Re: New here; long intro

[Guest guest]

Marina,

I posted our protocol with our daughter last week. This is only what has worked

for us - so ask your doctor first. Our daughter is 10 1/2 and we started TD-DMPS

later than most. I found that combining the DMPS with PCA-RX helped. The PCA-RX

helps to bind the metals and release them without so much displacement within

the system. We also use anti-fungal, anti-viral and anti-biotic

medications/supplements while chelating. When we first started with Valtrex it

was just awful. She regressed terribly for 13 weeks. However, when we started

chelation and all of the combined treatments she progressed. We saw wonderful

results using the Quintet - before we ever started DMPS, too. We still use the

Quintet page 278 of the 2nd edition Children with Starving Brains.

I hope you can find the right doctor for your daughter. I saw so many

improvements with our daughter after reading and applying the recommendations

from Dr. McCandless' book. We -also had been to several doctors. We're happy

with the doctor we have now - and we're seeing progress. Of course, most parents

would not want to use anti-biotics for their ASD child. Our daughter has severe

gut problems which the Biaxin helps. I also know children who benefit from

Valtrex - alone - without chelation. Hopefully, you'll find what works for your

daughter.

Best wishes,

Shari

New here; long intro

Hello, all.

I am new to this list, but not new to autism. My daughter is 14

years old, fairly severe, with almost no language, sometimes extreme

self-injury, and the most beautiful eyes in the world.

We have taken here all over the U.S. and Mexico. Haven't made it to

Europe with her yet, LOL. Our first visit was to the Princeton Bio

Center, run by Neubrander. I was told there was little or

nothing they could do for her. Two years later we spent everything

we had to take her to Edelson. We've done Lovaas, ABA, Son

Rise, Floortime, too many supplements to count, too many blood and

urine tests to recall, three DAN doctors, several naturopaths,

chiropractors, two regular pediatricians, who think I am nuts!

I just fired my Intensive Behavioral Intervention team after they

said they wouldn't work with her anymore unless I put her on

psychotropics, went to their staff doctor for them and followed

their medical guidelines, and used mechanical restraints on her.

After asking several doctors to run viral tests on her, I finally

got our latest DAN doctor to do so. She has elevated titers to CMV,

EBV, herpes 2, varicella. I don't know how they compare to most kids'

titers, but I suppose, like everything in autism, they are individual

anyway.

She was never vaccinated, and was autistic from birth. I had one

tooth break during pregnancy, so an amalgam filling was taken out

and a root canal done. However, before this happened I could already

tell that there was something different about this baby, based on

how she never moved until midway through my pregnancy, and

then started moving incessantly immediately, and this was before the

dental work was done. When she was 18 months old I started having

my amalgam fillings taken out, and I was still breastfeeding her.

The dentist assured me it was safe! What I wouldn't give to go

back......

We have done only a little chelation, which we started last year.

At the end of almost every round her behaviors would get really bad,

and finally I was turned in for child abuse, for the chelation and

her restrictive diet (SCD at the time). The child abuse case dragged

out for months, so I quietly did some low-dose chelation with DMSA

and ALA, with approval from our DAN doctor. She reacted less at the

end of each round, but I still felt I was under so much scrutiny that

I quit after about 6 rounds. Both methods of chelation showed only a

little metal coming out, at about the same rate, in the green values.

We've done some anti-virals, too. That's another subject for another

email.

Anyway, I am looking forward to being a part of this forum. I read

CSB quite some time ago, after the Portland DAN, 2003 when I heard

Dr. McCandless speak, so I need to refresh some of my info. We

did the Autism Premier Panel the next year, which is the best info

we have had over the years. Thanks, Dr. McCandless, for helping put

that panel together.

TTFN.

Marina,

Mom to Millie 26 yrs., 24 yrs., Annie 22 yrs.,

14 yrs. (autism), Isaac 6 yrs. (RAD, ADHD, ODD, MAD),

5 yrs. (RAD, ADHD,ED, DBD-NOS)

Many frequently asked questions and answers can be found at

<http://forums.autism-rxguidebook.com/default.aspx>

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