Re: Question about sound generators

[Guest guest]

Thank you. We were able to reach the audiologist yesterday afternoon, he told

her to use a different program, which would have just sound but the microphoone

would be off. He never mentioned " plain sound generators " to us. We are going

back on Monday for some adjustments, can you point me toward any websites I

could look at for more info in the meantime?

>

> If she got Widex generators, then they are actually hearing aids with a

> " Zen " program. The hearing aid part is not necessary if her hearing is

> normal. It may depend on what level of technology she got as to how the

> program can be set, but you should be able to have them set to where the

> Volume Control is for the white noise only. If her hearing is normal, a

> plain set of sound generators might also be an option. You should

> definitely ask your audiologist for clarification as to how to control them

> appropriately.

>

>

>

> Best regards,

>

>

>

> Pollard, Au.D.

>

[Guest guest]

There are two manufacturers of sound generators:

1) Amplisound makes the Solace

2) General Hearing Instruments make the Tranquil

If you do not have hearing loss, you do not need a hearing aid and should not

pay for a hearing aid.

Typically, sound therapy for 4S/Miso involves one of the two mentioned above,

and they both have volume controls.

Not sure who you are seeing, however, we have a great provider group at

www.misophonia-provider.com

Dr. Marsha , AuD

> >

> > If she got Widex generators, then they are actually hearing aids with a

> > " Zen " program. The hearing aid part is not necessary if her hearing is

> > normal. It may depend on what level of technology she got as to how the

> > program can be set, but you should be able to have them set to where the

> > Volume Control is for the white noise only. If her hearing is normal, a

> > plain set of sound generators might also be an option. You should

> > definitely ask your audiologist for clarification as to how to control them

> > appropriately.

> >

> >

> >

> > Best regards,

> >

> >

> >

> > Pollard, Au.D.

> >

>

[Guest guest]

There are two manufacturers of sound generators:

1) Amplisound makes the Solace

2) General Hearing Instruments make the Tranquil

If you do not have hearing loss, you do not need a hearing aid and should not

pay for a hearing aid.

Typically, sound therapy for 4S/Miso involves one of the two mentioned above,

and they both have volume controls.

Not sure who you are seeing, however, we have a great provider group at

www.misophonia-provider.com

Dr. Marsha , AuD

> >

> > If she got Widex generators, then they are actually hearing aids with a

> > " Zen " program. The hearing aid part is not necessary if her hearing is

> > normal. It may depend on what level of technology she got as to how the

> > program can be set, but you should be able to have them set to where the

> > Volume Control is for the white noise only. If her hearing is normal, a

> > plain set of sound generators might also be an option. You should

> > definitely ask your audiologist for clarification as to how to control them

> > appropriately.

> >

> >

> >

> > Best regards,

> >

> >

> >

> > Pollard, Au.D.

> >

>

[Guest guest]

I don't know about elementary schools, but my son's high school here in Virginia

has online courses that kids can take in place of a regular class. These kids

go to the library and get on a computer for their " class " during regular class

periods. The best contact for questions about the online offerings is the

guidance office at the school.

> >

> > Hi!

> >

> > My 16 year old daughter has not been to school in a month because she has

been

> >having panic attacks due to the sounds of the other students, and some

teachers,

> >chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist

in

> >my area who had heard of misophonia, and he actually diagnosed my daughter

with

> >both that and mild hyperacusis. She got her Widex sound generators two days

ago,

> >but is still afraid to go back to school, because she can't figure out how to

> >increase the volume of the sound generated without also increasing the amount

of

> >the " outside " noise she receives, too. Does anyone here have any experience

with

> >this?

> >

> > Thanks,

> > Judi

> >

>

[Guest guest]

I don't know about elementary schools, but my son's high school here in Virginia

has online courses that kids can take in place of a regular class. These kids

go to the library and get on a computer for their " class " during regular class

periods. The best contact for questions about the online offerings is the

guidance office at the school.

> >

> > Hi!

> >

> > My 16 year old daughter has not been to school in a month because she has

been

> >having panic attacks due to the sounds of the other students, and some

teachers,

> >chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist

in

> >my area who had heard of misophonia, and he actually diagnosed my daughter

with

> >both that and mild hyperacusis. She got her Widex sound generators two days

ago,

> >but is still afraid to go back to school, because she can't figure out how to

> >increase the volume of the sound generated without also increasing the amount

of

> >the " outside " noise she receives, too. Does anyone here have any experience

with

> >this?

> >

> > Thanks,

> > Judi

> >

>

[Guest guest]

$5,000 a pair? That is a ridiculous price. Are they hearing aids or sound

generators...

> >

> > Hi Judi,

> >

> > I certainly can relate to your daughter because there isn't any control on

what

> > she can do.  She is in an environment where she has no control on the

sounds or

> > the people making them.  Is there any  way you and your daughter can meet

with

> > the teacher before or after class just to give them a try?  Maybe she'll be

able

> > to gain some confidence in learning how to work the sound generators, and

> > testing them out to get some kind of idea how/if they will benefit her?

> >

> > I think the thing for most of us with Misophonia is being able to have

control

> > on our environment which is very challenging, and when you're young it's

that

> > much harder.

> >

> >

> >

> >

> >

> >

> > ________________________________

> > From: jelana118 <lindie@>

> > To: Soundsensitivity

> > Sent: Thu, November 17, 2011 6:45:45 AM

> > Subject: Question about sound generators

> >

> >  

> > Hi!

> >

> > My 16 year old daughter has not been to school in a month because she has

been

> > having panic attacks due to the sounds of the other students, and some

teachers,

> > chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist

in

> > my area who had heard of misophonia, and he actually diagnosed my daughter

with

> > both that and mild hyperacusis. She got her Widex sound generators two days

ago,

> > but is still afraid to go back to school, because she can't figure out how

to

> > increase the volume of the sound generated without also increasing the

amount of

> > the " outside " noise she receives, too. Does anyone here have any experience

with

> > this?

> >

> > Thanks,

> > Judi

> >

>

[Guest guest]

I purchased in-ear white noise generators for an audiologist for thousands of

dollars and for me they didn't do the job as I could still hear nearly every

irritating sound plus the white noise. It is hard to explain but they didn't

work for me. I wish I would have found the following sooner.

http://www.naturestapestry.com/sleepeze.html

They are only 200 bucks and they use ear plugs plus the white noise. The

benefit is that I can leave out the batteriies and just use them as white noise

generators but without explanation because they look like hearing aids. So if I

don't feel like explaining 4s to peoplei just say they are hearing aids for ear

issues I have. Which is true. They aid me in masking the sounds I hate.

The drawback is that you can't turn them off completely which would be wonderful

but like I said, you can always remove the batteries.

This is such a small price to pay. I really encourage you to try these. (I am

from Canada and they were able to ship them to me when I talked to them over the

phone.)

All the best.

-- In Soundsensitivity , " lsalin " wrote:

>

> $5,000 a pair? That is a ridiculous price. Are they hearing aids or sound

generators...

>

>

>

> > >

> > > Hi Judi,

> > >

> > > I certainly can relate to your daughter because there isn't any control on

what

> > > she can do.  She is in an environment where she has no control on the

sounds or

> > > the people making them.  Is there any  way you and your daughter can

meet with

> > > the teacher before or after class just to give them a try?  Maybe she'll

be able

> > > to gain some confidence in learning how to work the sound generators, and

> > > testing them out to get some kind of idea how/if they will benefit her?

> > >

> > > I think the thing for most of us with Misophonia is being able to have

control

> > > on our environment which is very challenging, and when you're young it's

that

> > > much harder.

> > >

> > >

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: jelana118 <lindie@>

> > > To: Soundsensitivity

> > > Sent: Thu, November 17, 2011 6:45:45 AM

> > > Subject: Question about sound generators

> > >

> > >  

> > > Hi!

> > >

> > > My 16 year old daughter has not been to school in a month because she has

been

> > > having panic attacks due to the sounds of the other students, and some

teachers,

> > > chewing gum, sniffling, tapping pencils, etc. I finally found an

audiologist in

> > > my area who had heard of misophonia, and he actually diagnosed my daughter

with

> > > both that and mild hyperacusis. She got her Widex sound generators two

days ago,

> > > but is still afraid to go back to school, because she can't figure out how

to

> > > increase the volume of the sound generated without also increasing the

amount of

> > > the " outside " noise she receives, too. Does anyone here have any

experience with

> > > this?

> > >

> > > Thanks,

> > > Judi

> > >

> >

>