OSR- our first week

[Guest guest]

Our first week on OSR

Alot of you have asked us to keep you posted

The week before we started the OSR was ' (Age 10 ASD) worst week

at school EVER. He had hours each day where he refused to work or put

on or take off outside clothes. We tried to adjust his schedule to

allow for less transition each day and only lunch recess outside to

limit down time from clothing changes. seemed unable to

communicate verbally at all. Total words uttered on purpose (not

echolalia) seemed to be less than 3 per hour. had migrane like

light problems and headaches, he is also cutting his 12 year molars.

The molars are pushing through at the back and have not broken the

skin yet but it is swollen and red mounds ontop of the emerging teeth

that are causing him alot of pain. His teacher called me to ask

'Where is MY , we miss him. " His eye that does not track well was

way way way off. We decided not to delay the OSR on the off chance

that it helped the situation at all.

We started Monday with 50mg once per day at bedtime with other meds

including fish oil. Went to 100 mg on Thursday and about 120 mg (2

rounded spoons). He improved within a couple of days from the week

before. His teacher stated that he was able to focus for about half

the day. One day morning the next afternoon etc. He does not seem to

have any trouble with headaches this week but the teeth are bad. I had

to resort to giving him advil liquid because he came to me with his

mouth open, showing me his teeth then he said ' is sad' and then

started to cry. He has been home from school with me for a couple of

days. We will try him tomorrow with a dose of advil. I will try to

limit the advil as much as possible. If you have any other

suggestions please offer. Tried the oraljel, got it in once but he

sees it coming now and won't co-operate.

I would equate this week with the second week of diflucan/valtrex. It

is really hard to put your finger on the gains as communication is so

limited but he looks different, he sounds different (less distress in

his voice) and he is sitting on the couch for example instead of

sprawling on the floor.

I think will see the benefits of this treatment in a few months when

he can get back outside and the constant sickness season has left us.

We started the valtrex in January too and we experienced the same

issues last year. The gains where there we just couldn't see them yet

if you know what I mean.

He comes to us and gives hugs and kisses when he wants something as it

is hard for him to say what he wants. He sucks up, it is a nice

change from meltdowns, let me tell you!

is reading over my shoulder, I just asked him what he wanted me

to tell you. He said " is sick today. "

I have been taking the OSR at double dose to see the effects and

treat my amalgam issues. I get dizzy within about 20 min and

continues on and off for about 1-2 hours. Equal to that of the spins

you get when you are operating on 4 hours sleep, nothing too major.

takes it right before melatonin so he will be asleep for any

immediate effects. We have both increased our water intake by 2-3

glasses per day. I have sent water to school with him as well.

Will keep you posted on our progress weekly as we ramp up to larger

doses.

Bye for now

Waterloo, Ontario