Re: Just needing to vent (1st time), also, any other autoimmune disorders with SSS??

September 20, 2011

I have an auto immune disorder...present before sound sensitivity.

I have a Type I immediate hypersensitivity to natural rubber latex proteins since 1998. I am now fully disabled.I must live in a latex free home and community.my misophonia presented itself after an anaphylactic event in 2004.

I have over 30 food allergies, food that are cross reactive to natural rubber latex proteins. This sound sensitivity is one more brick in my life of isolation.

Good work being a detective for your self!

Just needing to vent (1st time), also, any other autoimmune disorders with SSS??

Gah! I came here to vent (1rst time) after a long absent sound trigger just reappeared at a bad time, but now it's turned into more of just a sharing, because after reading some of your posts I feel so much better. { The gum smackers on the airplane/train one made me laugh quite a bit, it's so dang familiar!But first I have a burning question. Does anybody else here have an autoimmune disorder to go along with the sound sensitivity? And I apologize right off the bat for being so long winded, and spelling errors. [ After doing ALOT of my own research (no insurance or doctors, and none for the foreseeable future), I'm fairly confident I have a autoimmune disorder, for years. My body attacks all sorts of things as foreign bodies and I have varying allergic reactions to TONS of things. This in addition to a long sound sensitivity problem.I thought it unusual, as both the hyper allergic type reactions and the extreme awareness to sound both started in junior high, and one's a hyper mental awareness, the other a hyper physical awareness. Some of the physical symptoms are Anti-inflammatories give me heat rash, funny taste in mouth, extreme tiredness and depression, and more. Broccoli, Garlic, onions & the like give me really bad and painful asthma, citrus items make my nose sneeze & run & give me sinus infections, spray cleaners (especially citrus) hurt my lungs & sinuses badly, shrimp and oddly Splenda give me really really deathly bad reactions where I'll be down in zombie extreme fatigue and bloated insides for a few days, lots of cosmetics will make my eyes burn and sting, sinus infections, lungs. Novicane from the Dentists has very limited effect on me now and wears off quickly (I shocked my new Dentist!). And now my lungs are really damagaed, and getting a whiff of ANYTHING make them hurt (smoke, gas, store plastic smells). These seem like some of the symptoms of an autoimmune disorder (the kind that could turn into Lupus), but I'm unemployed with no insurance or doctor, and I can tell you, the LAST doctor experience was humilitaing and they just thought I was psycho. Anyhoo, I'm relatively confident that these physical symptons are not psychological, as I've in the past noted the symptoms, then tracked it back to what was causing it. Not, 'oh I'm eating this so I expect to have these reactions'. It's taken alot of study for me to puzzle out what was going on. I was just really curious if anybody else had the same dual problem. As far as the sound sensitivity, it started waaaay back in junior high, same symptoms as everybody else here. My dads loud horrible breathing sounds made church sessions excruciating, a gum loud snapper popper made high school Geometry horrible, dropping my grade down to a C, neighborhood dogs barking have driven me into a small music bubble hiding in my bedroom/computer room, etc. I've dealt with depression earlier in my life, but have been quite happy (as much as can be) and learned to balance in recent years.I actually found this forum maybe a year ago, and reading the posts were AMAZING! I really really had no idea there were other people with my sound condition. I'm weird in so many other ways, I just thought that was another. [:PI'm like 40 now, and have learned to avoid, and just 'get through' if possible, instances. I haven't needed the board before now, because luckily I've had a long spell with no sound problems. Until this week. And suddenly I'm a frazzled mess again. Just like that. This kid next door does this basketball playing in his backyard, which is just a few feet away from my bedroom (also my work-at-home computer room, which I need peace and quiet for). It's actually not just the repetitive bouncing, although anything repetitive gets to me (water dripping....noooooo!), it's that it's so close it actually an incredible sound wave procussion sound in my head that almost physically hurts my brain. I feel like I'm a dog cocking his head painfully at a whistle. I can't do any work outside, I have to run in and turn on the music loudly, or I get driven into a frothy rage like bull drama. I would handle it better, but issues and stresse, and a really bad physical condition due to the other thing, has left me defenseless and just exhausted and too tired to deal gracefully. I have like one week of nice weather to strip and paint the side of the house before and entire year (northwest winters don't let up!) and I'm totally stressed because that kid (now highschool) is out there so much of the afternoon & evening now. I've tried to be 'okay with it, but that lasts like 5 minutes. Along with other stressers. I feel so trapped and completely frustrated and helpless, close to the breaking point.I've just got to keep completing my mantra "Wait it out, wait it out, wait it out" and try to distract myself with things to lighten my mood. But it doesn't feel like it's working right now. (:{The last thing I want is for the depression to return again, I feel like I'm scrabbling for my life.

September 20, 2011

OMG!!!!!!!! I am so sorry! I have a severe case of misophonia. I am alergic to

latex. I have asthma. I have a severe feet disormity that makes running hard. I

can't walk much without getting blisters. My amount of problems isn't as bad as

that by far. I feel so sorry that I may cry. :'(

>

> I have an auto immune disorder...present before sound sensitivity.

> I have a Type I immediate hypersensitivity to natural rubber latex proteins

since 1998. I am now fully disabled.I must live in a latex free home and

community.my misophonia presented itself after an anaphylactic event in 2004.

> I have over 30 food allergies, food that are cross reactive to natural rubber

latex proteins. This sound sensitivity is one more brick in my life of

isolation.

> Good work being a detective for your self!

>

> Just needing to vent (1st time), also, any other

autoimmune disorders with SSS??

>

> Gah! I came here to vent (1rst time) after a long absent sound trigger just

reappeared at a bad time, but now it's turned into more of just a sharing,

because after reading some of your posts I feel so much better. { The gum

smackers on the airplane/train one made me laugh quite a bit, it's so dang

familiar!

>

> But first I have a burning question. Does anybody else here have an

autoimmune disorder to go along with the sound sensitivity?

> And I apologize right off the bat for being so long winded, and spelling

errors. [

>

> After doing ALOT of my own research (no insurance or doctors, and none for

the foreseeable future), I'm fairly confident I have a autoimmune disorder, for

years. My body attacks all sorts of things as foreign bodies and I have varying

allergic reactions to TONS of things. This in addition to a long sound

sensitivity problem.

> I thought it unusual, as both the hyper allergic type reactions and the

extreme awareness to sound both started in junior high, and one's a hyper mental

awareness, the other a hyper physical awareness.

>

> Some of the physical symptoms are Anti-inflammatories give me heat rash,

funny taste in mouth, extreme tiredness and depression, and more. Broccoli,

Garlic, onions & the like give me really bad and painful asthma, citrus items

make my nose sneeze & run & give me sinus infections, spray cleaners (especially

citrus) hurt my lungs & sinuses badly, shrimp and oddly Splenda give me really

really deathly bad reactions where I'll be down in zombie extreme fatigue and

bloated insides for a few days, lots of cosmetics will make my eyes burn and

sting, sinus infections, lungs. Novicane from the Dentists has very limited

effect on me now and wears off quickly (I shocked my new Dentist!). And now my

lungs are really damagaed, and getting a whiff of ANYTHING make them hurt

(smoke, gas, store plastic smells). These seem like some of the symptoms of an

autoimmune disorder (the kind that could turn into Lupus), but I'm unemployed

with no insurance or doctor, and I can tell you, the LAST doctor experience was

humilitaing and they just thought I was psycho.

> Anyhoo, I'm relatively confident that these physical symptons are not

psychological, as I've in the past noted the symptoms, then tracked it back to

what was causing it. Not, 'oh I'm eating this so I expect to have these

reactions'. It's taken alot of study for me to puzzle out what was going on. I

was just really curious if anybody else had the same dual problem.

>

> As far as the sound sensitivity, it started waaaay back in junior high, same

symptoms as everybody else here. My dads loud horrible breathing sounds made

church sessions excruciating, a gum loud snapper popper made high school

Geometry horrible, dropping my grade down to a C, neighborhood dogs barking have

driven me into a small music bubble hiding in my bedroom/computer room, etc.

I've dealt with depression earlier in my life, but have been quite happy (as

much as can be) and learned to balance in recent years.

>

> I actually found this forum maybe a year ago, and reading the posts were

AMAZING! I really really had no idea there were other people with my sound

condition. I'm weird in so many other ways, I just thought that was another. [

>

> I'm like 40 now, and have learned to avoid, and just 'get through' if

possible, instances. I haven't needed the board before now, because luckily I've

had a long spell with no sound problems. Until this week. And suddenly I'm a

frazzled mess again. Just like that. This kid next door does this basketball

playing in his backyard, which is just a few feet away from my bedroom (also my

work-at-home computer room, which I need peace and quiet for). It's actually not

just the repetitive bouncing, although anything repetitive gets to me (water

dripping....noooooo!), it's that it's so close it actually an incredible sound

wave procussion sound in my head that almost physically hurts my brain. I feel

like I'm a dog cocking his head painfully at a whistle. I can't do any work

outside, I have to run in and turn on the music loudly, or I get driven into a

frothy rage like bull drama. I would handle it better, but issues and stresse,

and a really bad physical condition due to the other thing, has left me

defenseless and just exhausted and too tired to deal gracefully. I have like one

week of nice weather to strip and paint the side of the house before and entire

year (northwest winters don't let up!) and I'm totally stressed because that kid

(now highschool) is out there so much of the afternoon & evening now. I've tried

to be 'okay with it, but that lasts like 5 minutes. Along with other stressers.

I feel so trapped and completely frustrated and helpless, close to the breaking

point.

> I've just got to keep completing my mantra " Wait it out, wait it out, wait

it out " and try to distract myself with things to lighten my mood. But it

doesn't feel like it's working right now. (:{

> The last thing I want is for the depression to return again, I feel like I'm

scrabbling for my life.

>

September 20, 2011

Wow, thanks guys.

It's good and interesting to know that other peeps have some allergic/physical

intolernaces as well.

My heart goes out to all of you, I'm sorry it's something we have to deal with.