Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 << the past week all my joints esp. my neck have begun cracking whenever i move. i hate that sound and have never had this happen. what causes the cracking? i know ...I am cracking up, that's it! >> Sharon, I know all about the cracking noise, it is very unsettleing. Also, you are not cracking up alone...just wanted you to know that you had company.....don't you feel like humpty dumpty ....lol ? Your Lyme Friend, in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 1999 Report Share Posted November 1, 1999 << Barb - MI >> Thank you for taking the time to get all of this together. I would also like to thank those individuals who are taking the time to put it on paper, so that we may be there not only in spirit, but in writing !!! What a wonderful Family this is !!! Your Lyme Friend, in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 In a message dated 3/19/00 7:21:06 PM, onelist writes: << Some is on research at the NIMH and also Stanley Labs at Hopkins(?) is looking at the role of retroviruses in schizophrenia and bipolar. Some of the abstracts I have also touch on bacteria and some other pathogens. It seems like they are starting to look at some of the same things involved in CFS. >> Cheryl I have read about retroviruses in schiphrenia and bipolar. But the info on bacteria is very interesting because my husband, daughter and I all have the M. fermentans. My son tested negative, however, and he has been diagnosed with schizophrenia and bipolar. We were all tested 3 years ago. I don't know how my son escaped it. I have been thinking about having him retested, however. Dianne in Monterey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 In a message dated 3/19/00 7:21:06 PM, onelist writes: << Don't really know what you mean by this question. >> Sorry about the question being so confusing. My cognitive functions were very bad that day. Anyway the Healthy Flora capsule contains lactoferrin. I do not take the whey products. I was just wondering if the lactoferrin in the Healthy Flora capsule is as good as taking Immunocal or the other whey products. Taking it in pill form sounds a whole lot better than messing with the whey. Thanks, Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2000 Report Share Posted March 20, 2000 Dianne, I wanted to see if my link for Stanleylab @ Hopkins still worked. I started looking at some of the info on their site and found some interesting things. Some of their symposium abstracts mention infections that are discussed in CFS. It could be that your son doesn't have the same infection as the rest of you, maybe some other type of bacteria, virus, etc. Here's their link if you or anyone else is interested. The abstract that I had looked at was from 99, but some of the previous years looked pretty interesting. For the abstracts click on symposium information, then click on prior years. This will bring up 99 and prior yrs. Cheryl http://www.med.jhu.edu/stanleylab > From: fdscafe@... > > > Cheryl > I have read about retroviruses in schiphrenia and bipolar. But the info on > bacteria is very interesting because my husband, daughter and I all have the > M. fermentans. My son tested negative, however, and he has been diagnosed > with schizophrenia and bipolar. We were all tested 3 years ago. I don't > know how my son escaped it. I have been thinking about having him retested, > however. > > Dianne in Monterey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 Hi Dianne, Monterey as in Monterey, California? I'm in ville and just became a patient of Dr. Press in Monterey yesterday. Thought I'd say hi to a neighbor. BTW, I've was diagnosed as bipolar 2 years ago, and my boyfriend has had it since his 20's. He's doing very well on Depakote. Having both schizophrenia and bipolar disorder must be very difficult for your son, and the whole family as well. Then for 3 of you to have mycoplasma to cope with, you have my sympathy, that's a lot to have going on. I'm also interested in this connection between viruses and mental illness, because I am the only person in my family diagnosed with a mental illness and we're not sure why. I'm really more of a depressive, the only thing that has brought out bipolar was taking SSRI antidepressants. So its a bit of a mystery to me. Abra >I have read about retroviruses in schiphrenia and bipolar. But the info on >bacteria is very interesting because my husband, daughter and I all have >the >M. fermentans. My son tested negative, however, and he has been diagnosed >with schizophrenia and bipolar. We were all tested 3 years ago. I don't >know how my son escaped it. I have been thinking about having him >retested, >however. > >Dianne in Monterey > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 ..just to note, I too have the compensation game going on. Whats good (or should I just say better) on one side is bad on the other..... I thought I was the only " odd " one.LOL To all parents I need some help or advice: I along with the local Arthritis Foundation and an area Ped. rheumie are brainstorming to put together something for JRA families. My question to you is what do you think would be of benefit if this were your community???? I do the newsletter but we feel a need for more, any suggestions are deeply appreciated... a support group a phone tree social events etc,etc thanks.....Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 I think a support group for parents and kids would be very helpful. - S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2000 Report Share Posted December 22, 2000 I agree with you. A support group would be great. Michele Re: Digest Number 770 I think a support group for parents and kids would be very helpful. - S. For links to websites with JRA info please visit: http://www.geocities.com/Heartland/Village/8414/Links.html To manage your subscription settings, visit: subscribe/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2000 Report Share Posted December 22, 2000 I agree!! I host a chat on JRAWorld on Wednesday nights from 10 to 11 pm (eastern) for parents of children with JRA. I hope to see some of you there! Donna Re: Digest Number 770 > I think a support group for parents and kids would be very helpful. > - S. > > > For links to websites with JRA info please visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > To manage your subscription settings, visit: > subscribe/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2000 Report Share Posted December 23, 2000 Donna I've been in your chats and I've really enjoyed them. Especially talking with parents and how they deal with jra and their children. Ywellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2000 Report Share Posted December 23, 2000 Hi Donna, I think it would be most beneficial to have scheduled activities and get togethers, social events, inviting parents and children a few times a year. That way people could meet others socially, semi-locally, make contacts with them, make new friends. Exchange numbers. Exchange info. Recommend books to read, etc. That kind of thing. Here, we have an annual JRA Camp. It's just for the children though. Josh has a great time. Gets to hang out with his " JRA Friends " at least once a year, doing fun activities, informally, with the supervision of his docs, nurses, and the rest of the health care team from Shriner's. Kayla would love to be able to be a part of this experience. And that might be a really good idea. They could have a group session of talking and expressing feelings, specifically for siblings of those with JRA. But ... it happens off-island, on Oahu. So the expense of flying out might be prohibitive. So, just our kids with JRA go. In a different area, where one could drive to the event, that might be a valuable experience. Integrating the brothers and sisters of kids with JRA. I know Kayla misses being able to go to Josh's doctor appts, even. Since they happen on school days she doesn't join us anymore. She does get to go when Josh has his MTX injected and for his blood work and she likes to let him squeeze her hand. Give him some moral support Take Care, Georgina faces1999@... wrote: > > ..just to note, I too have the compensation game going on. Whats good > (or should I just say better) on one side is bad on the other..... I thought > I was the only " odd " one.LOL > > To all parents I need some help or advice: > I along with the local Arthritis Foundation and an area Ped. rheumie are > brainstorming to put together something for JRA families. My question to you > is what do you think would be of benefit if this were your community???? > I do the newsletter but we feel a need for more, any suggestions are deeply > appreciated... > a support group > a phone tree > social events > etc,etc > thanks.....Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2001 Report Share Posted February 11, 2001 dear barbara and list members, my lawsuit has ended. thought you might like to read the recent newspaper article and my follow-up letter to the editor. guess i've let you all down, but my friend, peggy, dropped out at the most crucial time, and so did my own attorney! i made the mistake of hiring a fancy attorney in jacksonville who usually works for the other side in environmental cases. he took the case "gratis" but then changed to 20% and finally just told us to "settle or get someone new" when his boss came down on him hard because of high costs to the firm. my advice to those of you who are suing: get a good, hungry, aggressive, personal injury attorney -- and insist on seeing a doctor and getting lab tests immediately, not six months after cleanup of toxin/mold has occurred. mello/joanne Friday, January 26, 2001 DBCC averts trial, pays two $25,000 each in sick-building case By CINDI BROWNFIELD (cindi.brownfield@...) Education WriterDAYTONA BEACH -- Daytona Beach Community College has paid $25,000 apiece to two women who sued the college over moisture-related air quality problems in the offices where they worked. Details of the settlement of the lawsuit, which was related to air quality problems in a classroom/office building at the University of Central Florida's Daytona Beach campus, were released this week. UCF leases the building on the DBCC campus from the community college. Peggy Ferrante, an administrative assistant at UCF, and Joanne Ogburn Ferdinando, who retired in July 1998 as coordinator of information services at UCF, say they have continuing health problems. They say the problems are caused by elevated levels of fungus, bacteria and mold found in 1997 in Building 34, where they worked. The women filed the suit in August 1998. DBCC, which spent $520,000 cleaning and repairing the building, admitted no liability with the settlement. Ferrante and Ferdinando released the college from any future claims. Ferdinando said she would have preferred to take the case to court, but was advised to settle by her attorney. A consultant for DBCC discovered a potentially toxic fungus growing under the wallpaper in Ferdinando's office in 1997. Ferdinando has suffered a variety of ailments, including sinus headaches, muscle tremors, and a compromised immune system, that she believes were caused by the air quality problems. She said her doctor has restricted her from donating blood because the longterm effects of exposure to the fungus are not known. "My main objective was to spark a new DBCC philosophy of caring and concern for employee health and welfare," she said. "(But) I am not convinced that our actions over the past four years accomplished very much at all." Ferrante, who developed bronchial asthma in 1995, said she was satisfied with repairs of the damage caused by water intrusion. Wallpaper was removed and tile was installed in her office, but she says there are still dust mite problems in other offices because the building isn't regularly vacuumed. Ferrante said she agreed to the settlement because she wanted to end the fight. "It just dragged on and on and on and I just couldn't do it anymore. It was just too much stress and I just wanted it to be over with," she said. Dr. Chuck Mojock, a DBCC vice president, said DBCC promptly corrected the moisture-related problems when they were found. The Legislature gave the college $500,000 for repairs at DBCC's request. "Our testing after all the work was completed in May 1999 indicated no air quality problems at that time, nor are there any problems at the present time," Mojock said. A second sick-building lawsuit was filed against DBCC last March by DBCC alumna Lolita ey, who says mildew and mold in her classrooms made her sick when she was a student. ey's suit complains of moisture-related air quality problems in buildings 34 (the UCF building), 18 (arts and sciences) and 27 (allied health). DBCC is currently planning extensive repairs to the allied health building.   February 2, 2001 TO:       DAYTONA BEACH NEWS-JOURNAL               LETTERS TO THE EDITOR      The recent article about Daytona Beach Community College’s (DBCC) sick-building-case lacked important details.  This lawsuit was the first and last I will ever undertake.  It has been a strain and a burden.       DBCC can be sued for up to $100,000; higher amounts require special legislative approval.  This protection allows DBCC to act cavalierly when building conditions cause health problems for employees or students.  DBCC eventually paid $520,000 to clean up two campus buildings, but requested and received $500,000 from the state legislature and delayed THREE YEARS after being advised by work order and verbally that a serious problem existed.  UCF Environmental Safety (ES) officials from Orlando urged DBCC for several months to contract with an outside firm to perform an air quality study and helped pay for that study.  As soon as that air report was issued, UCF ES requested immediate evacuation of all UCF employees and students from Daytona Beach Campus.  I took that initial call and transferred it to the UCF Assistant Director who contacted DBCC -- strangely, that evacuation never took place.    According to the DBCC air study, 35 million cfu’s (colony-forming units) of stachybotrys chartarum, a toxin dangerous to human beings, plants, and animals, were found in my office.  A finding of 1000 cfu’s would be considered highly dangerous.  Yet, I was allowed to continue to work in that office for an additional week and was not told about this finding.  Men in "space suits" eventually arrived to do the clean-up.  It was later explained to me that since I had worked in there for 10 years, a few more days shouldn’t matter, and the negative publicity caused by an office evacuation would have harmed DBCC and UCF.  Not very comforting to me!  That is why I initiated the lawsuit.   Peggy Ferrante and I will each receive $10,000 after three years of lengthy depositions, frequent trips within Florida and to New York to see doctors and attorneys, and the personal stigma of suing a prestigious community college that does much good in this area educationally.  We will never be in good health again, yet DBCC refused to include future health costs in our settlement.  Neither Peggy nor I have ever requested or received even one day of sick pay from worker’s compensation.  We are both hard-working people who do not let illnesses keep us down and do not "milk" the system. Joanne Ferdinando   Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 It's me again all: I think hit the nail on the head when she employed the term " scare tactics " . And this doctor did a lot of fusion/Harrington rod surgeries back then. As I said, mine could have waited a while. In fact, my mother has scoliosis. Her curves are worse than what I can determine mine to have been presurgery. And she has never had surgery. So I know that my situation could not have been as " dire " as the doctor made it out to be. With Blessings & Love, Carla Kay ~ Ps. 96:1 O come let us sing unto the Lord: let us make a joyful noise to the rock of our salvation. Quote Link to comment Share on other sites More sharing options...
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