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In a message dated 8/24/99 2:32:30 PM Eastern Daylight Time,

sandy@... writes:

<< Hi everyone! I am so GLAD I found this group! I was dign. about 6wks.

ago with Chiari after MRI to verify a herniated disk. Needless to say

my husband and I were pretty upset. Ofcourse we had never heard of such

a thing. I have an 11mm chiari but really no symptoms as of yet. I have

other health problems that causes the same symptoms so it is kind of a

toss up. I went to a wonderful Dr. at Univ. of Mo. for the disk

problem. He also has done major research in the field of ACM. So I go

back to him Sept.7 for a good talk about this problem with the ACM and

I go in Sept8 for surgery on my disk. So anything you all can tell me

would be very appreciated.

Sandy >>

Welcome Sandy,

I am in the posoition as you only I don't know for sure about my NSG. This

board will give you a wealth of information and the people here are great

about answering any questions you have.

My only advice since I am also new to board is, READ READ READ, all you can

about this disorder so you will understand it. I know that reading every

link anyone gave me, along with this board, has helped me go from Scared

Stiff -to denial(SP) to understanding and knowledge. Good luck to you. Who

is your great Dr?

Hugs

Carol

Temperance MI

ACM1 7mm-No surgery yet.

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  • 2 months later...

Hi ,

Welcome to the list. It's good to hear from another British parent!!

My son Jack (age 27mths and Charge) had an MRI scan in January of this year

to check his pituitary gland. It showed that the gland was the correct size

and in the correct position but didn't show if it was working correctly or

not. In September his endocrinologist took blood to check his growth

hormone(preliminary test IGF1) and it has come back show that growth hormone

is low. We are now waiting to find out what happens next!! Jack is very small

for his age-20lbs1oz and 75cms tall and I feel that he may need growth

hormones in the future.

As far as kidneys are concerned I can't stress enough the importance of

having an ultrasound of the kidneys and also a MCUG to check for kidney

problems and vesicoureteral reflux. Because of the information on this list

about vesicoureteral reflux I insisted that Jack had this test. It showed

that he has reflux on both kidneys and is now on prophylactic

antibiotics(trimephoprim) daily. He has since developed bilateral staghorn

kidney stones and has had one episode of lithotripsy to disperse them. He

still requires at least another 3 treatments to hopefully clear them. He is

quite high risk of them recurring.

Jack showed absolutely no symptoms of urinary infections and his paed was not

keen at first to do the MCUG. Needless to say, she is now very glad she did!!!

Hope this helps

Elaine mum to Elise(7yrs) & Jack(27mths)CHaRGE

Dumfries,Scotland

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Hi ,

Welcome to the list. It's good to hear from another British parent!!

My son Jack (age 27mths and Charge) had an MRI scan in January of this year

to check his pituitary gland. It showed that the gland was the correct size

and in the correct position but didn't show if it was working correctly or

not. In September his endocrinologist took blood to check his growth

hormone(preliminary test IGF1) and it has come back show that growth hormone

is low. We are now waiting to find out what happens next!! Jack is very small

for his age-20lbs1oz and 75cms tall and I feel that he may need growth

hormones in the future.

As far as kidneys are concerned I can't stress enough the importance of

having an ultrasound of the kidneys and also a MCUG to check for kidney

problems and vesicoureteral reflux. Because of the information on this list

about vesicoureteral reflux I insisted that Jack had this test. It showed

that he has reflux on both kidneys and is now on prophylactic

antibiotics(trimephoprim) daily. He has since developed bilateral staghorn

kidney stones and has had one episode of lithotripsy to disperse them. He

still requires at least another 3 treatments to hopefully clear them. He is

quite high risk of them recurring.

Jack showed absolutely no symptoms of urinary infections and his paed was not

keen at first to do the MCUG. Needless to say, she is now very glad she did!!!

Hope this helps

Elaine mum to Elise(7yrs) & Jack(27mths)CHaRGE

Dumfries,Scotland

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Hi ,

Welcome to the list. It's good to hear from another British parent!!

My son Jack (age 27mths and Charge) had an MRI scan in January of this year

to check his pituitary gland. It showed that the gland was the correct size

and in the correct position but didn't show if it was working correctly or

not. In September his endocrinologist took blood to check his growth

hormone(preliminary test IGF1) and it has come back show that growth hormone

is low. We are now waiting to find out what happens next!! Jack is very small

for his age-20lbs1oz and 75cms tall and I feel that he may need growth

hormones in the future.

As far as kidneys are concerned I can't stress enough the importance of

having an ultrasound of the kidneys and also a MCUG to check for kidney

problems and vesicoureteral reflux. Because of the information on this list

about vesicoureteral reflux I insisted that Jack had this test. It showed

that he has reflux on both kidneys and is now on prophylactic

antibiotics(trimephoprim) daily. He has since developed bilateral staghorn

kidney stones and has had one episode of lithotripsy to disperse them. He

still requires at least another 3 treatments to hopefully clear them. He is

quite high risk of them recurring.

Jack showed absolutely no symptoms of urinary infections and his paed was not

keen at first to do the MCUG. Needless to say, she is now very glad she did!!!

Hope this helps

Elaine mum to Elise(7yrs) & Jack(27mths)CHaRGE

Dumfries,Scotland

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Hi ,

Welcome to the list. It's good to hear from another British parent!!

My son Jack (age 27mths and Charge) had an MRI scan in January of this year

to check his pituitary gland. It showed that the gland was the correct size

and in the correct position but didn't show if it was working correctly or

not. In September his endocrinologist took blood to check his growth

hormone(preliminary test IGF1) and it has come back show that growth hormone

is low. We are now waiting to find out what happens next!! Jack is very small

for his age-20lbs1oz and 75cms tall and I feel that he may need growth

hormones in the future.

As far as kidneys are concerned I can't stress enough the importance of

having an ultrasound of the kidneys and also a MCUG to check for kidney

problems and vesicoureteral reflux. Because of the information on this list

about vesicoureteral reflux I insisted that Jack had this test. It showed

that he has reflux on both kidneys and is now on prophylactic

antibiotics(trimephoprim) daily. He has since developed bilateral staghorn

kidney stones and has had one episode of lithotripsy to disperse them. He

still requires at least another 3 treatments to hopefully clear them. He is

quite high risk of them recurring.

Jack showed absolutely no symptoms of urinary infections and his paed was not

keen at first to do the MCUG. Needless to say, she is now very glad she did!!!

Hope this helps

Elaine mum to Elise(7yrs) & Jack(27mths)CHaRGE

Dumfries,Scotland

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Hi ,

Welcome to the list. It's good to hear from another British parent!!

My son Jack (age 27mths and Charge) had an MRI scan in January of this year

to check his pituitary gland. It showed that the gland was the correct size

and in the correct position but didn't show if it was working correctly or

not. In September his endocrinologist took blood to check his growth

hormone(preliminary test IGF1) and it has come back show that growth hormone

is low. We are now waiting to find out what happens next!! Jack is very small

for his age-20lbs1oz and 75cms tall and I feel that he may need growth

hormones in the future.

As far as kidneys are concerned I can't stress enough the importance of

having an ultrasound of the kidneys and also a MCUG to check for kidney

problems and vesicoureteral reflux. Because of the information on this list

about vesicoureteral reflux I insisted that Jack had this test. It showed

that he has reflux on both kidneys and is now on prophylactic

antibiotics(trimephoprim) daily. He has since developed bilateral staghorn

kidney stones and has had one episode of lithotripsy to disperse them. He

still requires at least another 3 treatments to hopefully clear them. He is

quite high risk of them recurring.

Jack showed absolutely no symptoms of urinary infections and his paed was not

keen at first to do the MCUG. Needless to say, she is now very glad she did!!!

Hope this helps

Elaine mum to Elise(7yrs) & Jack(27mths)CHaRGE

Dumfries,Scotland

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Hi ,

Welcome to the list. It's good to hear from another British parent!!

My son Jack (age 27mths and Charge) had an MRI scan in January of this year

to check his pituitary gland. It showed that the gland was the correct size

and in the correct position but didn't show if it was working correctly or

not. In September his endocrinologist took blood to check his growth

hormone(preliminary test IGF1) and it has come back show that growth hormone

is low. We are now waiting to find out what happens next!! Jack is very small

for his age-20lbs1oz and 75cms tall and I feel that he may need growth

hormones in the future.

As far as kidneys are concerned I can't stress enough the importance of

having an ultrasound of the kidneys and also a MCUG to check for kidney

problems and vesicoureteral reflux. Because of the information on this list

about vesicoureteral reflux I insisted that Jack had this test. It showed

that he has reflux on both kidneys and is now on prophylactic

antibiotics(trimephoprim) daily. He has since developed bilateral staghorn

kidney stones and has had one episode of lithotripsy to disperse them. He

still requires at least another 3 treatments to hopefully clear them. He is

quite high risk of them recurring.

Jack showed absolutely no symptoms of urinary infections and his paed was not

keen at first to do the MCUG. Needless to say, she is now very glad she did!!!

Hope this helps

Elaine mum to Elise(7yrs) & Jack(27mths)CHaRGE

Dumfries,Scotland

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Hello everybody

Help can someone answer my questions?

I am quite new to the list and have so far only been a reader, my daughter

Jennie has suspected but unconfirmed CHARGE although reading the list I am

certain she has CHARGE. I have found out a lot more information than I ever

knew, and I have a couple of questions (unanswered by doctors - the so called

specialists !) that I am sure other people on the list will be able to answer?

1. Jennie had her pituatory gland tested about 4 years ago for growth hormones

and she is producing them but she is short for her age (my other children are

overtaking her) she is growing all be it slowly. My question is Are their any

chargers out there producing hormones that are having injections to boost their

growth?

2. Jennie has no known problems with her kidneys (although can not tell you

after she has been to the toilet if she has done a no 1 or no 2's) but recently

had a bladder/kidney infection and I suspect she has got another (awaiting a

visit to the doctors). I am concerned there is an undiagnosed problem Are their

other chargers who have similar experiences ?

Mum to Emma 10, Jennie 9 ChA?RgE, Tim 7, 5 and Becky 2

Essex, England

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Hello everybody

Help can someone answer my questions?

I am quite new to the list and have so far only been a reader, my daughter

Jennie has suspected but unconfirmed CHARGE although reading the list I am

certain she has CHARGE. I have found out a lot more information than I ever

knew, and I have a couple of questions (unanswered by doctors - the so called

specialists !) that I am sure other people on the list will be able to answer?

1. Jennie had her pituatory gland tested about 4 years ago for growth hormones

and she is producing them but she is short for her age (my other children are

overtaking her) she is growing all be it slowly. My question is Are their any

chargers out there producing hormones that are having injections to boost their

growth?

2. Jennie has no known problems with her kidneys (although can not tell you

after she has been to the toilet if she has done a no 1 or no 2's) but recently

had a bladder/kidney infection and I suspect she has got another (awaiting a

visit to the doctors). I am concerned there is an undiagnosed problem Are their

other chargers who have similar experiences ?

Mum to Emma 10, Jennie 9 ChA?RgE, Tim 7, 5 and Becky 2

Essex, England

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> Hello everybody

> Help can someone answer my questions?

> 1. Jennie had her pituatory gland tested about 4 years ago for

growth hormones and she is producing them but she is short for

her age (my other children are overtaking her) she is growing all be

it slowly. My question is Are their any chargers out there producing

hormones that are having injections to boost their growth?

> 2. Jennie has no known problems with her kidneys

but recently had a bladder/kidney infection and I suspect she

has got another (awaiting a visit to the doctors). I am concerned there

is an undiagnosed problem Are their other chargers who have similar

experiences ?

Welcome !

Our son was recently diagnosed as having growth

hormone (G.H.) deficiency. This involved baseline blood tests and

injections followed by timed blood draws and bone age (x-rays)

determinations. Most kids with G.H. deficiency do not have zero

G.H., but rather markedly decreased levels. has

continued to grow very slowly in height, but his feet and kidneys

have not grown in 2 1/2 years. He is about 34 inches tall and 28

pounds at 4 1/4 years of age. We just started G.H. therapy a

week ago and are hoping that all his body parts will start growing

now. As for question 2, CHARGErs appear to have an increased

incidence of reflux from the bladder to the kidneys compared with

the general population. This can result in damage to the kidneys

and kidney failure if infections are not prevented prophylactically

with an antibiotic (like bactrim) given daily. The only way to know

for sure whether someone has vesicoureteral reflux (reflux from

bladder to kidneys) is to have a voiding cystourethrogram (VCUG),

also called a micturating cystourethrogram (MCUG) in the U.K.

performed. To do this they catheterize the child while awake,

inject a dye, and watch by fluoroscopy as they urinate to see if the

urine (now has dye in it so it can be seen) travels back to the

kidney. It would be a good idea to have checked to make

sure that the infection is not affecting her kidneys as well as her

bladder. Welcome to the list and good luck with 's issues.

Cheryl, , (6), (4, CHaRGE)

MI

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> Hello everybody

> Help can someone answer my questions?

> 1. Jennie had her pituatory gland tested about 4 years ago for

growth hormones and she is producing them but she is short for

her age (my other children are overtaking her) she is growing all be

it slowly. My question is Are their any chargers out there producing

hormones that are having injections to boost their growth?

> 2. Jennie has no known problems with her kidneys

but recently had a bladder/kidney infection and I suspect she

has got another (awaiting a visit to the doctors). I am concerned there

is an undiagnosed problem Are their other chargers who have similar

experiences ?

Welcome !

Our son was recently diagnosed as having growth

hormone (G.H.) deficiency. This involved baseline blood tests and

injections followed by timed blood draws and bone age (x-rays)

determinations. Most kids with G.H. deficiency do not have zero

G.H., but rather markedly decreased levels. has

continued to grow very slowly in height, but his feet and kidneys

have not grown in 2 1/2 years. He is about 34 inches tall and 28

pounds at 4 1/4 years of age. We just started G.H. therapy a

week ago and are hoping that all his body parts will start growing

now. As for question 2, CHARGErs appear to have an increased

incidence of reflux from the bladder to the kidneys compared with

the general population. This can result in damage to the kidneys

and kidney failure if infections are not prevented prophylactically

with an antibiotic (like bactrim) given daily. The only way to know

for sure whether someone has vesicoureteral reflux (reflux from

bladder to kidneys) is to have a voiding cystourethrogram (VCUG),

also called a micturating cystourethrogram (MCUG) in the U.K.

performed. To do this they catheterize the child while awake,

inject a dye, and watch by fluoroscopy as they urinate to see if the

urine (now has dye in it so it can be seen) travels back to the

kidney. It would be a good idea to have checked to make

sure that the infection is not affecting her kidneys as well as her

bladder. Welcome to the list and good luck with 's issues.

Cheryl, , (6), (4, CHaRGE)

MI

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,

Welcome to the list! I'm glad you found us!

As for your second question, has Jennie had a VCUG test done? (voiding

cystourethrogram), this is to test for bladder to kidney reflux. I believe it

is pretty common, at least around here on the list. This could be the cause of

her UTI, and can also cause long-term problems if not diagnosed and properly

treated. They can have UTI's that are without symptoms as well which can cause

the kidneys damage over the long haul. I would ask her paediatrician to have a

VCUG test done, if it has not been done previously.

Hope you enjoy the list!

Mom to Kennedy 21 mos old CHARGEr, 10, 8, and wife to Graeme

New Brunswick, Canada

Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716

ICQ #1426476

Re: New member

Hello everybody

Help can someone answer my questions?

I am quite new to the list and have so far only been a reader, my daughter

Jennie has suspected but unconfirmed CHARGE although reading the list I am

certain she has CHARGE. I have found out a lot more information than I ever

knew, and I have a couple of questions (unanswered by doctors - the so called

specialists !) that I am sure other people on the list will be able to answer?

1. Jennie had her pituatory gland tested about 4 years ago for growth

hormones and she is producing them but she is short for her age (my other

children are overtaking her) she is growing all be it slowly. My question is Are

their any chargers out there producing hormones that are having injections to

boost their growth?

2. Jennie has no known problems with her kidneys (although can not tell you

after she has been to the toilet if she has done a no 1 or no 2's) but recently

had a bladder/kidney infection and I suspect she has got another (awaiting a

visit to the doctors). I am concerned there is an undiagnosed problem Are their

other chargers who have similar experiences ?

Mum to Emma 10, Jennie 9 ChA?RgE, Tim 7, 5 and Becky 2

Essex, England

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  • 9 months later...

In a message dated 00-08-18 13:02:32 EDT, you write:

<< Sorry, but I must be in the wrong place, because I don't follow the

Bernstein book. >>

No, no, ...I just said it was the best all-over informational book

about diabetes. I'll stick by that one. But I think most of us have somewhat

modified his approach ...that 6-12-12 carb business is just too hard to stick

by forever. Personally, I've got my carbs down to between 75 and 100 a day

and between this, small doses of insulin and exercise, I'm in pretty good

control now. But you're right...all we need to do is find the approach that

works for each of us. Some people do appear to do okay on the ADA food

pyramid...but lower carbing makes a lot of sense too when you think about how

carbs turn into sugar. Vicki

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In a message dated 00-08-18 13:02:32 EDT, you write:

<< Sorry, but I must be in the wrong place, because I don't follow the

Bernstein book. >>

No, no, ...I just said it was the best all-over informational book

about diabetes. I'll stick by that one. But I think most of us have somewhat

modified his approach ...that 6-12-12 carb business is just too hard to stick

by forever. Personally, I've got my carbs down to between 75 and 100 a day

and between this, small doses of insulin and exercise, I'm in pretty good

control now. But you're right...all we need to do is find the approach that

works for each of us. Some people do appear to do okay on the ADA food

pyramid...but lower carbing makes a lot of sense too when you think about how

carbs turn into sugar. Vicki

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Roseann

> Last month a fifteen hour fasting level was 313

> and the hgbac was 13. My doctor has prescribed

> Glucophage at 500 mg twice daily, an 1800 calorie

> diet (225 g carbs) and exercise. I'm overweight, BMI 30.

Your history and treatment sound very similar to mine, except that I was BMI

36+ in January 2000 and am now down to BMI 32+. The original metformin

treatment target was reduction to HbA1c of 7% after 2 years but mine came

down from 12+ in September 1999 to 5.6 (normal range 3.5-6.6) in March 2000

and has remained around there ever since.

> I have been taking the glucophage for about six weeks.

> My morning fasting test is usually between 122-135.

> My post two hour dinner test is around 150-161. A late evening test is

lower

> 98-111.

My results were about the same after the first three months on 2x500mg

Glucophage and they slowly came down to FBG 90-100 mg/dl, 2-hrs 130-160

mg/dl (when I am not experimenting) and late evening 90-110. But you will

have to keep going for a while - six weeks is just nothing.

> I hope this regimen of Glucophage and 225 carb

> is working the way it should? I'm hoping the levels will

> go lower with weight loss?

Yes, it seems that BG ranges go down at the same time as the weight goes

down but I believe that both are the result of the Glucophage which helps to

turn you off food a bit in a subtle way.

How do you manage to eat so much carbohydrate, though? I am trying hard to

get up there but find it very difficult. Against all the information to the

contrary, I get full very fast on carbohdrates and often have to stop eating

them after about 130-150 g total/day. I can't even get through a full potato

when it is part of a complete meal. I recently tried to eat 100 g (dry

weight) whole-grain durum spaghetti all on its own but couldn't face

anything else after that for the rest of the day.

But it is a bad mistake to make if you are assuming that any old

carbohydrate will do. It (or so they say) has to be primarily

polysaccharides (like whole grain wheat bread and natural unpolished,

unshelled rice, etc) and absolute minimum mono- and disaccharides, which

bring you high-energy-density, low nutritional value junk for the most part.

It is good to hear from a newly-diagnosed diabetic who appears to be on the

right track so quickly.

Thornton

Pforzheim, Germany

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Roseann

> Last month a fifteen hour fasting level was 313

> and the hgbac was 13. My doctor has prescribed

> Glucophage at 500 mg twice daily, an 1800 calorie

> diet (225 g carbs) and exercise. I'm overweight, BMI 30.

Your history and treatment sound very similar to mine, except that I was BMI

36+ in January 2000 and am now down to BMI 32+. The original metformin

treatment target was reduction to HbA1c of 7% after 2 years but mine came

down from 12+ in September 1999 to 5.6 (normal range 3.5-6.6) in March 2000

and has remained around there ever since.

> I have been taking the glucophage for about six weeks.

> My morning fasting test is usually between 122-135.

> My post two hour dinner test is around 150-161. A late evening test is

lower

> 98-111.

My results were about the same after the first three months on 2x500mg

Glucophage and they slowly came down to FBG 90-100 mg/dl, 2-hrs 130-160

mg/dl (when I am not experimenting) and late evening 90-110. But you will

have to keep going for a while - six weeks is just nothing.

> I hope this regimen of Glucophage and 225 carb

> is working the way it should? I'm hoping the levels will

> go lower with weight loss?

Yes, it seems that BG ranges go down at the same time as the weight goes

down but I believe that both are the result of the Glucophage which helps to

turn you off food a bit in a subtle way.

How do you manage to eat so much carbohydrate, though? I am trying hard to

get up there but find it very difficult. Against all the information to the

contrary, I get full very fast on carbohdrates and often have to stop eating

them after about 130-150 g total/day. I can't even get through a full potato

when it is part of a complete meal. I recently tried to eat 100 g (dry

weight) whole-grain durum spaghetti all on its own but couldn't face

anything else after that for the rest of the day.

But it is a bad mistake to make if you are assuming that any old

carbohydrate will do. It (or so they say) has to be primarily

polysaccharides (like whole grain wheat bread and natural unpolished,

unshelled rice, etc) and absolute minimum mono- and disaccharides, which

bring you high-energy-density, low nutritional value junk for the most part.

It is good to hear from a newly-diagnosed diabetic who appears to be on the

right track so quickly.

Thornton

Pforzheim, Germany

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Welcome to our group, Roseann! While it's crappy to have to join, I will

verify that you have found a really fine online group of diabetics from many

countries around the world who have joined together to help ourselves and

each other. You wrote:

<< I was tested in 1998 and did not have diabetes at that time. Last month a

fifteen hour fasting level was 313 and the hgbac was 13. My doctor has

prescribed Glucophage at 500 mg twice daily, an 1800 calorie

diet (225 g carbs) and exercise. I'm overweight, BMI 30. I have been taking

the glucophage for about six weeks. My morning fasting test is usually

between 122-135. My post two hour dinner test is around 150-161. A late

evening test is lower 98-111. I hope this regimen of Glucophage and 225

carb is working the

way it should? I'm hoping the levels will go lower with weight loss? >>

It is surprising you could go from being non-diabetic to an HbA1c of 13 in

two years' time. You might want to get a copy of your lab tests from 1998

and judge for yourself if your readings were abnormal. Don't rule out the

possibility that you are a type 1. If that is the case, you will need

insulin. " Normal " carbohydrate intake is 300 grams daily, but since diabetes

is a metabolic disorder involving an intolerance for carbohydrates, most of

us find we achieve better control by lowering carb intake. The level of 225

your doctor has set may not help much ... I find I have to keep my intake

around 100 grams daily, and to not eat more than 35 grams per meal.

You will be amazed at how much your insulin resistance will improve with

weight loss and regular exercise! I'm glad you found our group, Roseann.

It's much, much better to go through this in the company of Friends who

understand what you are experiencing. Please feel free to post your thoughts

and experiences, and ask away ...

Susie

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Welcome to our group, Roseann! While it's crappy to have to join, I will

verify that you have found a really fine online group of diabetics from many

countries around the world who have joined together to help ourselves and

each other. You wrote:

<< I was tested in 1998 and did not have diabetes at that time. Last month a

fifteen hour fasting level was 313 and the hgbac was 13. My doctor has

prescribed Glucophage at 500 mg twice daily, an 1800 calorie

diet (225 g carbs) and exercise. I'm overweight, BMI 30. I have been taking

the glucophage for about six weeks. My morning fasting test is usually

between 122-135. My post two hour dinner test is around 150-161. A late

evening test is lower 98-111. I hope this regimen of Glucophage and 225

carb is working the

way it should? I'm hoping the levels will go lower with weight loss? >>

It is surprising you could go from being non-diabetic to an HbA1c of 13 in

two years' time. You might want to get a copy of your lab tests from 1998

and judge for yourself if your readings were abnormal. Don't rule out the

possibility that you are a type 1. If that is the case, you will need

insulin. " Normal " carbohydrate intake is 300 grams daily, but since diabetes

is a metabolic disorder involving an intolerance for carbohydrates, most of

us find we achieve better control by lowering carb intake. The level of 225

your doctor has set may not help much ... I find I have to keep my intake

around 100 grams daily, and to not eat more than 35 grams per meal.

You will be amazed at how much your insulin resistance will improve with

weight loss and regular exercise! I'm glad you found our group, Roseann.

It's much, much better to go through this in the company of Friends who

understand what you are experiencing. Please feel free to post your thoughts

and experiences, and ask away ...

Susie

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Vicki wrote to :

<< ... Some people do appear to do okay on the ADA food pyramid...but lower

carbing makes a lot of sense too when you think about how carbs turn into

sugar. >>

We're all individuals ... but most of the diabetics I know who follow the

Food Pyramid are either injecting insulin to " cover the carbs, " or taking a

sulfonylurea, or exercising 1-1/2 to two hours daily to try to burn off

those carbs. Diabetes is an inability to handle carbohydrates. A diabetic

eating what I consider to be a high-carbohydrate diet is paddling upstream,

it would seem. If you are able to do it, congratulations! Most of us really

miss our carbohydrates ... We don't avoid them because they're icky ... We

just can't tolerate them. But ? Your 29 HDL is scary-low. Men should

have an HDL above 40, and women should have one above 50.

What I have seen over the years is that we diabetics nail better blood test

results on lower carbohydrate intake. And that makes sense, because

carbohydrates are our problem. And most of the other illnesses that beset us

seem to stem from the diabetes ... in other words, they stem from high

carbohydrate intake.

Susie

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Vicki wrote to :

<< ... Some people do appear to do okay on the ADA food pyramid...but lower

carbing makes a lot of sense too when you think about how carbs turn into

sugar. >>

We're all individuals ... but most of the diabetics I know who follow the

Food Pyramid are either injecting insulin to " cover the carbs, " or taking a

sulfonylurea, or exercising 1-1/2 to two hours daily to try to burn off

those carbs. Diabetes is an inability to handle carbohydrates. A diabetic

eating what I consider to be a high-carbohydrate diet is paddling upstream,

it would seem. If you are able to do it, congratulations! Most of us really

miss our carbohydrates ... We don't avoid them because they're icky ... We

just can't tolerate them. But ? Your 29 HDL is scary-low. Men should

have an HDL above 40, and women should have one above 50.

What I have seen over the years is that we diabetics nail better blood test

results on lower carbohydrate intake. And that makes sense, because

carbohydrates are our problem. And most of the other illnesses that beset us

seem to stem from the diabetes ... in other words, they stem from high

carbohydrate intake.

Susie

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Vicki wrote to :

<< ... Some people do appear to do okay on the ADA food pyramid...but lower

carbing makes a lot of sense too when you think about how carbs turn into

sugar. >>

We're all individuals ... but most of the diabetics I know who follow the

Food Pyramid are either injecting insulin to " cover the carbs, " or taking a

sulfonylurea, or exercising 1-1/2 to two hours daily to try to burn off

those carbs. Diabetes is an inability to handle carbohydrates. A diabetic

eating what I consider to be a high-carbohydrate diet is paddling upstream,

it would seem. If you are able to do it, congratulations! Most of us really

miss our carbohydrates ... We don't avoid them because they're icky ... We

just can't tolerate them. But ? Your 29 HDL is scary-low. Men should

have an HDL above 40, and women should have one above 50.

What I have seen over the years is that we diabetics nail better blood test

results on lower carbohydrate intake. And that makes sense, because

carbohydrates are our problem. And most of the other illnesses that beset us

seem to stem from the diabetes ... in other words, they stem from high

carbohydrate intake.

Susie

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  • 1 year later...

New Member

> I know this is a " serious " group, so I will just say Hi

> to everyone. I just joined WW 2 weeks ago and have lost

> 4 pounds so far. I like the points program, and am

> looking forward to more meal ideas and other suggestions

> from those of you with experience on WW. I have a

> friend who has lost over 100 pounds in just over a year

> on WW, and he is my inspiration.

>

> I am a teacher, a mother of two children (ages 8 and 10)

> and recently divorced. WW is a way for me to feel

> better about myself.

>

> Thanks!

> Debbie

> >

> > Welcome to Serious Weight Watchers! Please send an introductory post

upon

> > subscription!

> >

> >

> >

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  • 2 months later...

Welcome Machelle! I hope you find this list a warm, safe haven for your weight

loss journey.

Hugs,

Connie

New Member

Hi everyone!

I'm not new to lists or weight loss, but I'm so excited because I

started Weight Watchers today! I've been wanting to try it for a long

time and my mom bought me 1 years worth! Isn't that a loving thing to

do for your daughter? I was a bit disappointed with my weigh in tho',

my home scales weigh me at 297 and weight watchers says 320 exactly.

What a shocker!

Looking forward to getting to know everyone!

hugs

Machelle

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Welcome Machelle! I hope you find this list a warm, safe haven for your weight

loss journey.

Hugs,

Connie

New Member

Hi everyone!

I'm not new to lists or weight loss, but I'm so excited because I

started Weight Watchers today! I've been wanting to try it for a long

time and my mom bought me 1 years worth! Isn't that a loving thing to

do for your daughter? I was a bit disappointed with my weigh in tho',

my home scales weigh me at 297 and weight watchers says 320 exactly.

What a shocker!

Looking forward to getting to know everyone!

hugs

Machelle

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Welcome. I'm in St. Louis, and have been on WW since August.

So far I've lost 15 pounts, and it's 15 pounds I will never see again. I

have another 35 to go. My group leader finishes off almost every week with

the line " I want to see less of you next week. "

I weigh in officially this evening, but if my homescale isn't going bonkers

I've lost 3 pounds this week. I weighed in last week at the exact same

weight I weighed in before Thanksgiving, so I am real happy it looks like

I'm moving south again.

> Hi everyone!

>

> I started WW yesterday and I am ready to get serious! Is anyone here from

> Missouri? Looking forward to learning from everyone!

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