Guest guest Posted August 24, 1999 Report Share Posted August 24, 1999 In a message dated 8/24/99 2:32:30 PM Eastern Daylight Time, sandy@... writes: << Hi everyone! I am so GLAD I found this group! I was dign. about 6wks. ago with Chiari after MRI to verify a herniated disk. Needless to say my husband and I were pretty upset. Ofcourse we had never heard of such a thing. I have an 11mm chiari but really no symptoms as of yet. I have other health problems that causes the same symptoms so it is kind of a toss up. I went to a wonderful Dr. at Univ. of Mo. for the disk problem. He also has done major research in the field of ACM. So I go back to him Sept.7 for a good talk about this problem with the ACM and I go in Sept8 for surgery on my disk. So anything you all can tell me would be very appreciated. Sandy >> Welcome Sandy, I am in the posoition as you only I don't know for sure about my NSG. This board will give you a wealth of information and the people here are great about answering any questions you have. My only advice since I am also new to board is, READ READ READ, all you can about this disorder so you will understand it. I know that reading every link anyone gave me, along with this board, has helped me go from Scared Stiff -to denial(SP) to understanding and knowledge. Good luck to you. Who is your great Dr? Hugs Carol Temperance MI ACM1 7mm-No surgery yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 1999 Report Share Posted November 5, 1999 Hi , Welcome to the list. It's good to hear from another British parent!! My son Jack (age 27mths and Charge) had an MRI scan in January of this year to check his pituitary gland. It showed that the gland was the correct size and in the correct position but didn't show if it was working correctly or not. In September his endocrinologist took blood to check his growth hormone(preliminary test IGF1) and it has come back show that growth hormone is low. We are now waiting to find out what happens next!! Jack is very small for his age-20lbs1oz and 75cms tall and I feel that he may need growth hormones in the future. As far as kidneys are concerned I can't stress enough the importance of having an ultrasound of the kidneys and also a MCUG to check for kidney problems and vesicoureteral reflux. Because of the information on this list about vesicoureteral reflux I insisted that Jack had this test. It showed that he has reflux on both kidneys and is now on prophylactic antibiotics(trimephoprim) daily. He has since developed bilateral staghorn kidney stones and has had one episode of lithotripsy to disperse them. He still requires at least another 3 treatments to hopefully clear them. He is quite high risk of them recurring. Jack showed absolutely no symptoms of urinary infections and his paed was not keen at first to do the MCUG. Needless to say, she is now very glad she did!!! Hope this helps Elaine mum to Elise(7yrs) & Jack(27mths)CHaRGE Dumfries,Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 1999 Report Share Posted November 5, 1999 Hi , Welcome to the list. It's good to hear from another British parent!! My son Jack (age 27mths and Charge) had an MRI scan in January of this year to check his pituitary gland. It showed that the gland was the correct size and in the correct position but didn't show if it was working correctly or not. In September his endocrinologist took blood to check his growth hormone(preliminary test IGF1) and it has come back show that growth hormone is low. We are now waiting to find out what happens next!! Jack is very small for his age-20lbs1oz and 75cms tall and I feel that he may need growth hormones in the future. As far as kidneys are concerned I can't stress enough the importance of having an ultrasound of the kidneys and also a MCUG to check for kidney problems and vesicoureteral reflux. Because of the information on this list about vesicoureteral reflux I insisted that Jack had this test. It showed that he has reflux on both kidneys and is now on prophylactic antibiotics(trimephoprim) daily. He has since developed bilateral staghorn kidney stones and has had one episode of lithotripsy to disperse them. He still requires at least another 3 treatments to hopefully clear them. He is quite high risk of them recurring. Jack showed absolutely no symptoms of urinary infections and his paed was not keen at first to do the MCUG. Needless to say, she is now very glad she did!!! Hope this helps Elaine mum to Elise(7yrs) & Jack(27mths)CHaRGE Dumfries,Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 1999 Report Share Posted November 5, 1999 Hi , Welcome to the list. It's good to hear from another British parent!! My son Jack (age 27mths and Charge) had an MRI scan in January of this year to check his pituitary gland. It showed that the gland was the correct size and in the correct position but didn't show if it was working correctly or not. In September his endocrinologist took blood to check his growth hormone(preliminary test IGF1) and it has come back show that growth hormone is low. We are now waiting to find out what happens next!! Jack is very small for his age-20lbs1oz and 75cms tall and I feel that he may need growth hormones in the future. As far as kidneys are concerned I can't stress enough the importance of having an ultrasound of the kidneys and also a MCUG to check for kidney problems and vesicoureteral reflux. Because of the information on this list about vesicoureteral reflux I insisted that Jack had this test. It showed that he has reflux on both kidneys and is now on prophylactic antibiotics(trimephoprim) daily. He has since developed bilateral staghorn kidney stones and has had one episode of lithotripsy to disperse them. He still requires at least another 3 treatments to hopefully clear them. He is quite high risk of them recurring. Jack showed absolutely no symptoms of urinary infections and his paed was not keen at first to do the MCUG. Needless to say, she is now very glad she did!!! Hope this helps Elaine mum to Elise(7yrs) & Jack(27mths)CHaRGE Dumfries,Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 1999 Report Share Posted November 5, 1999 Hi , Welcome to the list. It's good to hear from another British parent!! My son Jack (age 27mths and Charge) had an MRI scan in January of this year to check his pituitary gland. It showed that the gland was the correct size and in the correct position but didn't show if it was working correctly or not. In September his endocrinologist took blood to check his growth hormone(preliminary test IGF1) and it has come back show that growth hormone is low. We are now waiting to find out what happens next!! Jack is very small for his age-20lbs1oz and 75cms tall and I feel that he may need growth hormones in the future. As far as kidneys are concerned I can't stress enough the importance of having an ultrasound of the kidneys and also a MCUG to check for kidney problems and vesicoureteral reflux. Because of the information on this list about vesicoureteral reflux I insisted that Jack had this test. It showed that he has reflux on both kidneys and is now on prophylactic antibiotics(trimephoprim) daily. He has since developed bilateral staghorn kidney stones and has had one episode of lithotripsy to disperse them. He still requires at least another 3 treatments to hopefully clear them. He is quite high risk of them recurring. Jack showed absolutely no symptoms of urinary infections and his paed was not keen at first to do the MCUG. Needless to say, she is now very glad she did!!! Hope this helps Elaine mum to Elise(7yrs) & Jack(27mths)CHaRGE Dumfries,Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 1999 Report Share Posted November 5, 1999 Hi , Welcome to the list. It's good to hear from another British parent!! My son Jack (age 27mths and Charge) had an MRI scan in January of this year to check his pituitary gland. It showed that the gland was the correct size and in the correct position but didn't show if it was working correctly or not. In September his endocrinologist took blood to check his growth hormone(preliminary test IGF1) and it has come back show that growth hormone is low. We are now waiting to find out what happens next!! Jack is very small for his age-20lbs1oz and 75cms tall and I feel that he may need growth hormones in the future. As far as kidneys are concerned I can't stress enough the importance of having an ultrasound of the kidneys and also a MCUG to check for kidney problems and vesicoureteral reflux. Because of the information on this list about vesicoureteral reflux I insisted that Jack had this test. It showed that he has reflux on both kidneys and is now on prophylactic antibiotics(trimephoprim) daily. He has since developed bilateral staghorn kidney stones and has had one episode of lithotripsy to disperse them. He still requires at least another 3 treatments to hopefully clear them. He is quite high risk of them recurring. Jack showed absolutely no symptoms of urinary infections and his paed was not keen at first to do the MCUG. Needless to say, she is now very glad she did!!! Hope this helps Elaine mum to Elise(7yrs) & Jack(27mths)CHaRGE Dumfries,Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 1999 Report Share Posted November 5, 1999 Hi , Welcome to the list. It's good to hear from another British parent!! My son Jack (age 27mths and Charge) had an MRI scan in January of this year to check his pituitary gland. It showed that the gland was the correct size and in the correct position but didn't show if it was working correctly or not. In September his endocrinologist took blood to check his growth hormone(preliminary test IGF1) and it has come back show that growth hormone is low. We are now waiting to find out what happens next!! Jack is very small for his age-20lbs1oz and 75cms tall and I feel that he may need growth hormones in the future. As far as kidneys are concerned I can't stress enough the importance of having an ultrasound of the kidneys and also a MCUG to check for kidney problems and vesicoureteral reflux. Because of the information on this list about vesicoureteral reflux I insisted that Jack had this test. It showed that he has reflux on both kidneys and is now on prophylactic antibiotics(trimephoprim) daily. He has since developed bilateral staghorn kidney stones and has had one episode of lithotripsy to disperse them. He still requires at least another 3 treatments to hopefully clear them. He is quite high risk of them recurring. Jack showed absolutely no symptoms of urinary infections and his paed was not keen at first to do the MCUG. Needless to say, she is now very glad she did!!! Hope this helps Elaine mum to Elise(7yrs) & Jack(27mths)CHaRGE Dumfries,Scotland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 1999 Report Share Posted November 5, 1999 Hello everybody Help can someone answer my questions? I am quite new to the list and have so far only been a reader, my daughter Jennie has suspected but unconfirmed CHARGE although reading the list I am certain she has CHARGE. I have found out a lot more information than I ever knew, and I have a couple of questions (unanswered by doctors - the so called specialists !) that I am sure other people on the list will be able to answer? 1. Jennie had her pituatory gland tested about 4 years ago for growth hormones and she is producing them but she is short for her age (my other children are overtaking her) she is growing all be it slowly. My question is Are their any chargers out there producing hormones that are having injections to boost their growth? 2. Jennie has no known problems with her kidneys (although can not tell you after she has been to the toilet if she has done a no 1 or no 2's) but recently had a bladder/kidney infection and I suspect she has got another (awaiting a visit to the doctors). I am concerned there is an undiagnosed problem Are their other chargers who have similar experiences ? Mum to Emma 10, Jennie 9 ChA?RgE, Tim 7, 5 and Becky 2 Essex, England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 1999 Report Share Posted November 5, 1999 Hello everybody Help can someone answer my questions? I am quite new to the list and have so far only been a reader, my daughter Jennie has suspected but unconfirmed CHARGE although reading the list I am certain she has CHARGE. I have found out a lot more information than I ever knew, and I have a couple of questions (unanswered by doctors - the so called specialists !) that I am sure other people on the list will be able to answer? 1. Jennie had her pituatory gland tested about 4 years ago for growth hormones and she is producing them but she is short for her age (my other children are overtaking her) she is growing all be it slowly. My question is Are their any chargers out there producing hormones that are having injections to boost their growth? 2. Jennie has no known problems with her kidneys (although can not tell you after she has been to the toilet if she has done a no 1 or no 2's) but recently had a bladder/kidney infection and I suspect she has got another (awaiting a visit to the doctors). I am concerned there is an undiagnosed problem Are their other chargers who have similar experiences ? Mum to Emma 10, Jennie 9 ChA?RgE, Tim 7, 5 and Becky 2 Essex, England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 1999 Report Share Posted November 5, 1999 > Hello everybody > Help can someone answer my questions? > 1. Jennie had her pituatory gland tested about 4 years ago for growth hormones and she is producing them but she is short for her age (my other children are overtaking her) she is growing all be it slowly. My question is Are their any chargers out there producing hormones that are having injections to boost their growth? > 2. Jennie has no known problems with her kidneys but recently had a bladder/kidney infection and I suspect she has got another (awaiting a visit to the doctors). I am concerned there is an undiagnosed problem Are their other chargers who have similar experiences ? Welcome ! Our son was recently diagnosed as having growth hormone (G.H.) deficiency. This involved baseline blood tests and injections followed by timed blood draws and bone age (x-rays) determinations. Most kids with G.H. deficiency do not have zero G.H., but rather markedly decreased levels. has continued to grow very slowly in height, but his feet and kidneys have not grown in 2 1/2 years. He is about 34 inches tall and 28 pounds at 4 1/4 years of age. We just started G.H. therapy a week ago and are hoping that all his body parts will start growing now. As for question 2, CHARGErs appear to have an increased incidence of reflux from the bladder to the kidneys compared with the general population. This can result in damage to the kidneys and kidney failure if infections are not prevented prophylactically with an antibiotic (like bactrim) given daily. The only way to know for sure whether someone has vesicoureteral reflux (reflux from bladder to kidneys) is to have a voiding cystourethrogram (VCUG), also called a micturating cystourethrogram (MCUG) in the U.K. performed. To do this they catheterize the child while awake, inject a dye, and watch by fluoroscopy as they urinate to see if the urine (now has dye in it so it can be seen) travels back to the kidney. It would be a good idea to have checked to make sure that the infection is not affecting her kidneys as well as her bladder. Welcome to the list and good luck with 's issues. Cheryl, , (6), (4, CHaRGE) MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 1999 Report Share Posted November 5, 1999 > Hello everybody > Help can someone answer my questions? > 1. Jennie had her pituatory gland tested about 4 years ago for growth hormones and she is producing them but she is short for her age (my other children are overtaking her) she is growing all be it slowly. My question is Are their any chargers out there producing hormones that are having injections to boost their growth? > 2. Jennie has no known problems with her kidneys but recently had a bladder/kidney infection and I suspect she has got another (awaiting a visit to the doctors). I am concerned there is an undiagnosed problem Are their other chargers who have similar experiences ? Welcome ! Our son was recently diagnosed as having growth hormone (G.H.) deficiency. This involved baseline blood tests and injections followed by timed blood draws and bone age (x-rays) determinations. Most kids with G.H. deficiency do not have zero G.H., but rather markedly decreased levels. has continued to grow very slowly in height, but his feet and kidneys have not grown in 2 1/2 years. He is about 34 inches tall and 28 pounds at 4 1/4 years of age. We just started G.H. therapy a week ago and are hoping that all his body parts will start growing now. As for question 2, CHARGErs appear to have an increased incidence of reflux from the bladder to the kidneys compared with the general population. This can result in damage to the kidneys and kidney failure if infections are not prevented prophylactically with an antibiotic (like bactrim) given daily. The only way to know for sure whether someone has vesicoureteral reflux (reflux from bladder to kidneys) is to have a voiding cystourethrogram (VCUG), also called a micturating cystourethrogram (MCUG) in the U.K. performed. To do this they catheterize the child while awake, inject a dye, and watch by fluoroscopy as they urinate to see if the urine (now has dye in it so it can be seen) travels back to the kidney. It would be a good idea to have checked to make sure that the infection is not affecting her kidneys as well as her bladder. Welcome to the list and good luck with 's issues. Cheryl, , (6), (4, CHaRGE) MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 1999 Report Share Posted November 6, 1999 , Welcome to the list! I'm glad you found us! As for your second question, has Jennie had a VCUG test done? (voiding cystourethrogram), this is to test for bladder to kidney reflux. I believe it is pretty common, at least around here on the list. This could be the cause of her UTI, and can also cause long-term problems if not diagnosed and properly treated. They can have UTI's that are without symptoms as well which can cause the kidneys damage over the long haul. I would ask her paediatrician to have a VCUG test done, if it has not been done previously. Hope you enjoy the list! Mom to Kennedy 21 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 Re: New member Hello everybody Help can someone answer my questions? I am quite new to the list and have so far only been a reader, my daughter Jennie has suspected but unconfirmed CHARGE although reading the list I am certain she has CHARGE. I have found out a lot more information than I ever knew, and I have a couple of questions (unanswered by doctors - the so called specialists !) that I am sure other people on the list will be able to answer? 1. Jennie had her pituatory gland tested about 4 years ago for growth hormones and she is producing them but she is short for her age (my other children are overtaking her) she is growing all be it slowly. My question is Are their any chargers out there producing hormones that are having injections to boost their growth? 2. Jennie has no known problems with her kidneys (although can not tell you after she has been to the toilet if she has done a no 1 or no 2's) but recently had a bladder/kidney infection and I suspect she has got another (awaiting a visit to the doctors). I am concerned there is an undiagnosed problem Are their other chargers who have similar experiences ? Mum to Emma 10, Jennie 9 ChA?RgE, Tim 7, 5 and Becky 2 Essex, England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 In a message dated 00-08-18 13:02:32 EDT, you write: << Sorry, but I must be in the wrong place, because I don't follow the Bernstein book. >> No, no, ...I just said it was the best all-over informational book about diabetes. I'll stick by that one. But I think most of us have somewhat modified his approach ...that 6-12-12 carb business is just too hard to stick by forever. Personally, I've got my carbs down to between 75 and 100 a day and between this, small doses of insulin and exercise, I'm in pretty good control now. But you're right...all we need to do is find the approach that works for each of us. Some people do appear to do okay on the ADA food pyramid...but lower carbing makes a lot of sense too when you think about how carbs turn into sugar. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 In a message dated 00-08-18 13:02:32 EDT, you write: << Sorry, but I must be in the wrong place, because I don't follow the Bernstein book. >> No, no, ...I just said it was the best all-over informational book about diabetes. I'll stick by that one. But I think most of us have somewhat modified his approach ...that 6-12-12 carb business is just too hard to stick by forever. Personally, I've got my carbs down to between 75 and 100 a day and between this, small doses of insulin and exercise, I'm in pretty good control now. But you're right...all we need to do is find the approach that works for each of us. Some people do appear to do okay on the ADA food pyramid...but lower carbing makes a lot of sense too when you think about how carbs turn into sugar. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Roseann > Last month a fifteen hour fasting level was 313 > and the hgbac was 13. My doctor has prescribed > Glucophage at 500 mg twice daily, an 1800 calorie > diet (225 g carbs) and exercise. I'm overweight, BMI 30. Your history and treatment sound very similar to mine, except that I was BMI 36+ in January 2000 and am now down to BMI 32+. The original metformin treatment target was reduction to HbA1c of 7% after 2 years but mine came down from 12+ in September 1999 to 5.6 (normal range 3.5-6.6) in March 2000 and has remained around there ever since. > I have been taking the glucophage for about six weeks. > My morning fasting test is usually between 122-135. > My post two hour dinner test is around 150-161. A late evening test is lower > 98-111. My results were about the same after the first three months on 2x500mg Glucophage and they slowly came down to FBG 90-100 mg/dl, 2-hrs 130-160 mg/dl (when I am not experimenting) and late evening 90-110. But you will have to keep going for a while - six weeks is just nothing. > I hope this regimen of Glucophage and 225 carb > is working the way it should? I'm hoping the levels will > go lower with weight loss? Yes, it seems that BG ranges go down at the same time as the weight goes down but I believe that both are the result of the Glucophage which helps to turn you off food a bit in a subtle way. How do you manage to eat so much carbohydrate, though? I am trying hard to get up there but find it very difficult. Against all the information to the contrary, I get full very fast on carbohdrates and often have to stop eating them after about 130-150 g total/day. I can't even get through a full potato when it is part of a complete meal. I recently tried to eat 100 g (dry weight) whole-grain durum spaghetti all on its own but couldn't face anything else after that for the rest of the day. But it is a bad mistake to make if you are assuming that any old carbohydrate will do. It (or so they say) has to be primarily polysaccharides (like whole grain wheat bread and natural unpolished, unshelled rice, etc) and absolute minimum mono- and disaccharides, which bring you high-energy-density, low nutritional value junk for the most part. It is good to hear from a newly-diagnosed diabetic who appears to be on the right track so quickly. Thornton Pforzheim, Germany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Roseann > Last month a fifteen hour fasting level was 313 > and the hgbac was 13. My doctor has prescribed > Glucophage at 500 mg twice daily, an 1800 calorie > diet (225 g carbs) and exercise. I'm overweight, BMI 30. Your history and treatment sound very similar to mine, except that I was BMI 36+ in January 2000 and am now down to BMI 32+. The original metformin treatment target was reduction to HbA1c of 7% after 2 years but mine came down from 12+ in September 1999 to 5.6 (normal range 3.5-6.6) in March 2000 and has remained around there ever since. > I have been taking the glucophage for about six weeks. > My morning fasting test is usually between 122-135. > My post two hour dinner test is around 150-161. A late evening test is lower > 98-111. My results were about the same after the first three months on 2x500mg Glucophage and they slowly came down to FBG 90-100 mg/dl, 2-hrs 130-160 mg/dl (when I am not experimenting) and late evening 90-110. But you will have to keep going for a while - six weeks is just nothing. > I hope this regimen of Glucophage and 225 carb > is working the way it should? I'm hoping the levels will > go lower with weight loss? Yes, it seems that BG ranges go down at the same time as the weight goes down but I believe that both are the result of the Glucophage which helps to turn you off food a bit in a subtle way. How do you manage to eat so much carbohydrate, though? I am trying hard to get up there but find it very difficult. Against all the information to the contrary, I get full very fast on carbohdrates and often have to stop eating them after about 130-150 g total/day. I can't even get through a full potato when it is part of a complete meal. I recently tried to eat 100 g (dry weight) whole-grain durum spaghetti all on its own but couldn't face anything else after that for the rest of the day. But it is a bad mistake to make if you are assuming that any old carbohydrate will do. It (or so they say) has to be primarily polysaccharides (like whole grain wheat bread and natural unpolished, unshelled rice, etc) and absolute minimum mono- and disaccharides, which bring you high-energy-density, low nutritional value junk for the most part. It is good to hear from a newly-diagnosed diabetic who appears to be on the right track so quickly. Thornton Pforzheim, Germany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Welcome to our group, Roseann! While it's crappy to have to join, I will verify that you have found a really fine online group of diabetics from many countries around the world who have joined together to help ourselves and each other. You wrote: << I was tested in 1998 and did not have diabetes at that time. Last month a fifteen hour fasting level was 313 and the hgbac was 13. My doctor has prescribed Glucophage at 500 mg twice daily, an 1800 calorie diet (225 g carbs) and exercise. I'm overweight, BMI 30. I have been taking the glucophage for about six weeks. My morning fasting test is usually between 122-135. My post two hour dinner test is around 150-161. A late evening test is lower 98-111. I hope this regimen of Glucophage and 225 carb is working the way it should? I'm hoping the levels will go lower with weight loss? >> It is surprising you could go from being non-diabetic to an HbA1c of 13 in two years' time. You might want to get a copy of your lab tests from 1998 and judge for yourself if your readings were abnormal. Don't rule out the possibility that you are a type 1. If that is the case, you will need insulin. " Normal " carbohydrate intake is 300 grams daily, but since diabetes is a metabolic disorder involving an intolerance for carbohydrates, most of us find we achieve better control by lowering carb intake. The level of 225 your doctor has set may not help much ... I find I have to keep my intake around 100 grams daily, and to not eat more than 35 grams per meal. You will be amazed at how much your insulin resistance will improve with weight loss and regular exercise! I'm glad you found our group, Roseann. It's much, much better to go through this in the company of Friends who understand what you are experiencing. Please feel free to post your thoughts and experiences, and ask away ... Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Welcome to our group, Roseann! While it's crappy to have to join, I will verify that you have found a really fine online group of diabetics from many countries around the world who have joined together to help ourselves and each other. You wrote: << I was tested in 1998 and did not have diabetes at that time. Last month a fifteen hour fasting level was 313 and the hgbac was 13. My doctor has prescribed Glucophage at 500 mg twice daily, an 1800 calorie diet (225 g carbs) and exercise. I'm overweight, BMI 30. I have been taking the glucophage for about six weeks. My morning fasting test is usually between 122-135. My post two hour dinner test is around 150-161. A late evening test is lower 98-111. I hope this regimen of Glucophage and 225 carb is working the way it should? I'm hoping the levels will go lower with weight loss? >> It is surprising you could go from being non-diabetic to an HbA1c of 13 in two years' time. You might want to get a copy of your lab tests from 1998 and judge for yourself if your readings were abnormal. Don't rule out the possibility that you are a type 1. If that is the case, you will need insulin. " Normal " carbohydrate intake is 300 grams daily, but since diabetes is a metabolic disorder involving an intolerance for carbohydrates, most of us find we achieve better control by lowering carb intake. The level of 225 your doctor has set may not help much ... I find I have to keep my intake around 100 grams daily, and to not eat more than 35 grams per meal. You will be amazed at how much your insulin resistance will improve with weight loss and regular exercise! I'm glad you found our group, Roseann. It's much, much better to go through this in the company of Friends who understand what you are experiencing. Please feel free to post your thoughts and experiences, and ask away ... Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Vicki wrote to : << ... Some people do appear to do okay on the ADA food pyramid...but lower carbing makes a lot of sense too when you think about how carbs turn into sugar. >> We're all individuals ... but most of the diabetics I know who follow the Food Pyramid are either injecting insulin to " cover the carbs, " or taking a sulfonylurea, or exercising 1-1/2 to two hours daily to try to burn off those carbs. Diabetes is an inability to handle carbohydrates. A diabetic eating what I consider to be a high-carbohydrate diet is paddling upstream, it would seem. If you are able to do it, congratulations! Most of us really miss our carbohydrates ... We don't avoid them because they're icky ... We just can't tolerate them. But ? Your 29 HDL is scary-low. Men should have an HDL above 40, and women should have one above 50. What I have seen over the years is that we diabetics nail better blood test results on lower carbohydrate intake. And that makes sense, because carbohydrates are our problem. And most of the other illnesses that beset us seem to stem from the diabetes ... in other words, they stem from high carbohydrate intake. Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Vicki wrote to : << ... Some people do appear to do okay on the ADA food pyramid...but lower carbing makes a lot of sense too when you think about how carbs turn into sugar. >> We're all individuals ... but most of the diabetics I know who follow the Food Pyramid are either injecting insulin to " cover the carbs, " or taking a sulfonylurea, or exercising 1-1/2 to two hours daily to try to burn off those carbs. Diabetes is an inability to handle carbohydrates. A diabetic eating what I consider to be a high-carbohydrate diet is paddling upstream, it would seem. If you are able to do it, congratulations! Most of us really miss our carbohydrates ... We don't avoid them because they're icky ... We just can't tolerate them. But ? Your 29 HDL is scary-low. Men should have an HDL above 40, and women should have one above 50. What I have seen over the years is that we diabetics nail better blood test results on lower carbohydrate intake. And that makes sense, because carbohydrates are our problem. And most of the other illnesses that beset us seem to stem from the diabetes ... in other words, they stem from high carbohydrate intake. Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Vicki wrote to : << ... Some people do appear to do okay on the ADA food pyramid...but lower carbing makes a lot of sense too when you think about how carbs turn into sugar. >> We're all individuals ... but most of the diabetics I know who follow the Food Pyramid are either injecting insulin to " cover the carbs, " or taking a sulfonylurea, or exercising 1-1/2 to two hours daily to try to burn off those carbs. Diabetes is an inability to handle carbohydrates. A diabetic eating what I consider to be a high-carbohydrate diet is paddling upstream, it would seem. If you are able to do it, congratulations! Most of us really miss our carbohydrates ... We don't avoid them because they're icky ... We just can't tolerate them. But ? Your 29 HDL is scary-low. Men should have an HDL above 40, and women should have one above 50. What I have seen over the years is that we diabetics nail better blood test results on lower carbohydrate intake. And that makes sense, because carbohydrates are our problem. And most of the other illnesses that beset us seem to stem from the diabetes ... in other words, they stem from high carbohydrate intake. Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 New Member > I know this is a " serious " group, so I will just say Hi > to everyone. I just joined WW 2 weeks ago and have lost > 4 pounds so far. I like the points program, and am > looking forward to more meal ideas and other suggestions > from those of you with experience on WW. I have a > friend who has lost over 100 pounds in just over a year > on WW, and he is my inspiration. > > I am a teacher, a mother of two children (ages 8 and 10) > and recently divorced. WW is a way for me to feel > better about myself. > > Thanks! > Debbie > > > > Welcome to Serious Weight Watchers! Please send an introductory post upon > > subscription! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Welcome Machelle! I hope you find this list a warm, safe haven for your weight loss journey. Hugs, Connie New Member Hi everyone! I'm not new to lists or weight loss, but I'm so excited because I started Weight Watchers today! I've been wanting to try it for a long time and my mom bought me 1 years worth! Isn't that a loving thing to do for your daughter? I was a bit disappointed with my weigh in tho', my home scales weigh me at 297 and weight watchers says 320 exactly. What a shocker! Looking forward to getting to know everyone! hugs Machelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Welcome Machelle! I hope you find this list a warm, safe haven for your weight loss journey. Hugs, Connie New Member Hi everyone! I'm not new to lists or weight loss, but I'm so excited because I started Weight Watchers today! I've been wanting to try it for a long time and my mom bought me 1 years worth! Isn't that a loving thing to do for your daughter? I was a bit disappointed with my weigh in tho', my home scales weigh me at 297 and weight watchers says 320 exactly. What a shocker! Looking forward to getting to know everyone! hugs Machelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2002 Report Share Posted January 9, 2002 Welcome. I'm in St. Louis, and have been on WW since August. So far I've lost 15 pounts, and it's 15 pounds I will never see again. I have another 35 to go. My group leader finishes off almost every week with the line " I want to see less of you next week. " I weigh in officially this evening, but if my homescale isn't going bonkers I've lost 3 pounds this week. I weighed in last week at the exact same weight I weighed in before Thanksgiving, so I am real happy it looks like I'm moving south again. > Hi everyone! > > I started WW yesterday and I am ready to get serious! Is anyone here from > Missouri? Looking forward to learning from everyone! Quote Link to comment Share on other sites More sharing options...
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