Re: [CRPS]rsd Milestones!!!!!!!!

[Guest guest]

Hi PJ!

Ok, it was a little bit incoherent, but since I read that way anyway, made

perfect sense.

Yes, children of people with RSD are either a blessing or a burden depending

on what time of day. Of course, there are some days when you don't want to

move much less do for your children, but we all forge on anyway.

Your son will, as he ages, realize just how much you went through to do

things for him. My 20 year old just told me that last night. (She's always

getting tears out of me!). She realized that my doing the " normal " things

that parents do were extra special for her because she knew how much pain I

was in much of the time. I never made it a point to complain, ever, but kids

know these things.

Our youngest child is now 15, and even in the throes of pain, they grow up

quickly, so enjoy your son as much as you can considering. He'll understand

someday why you couldn't always be there, and will love you the more for it.

Hugs,

Jo

[Guest guest]

Hi PJ!

Ok, it was a little bit incoherent, but since I read that way anyway, made

perfect sense.

Yes, children of people with RSD are either a blessing or a burden depending

on what time of day. Of course, there are some days when you don't want to

move much less do for your children, but we all forge on anyway.

Your son will, as he ages, realize just how much you went through to do

things for him. My 20 year old just told me that last night. (She's always

getting tears out of me!). She realized that my doing the " normal " things

that parents do were extra special for her because she knew how much pain I

was in much of the time. I never made it a point to complain, ever, but kids

know these things.

Our youngest child is now 15, and even in the throes of pain, they grow up

quickly, so enjoy your son as much as you can considering. He'll understand

someday why you couldn't always be there, and will love you the more for it.

Hugs,

Jo

[Guest guest]

In a message dated 5/20/00 2:16:47 AM Eastern Daylight Time, mpj449@...

writes:

<< My own

salvation comes in the form of a 10 1/2 yr old son. He keeps giving me

reasons to get up and stay as active as I can.My worst fear is that I will

miss something for no better reason than I hurt.Its only pain and what is

that compared to our childrens milestones! >>

Hi PJ,

That is what it is all about! I have been to every baseball game my son had

this year. It is sad, even when healthy parents don't have this outlook on

things.

When I was healthy I would wonder the same thing. Even on a Saturday or

Sunday when the parents where not working the attendance was low. I asked

myself why then too. I do feel I have to keep up with that frame of mind

about it, because boy it is a gift, isn't it?

Hugs to you,

Deb

Crps

eGroups

[Guest guest]

I agree with you PJ. I live with my daughter, and family which includes

3 grandkids 5 yr. old step son, grandson and cutey pie that will be 2 on

the 19th of June. and a 6 month old grandaughter that is getting

heavier by the day, but I keep going for them.

I rock even when my legs are killing me because I have spoiled them

rotten with rocking. that was before my legs were affected as bad. I

carry them when need especially the baby (actually I raise her more than

mom does)

Haven't dropped her yet but came close a time or two so now i holler for

someone to get her if i have problems......

But they do keep me going, sometimes more than I want but I love them

and would do anything for them. except crawl around on the

floor......can't get on my knee not even on my bed....ouch...... okay

getting carried away. pain pill in affect......

Have a pain free day

Carolyn

{{{{{{{{{{{{{{{{{gentle hugs to u all}}}}}}}}}}}}}}}}}}}

PS I sure hope you all have AC......We don't and live in a double wide

trailer...YUK and can't take a shower because another water pipe broke

this morning and the owner won't answer the page.......love

stinky.....LOL

[Guest guest]

Hello pj, I am so thrilled to read a post that so closely

resembles my philosophy concerning this disease of ours!

Far too many of us, watch the world go by without being an

active participant because of this pain.

I just heard from a friend who was remarking on the

frustration and jealousy she felt when I sent her a photo of

our family at Universal Studios' 'Islands of Adventure'.

She felt this way because she feels it would be impossible

for her to make such a trip with her children because the

pain won't allow it.

In my reply, I told her that the reason I can do things like

that is because I don't think how I'm gong to feel or how

much pain there's going to be later. Because if I did that,

I would never go anywhere, ever since my pain is there

24/7! The only thing I've given up on is going to movie

theaters (or cinemas, as they are called these days). And I

gave it up because I can watch the same movie, while laying

on my couch, on our theater system and have just as much

fun! Same experience, no added pain.

Congratulations on such a wonderfully positive attitude. It

is very refreshing to hear from another " survivor. "

[[[Hugs]]]

--

Bright Blessings

Isis ~

" Life is easier to take than you think. All that is

necessary is to accept the impossible; do without the

indispensable and bear the intolerable "

....K. Norris

ICQ # 36223315 - Visit our Web Page - still under

construktion http://rsdfmfriends.listbot.com - & Sign up for

our discussion list

- rsdfmfriends@... - RSD, FM & Open Topics!

[Guest guest]

Hi Jo

I was very touched by your post regarding our children. My 18

and 14 yr. old boys make me tear very often. You said it all very

well and the only thing that can be added is that although we know the

added burden our illness puts on our children, they grow up to be so much

more compassionate precisely because they see us live with this

every day and live our lives as normal as we possibly can.

Our children are the force that moves us every second of every day!

--

Bright Blessings

Isis ~

"Life is easier to take than you think. All that is necessary

is to accept the impossible; do without the indispensable and bear

the intolerable"

....K. Norris

ICQ # 36223315 - Visit our Web Page - still under construktion

http://rsdfmfriends.listbot.com - & Sign up for our discussion list

- rsdfmfriends@... - RSD, FM & Open Topics!

[Guest guest]

Hi Jo

I was very touched by your post regarding our children. My 18

and 14 yr. old boys make me tear very often. You said it all very

well and the only thing that can be added is that although we know the

added burden our illness puts on our children, they grow up to be so much

more compassionate precisely because they see us live with this

every day and live our lives as normal as we possibly can.

Our children are the force that moves us every second of every day!

--

Bright Blessings

Isis ~

"Life is easier to take than you think. All that is necessary

is to accept the impossible; do without the indispensable and bear

the intolerable"

....K. Norris

ICQ # 36223315 - Visit our Web Page - still under construktion

http://rsdfmfriends.listbot.com - & Sign up for our discussion list

- rsdfmfriends@... - RSD, FM & Open Topics!