Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Hi Everyone! I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact with. So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do. I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone. Hope I didn't let anyone down and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia. Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and " taking them away " . I just think he did a good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it, he will give even better advise and coping methods. Just a thought Thank you all again for everything you have brought to this group and to me personally!| Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2011 Report Share Posted October 20, 2011 I respect your decision Debbie. It's true that you never know who you'd be grouped up with but I think we should all stay motivated. I am interested in each writing a letter to dr phil explaining that we should have a show only dedicated to misophonia. Just let me know what we all want to do! Let's get to where when we write out misophonia there's no red scribbly line underneath it!:)Good luck everyone!Sent from a cloud Hi Everyone! I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact with. So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do. I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone. Hope I didn't let anyone down and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia. Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it, he will give even better advise and coping methods. Just a thought Thank you all again for everything you have brought to this group and to me personally!| Debbie Quote Link to comment Share on other sites More sharing options...
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