Re: Question about sound generators

[Guest guest]

Judi - My 13 year old tried out a pair of sound generators last week in the Dr's office - we ended up going w/a nano iPod because $2,500 for the sound generators - it was my understanding (maybe I'm wrong - please check with your Dr) that the only thing the volume affected was the "white noise" being piped into the ear from the generators and NOT increasing the volume of the outside noise.Definately give your Dr a call!!Best of luck to you all.

Hi!

My 16 year old daughter has not been to school in a month because she has been having panic attacks due to the sounds of the other students, and some teachers, chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist in my area who had heard of misophonia, and he actually diagnosed my daughter with both that and mild hyperacusis. She got her Widex sound generators two days ago, but is still afraid to go back to school, because she can't figure out how to increase the volume of the sound generated without also increasing the amount of the "outside" noise she receives, too. Does anyone here have any experience with this?

Thanks,

Judi

[Guest guest]

Judi - My 13 year old tried out a pair of sound generators last week in the Dr's office - we ended up going w/a nano iPod because $2,500 for the sound generators - it was my understanding (maybe I'm wrong - please check with your Dr) that the only thing the volume affected was the "white noise" being piped into the ear from the generators and NOT increasing the volume of the outside noise.Definately give your Dr a call!!Best of luck to you all.

Hi!

My 16 year old daughter has not been to school in a month because she has been having panic attacks due to the sounds of the other students, and some teachers, chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist in my area who had heard of misophonia, and he actually diagnosed my daughter with both that and mild hyperacusis. She got her Widex sound generators two days ago, but is still afraid to go back to school, because she can't figure out how to increase the volume of the sound generated without also increasing the amount of the "outside" noise she receives, too. Does anyone here have any experience with this?

Thanks,

Judi

[Guest guest]

school is almost unbearable by the time high school comes around. my son made it

halfway thru his junior year before a panic attack. i decided it was in his best

interest, health wise, to be tutored one on one so he could finish high school

without the chronic stress/anxiety. he attends the local ed.ctr. 2 hours/day and

the staff are aware of his misophonia. he learns in peace without the constant

anxiety of a public school. its been a good decision for him. i do feel very sad

for all the kids with this condition who feel high anxiety daily due to stresses

of traditional classrooms. its a double whammy!

>

> Hi!

>

> My 16 year old daughter has not been to school in a month because she has been

having panic attacks due to the sounds of the other students, and some teachers,

chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist in

my area who had heard of misophonia, and he actually diagnosed my daughter with

both that and mild hyperacusis. She got her Widex sound generators two days ago,

but is still afraid to go back to school, because she can't figure out how to

increase the volume of the sound generated without also increasing the amount of

the " outside " noise she receives, too. Does anyone here have any experience

with this?

>

> Thanks,

> Judi

>

[Guest guest]

school is almost unbearable by the time high school comes around. my son made it

halfway thru his junior year before a panic attack. i decided it was in his best

interest, health wise, to be tutored one on one so he could finish high school

without the chronic stress/anxiety. he attends the local ed.ctr. 2 hours/day and

the staff are aware of his misophonia. he learns in peace without the constant

anxiety of a public school. its been a good decision for him. i do feel very sad

for all the kids with this condition who feel high anxiety daily due to stresses

of traditional classrooms. its a double whammy!

>

> Hi!

>

> My 16 year old daughter has not been to school in a month because she has been

having panic attacks due to the sounds of the other students, and some teachers,

chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist in

my area who had heard of misophonia, and he actually diagnosed my daughter with

both that and mild hyperacusis. She got her Widex sound generators two days ago,

but is still afraid to go back to school, because she can't figure out how to

increase the volume of the sound generated without also increasing the amount of

the " outside " noise she receives, too. Does anyone here have any experience

with this?

>

> Thanks,

> Judi

>

[Guest guest]

Hi Judi,

I certainly can relate to your daughter because there isn't any control on what she can do. She is in an environment where she has no control on the sounds or the people making them. Is there any way you and your daughter can meet with the teacher before or after class just to give them a try? Maybe she'll be able to gain some confidence in learning how to work the sound generators, and testing them out to get some kind of idea how/if they will benefit her?

I think the thing for most of us with Misophonia is being able to have control on our environment which is very challenging, and when you're young it's that much harder.

To: Soundsensitivity Sent: Thu, November 17, 2011 6:45:45 AMSubject: Question about sound generators

Hi!My 16 year old daughter has not been to school in a month because she has been having panic attacks due to the sounds of the other students, and some teachers, chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist in my area who had heard of misophonia, and he actually diagnosed my daughter with both that and mild hyperacusis. She got her Widex sound generators two days ago, but is still afraid to go back to school, because she can't figure out how to increase the volume of the sound generated without also increasing the amount of the "outside" noise she receives, too. Does anyone here have any experience with this?Thanks,Judi

[Guest guest]

Hi Judi,

I certainly can relate to your daughter because there isn't any control on what she can do. She is in an environment where she has no control on the sounds or the people making them. Is there any way you and your daughter can meet with the teacher before or after class just to give them a try? Maybe she'll be able to gain some confidence in learning how to work the sound generators, and testing them out to get some kind of idea how/if they will benefit her?

I think the thing for most of us with Misophonia is being able to have control on our environment which is very challenging, and when you're young it's that much harder.

To: Soundsensitivity Sent: Thu, November 17, 2011 6:45:45 AMSubject: Question about sound generators

Hi!My 16 year old daughter has not been to school in a month because she has been having panic attacks due to the sounds of the other students, and some teachers, chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist in my area who had heard of misophonia, and he actually diagnosed my daughter with both that and mild hyperacusis. She got her Widex sound generators two days ago, but is still afraid to go back to school, because she can't figure out how to increase the volume of the sound generated without also increasing the amount of the "outside" noise she receives, too. Does anyone here have any experience with this?Thanks,Judi

[Guest guest]

Even though I have misophonia, you would think I would have been more on top of things when my son was going though school. My husband and I helped him study at home, and we had extra help out side of school, but he barely made it though. Now that he's an adult, he is finishing up his Associates degree with ALL on line courses. It is a blessing that there are different avenues to become educated in college or he would not be doing this. I wonder if they have on line courses for children in grade or high school? Maybe something for the future???

To: Soundsensitivity Sent: Thu, November 17, 2011 7:10:36 AMSubject: Re: Question about sound generators

school is almost unbearable by the time high school comes around. my son made it halfway thru his junior year before a panic attack. i decided it was in his best interest, health wise, to be tutored one on one so he could finish high school without the chronic stress/anxiety. he attends the local ed.ctr. 2 hours/day and the staff are aware of his misophonia. he learns in peace without the constant anxiety of a public school. its been a good decision for him. i do feel very sad for all the kids with this condition who feel high anxiety daily due to stresses of traditional classrooms. its a double whammy! >> Hi!> > My 16 year old daughter has not been to school in a month because she has been having panic

attacks due to the sounds of the other students, and some teachers, chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist in my area who had heard of misophonia, and he actually diagnosed my daughter with both that and mild hyperacusis. She got her Widex sound generators two days ago, but is still afraid to go back to school, because she can't figure out how to increase the volume of the sound generated without also increasing the amount of the "outside" noise she receives, too. Does anyone here have any experience with this?> > Thanks,> Judi>

[Guest guest]

Even though I have misophonia, you would think I would have been more on top of things when my son was going though school. My husband and I helped him study at home, and we had extra help out side of school, but he barely made it though. Now that he's an adult, he is finishing up his Associates degree with ALL on line courses. It is a blessing that there are different avenues to become educated in college or he would not be doing this. I wonder if they have on line courses for children in grade or high school? Maybe something for the future???

To: Soundsensitivity Sent: Thu, November 17, 2011 7:10:36 AMSubject: Re: Question about sound generators

school is almost unbearable by the time high school comes around. my son made it halfway thru his junior year before a panic attack. i decided it was in his best interest, health wise, to be tutored one on one so he could finish high school without the chronic stress/anxiety. he attends the local ed.ctr. 2 hours/day and the staff are aware of his misophonia. he learns in peace without the constant anxiety of a public school. its been a good decision for him. i do feel very sad for all the kids with this condition who feel high anxiety daily due to stresses of traditional classrooms. its a double whammy! >> Hi!> > My 16 year old daughter has not been to school in a month because she has been having panic

attacks due to the sounds of the other students, and some teachers, chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist in my area who had heard of misophonia, and he actually diagnosed my daughter with both that and mild hyperacusis. She got her Widex sound generators two days ago, but is still afraid to go back to school, because she can't figure out how to increase the volume of the sound generated without also increasing the amount of the "outside" noise she receives, too. Does anyone here have any experience with this?> > Thanks,> Judi>

[Guest guest]

Even though I have misophonia, you would think I would have been more on top of things when my son was going though school. My husband and I helped him study at home, and we had extra help out side of school, but he barely made it though. Now that he's an adult, he is finishing up his Associates degree with ALL on line courses. It is a blessing that there are different avenues to become educated in college or he would not be doing this. I wonder if they have on line courses for children in grade or high school? Maybe something for the future???

To: Soundsensitivity Sent: Thu, November 17, 2011 7:10:36 AMSubject: Re: Question about sound generators

school is almost unbearable by the time high school comes around. my son made it halfway thru his junior year before a panic attack. i decided it was in his best interest, health wise, to be tutored one on one so he could finish high school without the chronic stress/anxiety. he attends the local ed.ctr. 2 hours/day and the staff are aware of his misophonia. he learns in peace without the constant anxiety of a public school. its been a good decision for him. i do feel very sad for all the kids with this condition who feel high anxiety daily due to stresses of traditional classrooms. its a double whammy! >> Hi!> > My 16 year old daughter has not been to school in a month because she has been having panic

attacks due to the sounds of the other students, and some teachers, chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist in my area who had heard of misophonia, and he actually diagnosed my daughter with both that and mild hyperacusis. She got her Widex sound generators two days ago, but is still afraid to go back to school, because she can't figure out how to increase the volume of the sound generated without also increasing the amount of the "outside" noise she receives, too. Does anyone here have any experience with this?> > Thanks,> Judi>

[Guest guest]

Thanks for the responses. Florida actually has one of the best virtual school

programs in the country, but we tried that for the second half of last year, and

she was just not able to learn like that. Unfortunately, I can't afford a

private tutor.

I will have her call the dr and see if there is something he can tell her that

wasn't in the manual. These are $5K for the pair, but we have 30 days to figure

out whether they will work or not. The school would let her use her ipod, but

she does not want to be having to explain that constantly, that would be just

another source of stress.

>

> Hi Judi,

>

> I certainly can relate to your daughter because there isn't any control on

what

> she can do.  She is in an environment where she has no control on the sounds

or

> the people making them.  Is there any  way you and your daughter can meet

with

> the teacher before or after class just to give them a try?  Maybe she'll be

able

> to gain some confidence in learning how to work the sound generators, and

> testing them out to get some kind of idea how/if they will benefit her?

>

> I think the thing for most of us with Misophonia is being able to have control

> on our environment which is very challenging, and when you're young it's that

> much harder.

>

>

>

>

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Thu, November 17, 2011 6:45:45 AM

> Subject: Question about sound generators

>

>  

> Hi!

>

> My 16 year old daughter has not been to school in a month because she has been

> having panic attacks due to the sounds of the other students, and some

teachers,

> chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist

in

> my area who had heard of misophonia, and he actually diagnosed my daughter

with

> both that and mild hyperacusis. She got her Widex sound generators two days

ago,

> but is still afraid to go back to school, because she can't figure out how to

> increase the volume of the sound generated without also increasing the amount

of

> the " outside " noise she receives, too. Does anyone here have any experience

with

> this?

>

> Thanks,

> Judi

>

[Guest guest]

Thanks for the responses. Florida actually has one of the best virtual school

programs in the country, but we tried that for the second half of last year, and

she was just not able to learn like that. Unfortunately, I can't afford a

private tutor.

I will have her call the dr and see if there is something he can tell her that

wasn't in the manual. These are $5K for the pair, but we have 30 days to figure

out whether they will work or not. The school would let her use her ipod, but

she does not want to be having to explain that constantly, that would be just

another source of stress.

>

> Hi Judi,

>

> I certainly can relate to your daughter because there isn't any control on

what

> she can do.  She is in an environment where she has no control on the sounds

or

> the people making them.  Is there any  way you and your daughter can meet

with

> the teacher before or after class just to give them a try?  Maybe she'll be

able

> to gain some confidence in learning how to work the sound generators, and

> testing them out to get some kind of idea how/if they will benefit her?

>

> I think the thing for most of us with Misophonia is being able to have control

> on our environment which is very challenging, and when you're young it's that

> much harder.

>

>

>

>

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Thu, November 17, 2011 6:45:45 AM

> Subject: Question about sound generators

>

>  

> Hi!

>

> My 16 year old daughter has not been to school in a month because she has been

> having panic attacks due to the sounds of the other students, and some

teachers,

> chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist

in

> my area who had heard of misophonia, and he actually diagnosed my daughter

with

> both that and mild hyperacusis. She got her Widex sound generators two days

ago,

> but is still afraid to go back to school, because she can't figure out how to

> increase the volume of the sound generated without also increasing the amount

of

> the " outside " noise she receives, too. Does anyone here have any experience

with

> this?

>

> Thanks,

> Judi

>

[Guest guest]

Thanks for the responses. Florida actually has one of the best virtual school

programs in the country, but we tried that for the second half of last year, and

she was just not able to learn like that. Unfortunately, I can't afford a

private tutor.

I will have her call the dr and see if there is something he can tell her that

wasn't in the manual. These are $5K for the pair, but we have 30 days to figure

out whether they will work or not. The school would let her use her ipod, but

she does not want to be having to explain that constantly, that would be just

another source of stress.

>

> Hi Judi,

>

> I certainly can relate to your daughter because there isn't any control on

what

> she can do.  She is in an environment where she has no control on the sounds

or

> the people making them.  Is there any  way you and your daughter can meet

with

> the teacher before or after class just to give them a try?  Maybe she'll be

able

> to gain some confidence in learning how to work the sound generators, and

> testing them out to get some kind of idea how/if they will benefit her?

>

> I think the thing for most of us with Misophonia is being able to have control

> on our environment which is very challenging, and when you're young it's that

> much harder.

>

>

>

>

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Thu, November 17, 2011 6:45:45 AM

> Subject: Question about sound generators

>

>  

> Hi!

>

> My 16 year old daughter has not been to school in a month because she has been

> having panic attacks due to the sounds of the other students, and some

teachers,

> chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist

in

> my area who had heard of misophonia, and he actually diagnosed my daughter

with

> both that and mild hyperacusis. She got her Widex sound generators two days

ago,

> but is still afraid to go back to school, because she can't figure out how to

> increase the volume of the sound generated without also increasing the amount

of

> the " outside " noise she receives, too. Does anyone here have any experience

with

> this?

>

> Thanks,

> Judi

>

[Guest guest]

wow $5k for sound gens is way overpriced. brandon tried the in ear sound gens

here in upstate ny from an audiologist for $1300 which she said was a good

price. he didnt like wearing them because he was conscious of what his friends

would think/say. most kids wont wear them therefore i believe they are a waste

of $money. my son does love his ipods/music which is much cheaper too! oh, the

high school up here in ny doesnt charge for private tutoring;every kid deserves

to learn in a quiet environment. good luck.

> >

> > Hi Judi,

> >

> > I certainly can relate to your daughter because there isn't any control on

what

> > she can do.  She is in an environment where she has no control on the

sounds or

> > the people making them.  Is there any  way you and your daughter can meet

with

> > the teacher before or after class just to give them a try?  Maybe she'll be

able

> > to gain some confidence in learning how to work the sound generators, and

> > testing them out to get some kind of idea how/if they will benefit her?

> >

> > I think the thing for most of us with Misophonia is being able to have

control

> > on our environment which is very challenging, and when you're young it's

that

> > much harder.

> >

> >

> >

> >

> >

> >

> > ________________________________

> > From: jelana118 <lindie@>

> > To: Soundsensitivity

> > Sent: Thu, November 17, 2011 6:45:45 AM

> > Subject: Question about sound generators

> >

> >  

> > Hi!

> >

> > My 16 year old daughter has not been to school in a month because she has

been

> > having panic attacks due to the sounds of the other students, and some

teachers,

> > chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist

in

> > my area who had heard of misophonia, and he actually diagnosed my daughter

with

> > both that and mild hyperacusis. She got her Widex sound generators two days

ago,

> > but is still afraid to go back to school, because she can't figure out how

to

> > increase the volume of the sound generated without also increasing the

amount of

> > the " outside " noise she receives, too. Does anyone here have any experience

with

> > this?

> >

> > Thanks,

> > Judi

> >

>

[Guest guest]

I think ipods are probably one of the best alternatives right now because you can control the volume and the kids can chose the music they would like to listen to, and it's not expensive. That is something, better than nothing at this point.

To: Soundsensitivity Sent: Thu, November 17, 2011 10:18:40 AMSubject: Re: Question about sound generators

wow $5k for sound gens is way overpriced. brandon tried the in ear sound gens here in upstate ny from an audiologist for $1300 which she said was a good price. he didnt like wearing them because he was conscious of what his friends would think/say. most kids wont wear them therefore i believe they are a waste of $money. my son does love his ipods/music which is much cheaper too! oh, the high school up here in ny doesnt charge for private tutoring;every kid deserves to learn in a quiet environment. good luck. > >> > Hi Judi,> > > > I certainly can relate to your daughter because there isn't any control on what > > she can do. She is in an environment where she has no control on the sounds or > > the people making them. Is there any way you

and your daughter can meet with > > the teacher before or after class just to give them a try? Maybe she'll be able > > to gain some confidence in learning how to work the sound generators, and > > testing them out to get some kind of idea how/if they will benefit her?> > > > I think the thing for most of us with Misophonia is being able to have control > > on our environment which is very challenging, and when you're young it's that > > much harder.> > > > > > > > > > > > > > ________________________________> > From: jelana118 <lindie@>> > To: Soundsensitivity > > Sent: Thu, November 17, 2011 6:45:45 AM>

> Subject: Question about sound generators> > > > Â > > Hi!> > > > My 16 year old daughter has not been to school in a month because she has been > > having panic attacks due to the sounds of the other students, and some teachers, > > chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist in > > my area who had heard of misophonia, and he actually diagnosed my daughter with > > both that and mild hyperacusis. She got her Widex sound generators two days ago, > > but is still afraid to go back to school, because she can't figure out how to > > increase the volume of the sound generated without also increasing the amount of > > the "outside" noise she receives, too. Does anyone here have any experience with > > this?> > > > Thanks,> > Judi>

>>

[Guest guest]

That's quite a difference in price. Can you give me some details on the $1300

ones?

The kids in Jenna's school can get some tutoring from their teachers when they

are having trouble, but not on an on-going basis as a substitute for going to

school. There is a program, separate from virtual school, for kids who are too

sick to attend school, which sends a teacher out to the home once a week, but

that program only covers the basics - no honors, AP, etc.

She does use her ipod around the house, and in the car when we are traveling.

> > >

> > > Hi Judi,

> > >

> > > I certainly can relate to your daughter because there isn't any control on

> >what

> >

> > > she can do.  She is in an environment where she has no control on the

sounds

> >or

> >

> > > the people making them.  Is there any  way you and your daughter can

meet

> >with

> >

> > > the teacher before or after class just to give them a try?  Maybe

she'll be

> >able

> >

> > > to gain some confidence in learning how to work the sound generators, and

> > > testing them out to get some kind of idea how/if they will benefit her?

> > >

> > > I think the thing for most of us with Misophonia is being able to have

> >control

> >

> > > on our environment which is very challenging, and when you're

young it's

> >that

> >

> > > much harder.

> > >

> > >

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: jelana118 <lindie@>

> > > To: Soundsensitivity

> > > Sent: Thu, November 17, 2011 6:45:45 AM

> > > Subject: Question about sound generators

> > >

> > >  

> > > Hi!

> > >

> > > My 16 year old daughter has not been to school in a month because she has

> >been

> >

> > > having panic attacks due to the sounds of the other students, and some

> >teachers,

> >

> > > chewing gum, sniffling, tapping pencils, etc. I finally found an

audiologist

> >in

> >

> > > my area who had heard of misophonia, and he actually diagnosed my daughter

> >with

> >

> > > both that and mild hyperacusis. She got her Widex sound generators two

days

> >ago,

> >

> > > but is still afraid to go back to school, because she can't figure out how

to

> >

> > > increase the volume of the sound generated without also increasing the

amount

> >of

> >

> > > the " outside " noise she receives, too. Does anyone here have any

experience

> >with

> >

> > > this?

> > >

> > > Thanks,

> > > Judi

> > >

> >

>

[Guest guest]

If you're referring to the ipods you can get them at Best Buy or Walmart for under $200 dollars. Around $189.00. But, with the Holidays coming around they will probably go on sale, and you can get them even cheaper. I thought they sold basic ipods for under $100, but I couldn't find anything when I was checking this out on the websites.

Maybe someone else might know of where they can be purchased for under $100???

To: Soundsensitivity Sent: Thu, November 17, 2011 1:05:48 PMSubject: Re: Question about sound generators

That's quite a difference in price. Can you give me some details on the $1300 ones? The kids in Jenna's school can get some tutoring from their teachers when they are having trouble, but not on an on-going basis as a substitute for going to school. There is a program, separate from virtual school, for kids who are too sick to attend school, which sends a teacher out to the home once a week, but that program only covers the basics - no honors, AP, etc. She does use her ipod around the house, and in the car when we are traveling. > > >> > > Hi Judi,> > > > > > I certainly can relate to your daughter because there isn't any control on > >what > >> > > she can do. She is in an environment where she has no control on the sounds > >or > >> > > the people making them. Is there any way you and your daughter can meet > >with > >> > > the teacher before or after class

just to give them a try? Maybe she'll be > >able > >> > > to gain some confidence in learning how to work the sound generators, and > > > testing them out to get some kind of idea how/if they will benefit her?> > > > > > I think the thing for most of us with Misophonia is being able to have > >control > >> > > on our environment which is very challenging, and when you're young it's > >that > >> > > much harder.> > > > > > > > > > > > > > > > > > > > > ________________________________> > > From: jelana118 <lindie@>> > > To: Soundsensitivity > > > Sent: Thu, November 17, 2011 6:45:45 AM> > > Subject: Question about sound generators> > > > > >  > > > Hi!> > > > > > My 16 year old daughter has not been to school in a month because she has > >been > >> > > having panic attacks due to the sounds of the other students, and some > >teachers, > >> > > chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist > >in > >> > > my area who had heard of misophonia, and he actually diagnosed my daughter > >with > >> > > both that and mild hyperacusis. She got her Widex sound generators two days > >ago, > >> > > but

is still afraid to go back to school, because she can't figure out how to > >> > > increase the volume of the sound generated without also increasing the amount > >of > >> > > the "outside" noise she receives, too. Does anyone here have any experience > >with > >> > > this?> > > > > > Thanks,> > > Judi> > >> >>

[Guest guest]

we went to " all ears " in ithaca and consulted with a well known audiologist who

was familiar with jastreboff. she diagnosed my son with misophonia and

recommended we try the in ear sound gens which were custom made. she told us it

was an excellent price for them as many places charge much more(which is

correct). she ran one of very few hypercussis and tinnitus centers there and was

very nice. problem was my son didnt want anything like that in his ears and

wouldnt give them a good try. he was very self conscious even though i assured

him they were hard to spot because they fit in the ear. so we returned them

minus a 10% charge for the trial period.

> > > >

> > > > Hi Judi,

> > > >

> > > > I certainly can relate to your daughter because there isn't any control

on

> > >what

> > >

> > > > she can do.  She is in an environment where she has no control on the

sounds

> > >or

> > >

> > > > the people making them.  Is there any  way you and your daughter

can meet

> > >with

> > >

> > > > the teacher before or after class just to give them a try?  Maybe

she'll be

> > >able

> > >

> > > > to gain some confidence in learning how to work the sound generators,

and

> > > > testing them out to get some kind of idea how/if they will benefit her?

> > > >

> > > > I think the thing for most of us with Misophonia is being able to have

> > >control

> > >

> > > > on our environment which is very challenging, and when you're

young it's

> > >that

> > >

> > > > much harder.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ________________________________

> > > > From: jelana118 <lindie@>

> > > > To: Soundsensitivity

> > > > Sent: Thu, November 17, 2011 6:45:45 AM

> > > > Subject: Question about sound generators

> > > >

> > > >  

> > > > Hi!

> > > >

> > > > My 16 year old daughter has not been to school in a month because she

has

> > >been

> > >

> > > > having panic attacks due to the sounds of the other students, and some

> > >teachers,

> > >

> > > > chewing gum, sniffling, tapping pencils, etc. I finally found an

audiologist

> > >in

> > >

> > > > my area who had heard of misophonia, and he actually diagnosed my

daughter

> > >with

> > >

> > > > both that and mild hyperacusis. She got her Widex sound generators two

days

> > >ago,

> > >

> > > > but is still afraid to go back to school, because she can't figure out

how to

> > >

> > > > increase the volume of the sound generated without also increasing the

amount

> > >of

> > >

> > > > the " outside " noise she receives, too. Does anyone here have any

experience

> > >with

> > >

> > > > this?

> > > >

> > > > Thanks,

> > > > Judi

> > > >

> > >

> >

>

[Guest guest]

If she got Widex generators, then they are actually hearing aids with a “Zen” program. The hearing aid part is not necessary if her hearing is normal. It may depend on what level of technology she got as to how the program can be set, but you should be able to have them set to where the Volume Control is for the white noise only. If her hearing is normal, a plain set of sound generators might also be an option. You should definitely ask your audiologist for clarification as to how to control them appropriately. Best regards, Pollard, Au.D.

[Guest guest]

You might want to consider an mp3 player instead of an ipod. I bought a Sansa Clip a couple years ago and it's great for the price, a little over 30$ for 2 gigs of space. http://www.amazon.com/SanDisk-Sansa-Clip-MP3-Player/dp/B000W09ZTK Drawbacks are battery life is not that long and it's not mac compatible, only pc. I recommend buying a power cord to charge it from the wall, if you use it a lot, it will need to be charged daily. Personally, I find the best kind of mp3 player is one that you can use batteries with, I have an old one that I can use batteries in, I use rechargeables and keep plenty on hand, just in case. But the ones that take

external batteries are impossible to find.Also I like these over-the-ear buds because they don't fall out when I am moving around, they fit my small ears and they are comfortable and I can still hear external sounds. Too much avoidance of all sound, I find is not a good idea in the long run. But there are times I really need to block all sound! I try to keep a balance.http://www.amazon.com/Sony-MDR-AS40EX-Active-Headphones-Earbud/dp/B0015AFOR8/ref=sr_1_16?s=electronics & ie=UTF8 & qid=1321584009 & sr=1-16 To: Soundsensitivity Sent: Thursday, November 17, 2011 1:33 PM Subject: Re: Re: Question about sound generators

If you're referring to the ipods you can get them at Best Buy or Walmart for under $200 dollars. Around $189.00. But, with the Holidays coming around they will probably go on sale, and you can get them even cheaper. I thought they sold basic ipods for under $100, but I couldn't find anything when I was checking this out on the websites.

Maybe someone else might know of where they can be purchased for under $100???

[Guest guest]

You might want to consider an mp3 player instead of an ipod. I bought a Sansa Clip a couple years ago and it's great for the price, a little over 30$ for 2 gigs of space. http://www.amazon.com/SanDisk-Sansa-Clip-MP3-Player/dp/B000W09ZTK Drawbacks are battery life is not that long and it's not mac compatible, only pc. I recommend buying a power cord to charge it from the wall, if you use it a lot, it will need to be charged daily. Personally, I find the best kind of mp3 player is one that you can use batteries with, I have an old one that I can use batteries in, I use rechargeables and keep plenty on hand, just in case. But the ones that take

external batteries are impossible to find.Also I like these over-the-ear buds because they don't fall out when I am moving around, they fit my small ears and they are comfortable and I can still hear external sounds. Too much avoidance of all sound, I find is not a good idea in the long run. But there are times I really need to block all sound! I try to keep a balance.http://www.amazon.com/Sony-MDR-AS40EX-Active-Headphones-Earbud/dp/B0015AFOR8/ref=sr_1_16?s=electronics & ie=UTF8 & qid=1321584009 & sr=1-16 To: Soundsensitivity Sent: Thursday, November 17, 2011 1:33 PM Subject: Re: Re: Question about sound generators

If you're referring to the ipods you can get them at Best Buy or Walmart for under $200 dollars. Around $189.00. But, with the Holidays coming around they will probably go on sale, and you can get them even cheaper. I thought they sold basic ipods for under $100, but I couldn't find anything when I was checking this out on the websites.

Maybe someone else might know of where they can be purchased for under $100???

[Guest guest]

You might want to consider an mp3 player instead of an ipod. I bought a Sansa Clip a couple years ago and it's great for the price, a little over 30$ for 2 gigs of space. http://www.amazon.com/SanDisk-Sansa-Clip-MP3-Player/dp/B000W09ZTK Drawbacks are battery life is not that long and it's not mac compatible, only pc. I recommend buying a power cord to charge it from the wall, if you use it a lot, it will need to be charged daily. Personally, I find the best kind of mp3 player is one that you can use batteries with, I have an old one that I can use batteries in, I use rechargeables and keep plenty on hand, just in case. But the ones that take

external batteries are impossible to find.Also I like these over-the-ear buds because they don't fall out when I am moving around, they fit my small ears and they are comfortable and I can still hear external sounds. Too much avoidance of all sound, I find is not a good idea in the long run. But there are times I really need to block all sound! I try to keep a balance.http://www.amazon.com/Sony-MDR-AS40EX-Active-Headphones-Earbud/dp/B0015AFOR8/ref=sr_1_16?s=electronics & ie=UTF8 & qid=1321584009 & sr=1-16 To: Soundsensitivity Sent: Thursday, November 17, 2011 1:33 PM Subject: Re: Re: Question about sound generators

If you're referring to the ipods you can get them at Best Buy or Walmart for under $200 dollars. Around $189.00. But, with the Holidays coming around they will probably go on sale, and you can get them even cheaper. I thought they sold basic ipods for under $100, but I couldn't find anything when I was checking this out on the websites.

Maybe someone else might know of where they can be purchased for under $100???

[Guest guest]

http://www.amazon.com/Sony-MDR-AS40EX-Active-Headphones-Earbud/dp/B0015AFOR8/ref=sr_1_11?s=electronics & ie=UTF8 & qid=1321584716 & sr=1-11

[Guest guest]

http://www.amazon.com/Sony-MDR-AS40EX-Active-Headphones-Earbud/dp/B0015AFOR8/ref=sr_1_11?s=electronics & ie=UTF8 & qid=1321584716 & sr=1-11

[Guest guest]

http://www.amazon.com/Sony-MDR-AS40EX-Active-Headphones-Earbud/dp/B0015AFOR8/ref=sr_1_11?s=electronics & ie=UTF8 & qid=1321584716 & sr=1-11

[Guest guest]

please unsubscribe me..thank you To: Soundsensitivity Sent: Thursday, November 17, 2011 2:35:02 PM Subject: Re: Question about sound generators

we went to " all ears " in ithaca and consulted with a well known audiologist who was familiar with jastreboff. she diagnosed my son with misophonia and recommended we try the in ear sound gens which were custom made. she told us it was an excellent price for them as many places charge much more(which is correct). she ran one of very few hypercussis and tinnitus centers there and was very nice. problem was my son didnt want anything like that in his ears and wouldnt give them a good try. he was very self conscious even though i assured him they were hard to spot because they fit in the ear. so we returned them minus a 10% charge for the trial period.

> > > >

> > > > Hi Judi,

> > > >

> > > > I certainly can relate to your daughter because there isn't any control on

> > >what

> > >

> > > > she can do.  She is in an environment where she has no control on the sounds

> > >or

> > >

> > > > the people making them.  Is there any  way you and your daughter can meet

> > >with

> > >

> > > > the teacher before or after class just to give them a try?  Maybe she'll be

> > >able

> > >

> > > > to gain some confidence in learning how to work the sound generators, and

> > > > testing them out to get some kind of idea how/if they will benefit her?

> > > >

> > > > I think the thing for most of us with Misophonia is being able to have

> > >control

> > >

> > > > on our environment which is very challenging, and when you're young it's

> > >that

> > >

> > > > much harder.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ________________________________

> > > > From: jelana118 <lindie@>

> > > > To: Soundsensitivity

> > > > Sent: Thu, November 17, 2011 6:45:45 AM

> > > > Subject: Question about sound generators

> > > >

> > > >  

> > > > Hi!

> > > >

> > > > My 16 year old daughter has not been to school in a month because she has

> > >been

> > >

> > > > having panic attacks due to the sounds of the other students, and some

> > >teachers,

> > >

> > > > chewing gum, sniffling, tapping pencils, etc. I finally found an audiologist

> > >in

> > >

> > > > my area who had heard of misophonia, and he actually diagnosed my daughter

> > >with

> > >

> > > > both that and mild hyperacusis. She got her Widex sound generators two days

> > >ago,

> > >

> > > > but is still afraid to go back to school, because she can't figure out how to

> > >

> > > > increase the volume of the sound generated without also increasing the amount

> > >of

> > >

> > > > the " outside " noise she receives, too. Does anyone here have any experience

> > >with

> > >

> > > > this?

> > > >

> > > > Thanks,

> > > > Judi

> > > >

> > >

> >

>