Guest guest Posted December 7, 2011 Report Share Posted December 7, 2011 I think it would help if you gave more information, as knowing the cause is the first step to knowing which specialist to see and to effective treatment. So, assuming this sound sensitivity has started recently, have you any idea what triggered this? Or why is is getting worse? I have strong evidence that audiosensitivity is due to cochlear hypersensitivity, and think this can later with psychological overlay develop into misophonia. So, is there any evidence at all for any ear problem or any symptom of Meniere Spectrum Disorder or any medical problem likely to lead to low inner ear pressure at the start of your daughter's problem? ********************************************************************** > > I am very concerned about how upset my 11 year old daughter is getting...more so each day, it seems...with her sensitivity to sounds. It pains me to see her cry, wondering why she has to feel this way. I can only offer suggestions, but because it's so new to her, and she's so young, I know, to her, it seems hopeless right now. Can any of you offer me advice about where to start with getting her help outside of our home? Do we talk to her regular doctor initially? I'm just not sure where to begin Thank you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2011 Report Share Posted December 7, 2011 If you can find a doctor that is familiar with mesophonia that will help, just so there are sympathic ears out there that can give her some kind of support along with your support. I was just e-mailing with another group person about "stress handlers" trying to share information, one thing is if maybe you can go for a walk. Get her outside. Does she like music. I find that ipods help a lot. Ear plugs are helpful, but they really stress not to use the ear plugs too much because it can make the condition worse. Very sparingly. To: Soundsensitivity Sent: Mon, December 5, 2011 10:31:57 AMSubject: Where to start? I am very concerned about how upset my 11 year old daughter is getting...more so each day, it seems...with her sensitivity to sounds. It pains me to see her cry, wondering why she has to feel this way. I can only offer suggestions, but because it's so new to her, and she's so young, I know, to her, it seems hopeless right now. Can any of you offer me advice about where to start with getting her help outside of our home? Do we talk to her regular doctor initially? I'm just not sure where to begin Thank you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2011 Report Share Posted December 7, 2011 With my daughter now 20, it has been a journey. Now we leave a situation when it reaches a point that she cannot tolerate without acting out, she wears an IPod with noise cancelling headphones at all times in public. She takes an anxiety medication (Zoloft), a mood stabilzer (Trileptal), a calming med (Clonidine), B6, Magnesium, and fish oil. She has her own TV/craft room upstairs in our house.She uses the headphones for hard of hearing at the movies and we still have to leave about 50% of the time. When traveling, we always try to stay in a suite because they are bigger and I can sleep farther away from her. When we are eating at family's house, she often will go upstairs to eat in another room. When going to the doc or dentist, we like to go to offices in a strip center where she can wait in the car out front where I can see her. When at restaurants, she wears her IPod w/headphones and we ask for a more isolated table....and we still have to get up and leave sometimes otherwise she can esculate to aggression.School = very challenging.Subject: Re: Where to start?To: Soundsensitivity Date: Wednesday, December 7, 2011, 3:39 PM If you can find a doctor that is familiar with mesophonia that will help, just so there are sympathic ears out there that can give her some kind of support along with your support. I was just e-mailing with another group person about "stress handlers" trying to share information, one thing is if maybe you can go for a walk. Get her outside. Does she like music. I find that ipods help a lot. Ear plugs are helpful, but they really stress not to use the ear plugs too much because it can make the condition worse. Very sparingly. To: Soundsensitivity Sent: Mon, December 5, 2011 10:31:57 AMSubject: Where to start? I am very concerned about how upset my 11 year old daughter is getting...more so each day, it seems...with her sensitivity to sounds. It pains me to see her cry, wondering why she has to feel this way. I can only offer suggestions, but because it's so new to her, and she's so young, I know, to her, it seems hopeless right now. Can any of you offer me advice about where to start with getting her help outside of our home? Do we talk to her regular doctor initially? I'm just not sure where to begin Thank you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2011 Report Share Posted December 7, 2011 I think part of our problem might be not having control of our environment, of the sounds that might set us off. To: Soundsensitivity Sent: Wed, December 7, 2011 5:45:51 PMSubject: Re: Where to start? With my daughter now 20, it has been a journey. Now we leave a situation when it reaches a point that she cannot tolerate without acting out, she wears an IPod with noise cancelling headphones at all times in public. She takes an anxiety medication (Zoloft), a mood stabilzer (Trileptal), a calming med (Clonidine), B6, Magnesium, and fish oil. She has her own TV/craft room upstairs in our house. She uses the headphones for hard of hearing at the movies and we still have to leave about 50% of the time. When traveling, we always try to stay in a suite because they are bigger and I can sleep farther away from her. When we are eating at family's house, she often will go upstairs to eat in another room. When going to the doc or dentist, we like to go to offices in a strip center where she can wait in the car out front where I can see her. When at restaurants, she wears her IPod w/headphones and we ask for a more isolated table....and we still have to get up and leave sometimes otherwise she can esculate to aggression. School = very challenging. Subject: Re: Where to start?To: Soundsensitivity Date: Wednesday, December 7, 2011, 3:39 PM If you can find a doctor that is familiar with mesophonia that will help, just so there are sympathic ears out there that can give her some kind of support along with your support. I was just e-mailing with another group person about "stress handlers" trying to share information, one thing is if maybe you can go for a walk. Get her outside. Does she like music. I find that ipods help a lot. Ear plugs are helpful, but they really stress not to use the ear plugs too much because it can make the condition worse. Very sparingly. To: Soundsensitivity Sent: Mon, December 5, 2011 10:31:57 AMSubject: Where to start? I am very concerned about how upset my 11 year old daughter is getting...more so each day, it seems...with her sensitivity to sounds. It pains me to see her cry, wondering why she has to feel this way. I can only offer suggestions, but because it's so new to her, and she's so young, I know, to her, it seems hopeless right now. Can any of you offer me advice about where to start with getting her help outside of our home? Do we talk to her regular doctor initially? I'm just not sure where to begin Thank you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 Thank you, . As far as what triggered this in my daughter, I have no idea. I can only assume it's hereditary (unfortunately), as I have the same problem. I can't even say why it's getting worse. Maybe it's because I've talked to her about it, and since she knows and understands that it's not her fault, she's feeling like the rest of the family should instantly be able to change all of our normal, day to day habits. (she is a pre teen girl, after all!) It's a learning process for all of us, but having definite answers to your questions, I'm sorry, I do not. The only ear issues she has ever had were when she was a toddler and had to have tubes in her ears due to chronic infections. No issues have presented themselves since then. She is scheduled for a hearing test next week, so this is our starting point with getting doctors involved. Thanks again, for your questions. I wish I had more answers for you. Hopefully we'll get some soon > > > > I am very concerned about how upset my 11 year old daughter is getting...more so each day, it seems...with her sensitivity to sounds. It pains me to see her cry, wondering why she has to feel this way. I can only offer suggestions, but because it's so new to her, and she's so young, I know, to her, it seems hopeless right now. Can any of you offer me advice about where to start with getting her help outside of our home? Do we talk to her regular doctor initially? I'm just not sure where to begin Thank you all. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 , that does sound like quite a challenge. We have not experienced having to leave public places. I've read that many of you are dealing with this. The movie theater appears to be a common issue. My daughter's complaints, right now, are most associated with her dad and her younger sister. I don't know if it's because of how I handle the situation when she might ask me to throw out my gum, or not clink my spoon in my bowl...I don't get as frustrated with her as they do. But they're getting better I must say. It's definitely not an easy adaptation for anyone in our home. She is getting new headphones for Christmas, however We'll travel this path the best we can! Thank you all. > > > > > >Subject: Re: Where to start? > >To: Soundsensitivity > >Date: Wednesday, December 7, 2011, 3:39 PM > > > > > > > >If you can find a doctor that is familiar with mesophonia that will help, just > >so there are sympathic ears out there that can give her some kind of support > >along with your support. > > > > > >I was just e-mailing with another group person about " stress handlers " trying to > >share information, one thing is if maybe you can go for a walk. Get her > >outside. Does she like music. I find that ipods help a lot. Ear plugs are > >helpful, but they really stress not to use the ear plugs too much because it can > >make the condition worse. Very sparingly. > > > > > > > > > ________________________________ > > >To: Soundsensitivity > >Sent: Mon, December 5, 2011 10:31:57 AM > >Subject: Where to start? > > > > > >I am very concerned about how upset my 11 year old daughter is getting...more so > >each day, it seems...with her sensitivity to sounds. It pains me to see her cry, > >wondering why she has to feel this way. I can only offer suggestions, but > >because it's so new to her, and she's so young, I know, to her, it seems > >hopeless right now. Can any of you offer me advice about where to start with > >getting her help outside of our home? Do we talk to her regular doctor > >initially? I'm just not sure where to begin Thank you all. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 Thank you very much for the extra information, which I think confirms an otological cause. Grommets in the eardrum allow air to enter the middle ear, so that no more fluid collects in there. Sometimes these can over-aerate the ME, so that the mucous membrane dries out and dehydrates, predisposing to low inner ear pressure and a hyperactive cochlea. Otologists may disagree with this proposed mechanism, but certainly some children become audiosensitive after grommet insertion. Although I have not seen this myself, it is now reported that a late consequence in young women is Patulous Eustachian Tube (see Wikipedia), again probably a long-term result of dehydration. I sugest you specifically ask the doctor to check for PET. One sign is chalk patches on the eardrum (tympanosclerosis), due I also suspect to over-aeration of the eardrum. There should be enough info on the web for you two to work out if your daughter has PET. If so, be prepared, in fact well-prepared, as many doctors will be dismissive. ********************************************************************** > > > > > > I am very concerned about how upset my 11 year old daughter is getting...more so each day, it seems...with her sensitivity to sounds. It pains me to see her cry, wondering why she has to feel this way. I can only offer suggestions, but because it's so new to her, and she's so young, I know, to her, it seems hopeless right now. Can any of you offer me advice about where to start with getting her help outside of our home? Do we talk to her regular doctor initially? I'm just not sure where to begin Thank you all. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2011 Report Share Posted December 8, 2011 i have to disagree about problems with the ear/hearing etc. causing misophonia. most misophonia sufferers have excellent hearing; misophonia is a sound processing disorder. it resides in the higher brain structures where sound is processed. most believe it to be faulty neuronal connections/hard wired. someone with misophonia doesnt need to waste their time and money going to an ear doctor. they will,however, need to see a good psych doctor to unwind all the secondary mental health issues that the condition causes (ie. chronic stress,anxiety disorder and major depression). > > > > > > > > I am very concerned about how upset my 11 year old daughter is getting...more so each day, it seems...with her sensitivity to sounds. It pains me to see her cry, wondering why she has to feel this way. I can only offer suggestions, but because it's so new to her, and she's so young, I know, to her, it seems hopeless right now. Can any of you offer me advice about where to start with getting her help outside of our home? Do we talk to her regular doctor initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2011 Report Share Posted December 9, 2011 You are very sweet, Kaci! Thank you so much for your kind words and support! > > I understand that pain and frustration and confusing well, but I will tell you one thing...this group and others like it, in itself is a HUGE relief. Growing up, most of us had absolutely NO IDEA that there were other's out there struggling with these same issues, and a major part of the pain was feeling like a crazy person, and having others convince us that this was our fault or feeling like we should be able to 'ignore' or 'let it go'....so the fact that she has groups like this to share her experiences, vent, seek methods of coping, and also that she has an understanding parent like you trying to help her rather than blame her....is amazing. My best advice would be to fight for her rights with teachers, etc to see if they will ban gum chewing, food, etc in class to help her out tremendously. The feeling of not being able to pay attention to anything in class except for the 'offender' is so frustrating and overwhelming, I can imagine many with > misophonia end up dropping out without support from wonderful parents like you. At least she has the advantage of knowing it is a condition, and not her fault, and that if she needs to get up and walk out, she should be able to, and feel good about making a good decision in doing that for herself, rather than have to sit there and suffer, the way many of us did countless times through our lives. hugs <3 > >  > Kaci Anne McCall >  > Professional FACE PAINTING, personalized crafts, and more! Please visit: > http://www.MysticalRainbowCreations.com >  > " What a privilege to be here on the planet to contribute your unique donation to humankind. > Each face in the rainbow of colors that populate our world is precious and special. " ~ Dees > > > > ________________________________ > > To: Soundsensitivity > Sent: Monday, December 5, 2011 11:31 AM > Subject: Where to start? > > >  > I am very concerned about how upset my 11 year old daughter is getting...more so each day, it seems...with her sensitivity to sounds. It pains me to see her cry, wondering why she has to feel this way. I can only offer suggestions, but because it's so new to her, and she's so young, I know, to her, it seems hopeless right now. Can any of you offer me advice about where to start with getting her help outside of our home? Do we talk to her regular doctor initially? I'm just not sure where to begin Thank you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2011 Report Share Posted December 10, 2011 I am an audiologist and psychologist. You can find out more about me in Who's Who in America 2010, and very soon I hope to have my publication list up on Open Access on Google Scholar. I am not medical, but inevitably have to stray into medical territory, so it would be very helpful to have a medic on this site to challenge me if I am wrong. In general, I accept the vast majority of facts on ear disease as written up in medical journals, but my interpretation of them will often be quite different to those of otologists or ENTs. As part of my extensive background reading to ensure I am well-informed, I have just been reading Wilde's textbook (Aural Surgery, 1853). In relation to the previous difference of opinion between C and myself about otoslerosis, I now find Wilde confirms my account, ie OS may start and be worse in one ear, but is a bilateral condition. Like everyone else, he was puzzled as to why it often got worse with childbirth. He also confirms that there is often an intial stage of audiosensitivity with ear disease. ******************************************************************** > > > > > > > > I am very concerned about how upset my 11 year old daughter is getting...more so each day, it seems...with her sensitivity to sounds. It pains me to see her cry, wondering why she has to feel this way. I can only offer suggestions, but because it's so new to her, and she's so young, I know, to her, it seems hopeless right now. Can any of you offer me advice about where to start with getting her help outside of our home? Do we talk to her regular doctor initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2011 Report Share Posted December 10, 2011 I am an audiologist and psychologist. You can find out more about me in Who's Who in America 2010, and very soon I hope to have my publication list up on Open Access on Google Scholar. I am not medical, but inevitably have to stray into medical territory, so it would be very helpful to have a medic on this site to challenge me if I am wrong. In general, I accept the vast majority of facts on ear disease as written up in medical journals, but my interpretation of them will often be quite different to those of otologists or ENTs. As part of my extensive background reading to ensure I am well-informed, I have just been reading Wilde's textbook (Aural Surgery, 1853). In relation to the previous difference of opinion between C and myself about otoslerosis, I now find Wilde confirms my account, ie OS may start and be worse in one ear, but is a bilateral condition. Like everyone else, he was puzzled as to why it often got worse with childbirth. He also confirms that there is often an intial stage of audiosensitivity with ear disease. ******************************************************************** > > > > > > > > I am very concerned about how upset my 11 year old daughter is getting...more so each day, it seems...with her sensitivity to sounds. It pains me to see her cry, wondering why she has to feel this way. I can only offer suggestions, but because it's so new to her, and she's so young, I know, to her, it seems hopeless right now. Can any of you offer me advice about where to start with getting her help outside of our home? Do we talk to her regular doctor initially? I'm just not sure where to begin Thank you all. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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