Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 Thank you Adah, I am glad you commented on this very important aspect of Misophonia, I have spend years and tens of thousands of dollars on very intense therapies addressing past trauma, going back to the birth trauma. I have spent many years in Primal Therapy, Dianetics, and more. They were very helpful to me in many ways, but the miso problem still exists. I deal with my reactions better I think, but it has not gotten rid of the problem. I still think it may have something to do with some sort of trauma, and that if addressed in the proper way, could be a key to reducing or eliminating the symptoms. I believe that the mind, body and spirit work together, and that this can not be isolated as merely a auditory problem. Thanks for your always insightful comments. Mike To: Soundsensitivity Sent: Monday, December 12, 2011 10:49 AMSubject: Re: Question for I'm sorry. I wasn't clear. For most of us, the emotional component of misophonia IS the reaction to triggers. The rage and panic are the reflex/response to trigger sounds which have become trigger sounds due to exposure to those sounds being repeated over and over again. The emotional CAUSE of misophonia is something the psych community has been pushing for decades and many of us are continuuing to be improperly diagnosed with PTSD. They think we have the rage/panic response as a result of emotional damage somehow relating to the sounds themselves. I am not saying that this is never the case. I'm sure it could be. But I went through 20 years of psychotherapy (as have others) and relived and came to terms with every traumatic event of my life and triggers still multiply to things that have no meaning whatsoever. People who have never experienced trauma also have the exact same reactions that I have so . . . we don't know.> > > > > > > >> > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 If I have have time at my next psychiatrist's appointment, I will try bringing up these questions about sound sensitivity terminology in the DSM, although I predict he will probably be more interested in talking about me. To: Soundsensitivity Sent: Tuesday, December 13, 2011 8:05 AM Subject: Re: Question for I have now checked 's "definitive" Psychiatric Dictionary, 2009. No entry for audiosensitivity, misophonia in 1051 pages. Hyperacusis is "Inordinate acuteness of the sense of hearing", ie hearing quieter sounds than normal. Note that this contradicts the DSM definition below. Phonophobia is: Fear of sounds: fear of one's own voice (!?). It is an old word, used by neurologists for migraine, when they surely mean that noises become uncomfortably loud (audiosensitivity), rather than feared. I have now discussed this confusion with an eminent psychiatrist and DSM expert. He did not correct me when I said I could find nothing about sound sensitivity in the DSM text or index. I suggested that in the first instance it would be a good idea to include short definitions of the four (or more) loudness terms in the upcoming DSM-V glossary. He thought this feasible, but very bureaucratic. So that is the easy bit. The hard bit will be getting all the loudness researchers and interest groups to agree on clear, non-overlapping and non-contradictory definitons. Wilde said the audiosensitivity after wax removal was temporary. Any auditory abnormality in childhood setting off misophonia would surely have to be intrusive, intermittent, long-lasting and unpredictable. I would not consider any ear as audiologically normal that had a chronic wax problem. ********************************************************************* > > > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 If I have have time at my next psychiatrist's appointment, I will try bringing up these questions about sound sensitivity terminology in the DSM, although I predict he will probably be more interested in talking about me. To: Soundsensitivity Sent: Tuesday, December 13, 2011 8:05 AM Subject: Re: Question for I have now checked 's "definitive" Psychiatric Dictionary, 2009. No entry for audiosensitivity, misophonia in 1051 pages. Hyperacusis is "Inordinate acuteness of the sense of hearing", ie hearing quieter sounds than normal. Note that this contradicts the DSM definition below. Phonophobia is: Fear of sounds: fear of one's own voice (!?). It is an old word, used by neurologists for migraine, when they surely mean that noises become uncomfortably loud (audiosensitivity), rather than feared. I have now discussed this confusion with an eminent psychiatrist and DSM expert. He did not correct me when I said I could find nothing about sound sensitivity in the DSM text or index. I suggested that in the first instance it would be a good idea to include short definitions of the four (or more) loudness terms in the upcoming DSM-V glossary. He thought this feasible, but very bureaucratic. So that is the easy bit. The hard bit will be getting all the loudness researchers and interest groups to agree on clear, non-overlapping and non-contradictory definitons. Wilde said the audiosensitivity after wax removal was temporary. Any auditory abnormality in childhood setting off misophonia would surely have to be intrusive, intermittent, long-lasting and unpredictable. I would not consider any ear as audiologically normal that had a chronic wax problem. ********************************************************************* > > > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2011 Report Share Posted December 13, 2011 If I have have time at my next psychiatrist's appointment, I will try bringing up these questions about sound sensitivity terminology in the DSM, although I predict he will probably be more interested in talking about me. To: Soundsensitivity Sent: Tuesday, December 13, 2011 8:05 AM Subject: Re: Question for I have now checked 's "definitive" Psychiatric Dictionary, 2009. No entry for audiosensitivity, misophonia in 1051 pages. Hyperacusis is "Inordinate acuteness of the sense of hearing", ie hearing quieter sounds than normal. Note that this contradicts the DSM definition below. Phonophobia is: Fear of sounds: fear of one's own voice (!?). It is an old word, used by neurologists for migraine, when they surely mean that noises become uncomfortably loud (audiosensitivity), rather than feared. I have now discussed this confusion with an eminent psychiatrist and DSM expert. He did not correct me when I said I could find nothing about sound sensitivity in the DSM text or index. I suggested that in the first instance it would be a good idea to include short definitions of the four (or more) loudness terms in the upcoming DSM-V glossary. He thought this feasible, but very bureaucratic. So that is the easy bit. The hard bit will be getting all the loudness researchers and interest groups to agree on clear, non-overlapping and non-contradictory definitons. Wilde said the audiosensitivity after wax removal was temporary. Any auditory abnormality in childhood setting off misophonia would surely have to be intrusive, intermittent, long-lasting and unpredictable. I would not consider any ear as audiologically normal that had a chronic wax problem. ********************************************************************* > > > > > > > > > > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2011 Report Share Posted December 15, 2011 schizophrenia? Really? I don't see the correlation at all.Sent from my iPhone I totally agree. I'm beginning to think that it may have something to do, perhaps a distant cousin of schizophrenia-I believe that two of my cousins on my father's side have it and I believe my father has misophonia. Whereas hay fever, asthma and eczema are inter-related and inherited from your parent/s, this may be inter-related and inherited from (something?).To: "Soundsensitivity " <Soundsensitivity >Sent: Sun, December 11, 2011 11:00:01 AMSubject: Re: Re: Question for , I’m sure your intentions are to help us solve the mystery of 4S and it is apparent you are an educated individual but after reading your posts I’m not sure you understand 4S at all. Please understand, WE DON’T have a hearing problem. Most of what you write I understand from my 10 years in the hearing business but I have NO IDEA what it has to do with 4S. To: Soundsensitivity Sent: Sunday, December 11, 2011 12:12 PMSubject: Re: Question for I have no idea what I have written that contradicts Adah's post below. I have published in the medical literature many examples of reflex responses; eg Young children will not do (voluntary) pure tone audiometry until they show an Orienting Reflex to sound (Sokolov); phonophobia is a conditioned fear reflex to unduly loud sound; all audiosensitive persons have abnormal stapedial muscle reflexes; musical hallucinations are a very low level reflex response to confusing tinnitus; jangling keys near certain hearing-impaired rodent strains induce reflex epileptic convulsions; total temporary blindness after minor head injury can be due to disrupted vestibular reflexes; knockouts, as in boxers, are nothing to do with the brain, but due to overstimulated inner ears, and blocked vestibulo-spinal reflexes; startle reflex; disordered vestibulo-spatial reflexes, leading to conditioned fear and anxiety (agoraphobia); etc.If misophonis has nothing to do with past or present ear disorders, then the incidence of these should be the same or lower than for the population in general. Is is perfectly clear that even on this highly selective site they are in fact far commoner. Before we get neuroscientists involved, we need to sort out this vital clue.********************************************************************* > > > > > > > >> > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2011 Report Share Posted December 15, 2011 Don't see that one either. Sent from my iPhone Or a distant cousin of autism??? To: Soundsensitivity Sent: Sun, December 11, 2011 1:38:04 PMSubject: Re: Re: Question for I totally agree. I'm beginning to think that it may have something to do, perhaps a distant cousin of schizophrenia-I believe that two of my cousins on my father's side have it and I believe my father has misophonia. Whereas hay fever, asthma and eczema are inter-related and inherited from your parent/s, this may be inter-related and inherited from (something?). To: "Soundsensitivity " <Soundsensitivity >Sent: Sun, December 11, 2011 11:00:01 AMSubject: Re: Re: Question for , I’m sure your intentions are to help us solve the mystery of 4S and it is apparent you are an educated individual but after reading your posts I’m not sure you understand 4S at all. Please understand, WE DON’T have a hearing problem. Most of what you write I understand from my 10 years in the hearing business but I have NO IDEA what it has to do with 4S. To: Soundsensitivity Sent: Sunday, December 11, 2011 12:12 PMSubject: Re: Question for I have no idea what I have written that contradicts Adah's post below. I have published in the medical literature many examples of reflex responses; eg Young children will not do (voluntary) pure tone audiometry until they show an Orienting Reflex to sound (Sokolov); phonophobia is a conditioned fear reflex to unduly loud sound; all audiosensitive persons have abnormal stapedial muscle reflexes; musical hallucinations are a very low level reflex response to confusing tinnitus; jangling keys near certain hearing-impaired rodent strains induce reflex epileptic convulsions; total temporary blindness after minor head injury can be due to disrupted vestibular reflexes; knockouts, as in boxers, are nothing to do with the brain, but due to overstimulated inner ears, and blocked vestibulo-spinal reflexes; startle reflex; disordered vestibulo-spatial reflexes, leading to conditioned fear and anxiety (agoraphobia); etc.If misophonis has nothing to do with past or present ear disorders, then the incidence of these should be the same or lower than for the population in general. Is is perfectly clear that even on this highly selective site they are in fact far commoner. Before we get neuroscientists involved, we need to sort out this vital clue.********************************************************************* > > > > > > > >> > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2011 Report Share Posted December 17, 2011 It functions in the same brain areas that misophonia works from. To: "Soundsensitivity " <Soundsensitivity > Sent: Thursday, December 15, 2011 5:44 PM Subject: Re: Re: Question for schizophrenia? Really? I don't see the correlation at all.Sent from my iPhone I totally agree. I'm beginning to think that it may have something to do, perhaps a distant cousin of schizophrenia-I believe that two of my cousins on my father's side have it and I believe my father has misophonia. Whereas hay fever, asthma and eczema are inter-related and inherited from your parent/s, this may be inter-related and inherited from (something?).To: "Soundsensitivity " <Soundsensitivity >Sent: Sun, December 11, 2011 11:00:01 AMSubject: Re: Re: Question for , I’m sure your intentions are to help us solve the mystery of 4S and it is apparent you are an educated individual but after reading your posts I’m not sure you understand 4S at all. Please understand, WE DON’T have a hearing problem. Most of what you write I understand from my 10 years in the hearing business but I have NO IDEA what it has to do with 4S. To: Soundsensitivity Sent: Sunday, December 11, 2011 12:12 PMSubject: Re: Question for I have no idea what I have written that contradicts Adah's post below. I have published in the medical literature many examples of reflex responses; eg Young children will not do (voluntary) pure tone audiometry until they show an Orienting Reflex to sound (Sokolov); phonophobia is a conditioned fear reflex to unduly loud sound; all audiosensitive persons have abnormal stapedial muscle reflexes; musical hallucinations are a very low level reflex response to confusing tinnitus; jangling keys near certain hearing-impaired rodent strains induce reflex epileptic convulsions; total temporary blindness after minor head injury can be due to disrupted vestibular reflexes; knockouts, as in boxers, are nothing to do with the brain, but due to overstimulated inner ears, and blocked vestibulo-spinal reflexes; startle reflex; disordered vestibulo-spatial reflexes, leading to conditioned fear and anxiety (agoraphobia); etc.If misophonis has nothing to do with past or present ear disorders, then the incidence of these should be the same or lower than for the population in general. Is is perfectly clear that even on this highly selective site they are in fact far commoner. Before we get neuroscientists involved, we need to sort out this vital clue.********************************************************************* > > > > > > > >> > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2011 Report Share Posted December 17, 2011 It functions in the same brain areas that misophonia works from. To: "Soundsensitivity " <Soundsensitivity > Sent: Thursday, December 15, 2011 5:44 PM Subject: Re: Re: Question for schizophrenia? Really? I don't see the correlation at all.Sent from my iPhone I totally agree. I'm beginning to think that it may have something to do, perhaps a distant cousin of schizophrenia-I believe that two of my cousins on my father's side have it and I believe my father has misophonia. Whereas hay fever, asthma and eczema are inter-related and inherited from your parent/s, this may be inter-related and inherited from (something?).To: "Soundsensitivity " <Soundsensitivity >Sent: Sun, December 11, 2011 11:00:01 AMSubject: Re: Re: Question for , I’m sure your intentions are to help us solve the mystery of 4S and it is apparent you are an educated individual but after reading your posts I’m not sure you understand 4S at all. Please understand, WE DON’T have a hearing problem. Most of what you write I understand from my 10 years in the hearing business but I have NO IDEA what it has to do with 4S. To: Soundsensitivity Sent: Sunday, December 11, 2011 12:12 PMSubject: Re: Question for I have no idea what I have written that contradicts Adah's post below. I have published in the medical literature many examples of reflex responses; eg Young children will not do (voluntary) pure tone audiometry until they show an Orienting Reflex to sound (Sokolov); phonophobia is a conditioned fear reflex to unduly loud sound; all audiosensitive persons have abnormal stapedial muscle reflexes; musical hallucinations are a very low level reflex response to confusing tinnitus; jangling keys near certain hearing-impaired rodent strains induce reflex epileptic convulsions; total temporary blindness after minor head injury can be due to disrupted vestibular reflexes; knockouts, as in boxers, are nothing to do with the brain, but due to overstimulated inner ears, and blocked vestibulo-spinal reflexes; startle reflex; disordered vestibulo-spatial reflexes, leading to conditioned fear and anxiety (agoraphobia); etc.If misophonis has nothing to do with past or present ear disorders, then the incidence of these should be the same or lower than for the population in general. Is is perfectly clear that even on this highly selective site they are in fact far commoner. Before we get neuroscientists involved, we need to sort out this vital clue.********************************************************************* > > > > > > > >> > > > > > > > I am very concerned about how upset my 11 year old daughter is > > > > >getting...more so each day, it seems...with her sensitivity to sounds. It pains > > > > >me to see her cry, wondering why she has to feel this way. I can only offer > > > > >suggestions, but because it's so new to her, and she's so young, I know, to her, > > > > >it seems hopeless right now. Can any of you offer me advice about where to start > > > > >with getting her help outside of our home? Do we talk to her regular doctor > > > > >initially? I'm just not sure where to begin Thank you all.> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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