Re: Oh no, it's him again!

[Guest guest]

Mark,

I started on the MSM when I went to Florida. It does help me.... I have cut

out the Lodine almost completely but I am still on 15 mg of Predisone....cut

down from 20 so far................so far so good....... thought I would let

you know. I am building up on the Mino too.....started with 100 mg days but

now on 100 mg 7 days......

[Guest guest]

" HOLMES, MARK T. " wrote:

> But put Joe Graff ahead of me - after all

> he's using DMSO and that qualifies him for the top spot!

Aww, Mark, you're just jealous that the voices only talk to me!

<g>

j.

------------------------------------

ph A. Graff

Director of Digital Prepress

Graphic Communications, Inc.

(301) 599-2020

" Obstacles are those frightful things

you see when you take your eyes off

your goals "

[Guest guest]

Mark: Get in Line. I'm the first Looney to start spouting off about MSM

on here.

I give first credit of all my improvement to AP, then after that comes MSM.

Some folks on here have said they tried it and it didn't work for them. I

really suspect that they just weren't using a large enough dose. I

encourage anyone who is the slightest bit interested in this get a copy of

Dr. Stanley 's book - " The Miracle of MSM - the Natural solution for

pain. " nuff said. Judy (deejay) son, WA scleroderma 10+ yrs AP 2

yrs.

----------

> From: HOLMES, MARK T. <MHOLMES@...>

> rheumaticonelist

> Subject: rheumatic Oh no, it's him again!

> Date: Monday, March 15, 1999 1:20 PM

>

> From: MHOLMES@... (HOLMES, MARK T.)

>

> Dr. Siegel,

>

> I suspect you have probably created a new folder in your email program

> labeled " Study Patients - Crackpots " and I am probably up there near the

> top with my babblings about MSM. (But put Joe Graff ahead of me - after

all

> he's using DMSO and that qualifies him for the top spot! Ha! ha! - don't

> tell him I said that!) From our viewpoint though, we will just about try

> anything as long as it doesn't kill us or cause our liver/kidneys to fail

or

> our hair to fall out! (and if I can't find any evidence that it is

harmful)

>

> Hopefully, I didn't push too many of the wrong buttons. My questions

were

> serious, however. Naturally, I am concerned about my hands. However, I

> personally don't like the thought of drugs that suppress the immune

system..

> To me, despite perhaps their initial efficacy, they don't make much sense

> when it comes to treating me as a " whole " person. I just don't like the

> thought of compromising my immune system. Fix one thing and end up with

> potentially a variety of even worse problems. However, when/if I am in

a

> wheelchair I may change my mind on that..

>

> One aspect of this disease I'm not sure I understand: if the synovial

> tissue and fluid becomes inflamed and causes pressure on cartilege and

bone,

> thus causing erosion, then whey don't anti-inflammatories and ice help to

> control that inflammation? Or do they, but just not enough? I have

noticed

> that when I back off of my Lodine and knock it down to just 400 mg per

day

> that I can get pretty sore, which is depressing. I'm not sure I like the

> idea of just masking a problem, on the other hand if my alternative is to

> take an addictive pain killer, I guess I'll stick with the

> anti-inflammatories,although I understand that apparently they are

> ineffective at stopping the course of the disease..

>

> I guess I want a solution for which there is currently no solution.

You've

> probably heard all this a thousand times. I am generally a very

persistent,

> pain in the a... person though when it comes to looking for a solution to

a

> problem. However, I will try not to take that out on you, outside of

this

> note..

>

> Thanks,

> Mark

>

> RA 4/98 A/P 7/98

> Mino (100mg/2x/daily)

> MSM 8g/day

> http://members.tripod.com/~Mark_Holmes

> RA Chat: http://members.tripod.com/~Mark_Holmes/RA/ra.html

> mholmes@... ICQ # 18123139

> ----------------------------------------------------------------

>

>

>

>

> ------------------------------------------------------------------------

> We are proud as punch of our new web site!

>

> Onelist: The leading provider of free email community services

>

>

[Guest guest]

Mark I have been wonder about that too. The anti inflammatory I take

either doesn't work or I could be worse off if I didn't take it. I'm

scared not to take it. I had to get my rings cut off last month and am

getting them enlarged. So much for anti inflams. But my nodules on my

knuckles have " disappeared " . I thank the minocin. But if the

inflammation is there the Minocin can't get to the microplasmas to knock

them out. What's next. Just carry on like this? I have less stiffness

but the same swelling. Crazy!

Bev

rheumatic Oh no, it's him again!

>From: MHOLMES@... (HOLMES, MARK T.)

>

>Dr. Siegel,

>

>I suspect you have probably created a new folder in your email program

>labeled " Study Patients - Crackpots " and I am probably up there near the

>top with my babblings about MSM. (But put Joe Graff ahead of me - after all

>he's using DMSO and that qualifies him for the top spot! Ha! ha! - don't

>tell him I said that!) From our viewpoint though, we will just about try

>anything as long as it doesn't kill us or cause our liver/kidneys to fail

or

>our hair to fall out! (and if I can't find any evidence that it is harmful)

>

>Hopefully, I didn't push too many of the wrong buttons. My questions were

>serious, however. Naturally, I am concerned about my hands. However, I

>personally don't like the thought of drugs that suppress the immune system.

>To me, despite perhaps their initial efficacy, they don't make much sense

>when it comes to treating me as a " whole " person. I just don't like the

>thought of compromising my immune system. Fix one thing and end up with

>potentially a variety of even worse problems. However, when/if I am in a

>wheelchair I may change my mind on that.

>

>One aspect of this disease I'm not sure I understand: if the synovial

>tissue and fluid becomes inflamed and causes pressure on cartilege and

bone,

>thus causing erosion, then whey don't anti-inflammatories and ice help to

>control that inflammation? Or do they, but just not enough? I have

noticed

>that when I back off of my Lodine and knock it down to just 400 mg per day

>that I can get pretty sore, which is depressing. I'm not sure I like the

>idea of just masking a problem, on the other hand if my alternative is to

>take an addictive pain killer, I guess I'll stick with the

>anti-inflammatories,although I understand that apparently they are

>ineffective at stopping the course of the disease.

>

>I guess I want a solution for which there is currently no solution. You've

>probably heard all this a thousand times. I am generally a very

persistent,

>pain in the a... person though when it comes to looking for a solution to a

>problem. However, I will try not to take that out on you, outside of this

>note.

>

>Thanks,

>Mark

>

>RA 4/98 A/P 7/98

>Mino (100mg/2x/daily)

>MSM 8g/day

>http://members.tripod.com/~Mark_Holmes

>RA Chat: http://members.tripod.com/~Mark_Holmes/RA/ra.html

>mholmes@... ICQ # 18123139

>----------------------------------------------------------------

>

>

>

>

>------------------------------------------------------------------------

>We are proud as punch of our new web site!

>

>Onelist: The leading provider of free email community services

>

[Guest guest]

I wonder how you know if it is the anti-inflammatory working or if it is the

minocycline finally kicking in?

Mark

Re: rheumatic Re: Oh no, it's him again!

>Bev, I went thru about six anti inflams before I found one that works

>and the swelling is very minimal. I would talk to the doc about trying

>other ones. Also Oruvail is the one I take and it really works on tne

>hand inflamation. At least it does for me. Last year at this time I

>could hardly put my biggest shoes on. The other day I was just going out

>for a few minutes--didn't want to put tennies on so I looked at the

>flats I used to wear and slipped them on with ease!!! AP works!!!

>

>Cooky

>Briarwood wrote:

>>

>> From: " Briarwood " <briarwood@...>

>>

>> Mark I have been wonder about that too. The anti inflammatory I take

>> either doesn't work or I could be worse off if I didn't take it

[Guest guest]

Bev, I went thru about six anti inflams before I found one that works

and the swelling is very minimal. I would talk to the doc about trying

other ones. Also Oruvail is the one I take and it really works on tne

hand inflamation. At least it does for me. Last year at this time I

could hardly put my biggest shoes on. The other day I was just going out

for a few minutes--didn't want to put tennies on so I looked at the

flats I used to wear and slipped them on with ease!!! AP works!!!

Cooky

Briarwood wrote:

>

> From: " Briarwood " <briarwood@...>

>

> Mark I have been wonder about that too. The anti inflammatory I take

> either doesn't work or I could be worse off if I didn't take it. I'm

> scared not to take it. I had to get my rings cut off last month and am

> getting them enlarged. So much for anti inflams. But my nodules on my

> knuckles have " disappeared " . I thank the minocin. But if the

> inflammation is there the Minocin can't get to the microplasmas to knock

> them out. What's next. Just carry on like this? I have less stiffness

> but the same swelling. Crazy!

>

> Bev

> rheumatic Oh no, it's him again!

>

> >From: MHOLMES@... (HOLMES, MARK T.)

> >

> >Dr. Siegel,

> >

> >I suspect you have probably created a new folder in your email program

> >labeled " Study Patients - Crackpots " and I am probably up there near the

> >top with my babblings about MSM. (But put Joe Graff ahead of me - after all

> >he's using DMSO and that qualifies him for the top spot! Ha! ha! - don't

> >tell him I said that!) From our viewpoint though, we will just about try

> >anything as long as it doesn't kill us or cause our liver/kidneys to fail

> or

> >our hair to fall out! (and if I can't find any evidence that it is harmful)

> >

> >Hopefully, I didn't push too many of the wrong buttons. My questions were

> >serious, however. Naturally, I am concerned about my hands. However, I

> >personally don't like the thought of drugs that suppress the immune system.

> >To me, despite perhaps their initial efficacy, they don't make much sense

> >when it comes to treating me as a " whole " person. I just don't like the

> >thought of compromising my immune system. Fix one thing and end up with

> >potentially a variety of even worse problems. However, when/if I am in a

> >wheelchair I may change my mind on that.

> >

> >One aspect of this disease I'm not sure I understand: if the synovial

> >tissue and fluid becomes inflamed and causes pressure on cartilege and

> bone,

> >thus causing erosion, then whey don't anti-inflammatories and ice help to

> >control that inflammation? Or do they, but just not enough? I have

> noticed

> >that when I back off of my Lodine and knock it down to just 400 mg per day

> >that I can get pretty sore, which is depressing. I'm not sure I like the

> >idea of just masking a problem, on the other hand if my alternative is to

> >take an addictive pain killer, I guess I'll stick with the

> >anti-inflammatories,although I understand that apparently they are

> >ineffective at stopping the course of the disease.

> >

> >I guess I want a solution for which there is currently no solution. You've

> >probably heard all this a thousand times. I am generally a very

> persistent,

> >pain in the a... person though when it comes to looking for a solution to a

> >problem. However, I will try not to take that out on you, outside of this

> >note.

> >

> >Thanks,

> >Mark

> >

> >RA 4/98 A/P 7/98

> >Mino (100mg/2x/daily)

> >MSM 8g/day

> >http://members.tripod.com/~Mark_Holmes

> >RA Chat: http://members.tripod.com/~Mark_Holmes/RA/ra.html

> >mholmes@... ICQ # 18123139

> >----------------------------------------------------------------

> >

> >

> >

> >

> >------------------------------------------------------------------------

> >We are proud as punch of our new web site!

> >

> >Onelist: The leading provider of free email community services

> >

>

> ------------------------------------------------------------------------

> Is ONElist important to you? Has it changed your life?

>

> Come visit our new web site and share with us your stories

[Guest guest]

Mark, I finally got off the Cortef about two weeks ago. I thought I felt

so good I'd try to stop the Oruvail. I take it in the mornimg and by 7PM

I was really achy in my wrists and ankles. I rode out the night. The

next AM I took rhe Oruvail and about 10 AM I felt much better.

Cooky

" HOLMES, MARK T. " wrote:

>

> I wonder how you know if it is the anti-inflammatory working or if it is the

> minocycline finally kicking in?

>

> Mark

>

> Re: rheumatic Re: Oh no, it's him again!

>

> >Bev, I went thru about six anti inflams before I found one that works

> >and the swelling is very minimal. I would talk to the doc about trying

> >other ones. Also Oruvail is the one I take and it really works on tne

> >hand inflamation. At least it does for me. Last year at this time I

> >could hardly put my biggest shoes on. The other day I was just going out

> >for a few minutes--didn't want to put tennies on so I looked at the

> >flats I used to wear and slipped them on with ease!!! AP works!!!

> >

> >Cooky

> >Briarwood wrote:

> >>

> >> From: " Briarwood " <briarwood@...>

> >>

> >> Mark I have been wonder about that too. The anti inflammatory I take

> >> either doesn't work or I could be worse off if I didn't take it

[Guest guest]

I wonder if we'll have to be on the anti inflams until we get rid of the RA.

Bev

rheumatic Re: Oh no, it's him again!

>From: COOKY STONKEY <cooky1@...>

>

>Mark, I finally got off the Cortef about two weeks ago. I thought I felt

>so good I'd try to stop the Oruvail. I take it in the mornimg and by 7PM

>I was really achy in my wrists and ankles. I rode out the night. The

>next AM I took rhe Oruvail and about 10 AM I felt much better.

>

>Cooky

> " HOLMES, MARK T. " wrote:

>>

>> I wonder how you know if it is the anti-inflammatory working or if it is

the

>> minocycline finally kicking in?

>>

>> Mark

>>

[Guest guest]

To start to forget to take your NSAIDs and not notice.

Donna

Ottawa, Canada

Scleroderma, Raynaud's 01/95, AP 10/97

(My Story) www.compmore.net/~donray

Re: rheumatic Re: Oh no, it's him again!

>

>

>>Bev, I went thru about six anti inflams before I found one that works

>>and the swelling is very minimal. I would talk to the doc about trying

>>other ones. Also Oruvail is the one I take and it really works on tne

>>hand inflamation. At least it does for me. Last year at this time I

>>could hardly put my biggest shoes on. The other day I was just going out

>>for a few minutes--didn't want to put tennies on so I looked at the

>>flats I used to wear and slipped them on with ease!!! AP works!!!

>>

>>Cooky

>>Briarwood wrote:

>>>

>>> From: " Briarwood " <briarwood@...>

>>>

>>> Mark I have been wonder about that too. The anti inflammatory I take

>>> either doesn't work or I could be worse off if I didn't take it

>

>

>------------------------------------------------------------------------

>Start a new hobby. Meet a new friend.

>

>Onelist: The leading provider of free email list services

>

[Guest guest]

YES!!! That is exactly how I noticed - actually forgot to take the NSAIDS

- had depended on my body to scream, " take the medicine, stupid, you can't

get up! "

janet in tulsa

PA 5+yrs. AP14 mon.

----------

> From: Donna and Ray <donray@...>

> HOLMES, MARK T. <MHOLMES@...>

> Cc: AP - AP Support Group New <rheumaticonelist>

> Subject: rheumatic Re: Oh no, it's him again!

> Date: Tuesday, March 16, 1999 1:10 PM

>

> From: " Donna and Ray " <donray@...>

>

> To start to forget to take your NSAIDs and not notice.

>

> Donna

> Ottawa, Canada

> Scleroderma, Raynaud's 01/95, AP 10/97

> (My Story) www.compmore.net/~donray

> Re: rheumatic Re: Oh no, it's him again!

> >

> >

> >>Bev, I went thru about six anti inflams before I found one that works

> >>and the swelling is very minimal. I would talk to the doc about trying

> >>other ones. Also Oruvail is the one I take and it really works on tne

> >>hand inflamation. At least it does for me. Last year at this time I

> >>could hardly put my biggest shoes on. The other day I was just going

out

> >>for a few minutes--didn't want to put tennies on so I looked at the

> >>flats I used to wear and slipped them on with ease!!! AP works!!!

> >>

> >>Cooky

> >>Briarwood wrote:

> >>>

> >>> From: " Briarwood " <briarwood@...>

> >>>

> >>> Mark I have been wonder about that too. The anti inflammatory I

take

> >>> either doesn't work or I could be worse off if I didn't take it

> >

> >

> >------------------------------------------------------------------------

> >Start a new hobby. Meet a new friend.

> >

> >Onelist: The leading provider of free email list services

> >

>

>

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