Re: [CRPS]rsd Heat and headaches

[Guest guest]

Hi All!

I guess it's my turn to offer my thoughts on heat and humidity. Especially

since we've been having record heat here.

I've found that it's very difficult to adapt to temperature changes. I'm

always either hot or cold, though I found that I do not tolerate extremes of

either well. If someone could keep the inside and outside temps at about

81.679808 degrees, that would be great.

I've experienced mild heat stroke, and the symptoms you've explained fall

into that category. We lose potassium and electrolytes, which is why

Gatorade helps Debbie. The headaches, nausea, etc. are an indicator of this.

Although ice is usually a no no for RSDers, a cool cloth can do wonders. A

warm/cool shower will also help lower the body temp, and water and fluids are

necessary!

I have to suppose the reactions to temperatures and changes have to do with

the RSD, or with Reynauds perhaps. I know I wasn't this sensitive before RSD.

Hope this helps.

With hugs and pleasant thoughts!

Jo

CRPS/RSD

onelist. com

[Guest guest]

Hi All!

I guess it's my turn to offer my thoughts on heat and humidity. Especially

since we've been having record heat here.

I've found that it's very difficult to adapt to temperature changes. I'm

always either hot or cold, though I found that I do not tolerate extremes of

either well. If someone could keep the inside and outside temps at about

81.679808 degrees, that would be great.

I've experienced mild heat stroke, and the symptoms you've explained fall

into that category. We lose potassium and electrolytes, which is why

Gatorade helps Debbie. The headaches, nausea, etc. are an indicator of this.

Although ice is usually a no no for RSDers, a cool cloth can do wonders. A

warm/cool shower will also help lower the body temp, and water and fluids are

necessary!

I have to suppose the reactions to temperatures and changes have to do with

the RSD, or with Reynauds perhaps. I know I wasn't this sensitive before RSD.

Hope this helps.

With hugs and pleasant thoughts!

Jo

CRPS/RSD

onelist. com

[Guest guest]

DJ/Debbie,

I am doing better today. We've got lots of dark clouds, thunder and rain

with cooler temps! The cool breeze feels so good. I found I did much

better when the temps were in the 60s to low 70s. I was even able to sit

out in the sun for awhile. I pray we don't have a too hot/humid summer. I

really don't want to be stuck in this house like I was all winter! I'll

become a hermit!! Yuck!!

Hugs, Tracey

> [Original Message]

>

> To:

> Date: 5/10/00 9:17:22 AM

> Subject: rsd Heat and headaches

>

> Hi Tracey,

>

> How are you holding up? I hope the A/C is helping. I, too, started to

> get severe headaches with high temps about 3 years ago. I used to love

> it when it was over 85 as I always felt better then. One day my son and

> I were at the beach with a friend and about 20 minutes after we got there

> I got this terrible headache. I thought it was maybe a migraine but it

> was a little different than that. We had to leave and it took 1/2 an

> hour to get home. I had the A/C blowing full blast in my face but by the

> time we got home I had to run to the bathroom. Tossed everything and

> then I put my head under the tub faucet with just cold water running.

> This help some so I went and got the ice pack from the freezer and

> crashed on the sofa. I felt horrible for the rest of the day. My friend

> was beside himself and didn't know what to do for me so I asked him to

> leave as I just needed to sleep. Well, he took my son fishing and gave

> me the time I needed to get back to " normal " . Now I have found that if I

> drink Gatorade or something similar right before and while I am out in

> the heat I don't get the headaches and associated symptoms. I have to

> pay close attention to how I feel so as not to overdo it but I have

> learned to cope and can now go to the beach and ride in the hot weather

> without feeling so terrible. I hope some of this will help you in

> dealing with your problems. Take care and stay cool,

> DJ/Debbie

>

> ________________________________________________________________

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[Guest guest]

DJ/Debbie,

I am doing better today. We've got lots of dark clouds, thunder and rain

with cooler temps! The cool breeze feels so good. I found I did much

better when the temps were in the 60s to low 70s. I was even able to sit

out in the sun for awhile. I pray we don't have a too hot/humid summer. I

really don't want to be stuck in this house like I was all winter! I'll

become a hermit!! Yuck!!

Hugs, Tracey

> [Original Message]

>

> To:

> Date: 5/10/00 9:17:22 AM

> Subject: rsd Heat and headaches

>

> Hi Tracey,

>

> How are you holding up? I hope the A/C is helping. I, too, started to

> get severe headaches with high temps about 3 years ago. I used to love

> it when it was over 85 as I always felt better then. One day my son and

> I were at the beach with a friend and about 20 minutes after we got there

> I got this terrible headache. I thought it was maybe a migraine but it

> was a little different than that. We had to leave and it took 1/2 an

> hour to get home. I had the A/C blowing full blast in my face but by the

> time we got home I had to run to the bathroom. Tossed everything and

> then I put my head under the tub faucet with just cold water running.

> This help some so I went and got the ice pack from the freezer and

> crashed on the sofa. I felt horrible for the rest of the day. My friend

> was beside himself and didn't know what to do for me so I asked him to

> leave as I just needed to sleep. Well, he took my son fishing and gave

> me the time I needed to get back to " normal " . Now I have found that if I

> drink Gatorade or something similar right before and while I am out in

> the heat I don't get the headaches and associated symptoms. I have to

> pay close attention to how I feel so as not to overdo it but I have

> learned to cope and can now go to the beach and ride in the hot weather

> without feeling so terrible. I hope some of this will help you in

> dealing with your problems. Take care and stay cool,

> DJ/Debbie

>

> ________________________________________________________________

> YOU'RE PAYING TOO MUCH FOR THE INTERNET!

> Juno now offers FREE Internet Access!

> Try it today - there's no risk! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

>

> ------------------------------------------------------------------------

> Save 75% on Products!

> Find incredible deals on overstocked items with Free shipping!

> http://click./1/4013/0/_/706883/_/957964628/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Jo,

Taking the medicines that we do also doesn't help with the ability to

regulate body temperatures.

I used to be cold all the time before I got sick. Would wear long sleeves

indoor where there was air conditioning. Last summer I went out and bought

new clothes. All sleeveless.

Here in central Florida it gets into the 90's almost all summer with high

humidity of course. And at night it will only cool off into the low 80's.

I have no tolerance for the sun anymore. Of course a lot of the medicines

say stay out of direct sunlight but that is pretty much impossible during the

summer, actually all year long, when you have horses, and if you want to go

in the pool. I last maybe a half hour outside before I get dizzy and spots

in my vision. This limits me to when I can go outside. Usually before 10 am

and after 5 PM.

I wish there was some way to change this but I don't see how.

Felice

[Guest guest]

Jo,

Hi. you have reynauds right? this is my first summer with this problem.

the weather was ridiculously hot. my hands feet arms and legs were so swollen

and red. but I am thankful that the cold feeling left my body. although the

burning feeling in my feet and legs were so ferocius I threw my shoes off

expecting to see fire. Is this common? I have new insurnce and I have to see

a new doc and then he sends me someone in his group so I need all the info I

can get incase he says hey it's in your head.

thanks have a good day, kim

[Guest guest]

Hi Kim!

I had a Dr. mention that I had Reynauds, I'm sure that I do.

The burning you're experiencing is normal. I feel the same way, sometimes.

There are times I would kill to get home and take my clothes off because I

can't stand anything touching me any longer.

I have to wear a knee brace to keep my kneecap in place, and even that kills

sometimes.

I promise I'll write more as soon as I have a little more time.

We can all tell you what symptoms we have so you can share that with your Dr.

Hugs!

Jo

Listowner

CRPSegroups

[Guest guest]

jo,

thanks. I was diagnosed by one doc but now I have to start teh whole

process over again.

thanks for the help.

kim