Re: just venting

[Guest guest]

Liz hang in there it is winter time and a lot of us seam to get a bit worse

around this time of year. I know I do

hugs

 

the redneck

Marty G.

To learn about Stills Disease http://www.stillsdisease.org/stills_info

Experience: that most brutal of teachers. But you learn, my God do you learn.---

C.S.

[Guest guest]

Liz, I hear you and am sending a cyber hug. I feel the same way. Since August,

I've had one thing after another--horrible edema, then cellulitis, then a fall

down the stairs, then a shoulder injury (still dealing with this), then two

weeks of swine flu/recovery. Dealing with non-remitting Still's is enough;

adding in all the other stuff sometimes feels absolutely unbearable. The only

saving graces for me this fall has been that I'm working part-time instead of

full, I'm seeing a shrink regularly now, and I finally decided to try a low-dose

antidepressant.

Let's make a pact----take some time every day this week to just sit and breathe

and meditate on what's lovely and I'll do the same. Tonight I'll start with

thinking about how lovely it is when my neighbor's 2 1/2 year old comes calling

" K! K! Can I come in??? " then climbs into my lap and watches " Little Bear " with

me.

in Maine

>

> Although I am in Still s remission..I am very fatigued and have headaches.

Since June I have had maybe 3 normal weeks. I am getting sad. Wondering will I

always be like this? Someone who is 90 would have more energy than this.

Everyone around me does so much. It makes me feel badly.

>

> Bladder infection too this week so that does not help. My doctor visits seem

to be a waste of time. If its not one thing its the other. Usually things pass

and I feel better ...this time its a long haul.

>

> Thanks for listening to my pity party....hate to do it....but ...its just

getting to me

>

> Liz

>

>

>

[Guest guest]

Yep, there was an article. It was discussed here. The writer thought it was a

phobia and was trying this wonderful therapy that he couldn't praise enough,

except that ... it wasn't working for him. Sigh.

So the article was a bit garbled - look for Phobias. But the guy sounded like he

had 4S.

Someone here may be able to find you the links.

>

> (Her) " Oh there was a big article in Time magazine on that. It was on the

cover. "

>

> (Me) " I didn't see that. "

>

> (Her) " You don't read your Time magazine ? " (she gifted me the subscription).

>

> (Me) " Yes I read it but I don't read every issue cover to cover. However, our

condition is not really well known, I don't think it was in Time magazine. I

would have seen a post on the web group. "

>

> (Her) " Oh yes it was ... " blah blah blah.

>

> I told her if she found that issue to mail it to me. Seriously though I can't

believe there was an article in a major magazine and no posts on this site.

[Guest guest]

And here is the article:

http://www.time.com/time/magazine/article/0,9171,1950942,00.html?loomia_si=t0:a1\

6:g2:r3:c0.106655:b30622918 & xid=Loomia

Couldn't find the posts on this forum, but I remember them happening.

>

> Yep, there was an article. It was discussed here. The writer thought it was a

phobia and was trying this wonderful therapy that he couldn't praise enough,

except that ... it wasn't working for him. Sigh.

[Guest guest]

Sounds suspiciously like my mother; however, I now give her vitamins

and rhodiola rosea, St. 's wort, and I can definitely tell a

difference if I run out. She's much more pleasant when taking them.

Unfortunately, growing up, I couldn't give her the supplements so it

was pretty miserable. I'm not sure how they can be so negative about

everything. Don't they realize it makes those close want to run

screaming in the other direction? I do feel for you. I have to wonder

if it's a form of depression, seeing everything from such a negative

viewpoint. Not that that observation helps those around them deal with

it any better!

Just Venting

 

So my husband gets me an ipod nano for V-Day. I'm still getting my

music loaded but when I have the in ear canal earphones in I'm thinking

why didn't I get one of these years ago.

Monday night I call my mom to catch up. During the conversation I

casually mention that my husband got me an ipod.

" What ? What would you do with an ipod ? "

Ok she's 71, so I'm trying to be nice. " Well it's an ipod. Lots of

people have them. They play music in your ears " .

(Her) " So where will you use it? You'll walk around the house and

listen to music ? " (this by the way was not said innocently but very

derogatory).

(Me) " Well you know I have that noise problem so it really helps to

drown out other noises. "

(Her) " Oh there was a big article in Time magazine on that. It was on

the cover. "

(Me) " I didn't see that. "

(Her) " You don't read your Time magazine ? " (she gifted me the

subscription).

(Me) " Yes I read it but I don't read every issue cover to cover.

However, our condition is not really well known, I don't think it was

in Time magazine. I would have seen a post on the web group. "

(Her) " Oh yes it was ... " blah blah blah.

I told her if she found that issue to mail it to me. Seriously though I

can't believe there was an article in a major magazine and no posts on

this site.

My mom is lucky I call her at all. What a negative lying b$%@# (I mean

seriously I can't even receive an ipod as a gift without being

criticized). And I'm 44. I don't how I stood it when I was younger and

feel sorry for each and every teenager and young adult in this group.

At least I can tell her I need to go and hang up.

[Guest guest]

Sounds suspiciously like my mother; however, I now give her vitamins

and rhodiola rosea, St. 's wort, and I can definitely tell a

difference if I run out. She's much more pleasant when taking them.

Unfortunately, growing up, I couldn't give her the supplements so it

was pretty miserable. I'm not sure how they can be so negative about

everything. Don't they realize it makes those close want to run

screaming in the other direction? I do feel for you. I have to wonder

if it's a form of depression, seeing everything from such a negative

viewpoint. Not that that observation helps those around them deal with

it any better!

Just Venting

 

So my husband gets me an ipod nano for V-Day. I'm still getting my

music loaded but when I have the in ear canal earphones in I'm thinking

why didn't I get one of these years ago.

Monday night I call my mom to catch up. During the conversation I

casually mention that my husband got me an ipod.

" What ? What would you do with an ipod ? "

Ok she's 71, so I'm trying to be nice. " Well it's an ipod. Lots of

people have them. They play music in your ears " .

(Her) " So where will you use it? You'll walk around the house and

listen to music ? " (this by the way was not said innocently but very

derogatory).

(Me) " Well you know I have that noise problem so it really helps to

drown out other noises. "

(Her) " Oh there was a big article in Time magazine on that. It was on

the cover. "

(Me) " I didn't see that. "

(Her) " You don't read your Time magazine ? " (she gifted me the

subscription).

(Me) " Yes I read it but I don't read every issue cover to cover.

However, our condition is not really well known, I don't think it was

in Time magazine. I would have seen a post on the web group. "

(Her) " Oh yes it was ... " blah blah blah.

I told her if she found that issue to mail it to me. Seriously though I

can't believe there was an article in a major magazine and no posts on

this site.

My mom is lucky I call her at all. What a negative lying b$%@# (I mean

seriously I can't even receive an ipod as a gift without being

criticized). And I'm 44. I don't how I stood it when I was younger and

feel sorry for each and every teenager and young adult in this group.

At least I can tell her I need to go and hang up.

[Guest guest]

Sounds suspiciously like my mother; however, I now give her vitamins

and rhodiola rosea, St. 's wort, and I can definitely tell a

difference if I run out. She's much more pleasant when taking them.

Unfortunately, growing up, I couldn't give her the supplements so it

was pretty miserable. I'm not sure how they can be so negative about

everything. Don't they realize it makes those close want to run

screaming in the other direction? I do feel for you. I have to wonder

if it's a form of depression, seeing everything from such a negative

viewpoint. Not that that observation helps those around them deal with

it any better!

Just Venting

 

So my husband gets me an ipod nano for V-Day. I'm still getting my

music loaded but when I have the in ear canal earphones in I'm thinking

why didn't I get one of these years ago.

Monday night I call my mom to catch up. During the conversation I

casually mention that my husband got me an ipod.

" What ? What would you do with an ipod ? "

Ok she's 71, so I'm trying to be nice. " Well it's an ipod. Lots of

people have them. They play music in your ears " .

(Her) " So where will you use it? You'll walk around the house and

listen to music ? " (this by the way was not said innocently but very

derogatory).

(Me) " Well you know I have that noise problem so it really helps to

drown out other noises. "

(Her) " Oh there was a big article in Time magazine on that. It was on

the cover. "

(Me) " I didn't see that. "

(Her) " You don't read your Time magazine ? " (she gifted me the

subscription).

(Me) " Yes I read it but I don't read every issue cover to cover.

However, our condition is not really well known, I don't think it was

in Time magazine. I would have seen a post on the web group. "

(Her) " Oh yes it was ... " blah blah blah.

I told her if she found that issue to mail it to me. Seriously though I

can't believe there was an article in a major magazine and no posts on

this site.

My mom is lucky I call her at all. What a negative lying b$%@# (I mean

seriously I can't even receive an ipod as a gift without being

criticized). And I'm 44. I don't how I stood it when I was younger and

feel sorry for each and every teenager and young adult in this group.

At least I can tell her I need to go and hang up.

[Guest guest]

, I totally get this. I'm the youngest child of four, but even at 43 my

family second-guesses me about things JUST LIKE THIS. For example, I got my

first cell phone five years ago. A late adopter, yes, because I didn't

necessarily WANT to be reached at any and all times. I finally caved in because

it's one of things you kind of have to have nowadays, you know? The people in my

life were seriously bugging me to get one.

When I mentioned the new cell phone to my older sister, you would not believe

how she got on my case to justify it. " Why did you get a cell phone? Are you

sure you really need it? " What the hell?! I was a 38-year-old man, for pete's

sake, perfectly capable of making this decision for myself! Of course, SHE has

had cell service for years.

Call me a fossil, but I still have a land line as well (because the cell service

is so poor in my neighborhood--lots of hills, constant dropped calls). I use an

answering machine for screening purposes. She called awhile back, and when I

figured out it was , I picked up.

Her: " What, you don't have Caller ID? "

Me: " No. "

Her: " Really! I can't believe that! "

Me: " Nope, no Caller ID here. "

Her (purely amazed): " Huh! "

You would have thought I told her my house does not have a roof on it, or walls

to hold the roof up.

Just sayin', I feel you on this. It's crazy-making, yes, but they mean no harm.

Peace

Jay (whose wife gave him an iPod for Valentine's Day, too!)

>

> So my husband gets me an ipod nano for V-Day. I'm still getting my music

loaded but when I have the in ear canal earphones in I'm thinking why didn't I

get one of these years ago.

>

> Monday night I call my mom to catch up. During the conversation I casually

mention that my husband got me an ipod.

>

> " What ? What would you do with an ipod ? "

>

> Ok she's 71, so I'm trying to be nice. " Well it's an ipod. Lots of people have

them. They play music in your ears " .

>

> (Her) " So where will you use it? You'll walk around the house and listen to

music ? " (this by the way was not said innocently but very derogatory).

>

> (Me) " Well you know I have that noise problem so it really helps to drown out

other noises. "

>

> (Her) " Oh there was a big article in Time magazine on that. It was on the

cover. "

>

> (Me) " I didn't see that. "

>

> (Her) " You don't read your Time magazine ? " (she gifted me the subscription).

>

> (Me) " Yes I read it but I don't read every issue cover to cover. However, our

condition is not really well known, I don't think it was in Time magazine. I

would have seen a post on the web group. "

>

> (Her) " Oh yes it was ... " blah blah blah.

>

> I told her if she found that issue to mail it to me. Seriously though I can't

believe there was an article in a major magazine and no posts on this site.

>

> My mom is lucky I call her at all. What a negative lying b$%@# (I mean

seriously I can't even receive an ipod as a gift without being criticized). And

I'm 44. I don't how I stood it when I was younger and feel sorry for each and

every teenager and young adult in this group. At least I can tell her I need to

go and hang up.

>

>

>

[Guest guest]

, I totally get this. I'm the youngest child of four, but even at 43 my

family second-guesses me about things JUST LIKE THIS. For example, I got my

first cell phone five years ago. A late adopter, yes, because I didn't

necessarily WANT to be reached at any and all times. I finally caved in because

it's one of things you kind of have to have nowadays, you know? The people in my

life were seriously bugging me to get one.

When I mentioned the new cell phone to my older sister, you would not believe

how she got on my case to justify it. " Why did you get a cell phone? Are you

sure you really need it? " What the hell?! I was a 38-year-old man, for pete's

sake, perfectly capable of making this decision for myself! Of course, SHE has

had cell service for years.

Call me a fossil, but I still have a land line as well (because the cell service

is so poor in my neighborhood--lots of hills, constant dropped calls). I use an

answering machine for screening purposes. She called awhile back, and when I

figured out it was , I picked up.

Her: " What, you don't have Caller ID? "

Me: " No. "

Her: " Really! I can't believe that! "

Me: " Nope, no Caller ID here. "

Her (purely amazed): " Huh! "

You would have thought I told her my house does not have a roof on it, or walls

to hold the roof up.

Just sayin', I feel you on this. It's crazy-making, yes, but they mean no harm.

Peace

Jay (whose wife gave him an iPod for Valentine's Day, too!)

>

> So my husband gets me an ipod nano for V-Day. I'm still getting my music

loaded but when I have the in ear canal earphones in I'm thinking why didn't I

get one of these years ago.

>

> Monday night I call my mom to catch up. During the conversation I casually

mention that my husband got me an ipod.

>

> " What ? What would you do with an ipod ? "

>

> Ok she's 71, so I'm trying to be nice. " Well it's an ipod. Lots of people have

them. They play music in your ears " .

>

> (Her) " So where will you use it? You'll walk around the house and listen to

music ? " (this by the way was not said innocently but very derogatory).

>

> (Me) " Well you know I have that noise problem so it really helps to drown out

other noises. "

>

> (Her) " Oh there was a big article in Time magazine on that. It was on the

cover. "

>

> (Me) " I didn't see that. "

>

> (Her) " You don't read your Time magazine ? " (she gifted me the subscription).

>

> (Me) " Yes I read it but I don't read every issue cover to cover. However, our

condition is not really well known, I don't think it was in Time magazine. I

would have seen a post on the web group. "

>

> (Her) " Oh yes it was ... " blah blah blah.

>

> I told her if she found that issue to mail it to me. Seriously though I can't

believe there was an article in a major magazine and no posts on this site.

>

> My mom is lucky I call her at all. What a negative lying b$%@# (I mean

seriously I can't even receive an ipod as a gift without being criticized). And

I'm 44. I don't how I stood it when I was younger and feel sorry for each and

every teenager and young adult in this group. At least I can tell her I need to

go and hang up.

>

>

>

[Guest guest]

, I totally get this. I'm the youngest child of four, but even at 43 my

family second-guesses me about things JUST LIKE THIS. For example, I got my

first cell phone five years ago. A late adopter, yes, because I didn't

necessarily WANT to be reached at any and all times. I finally caved in because

it's one of things you kind of have to have nowadays, you know? The people in my

life were seriously bugging me to get one.

When I mentioned the new cell phone to my older sister, you would not believe

how she got on my case to justify it. " Why did you get a cell phone? Are you

sure you really need it? " What the hell?! I was a 38-year-old man, for pete's

sake, perfectly capable of making this decision for myself! Of course, SHE has

had cell service for years.

Call me a fossil, but I still have a land line as well (because the cell service

is so poor in my neighborhood--lots of hills, constant dropped calls). I use an

answering machine for screening purposes. She called awhile back, and when I

figured out it was , I picked up.

Her: " What, you don't have Caller ID? "

Me: " No. "

Her: " Really! I can't believe that! "

Me: " Nope, no Caller ID here. "

Her (purely amazed): " Huh! "

You would have thought I told her my house does not have a roof on it, or walls

to hold the roof up.

Just sayin', I feel you on this. It's crazy-making, yes, but they mean no harm.

Peace

Jay (whose wife gave him an iPod for Valentine's Day, too!)

>

> So my husband gets me an ipod nano for V-Day. I'm still getting my music

loaded but when I have the in ear canal earphones in I'm thinking why didn't I

get one of these years ago.

>

> Monday night I call my mom to catch up. During the conversation I casually

mention that my husband got me an ipod.

>

> " What ? What would you do with an ipod ? "

>

> Ok she's 71, so I'm trying to be nice. " Well it's an ipod. Lots of people have

them. They play music in your ears " .

>

> (Her) " So where will you use it? You'll walk around the house and listen to

music ? " (this by the way was not said innocently but very derogatory).

>

> (Me) " Well you know I have that noise problem so it really helps to drown out

other noises. "

>

> (Her) " Oh there was a big article in Time magazine on that. It was on the

cover. "

>

> (Me) " I didn't see that. "

>

> (Her) " You don't read your Time magazine ? " (she gifted me the subscription).

>

> (Me) " Yes I read it but I don't read every issue cover to cover. However, our

condition is not really well known, I don't think it was in Time magazine. I

would have seen a post on the web group. "

>

> (Her) " Oh yes it was ... " blah blah blah.

>

> I told her if she found that issue to mail it to me. Seriously though I can't

believe there was an article in a major magazine and no posts on this site.

>

> My mom is lucky I call her at all. What a negative lying b$%@# (I mean

seriously I can't even receive an ipod as a gift without being criticized). And

I'm 44. I don't how I stood it when I was younger and feel sorry for each and

every teenager and young adult in this group. At least I can tell her I need to

go and hang up.

>

>

>

[Guest guest]

You can get pink or brown noise here, it's lovely.http://whitenoisemp3s.com/free-white-noiseYou new ipod owners will also find they are very helpful for drowning out the sounds of people talking when need be.... : )From: actionfigure7

To: Soundsensitivity Sent: Wed, February 17, 2010 2:08:48 PMSubject: Re: Just Venting

, I totally get this. I'm the youngest child of four, but even at 43 my family second-guesses me about things JUST LIKE THIS. For example, I got my first cell phone five years ago. A late adopter, yes, because I didn't necessarily WANT to be reached at any and all times. I finally caved in because it's one of things you kind of have to have nowadays, you know? The people in my life were seriously bugging me to get one.

When I mentioned the new cell phone to my older sister, you would not believe how she got on my case to justify it. "Why did you get a cell phone? Are you sure you really need it?" What the hell?! I was a 38-year-old man, for pete's sake, perfectly capable of making this decision for myself! Of course, SHE has had cell service for years.

Call me a fossil, but I still have a land line as well (because the cell service is so poor in my neighborhood- -lots of hills, constant dropped calls). I use an answering machine for screening purposes. She called awhile back, and when I figured out it was , I picked up.

Her: "What, you don't have Caller ID?"

Me: "No."

Her: "Really! I can't believe that!"

Me: "Nope, no Caller ID here."

Her (purely amazed): "Huh!"

You would have thought I told her my house does not have a roof on it, or walls to hold the roof up.

Just sayin', I feel you on this. It's crazy-making, yes, but they mean no harm.

Peace

Jay (whose wife gave him an iPod for Valentine's Day, too!)

>

> So my husband gets me an ipod nano for V-Day. I'm still getting my music loaded but when I have the in ear canal earphones in I'm thinking why didn't I get one of these years ago.

>

> Monday night I call my mom to catch up. During the conversation I casually mention that my husband got me an ipod.

>

> "What ? What would you do with an ipod ?"

>

> Ok she's 71, so I'm trying to be nice. "Well it's an ipod. Lots of people have them. They play music in your ears".

>

> (Her) "So where will you use it? You'll walk around the house and listen to music ?" (this by the way was not said innocently but very derogatory).

>

> (Me) "Well you know I have that noise problem so it really helps to drown out other noises."

>

> (Her) "Oh there was a big article in Time magazine on that. It was on the cover."

>

> (Me) "I didn't see that."

>

> (Her) "You don't read your Time magazine ?" (she gifted me the subscription) .

>

> (Me) "Yes I read it but I don't read every issue cover to cover. However, our condition is not really well known, I don't think it was in Time magazine. I would have seen a post on the web group."

>

> (Her) "Oh yes it was ..." blah blah blah.

>

> I told her if she found that issue to mail it to me. Seriously though I can't believe there was an article in a major magazine and no posts on this site.

>

> My mom is lucky I call her at all. What a negative lying b$%@# (I mean seriously I can't even receive an ipod as a gift without being criticized). And I'm 44. I don't how I stood it when I was younger and feel sorry for each and every teenager and young adult in this group. At least I can tell her I need to go and hang up.

>

>

>

[Guest guest]

You can get pink or brown noise here, it's lovely.http://whitenoisemp3s.com/free-white-noiseYou new ipod owners will also find they are very helpful for drowning out the sounds of people talking when need be.... : )From: actionfigure7

To: Soundsensitivity Sent: Wed, February 17, 2010 2:08:48 PMSubject: Re: Just Venting

, I totally get this. I'm the youngest child of four, but even at 43 my family second-guesses me about things JUST LIKE THIS. For example, I got my first cell phone five years ago. A late adopter, yes, because I didn't necessarily WANT to be reached at any and all times. I finally caved in because it's one of things you kind of have to have nowadays, you know? The people in my life were seriously bugging me to get one.

When I mentioned the new cell phone to my older sister, you would not believe how she got on my case to justify it. "Why did you get a cell phone? Are you sure you really need it?" What the hell?! I was a 38-year-old man, for pete's sake, perfectly capable of making this decision for myself! Of course, SHE has had cell service for years.

Call me a fossil, but I still have a land line as well (because the cell service is so poor in my neighborhood- -lots of hills, constant dropped calls). I use an answering machine for screening purposes. She called awhile back, and when I figured out it was , I picked up.

Her: "What, you don't have Caller ID?"

Me: "No."

Her: "Really! I can't believe that!"

Me: "Nope, no Caller ID here."

Her (purely amazed): "Huh!"

You would have thought I told her my house does not have a roof on it, or walls to hold the roof up.

Just sayin', I feel you on this. It's crazy-making, yes, but they mean no harm.

Peace

Jay (whose wife gave him an iPod for Valentine's Day, too!)

>

> So my husband gets me an ipod nano for V-Day. I'm still getting my music loaded but when I have the in ear canal earphones in I'm thinking why didn't I get one of these years ago.

>

> Monday night I call my mom to catch up. During the conversation I casually mention that my husband got me an ipod.

>

> "What ? What would you do with an ipod ?"

>

> Ok she's 71, so I'm trying to be nice. "Well it's an ipod. Lots of people have them. They play music in your ears".

>

> (Her) "So where will you use it? You'll walk around the house and listen to music ?" (this by the way was not said innocently but very derogatory).

>

> (Me) "Well you know I have that noise problem so it really helps to drown out other noises."

>

> (Her) "Oh there was a big article in Time magazine on that. It was on the cover."

>

> (Me) "I didn't see that."

>

> (Her) "You don't read your Time magazine ?" (she gifted me the subscription) .

>

> (Me) "Yes I read it but I don't read every issue cover to cover. However, our condition is not really well known, I don't think it was in Time magazine. I would have seen a post on the web group."

>

> (Her) "Oh yes it was ..." blah blah blah.

>

> I told her if she found that issue to mail it to me. Seriously though I can't believe there was an article in a major magazine and no posts on this site.

>

> My mom is lucky I call her at all. What a negative lying b$%@# (I mean seriously I can't even receive an ipod as a gift without being criticized). And I'm 44. I don't how I stood it when I was younger and feel sorry for each and every teenager and young adult in this group. At least I can tell her I need to go and hang up.

>

>

>

[Guest guest]

You can get pink or brown noise here, it's lovely.http://whitenoisemp3s.com/free-white-noiseYou new ipod owners will also find they are very helpful for drowning out the sounds of people talking when need be.... : )From: actionfigure7

To: Soundsensitivity Sent: Wed, February 17, 2010 2:08:48 PMSubject: Re: Just Venting

, I totally get this. I'm the youngest child of four, but even at 43 my family second-guesses me about things JUST LIKE THIS. For example, I got my first cell phone five years ago. A late adopter, yes, because I didn't necessarily WANT to be reached at any and all times. I finally caved in because it's one of things you kind of have to have nowadays, you know? The people in my life were seriously bugging me to get one.

When I mentioned the new cell phone to my older sister, you would not believe how she got on my case to justify it. "Why did you get a cell phone? Are you sure you really need it?" What the hell?! I was a 38-year-old man, for pete's sake, perfectly capable of making this decision for myself! Of course, SHE has had cell service for years.

Call me a fossil, but I still have a land line as well (because the cell service is so poor in my neighborhood- -lots of hills, constant dropped calls). I use an answering machine for screening purposes. She called awhile back, and when I figured out it was , I picked up.

Her: "What, you don't have Caller ID?"

Me: "No."

Her: "Really! I can't believe that!"

Me: "Nope, no Caller ID here."

Her (purely amazed): "Huh!"

You would have thought I told her my house does not have a roof on it, or walls to hold the roof up.

Just sayin', I feel you on this. It's crazy-making, yes, but they mean no harm.

Peace

Jay (whose wife gave him an iPod for Valentine's Day, too!)

>

> So my husband gets me an ipod nano for V-Day. I'm still getting my music loaded but when I have the in ear canal earphones in I'm thinking why didn't I get one of these years ago.

>

> Monday night I call my mom to catch up. During the conversation I casually mention that my husband got me an ipod.

>

> "What ? What would you do with an ipod ?"

>

> Ok she's 71, so I'm trying to be nice. "Well it's an ipod. Lots of people have them. They play music in your ears".

>

> (Her) "So where will you use it? You'll walk around the house and listen to music ?" (this by the way was not said innocently but very derogatory).

>

> (Me) "Well you know I have that noise problem so it really helps to drown out other noises."

>

> (Her) "Oh there was a big article in Time magazine on that. It was on the cover."

>

> (Me) "I didn't see that."

>

> (Her) "You don't read your Time magazine ?" (she gifted me the subscription) .

>

> (Me) "Yes I read it but I don't read every issue cover to cover. However, our condition is not really well known, I don't think it was in Time magazine. I would have seen a post on the web group."

>

> (Her) "Oh yes it was ..." blah blah blah.

>

> I told her if she found that issue to mail it to me. Seriously though I can't believe there was an article in a major magazine and no posts on this site.

>

> My mom is lucky I call her at all. What a negative lying b$%@# (I mean seriously I can't even receive an ipod as a gift without being criticized). And I'm 44. I don't how I stood it when I was younger and feel sorry for each and every teenager and young adult in this group. At least I can tell her I need to go and hang up.

>

>

>

[Guest guest]

Thats not very nice talk about your mother, My mom is about the same age and I know she may not live another 10 or 20 years. Sure I fight with her sometimes but I wouldnt post it here for all to see. That is immature. sorryTo: Soundsensitivity Sent: Tue, February 16, 2010 10:27:40 PMSubject: Just

Venting

So my husband gets me an ipod nano for V-Day. I'm still getting my music loaded but when I have the in ear canal earphones in I'm thinking why didn't I get one of these years ago.Monday night I call my mom to catch up. During the conversation I casually mention that my husband got me an ipod."What ? What would you do with an ipod ?" Ok she's 71, so I'm trying to be nice. "Well it's an ipod. Lots of people have them. They play music in your ears".(Her) "So where will you use it? You'll walk around the house and listen to music ?" (this by the way was not said innocently but very derogatory).(Me) "Well you know I have that noise problem so it really helps to drown out other noises."(Her) "Oh there was a big article in Time magazine on that. It was on the cover."(Me) "I didn't see that."(Her) "You don't read your Time magazine ?" (she gifted me the subscription).(Me) "Yes I read it but

I don't read every issue cover to cover. However, our condition is not really well known, I don't think it was in Time magazine. I would have seen a post on the web group."(Her) "Oh yes it was ..." blah blah blah.I told her if she found that issue to mail it to me. Seriously though I can't believe there was an article in a major magazine and no posts on this site.My mom is lucky I call her at all. What a negative lying b$%@# (I mean seriously I can't even receive an ipod as a gift without being criticized). And I'm 44. I don't how I stood it when I was younger and feel sorry for each and every teenager and young adult in this group. At least I can tell her I need to go and hang up.------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED

FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

Thats not very nice talk about your mother, My mom is about the same age and I know she may not live another 10 or 20 years. Sure I fight with her sometimes but I wouldnt post it here for all to see. That is immature. sorryTo: Soundsensitivity Sent: Tue, February 16, 2010 10:27:40 PMSubject: Just

Venting

So my husband gets me an ipod nano for V-Day. I'm still getting my music loaded but when I have the in ear canal earphones in I'm thinking why didn't I get one of these years ago.Monday night I call my mom to catch up. During the conversation I casually mention that my husband got me an ipod."What ? What would you do with an ipod ?" Ok she's 71, so I'm trying to be nice. "Well it's an ipod. Lots of people have them. They play music in your ears".(Her) "So where will you use it? You'll walk around the house and listen to music ?" (this by the way was not said innocently but very derogatory).(Me) "Well you know I have that noise problem so it really helps to drown out other noises."(Her) "Oh there was a big article in Time magazine on that. It was on the cover."(Me) "I didn't see that."(Her) "You don't read your Time magazine ?" (she gifted me the subscription).(Me) "Yes I read it but

I don't read every issue cover to cover. However, our condition is not really well known, I don't think it was in Time magazine. I would have seen a post on the web group."(Her) "Oh yes it was ..." blah blah blah.I told her if she found that issue to mail it to me. Seriously though I can't believe there was an article in a major magazine and no posts on this site.My mom is lucky I call her at all. What a negative lying b$%@# (I mean seriously I can't even receive an ipod as a gift without being criticized). And I'm 44. I don't how I stood it when I was younger and feel sorry for each and every teenager and young adult in this group. At least I can tell her I need to go and hang up.------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED

FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

Thats not very nice talk about your mother, My mom is about the same age and I know she may not live another 10 or 20 years. Sure I fight with her sometimes but I wouldnt post it here for all to see. That is immature. sorryTo: Soundsensitivity Sent: Tue, February 16, 2010 10:27:40 PMSubject: Just

Venting

So my husband gets me an ipod nano for V-Day. I'm still getting my music loaded but when I have the in ear canal earphones in I'm thinking why didn't I get one of these years ago.Monday night I call my mom to catch up. During the conversation I casually mention that my husband got me an ipod."What ? What would you do with an ipod ?" Ok she's 71, so I'm trying to be nice. "Well it's an ipod. Lots of people have them. They play music in your ears".(Her) "So where will you use it? You'll walk around the house and listen to music ?" (this by the way was not said innocently but very derogatory).(Me) "Well you know I have that noise problem so it really helps to drown out other noises."(Her) "Oh there was a big article in Time magazine on that. It was on the cover."(Me) "I didn't see that."(Her) "You don't read your Time magazine ?" (she gifted me the subscription).(Me) "Yes I read it but

I don't read every issue cover to cover. However, our condition is not really well known, I don't think it was in Time magazine. I would have seen a post on the web group."(Her) "Oh yes it was ..." blah blah blah.I told her if she found that issue to mail it to me. Seriously though I can't believe there was an article in a major magazine and no posts on this site.My mom is lucky I call her at all. What a negative lying b$%@# (I mean seriously I can't even receive an ipod as a gift without being criticized). And I'm 44. I don't how I stood it when I was younger and feel sorry for each and every teenager and young adult in this group. At least I can tell her I need to go and hang up.------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED

FOR ANY PURPOSE. ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

[Guest guest]

I got my first mobile phone just over a year ago, and I am 55. I rarely use it.

I hate making or receiving phone calls.

>

> , I totally get this. I'm the youngest child of four, but even at 43 my

family second-guesses me about things JUST LIKE THIS. For example, I got my

first cell phone five years ago. A late adopter, yes, because I didn't

necessarily WANT to be reached at any and all times.

[Guest guest]

I got my first mobile phone just over a year ago, and I am 55. I rarely use it.

I hate making or receiving phone calls.

>

> , I totally get this. I'm the youngest child of four, but even at 43 my

family second-guesses me about things JUST LIKE THIS. For example, I got my

first cell phone five years ago. A late adopter, yes, because I didn't

necessarily WANT to be reached at any and all times.

[Guest guest]

I got my first mobile phone just over a year ago, and I am 55. I rarely use it.

I hate making or receiving phone calls.

>

> , I totally get this. I'm the youngest child of four, but even at 43 my

family second-guesses me about things JUST LIKE THIS. For example, I got my

first cell phone five years ago. A late adopter, yes, because I didn't

necessarily WANT to be reached at any and all times.

[Guest guest]

I did respond - apparently it didn't get printed. Perhaps we could take the

mass-writing approach and write to the author c/o the magazine. He's apparently

a staff writer.

Letter to the editor response: Jan 4, 2010

I only wish the condition described here was indeed simply a phobia. I belong

to an " underground " of fellow sufferers that Mr. Grossman needs to know about.

Our collective decades of self-medication, attempts at diagnosis and behavioral

and psycho therapies will shed some light on this condition for him and his

doctor. (Simply Google " I hate eating sounds " . Research will easily start

there.) We have discovered striking commonalities such as average age of onset

and extremely close patterns of stimulus/response across those who have

identified as having Soft Sound Sensitivity Syndrome (coined by Dr. M. ,

audiologist in OR.) I now know that there may be a genetic link: my father was

violent (fight or flight response) when triggered and other members of my family

will not eat with other people because of the trigger sounds. I watch the news

and look for 4S: the lab assistant who broke up with his girlfriend because she

breathed too loud and the man who attacked the ice cream truck driver because of

the music are just two I've seen recently. There are those of us like me who

are fortunate enough to have insurance trying to get brain scans to see what

" wires are crossed " , and we look for any opportunity to increase public

awareness. The prolonged stress and adrenal exhaustion alone is debilitating

(for me: 43 years) but to not know what's going on and to spend tens of

thousands of dollars on therapy like I did is worse, especially in this day of

instant information on the internet. Please get the doctor to do his research

and help others do it too.

> >

> > (Her) " Oh there was a big article in Time magazine on that. It was on the

cover. "

> >

> > (Me) " I didn't see that. "

> >

> > (Her) " You don't read your Time magazine ? " (she gifted me the

subscription).

> >

> > (Me) " Yes I read it but I don't read every issue cover to cover. However,

our condition is not really well known, I don't think it was in Time magazine. I

would have seen a post on the web group. "

> >

> > (Her) " Oh yes it was ... " blah blah blah.

> >

> > I told her if she found that issue to mail it to me. Seriously though I

can't believe there was an article in a major magazine and no posts on this

site.

>

[Guest guest]

I did respond - apparently it didn't get printed. Perhaps we could take the

mass-writing approach and write to the author c/o the magazine. He's apparently

a staff writer.

Letter to the editor response: Jan 4, 2010

I only wish the condition described here was indeed simply a phobia. I belong

to an " underground " of fellow sufferers that Mr. Grossman needs to know about.

Our collective decades of self-medication, attempts at diagnosis and behavioral

and psycho therapies will shed some light on this condition for him and his

doctor. (Simply Google " I hate eating sounds " . Research will easily start

there.) We have discovered striking commonalities such as average age of onset

and extremely close patterns of stimulus/response across those who have

identified as having Soft Sound Sensitivity Syndrome (coined by Dr. M. ,

audiologist in OR.) I now know that there may be a genetic link: my father was

violent (fight or flight response) when triggered and other members of my family

will not eat with other people because of the trigger sounds. I watch the news

and look for 4S: the lab assistant who broke up with his girlfriend because she

breathed too loud and the man who attacked the ice cream truck driver because of

the music are just two I've seen recently. There are those of us like me who

are fortunate enough to have insurance trying to get brain scans to see what

" wires are crossed " , and we look for any opportunity to increase public

awareness. The prolonged stress and adrenal exhaustion alone is debilitating

(for me: 43 years) but to not know what's going on and to spend tens of

thousands of dollars on therapy like I did is worse, especially in this day of

instant information on the internet. Please get the doctor to do his research

and help others do it too.

> >

> > (Her) " Oh there was a big article in Time magazine on that. It was on the

cover. "

> >

> > (Me) " I didn't see that. "

> >

> > (Her) " You don't read your Time magazine ? " (she gifted me the

subscription).

> >

> > (Me) " Yes I read it but I don't read every issue cover to cover. However,

our condition is not really well known, I don't think it was in Time magazine. I

would have seen a post on the web group. "

> >

> > (Her) " Oh yes it was ... " blah blah blah.

> >

> > I told her if she found that issue to mail it to me. Seriously though I

can't believe there was an article in a major magazine and no posts on this

site.

>

[Guest guest]

I did respond - apparently it didn't get printed. Perhaps we could take the

mass-writing approach and write to the author c/o the magazine. He's apparently

a staff writer.

Letter to the editor response: Jan 4, 2010

I only wish the condition described here was indeed simply a phobia. I belong

to an " underground " of fellow sufferers that Mr. Grossman needs to know about.

Our collective decades of self-medication, attempts at diagnosis and behavioral

and psycho therapies will shed some light on this condition for him and his

doctor. (Simply Google " I hate eating sounds " . Research will easily start

there.) We have discovered striking commonalities such as average age of onset

and extremely close patterns of stimulus/response across those who have

identified as having Soft Sound Sensitivity Syndrome (coined by Dr. M. ,

audiologist in OR.) I now know that there may be a genetic link: my father was

violent (fight or flight response) when triggered and other members of my family

will not eat with other people because of the trigger sounds. I watch the news

and look for 4S: the lab assistant who broke up with his girlfriend because she

breathed too loud and the man who attacked the ice cream truck driver because of

the music are just two I've seen recently. There are those of us like me who

are fortunate enough to have insurance trying to get brain scans to see what

" wires are crossed " , and we look for any opportunity to increase public

awareness. The prolonged stress and adrenal exhaustion alone is debilitating

(for me: 43 years) but to not know what's going on and to spend tens of

thousands of dollars on therapy like I did is worse, especially in this day of

instant information on the internet. Please get the doctor to do his research

and help others do it too.

> >

> > (Her) " Oh there was a big article in Time magazine on that. It was on the

cover. "

> >

> > (Me) " I didn't see that. "

> >

> > (Her) " You don't read your Time magazine ? " (she gifted me the

subscription).

> >

> > (Me) " Yes I read it but I don't read every issue cover to cover. However,

our condition is not really well known, I don't think it was in Time magazine. I

would have seen a post on the web group. "

> >

> > (Her) " Oh yes it was ... " blah blah blah.

> >

> > I told her if she found that issue to mail it to me. Seriously though I

can't believe there was an article in a major magazine and no posts on this

site.

>

[Guest guest]

heh I have my custom ringtones that I switch between and are assigned to

different ppl:

Blondie - Call Me

Sonic Youth - Kool Thing

Theme from Scooby Doo

Bat For Lashes - What's a Girl To Do?

New Order - Age of Consent

Black Eyed Peas - My Humps

Phoenix - 1901

I probably should update them now that one is a car commercial.

That would be awesome to hear Zepplin as a ring tone " Hey Hey mama gonna make

you move, gonna make you sweat gonna make you groove! " like when it's really

quiet somewhere like a funeral! Tacky!

> > > >

> > > > , I totally get this. I'm the youngest child of four, but even at

43 my family second-guesses me about things JUST LIKE THIS. For example, I got

my first cell phone five years ago. A late adopter, yes, because I didn't

necessarily WANT to be reached at any and all times.

> > >

> >

>

[Guest guest]

Mine is, I have an htc tilt and I use a stylus on the screen and you can't hear

it tap at all, not even in a quiet room. I bought it for the slide out keyboard

that I never use now, but even that is silent.

Of course I'm a gentle person with most everything so maybe it's just me.

> > > > >

> > > > > , I totally get this. I'm the youngest child of four, but even

at 43 my family second-guesses me about things JUST LIKE THIS. For example, I

got my first cell phone five years ago. A late adopter, yes, because I didn't

necessarily WANT to be reached at any and all times.

> > > >

> > >

> >

> >

> >

> >

> > ------------------------------------

> >

> > PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO

BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED

OR COPIED AND MAILED FOR ANY PURPOSE.

> >

> > ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.

> > Thank you. MJ

[Guest guest]

Aw man. Sorry, . At least you can't hear me doing it across the water.

Jay

> > > > >

> > > > > , I totally get this. I'm the youngest child of four, but even

at 43 my family second-guesses me about things JUST LIKE THIS. For example, I

got my first cell phone five years ago. A late adopter, yes, because I didn't

necessarily WANT to be reached at any and all times.