Re: HELP, New here, weird symptoms

[Guest guest]

Have you checked Tourette's syndrome?

****************************************************************

>

> I'm new to this board, and so glad I found it. That there are other people

that can relate instead of thinking I'm totally insane helps more than words can

describe....but I'm not sure that all my symptoms are shared by anyone else on

here. I have sound sensitivity combined with echoalia - I have an

uncontrollable urge to repeat the offending sound.

>

> This started in 4th grade, when I began to repeat certain sounds that bothered

me - P was the most prevalent(the popping of P's when someone spoke drove me

crazy and I would repeat the sound over and over again which then amazingly made

me feel better).

> Gulping also bothered me - any sound that was strong. This lasted for years

into my teens, and then I developed full blown OCD.

>

> After a period where I self medicated with narcotics and didnt seem to have

too many problems with sounds or OCD, I got married and had children. The

symptoms came back, but differently - I saw old tapes recently where I was

saying words and rhyming them. That lasted a short time and stopped.

>

> Then for the past 10 yrs or more, the sounds are more prevelant that bother me

make it impossible to work or go places where I can't remove myself.

>

> Women's voices saying a word with S sound in it actually hurt my ears and give

me the fight or flight feeling of having to escape. Its like

> fingernails on a chalkboard to me, my heart rate increases, and I feel like I

have to repeat the sound. Its not all women voices, just the voices that make

the S sound very sharp. It could be because now many women have had dental care

that aligns their teeth a certain way, whereas in the past that wasn't so

prevelant. The

> P popping is bothering me again too after over 25 yrs of not bothering me.

Gulping when drinking, hard swallowing that you can hear, or even dry lips

sticking together then making a sound when the person opens their mouths is a

problem.

>

> Of course its embarrassing because I know its not normal, but I feel compelled

to repeat the sound and can't stop it. I went to dinner with a friend one night

and was seated near a woman waiting for a table that had that strong S sound and

she wouldnt quit talking. I tried to stay there and talk, but my voice volume

increased, my nerves became jumpy, I put my finger in my ear, and I started

> using the S sound strongly almost a hiss as I spoke. Believe me when I say

people notice these things and think you are crazy. When I'm alone, people think

I'm talking to myself because I repeat the strong S sound.

>

> What is wrong with me? Does anyone else have echoalia as well as the sound

sensitivity? I can't live like this anymore. It's helped ruin my marriage, since

it embarrassed my husband, and my kids are embarrassed of me. My kids don't want

me around their friends just in case or to go to restaurants with me. Their

friends have noticed and made comments to them too.

>

> AND my daughter is showing some signs too, but they are more along the lines

of what I've read on this board. It bothers her if I put my hand near my mouth

and lean into it. Or if I rub my finger. Or if someone is eating and she can

hear the fork hit teeth. Or if someone gulps. I just don't want her to turn

into me.

>

> Please let me know if anyone else has a problem with spoken sounds (words or

letters) and if anyone else has the urge to repeat the sounds.

>

[Guest guest]

Welcome MLHOFF,

I too have a very strong urge to repeat the offending sound. It started at

around age 8 when my sensitivity got too much for me to handle quietly

internally. Echolalia was my way to " do it back " ; to cause harm to the person

who was hurting me so I would mimic the sound with a vengeance. Normally I

would get a good beating for it but often I just couldn't help it.

As an adult (52) I understand that it is just pent-up rage and I can release it

by vigorous physical exercise or by smashing a punching bag but my best release

is a good scream. (Sometimes in public with triggering footsteps I will find

myself walking, slapping my shoe bottoms behind or beside the person who is

shuffling their feet. I get sooo enraged. Better if I can just get away!)

So - is the echolalia a form of Tourette's? Is it OCD? Or is it just a way to

spew venom? I'm not sure much of that matters since if we weren't feeling

unnecessary rage over innocuous stimuli, there would be no need to respond and

there would be no response!

I try to keep my overall focus on knowing that as we find each other and grow in

number, we get closer to a cure . . .

> >

> > I'm new to this board, and so glad I found it. That there are other people

that can relate instead of thinking I'm totally insane helps more than words can

describe....but I'm not sure that all my symptoms are shared by anyone else on

here. I have sound sensitivity combined with echoalia - I have an

uncontrollable urge to repeat the offending sound.

> >

> > This started in 4th grade, when I began to repeat certain sounds that

bothered me - P was the most prevalent(the popping of P's when someone spoke

drove me crazy and I would repeat the sound over and over again which then

amazingly made me feel better).

> > Gulping also bothered me - any sound that was strong. This lasted for years

into my teens, and then I developed full blown OCD.

> >

> > After a period where I self medicated with narcotics and didnt seem to have

too many problems with sounds or OCD, I got married and had children. The

symptoms came back, but differently - I saw old tapes recently where I was

saying words and rhyming them. That lasted a short time and stopped.

> >

> > Then for the past 10 yrs or more, the sounds are more prevelant that bother

me make it impossible to work or go places where I can't remove myself.

> >

> > Women's voices saying a word with S sound in it actually hurt my ears and

give me the fight or flight feeling of having to escape. Its like

> > fingernails on a chalkboard to me, my heart rate increases, and I feel like

I have to repeat the sound. Its not all women voices, just the voices that make

the S sound very sharp. It could be because now many women have had dental care

that aligns their teeth a certain way, whereas in the past that wasn't so

prevelant. The

> > P popping is bothering me again too after over 25 yrs of not bothering me.

Gulping when drinking, hard swallowing that you can hear, or even dry lips

sticking together then making a sound when the person opens their mouths is a

problem.

> >

> > Of course its embarrassing because I know its not normal, but I feel

compelled to repeat the sound and can't stop it. I went to dinner with a friend

one night and was seated near a woman waiting for a table that had that strong S

sound and she wouldnt quit talking. I tried to stay there and talk, but my voice

volume increased, my nerves became jumpy, I put my finger in my ear, and I

started

> > using the S sound strongly almost a hiss as I spoke. Believe me when I say

people notice these things and think you are crazy. When I'm alone, people think

I'm talking to myself because I repeat the strong S sound.

> >

> > What is wrong with me? Does anyone else have echoalia as well as the sound

sensitivity? I can't live like this anymore. It's helped ruin my marriage, since

it embarrassed my husband, and my kids are embarrassed of me. My kids don't want

me around their friends just in case or to go to restaurants with me. Their

friends have noticed and made comments to them too.

> >

> > AND my daughter is showing some signs too, but they are more along the lines

of what I've read on this board. It bothers her if I put my hand near my mouth

and lean into it. Or if I rub my finger. Or if someone is eating and she can

hear the fork hit teeth. Or if someone gulps. I just don't want her to turn

into me.

> >

> > Please let me know if anyone else has a problem with spoken sounds (words or

letters) and if anyone else has the urge to repeat the sounds.

> >

>

[Guest guest]

Hello

Sounds like we were separated at birth.I have several triggers but the hissy " s "

is the grand prize winner. Like you, it started in 4th grade and I had the

compulsion to mimic it (in an exaggerated manner.)

Trust me, I'm not a bit too thrilled about the popping P's either. I still

mimic the " S's. Sometimes if I'm in public, I put my hand over my mouth as I do

it because I'm very embarrassed. The urge to do the mimicking is stronger than

the embarrassment.

What interests me is that you mention the P sound didn't bother you for 25 years

and then came back. I had the exact same experience. The " s " sound didn't

bother me for decades (I'm 63 now) and then came back with a vengence. I wish I

could tell everyone who reads this what caused it to disappear. I truly don't

know but I do know exactly what made it return. I was on another message board

about 5 years ago or so where a mom was telling of her son who couldn't stand to

hear her say words with the letter " s " . I thought to myself " wow " that's

exactly how I felt about my mother's speech. My next thought was " Phew, I'm

glad I don't have that problem anymore " The very next day it came back! My mom

is gone now but I am unable to listen to women's voices on TV or radio. There

has to be a psychological component to this because all it took for this monster

to rear it's ugly head was the mere memory of suffering from it.

Anyway, I wanted to let you know that you are not alone in this.

If anyone else has had the experience of your misophonia disappearing completely

and then suddenly reappearing even worse than the first time and bringing with

it additional triggers, PLEASE, PLEASE let me know. I've wondered if I had

never read the posting on that other board, if my misophonia would have remained

dormant. Any ideas or thoughts are welcome.

Regards

Elaine

>

> I'm new to this board, and so glad I found it. That there are other people

that can relate instead of thinking I'm totally insane helps more than words can

describe....but I'm not sure that all my symptoms are shared by anyone else on

here. I have sound sensitivity combined with echoalia - I have an

uncontrollable urge to repeat the offending sound.

>

> This started in 4th grade, when I began to repeat certain sounds that bothered

me - P was the most prevalent(the popping of P's when someone spoke drove me

crazy and I would repeat the sound over and over again which then amazingly made

me feel better).

> Gulping also bothered me - any sound that was strong. This lasted for years

into my teens, and then I developed full blown OCD.

>

> After a period where I self medicated with narcotics and didnt seem to have

too many problems with sounds or OCD, I got married and had children. The

symptoms came back, but differently - I saw old tapes recently where I was

saying words and rhyming them. That lasted a short time and stopped.

>

> Then for the past 10 yrs or more, the sounds are more prevelant that bother me

make it impossible to work or go places where I can't remove myself.

>

> Women's voices saying a word with S sound in it actually hurt my ears and give

me the fight or flight feeling of having to escape. Its like

> fingernails on a chalkboard to me, my heart rate increases, and I feel like I

have to repeat the sound. Its not all women voices, just the voices that make

the S sound very sharp. It could be because now many women have had dental care

that aligns their teeth a certain way, whereas in the past that wasn't so

prevelant. The

> P popping is bothering me again too after over 25 yrs of not bothering me.

Gulping when drinking, hard swallowing that you can hear, or even dry lips

sticking together then making a sound when the person opens their mouths is a

problem.

>

> Of course its embarrassing because I know its not normal, but I feel compelled

to repeat the sound and can't stop it. I went to dinner with a friend one night

and was seated near a woman waiting for a table that had that strong S sound and

she wouldnt quit talking. I tried to stay there and talk, but my voice volume

increased, my nerves became jumpy, I put my finger in my ear, and I started

> using the S sound strongly almost a hiss as I spoke. Believe me when I say

people notice these things and think you are crazy. When I'm alone, people think

I'm talking to myself because I repeat the strong S sound.

>

> What is wrong with me? Does anyone else have echoalia as well as the sound

sensitivity? I can't live like this anymore. It's helped ruin my marriage, since

it embarrassed my husband, and my kids are embarrassed of me. My kids don't want

me around their friends just in case or to go to restaurants with me. Their

friends have noticed and made comments to them too.

>

> AND my daughter is showing some signs too, but they are more along the lines

of what I've read on this board. It bothers her if I put my hand near my mouth

and lean into it. Or if I rub my finger. Or if someone is eating and she can

hear the fork hit teeth. Or if someone gulps. I just don't want her to turn

into me.

>

> Please let me know if anyone else has a problem with spoken sounds (words or

letters) and if anyone else has the urge to repeat the sounds.

>

[Guest guest]

Hello

Sounds like we were separated at birth.I have several triggers but the hissy " s "

is the grand prize winner. Like you, it started in 4th grade and I had the

compulsion to mimic it (in an exaggerated manner.)

Trust me, I'm not a bit too thrilled about the popping P's either. I still

mimic the " S's. Sometimes if I'm in public, I put my hand over my mouth as I do

it because I'm very embarrassed. The urge to do the mimicking is stronger than

the embarrassment.

What interests me is that you mention the P sound didn't bother you for 25 years

and then came back. I had the exact same experience. The " s " sound didn't

bother me for decades (I'm 63 now) and then came back with a vengence. I wish I

could tell everyone who reads this what caused it to disappear. I truly don't

know but I do know exactly what made it return. I was on another message board

about 5 years ago or so where a mom was telling of her son who couldn't stand to

hear her say words with the letter " s " . I thought to myself " wow " that's

exactly how I felt about my mother's speech. My next thought was " Phew, I'm

glad I don't have that problem anymore " The very next day it came back! My mom

is gone now but I am unable to listen to women's voices on TV or radio. There

has to be a psychological component to this because all it took for this monster

to rear it's ugly head was the mere memory of suffering from it.

Anyway, I wanted to let you know that you are not alone in this.

If anyone else has had the experience of your misophonia disappearing completely

and then suddenly reappearing even worse than the first time and bringing with

it additional triggers, PLEASE, PLEASE let me know. I've wondered if I had

never read the posting on that other board, if my misophonia would have remained

dormant. Any ideas or thoughts are welcome.

Regards

Elaine

>

> I'm new to this board, and so glad I found it. That there are other people

that can relate instead of thinking I'm totally insane helps more than words can

describe....but I'm not sure that all my symptoms are shared by anyone else on

here. I have sound sensitivity combined with echoalia - I have an

uncontrollable urge to repeat the offending sound.

>

> This started in 4th grade, when I began to repeat certain sounds that bothered

me - P was the most prevalent(the popping of P's when someone spoke drove me

crazy and I would repeat the sound over and over again which then amazingly made

me feel better).

> Gulping also bothered me - any sound that was strong. This lasted for years

into my teens, and then I developed full blown OCD.

>

> After a period where I self medicated with narcotics and didnt seem to have

too many problems with sounds or OCD, I got married and had children. The

symptoms came back, but differently - I saw old tapes recently where I was

saying words and rhyming them. That lasted a short time and stopped.

>

> Then for the past 10 yrs or more, the sounds are more prevelant that bother me

make it impossible to work or go places where I can't remove myself.

>

> Women's voices saying a word with S sound in it actually hurt my ears and give

me the fight or flight feeling of having to escape. Its like

> fingernails on a chalkboard to me, my heart rate increases, and I feel like I

have to repeat the sound. Its not all women voices, just the voices that make

the S sound very sharp. It could be because now many women have had dental care

that aligns their teeth a certain way, whereas in the past that wasn't so

prevelant. The

> P popping is bothering me again too after over 25 yrs of not bothering me.

Gulping when drinking, hard swallowing that you can hear, or even dry lips

sticking together then making a sound when the person opens their mouths is a

problem.

>

> Of course its embarrassing because I know its not normal, but I feel compelled

to repeat the sound and can't stop it. I went to dinner with a friend one night

and was seated near a woman waiting for a table that had that strong S sound and

she wouldnt quit talking. I tried to stay there and talk, but my voice volume

increased, my nerves became jumpy, I put my finger in my ear, and I started

> using the S sound strongly almost a hiss as I spoke. Believe me when I say

people notice these things and think you are crazy. When I'm alone, people think

I'm talking to myself because I repeat the strong S sound.

>

> What is wrong with me? Does anyone else have echoalia as well as the sound

sensitivity? I can't live like this anymore. It's helped ruin my marriage, since

it embarrassed my husband, and my kids are embarrassed of me. My kids don't want

me around their friends just in case or to go to restaurants with me. Their

friends have noticed and made comments to them too.

>

> AND my daughter is showing some signs too, but they are more along the lines

of what I've read on this board. It bothers her if I put my hand near my mouth

and lean into it. Or if I rub my finger. Or if someone is eating and she can

hear the fork hit teeth. Or if someone gulps. I just don't want her to turn

into me.

>

> Please let me know if anyone else has a problem with spoken sounds (words or

letters) and if anyone else has the urge to repeat the sounds.

>