatrist and DSM expert. He did not correct me when I said I could find nothing about sound sensitivity in the DSM text or index. I suggested that in the first instance it would be a good idea to include short definitions of the four (or more) loudness terms in the upcoming DSM-V glossary. He thought this feasible, but very bureaucratic. So that is the easy bit. The hard bit will be getting all the loudness researchers and interest groups to agree on clear, non-overlapping and non-contradictory definitons. Wilde said the audiosensitivity after wax removal was temporary. Any auditory abnormality in childhood setting off misophonia would surely have to be intrusive, intermittent, long-lasting and unpredictable. I would not consider any ear as audiologically normal that had a chronic wax problem. ********************************************************************* > > > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 , have you discussed your ideas at forums for hyperacusis? There are people with misophonia to be found at those forums as well and some of the participants have the ear knowledge to engage in more intellectual discourse on these matters than can I: http://www.chat-hyperacusis.net/ If I have time at my next psychiatrist's appointment, I will try bringing up these questions about sound sensitivity terminology in the DSM, although I predict he will probably be more interested in talking about me. To: Soundsensitivity Sent: Tuesday, December 13, 2011 8:05 AM Subject: Re: Question for I have now checked 's "definitive" Psychiatric Dictionary, 2009. No entry for audiosensitivity, misophonia in 1051 pages. Hyperacusis is "Inordinate acuteness of the sense of hearing", ie hearing quieter sounds than normal. Note that this contradicts the DSM definition below. Phonophobia is: Fear of sounds: fear of one's own voice (!?). It is an old word, used by neurologists for migraine, when they surely mean that noises become uncomfortably loud (audiosensitivity), rather than feared. I have now discussed this confusion with an eminent psychiatrist and DSM expert. He did not correct me when I said I could find nothing about sound sensitivity in the DSM text or index. I suggested that in the first instance it would be a good idea to include short definitions of the four (or more) loudness terms in the upcoming DSM-V glossary. He thought this feasible, but very bureaucratic. So that is the easy bit. The hard bit will be getting all the loudness researchers and interest groups to agree on clear, non-overlapping and non-contradictory definitons. Wilde said the audiosensitivity after wax removal was temporary. Any auditory abnormality in childhood setting off misophonia would surely have to be intrusive, intermittent, long-lasting and unpredictable. I would not consider any ear as audiologically normal that had a chronic wax problem. ********************************************************************* > > > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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