Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 Hi Colleen, This seems to be so close to Misophonia. I am so glad to see that young people can take advantage of the Individuals with Disabilities Act and make arraignments with their schools, and adults should be able to get help at some jobs with this. This is a big part of what we can do here, while we find a cure for this. I plan to take that test. Just busy right now. I hope others here do the same. Tell me how you do on the test and if it is pertinent. Mike To: Soundsensitivity Sent: Thursday, May 31, 2012 12:12 PM Subject: Re: SPD Mike, Bravo! This is great information. The description of SPD is very accurate. Finding the study is a real achievement. I've read the consent form and plan to complete the questionnaire when I'm feeling more rested. Thanks for your contribution to this group. I think we'll all benefit from it. Colleen > > I found this online. I think this relates to us in many ways. Here is a website and some info that I copied. I highlighted what seems to be most pertinent. > > http://www.sinetwork.org/contact.html > > Here is also an free online study. I have not yet taken it buy plan to when I have time. > > http://www.sinetwork.org/researchstudy.html > > Please comment and tell me if you think I am off on this. > > > > Q. What is Sensory Processing Disorder (SPD)? > A:Sensory Processing Disorder (SPD) is a complex disorder > of the brain that affects developing children and adults who were not treated > in childhood.Children with SPD misinterpret everyday sensory information, such > as touch, sound, and movement. Some feel bombarded by sensory information; > others seek out intense sensory experiences or have other problems. This can > lead to behavioral problems, difficulties with coordination, and other issues. > Symptoms of SPD, like those of most disorders, occur > within a broad spectrum of severity. While most of us have occasional > difficulties processing sensory information, for children and adults with SPD, these difficulties are chronic, and they disrupt everyday life. Click here to > read about SPD Red Flags. (http://www.spdfoundation.net/redflags). > : Are children entitled to Sensory Processing Disorder > therapy in school by law? > A:The Individuals with Disabilities Education Act (IDEA) > guarantees a free and appropriate public education with peers, to the maximum > extent appropriate, to all eligible children with disabilities (ages 3-21) who > need special education and related services in order to learn in school. > Children with disabilities can receive occupational therapy (OT) if they > qualify for special education. In addition, a school team, including the > parents, must decide if the therapy is necessary. (Some school districts will > provide OT in other instances, e.g., to give teachers suggestions before > referring a child to special education, called a pre-referral.) > There are no provisions in state or federal law that > specify how OT, once recommended by the team, must be provided. This includes > the service model, frequency of intervention, and the frame of reference. > In due process hearings and the courts, the issue of > theory base or frame of reference has been referred to as a methodology > decision. One of the latest court decisions regarding methodology centered > around individual instruction for a student with dyslexia using the > Ortho-Gillingham method (E.S. v. Independent Sch. Dist. No. 196). The district > court disallowed the parent's request for this kind of reading instruction, > stating that schools have discretion over methodology decisions as long as the > program provides a free and appropriate public education. > Therapists who recommend school-based sensory integration > therapy must show how the student needs this kind of occupational therapy in > order to benefit from participation in the curriculum and specific school > activities. Important issues to address (in jargon-free language) > include: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 I am participating in the study as I type this...a section of the survey asks to mark whether you, your child, a sibling or a parent has had any of the following & one of the selections is "Misophonia - or other sensory-related disorder". It is an option separate from SPD which is interesting...the word is definitely getting out!!Highly recommend everyone to participate if time permits! Even just completing part of it is helpful. Sent from my iPhone Hi Colleen, This seems to be so close to Misophonia. I am so glad to see that young people can take advantage of the Individuals with Disabilities Act and make arraignments with their schools, and adults should be able to get help at some jobs with this. This is a big part of what we can do here, while we find a cure for this. I plan to take that test. Just busy right now. I hope others here do the same. Tell me how you do on the test and if it is pertinent. Mike To: Soundsensitivity Sent: Thursday, May 31, 2012 12:12 PM Subject: Re: SPD Mike, Bravo! This is great information. The description of SPD is very accurate. Finding the study is a real achievement. I've read the consent form and plan to complete the questionnaire when I'm feeling more rested. Thanks for your contribution to this group. I think we'll all benefit from it. Colleen > > I found this online. I think this relates to us in many ways. Here is a website and some info that I copied. I highlighted what seems to be most pertinent. > > http://www.sinetwork.org/contact.html > > Here is also an free online study. I have not yet taken it buy plan to when I have time. > > http://www.sinetwork.org/researchstudy.html > > Please comment and tell me if you think I am off on this. > > > > Q. What is Sensory Processing Disorder (SPD)? > A:Sensory Processing Disorder (SPD) is a complex disorder > of the brain that affects developing children and adults who were not treated > in childhood.Children with SPD misinterpret everyday sensory information, such > as touch, sound, and movement. Some feel bombarded by sensory information; > others seek out intense sensory experiences or have other problems. This can > lead to behavioral problems, difficulties with coordination, and other issues. > Symptoms of SPD, like those of most disorders, occur > within a broad spectrum of severity. While most of us have occasional > difficulties processing sensory information, for children and adults with SPD, these difficulties are chronic, and they disrupt everyday life. Click here to > read about SPD Red Flags. (http://www.spdfoundation.net/redflags). > : Are children entitled to Sensory Processing Disorder > therapy in school by law? > A:The Individuals with Disabilities Education Act (IDEA) > guarantees a free and appropriate public education with peers, to the maximum > extent appropriate, to all eligible children with disabilities (ages 3-21) who > need special education and related services in order to learn in school. > Children with disabilities can receive occupational therapy (OT) if they > qualify for special education. In addition, a school team, including the > parents, must decide if the therapy is necessary. (Some school districts will > provide OT in other instances, e.g., to give teachers suggestions before > referring a child to special education, called a pre-referral.) > There are no provisions in state or federal law that > specify how OT, once recommended by the team, must be provided. This includes > the service model, frequency of intervention, and the frame of reference. > In due process hearings and the courts, the issue of > theory base or frame of reference has been referred to as a methodology > decision. One of the latest court decisions regarding methodology centered > around individual instruction for a student with dyslexia using the > Ortho-Gillingham method (E.S. v. Independent Sch. Dist. No. 196). The district > court disallowed the parent's request for this kind of reading instruction, > stating that schools have discretion over methodology decisions as long as the > program provides a free and appropriate public education. > Therapists who recommend school-based sensory integration > therapy must show how the student needs this kind of occupational therapy in > order to benefit from participation in the curriculum and specific school > activities. Important issues to address (in jargon-free language) > include: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2012 Report Share Posted June 3, 2012 I just completed the first section this morning. I will do the last 2 later today. I was surprised to see Misophonia as a recognized sensitivity condition. We've come a long way baby! It has so many interesting and insightful questions. Really makes you think. Those who put the questionnaire together are obviously very astute.I would encourage everyone to take it. Mike To: Soundsensitivity Sent: Sunday, June 3, 2012 6:20 AM Subject: Re: SPD I completed the Sensory questionnaire/study yesterday. It took about an hour with a short break. There are 3 sections. It's a little tedious, but we all have been wanting someone to do research, so I hope you all will take advantage of this opportunity. It is designed for the broader "sensory disorders", but I truly believe Miso is a sensory disorder. Colleen > > > > I found this online. I think this relates to us in many ways. Here is a website and some info that I copied. I highlighted what seems to be most pertinent. > > > > http://www.sinetwork.org/contact.html > > > > Here is also an free online study. I have not yet taken it buy plan to when I have time. > > > >  http://www.sinetwork.org/researchstudy.html > > > > Please comment and tell me if you think I am off on this. > > > > > > > > Q. What is Sensory Processing Disorder (SPD)? > > A:Sensory Processing Disorder (SPD) is a complex disorder > > of the brain that affects developing children and adults who were not treated > > in childhood.Children with SPD misinterpret everyday sensory information, such > > as touch, sound, and movement. Some feel bombarded by sensory information; > > others seek out intense sensory experiences or have other problems. This can > > lead to behavioral problems, difficulties with coordination, and other issues. > > Symptoms of SPD, like those of most disorders, occur > > within a broad spectrum of severity. While most of us have occasional > > difficulties processing sensory information, for children and adults with SPD, these difficulties are chronic, and they disrupt everyday life. Click here to > > read about SPD Red Flags. (http://www.spdfoundation.net/redflags). > > : Are children entitled to Sensory Processing Disorder > > therapy in school by law? > > A:The Individuals with Disabilities Education Act (IDEA) > > guarantees a free and appropriate public education with peers, to the maximum > > extent appropriate, to all eligible children with disabilities (ages 3-21) who > > need special education and related services in order to learn in school. > > Children with disabilities can receive occupational therapy (OT) if they > > qualify for special education. In addition, a school team, including the > > parents, must decide if the therapy is necessary. (Some school districts will > > provide OT in other instances, e.g., to give teachers suggestions before > > referring a child to special education, called a pre-referral.) > > There are no provisions in state or federal law that > > specify how OT, once recommended by the team, must be provided. This includes > > the service model, frequency of intervention, and the frame of reference. > > In due process hearings and the courts, the issue of > > theory base or frame of reference has been referred to as a methodology > > decision. One of the latest court decisions regarding methodology centered > > around individual instruction for a student with dyslexia using the > > Ortho-Gillingham method (E.S. v. Independent Sch. Dist. No. 196). The district > > court disallowed the parent's request for this kind of reading instruction, > > stating that schools have discretion over methodology decisions as long as the > > program provides a free and appropriate public education. > > Therapists who recommend school-based sensory integration > > therapy must show how the student needs this kind of occupational therapy in > > order to benefit from participation in the curriculum and specific school > > activities. Important issues to address (in jargon-free language) > > include: > > > Quote Link to comment Share on other sites More sharing options...
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