Re: Any Suggestion update!

[Guest guest]

Hi April! I just wanted to touch on what you were saying about the pattern of

illness re: cycles. I also had a very similar pattern this last year where I

would have a while where things would ramp up (about a week or so), then be very

sick for a week or two, then it would take another week or weeks to calm back

down, and it seemed to be a monthly cycle. I tried to pay attention to my

menstrual cycle and the timing of the major illness. It did seem to be that the

one week a month I felt the best was actually when I had my period, then it

changed so now I think it was just a coincidence. That lasted about 4 months.

Now I am constantly in a mini flare or something, with low grade temps for about

a few days every month but I never return to " normal " in between anymore. It

does seem that with my illness, I have seen the pattern change a few times over

the course of it. But I am also not sure if I have a hereditary periodic fever

syndrome or Still's. My sister is currently going the the ringer of tests just

like I did at first as she has just recently started having daily fevers for

over 50 days now. If she really ends up like me, I would tend to think we have

one of those genetic illnesses, not Stills. I hope you find some answers soon! I

know how it is going for so long without knowing. Take care!

Aubrey