Guest guest Posted November 23, 1999 Report Share Posted November 23, 1999 , I don't have any answers but I do feel your frustration. I wanted to comment that I think having weekly meetings is a great way to stay on top of things. Sheryl, Mom to Mitch 14 and 13 CHARGE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 1999 Report Share Posted November 24, 1999 Dear , I am strongly against the physical restraints that have been suggested for Katelyn for the recent behavior. It sounds like there needs to be some more easily accessible communication modes available to her at any time that she can't express herself to others or that others do not seem to understand her. We had such a similar experience! Once when kendra was in a Summer program the class went to a swim park for a picnic. Kendra became really upset as the bus left the group at the park and drove off. She signed " red " 'red' 'red' and started crying unconsolably. The teacher **SAT** on her to calm her down!! A little later at picnic time everyone started asking, " where is kendra's red backpack with her lunch in it? " Of course it was on the bus. I felt horrible when I heard this story. Finally the teachers realized that Kendra had been signing red for her backpack. It was so sad that one of Kendra's first signed communications was met with physical 'restraint' by the teacher who did not understand her signs. I don't think it is appropriate for them to ask you to sign such a release. Do you feel the behavior plan is up to date and effective? If not, maybe that can be revised appropriately. Keep us posted!!!!!! wendy Mom to kendra, 13, , 19 and Camille, 21 Portland, OR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 1999 Report Share Posted November 24, 1999 , I agree with you feeling uncomfortable with meeting the superintendent for the first time because of something they believe is negative about your child. Is he there for power? Remember, she is your child. It is your final decision alone. To be able to restrain a student, at least here in CT, you have to be trained. I would find out what they mean by restraining her, when, why, where, and who? I believe here the only reason would be due to injury to self or others. It does not mean controlling behavior. I also do not believe in restraint, unless totally, direly necessary. There should be a behavior program in place, if that doesn't work, then try another. There are many programs out there, not just one. At this meeting I would make sure that it is known she was " out of control " due to their lack of understanding of what she was trying to communicate. Shouldn't the most important part of the meeting be in trying to figure out how they could have handled that situation better? Then she wouldn't have been to the point of frustration where she ended up out of control. Remember people like Tim Hartshorne have found all behavior has a purpose. You might want to turn to him or Anne Golyn. Last, they used to almost constantly discuss Patty's behavior when she was younger. It was always negative. It was sort of like the self fulfilling prophecy. What they expected is what they got. We finally got a really cool teacher where at least twice a week she would write something positive about her in her communication note book. Others would also read it, specialisti, and they too finally turned around. Keeping Patty happy and self confident has been the most important part of her education, and her life. I wish you luck. Don't be intimidated by anyone, ever. A superintendent is just a person same as you. More important, you are the parent. We all have found doctors who are supposed to know everything don't. I have found this to be true of educators also. Let us know how things go. Bonnie, Mom to Kris 17, Patty CHARGE 15, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 1999 Report Share Posted November 24, 1999 , I also have a similar story when 5 adults sat on my Mark to control a tantrum he was having (real appropriate) and he bit the principal. He was expelled from the school!!!!!!!!!!!! We later found out he had a sinus blockage that was causing severe headaches. The correct measures have to be in place for behavior management. V. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 1999 Report Share Posted November 24, 1999 , I'm so sorry to hear about Katelyn's frustration. I can't really offer anything you probably don't already know, but I can just imagine how sad you must feel knowing that all your daughter wanted was a picture. Communication is so huge with these guys, I just hope I can find a good way for Kennedy to communicate before she gets to school. Good luck with the meeting, it does sound like you have a supportive school staff, maybe you can all come up with something other than the restraints (it sounds awful). I'll be thinking about you... Mom to Kennedy 21 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 behaviors. Hi all, Just needed someone to bounce things off and you all are the best resources I have. My daughter has had some behavior problems. She had a day from hell last Friday. She was hitting and pinching and going after poeple. It was to the point that the school didn't have any idea how to help her calm down. I guess to put it mildly she was out of control. This information was passed on to the superintendent of schools. Her teachers and I have a regular scheduled Thurday morning meeting. He will be attending the next one. I am feeling so bad that I will meet this man for the first time because my daughter is misbehaving. The one thing that he wants me to do is sign a paper that will consent to physical restraint. I am so against this. I feel that there are other ways. We have been working with a psyc. Katelyn does have a behavior plan. I know that the school is trying and using the plan. I have talked with her psyc and she has some information to offer them. She will also be at the meeting via telephone. Do any of you have information about physical retraints consents? Am I over reacting? The sad thing about all of this is that Katelyn was trying to tell her teachers the entire time what she wanted. I was talking to one of her teachers this evening and she asked if anything happened before she came to school. After talking to my husband. I realized that he took away her house pictures away from her before she went to school. This made her so upset. She was signing House at school. It is amazing how hard the world is . All she wanted was a house picture. She was telling us and we didn't understand. Poor child. thank for the open ear. Katelyn(9) CHARGE, Jenna(4), Shayna(2) --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 1999 Report Share Posted November 24, 1999 , This is Betsy from DB-LINK. Just some thoughts… I wonder if the IEP team could really focus on developing positive behavioral support instead of restraint. For example, could the Team try to figure out ways that your daughter could get to a “safe place” when she is beginning to lose it? I’m sure that the school folks are worried about keeping her safe and keeping other children and staff safe. If Katelyn could learn to move to a safe corner or sit in a safe chair or something, then maybe everyone could take a breath and try to figure out what she is attempting to communicate. Attention also needs to be given to helping her develop lots of ways to communicate. Are either you or your husband available by phone to help fill in the missing pieces during one of these communication breakdowns? DB-LINK has information about positive behavioral support, other approaches to behavior and communication. We also may be able to help the team locate a consultant with some expertise in this area, even for a phone or e-mail consult. Please get in touch if you think we can help. You can e-mail me or call . Any member of Katelyn’s team can contact us, also. Happy Thanksgiving. I hope things get better. Betsy Betsy L. McGinnity Information Specialist Perkins DB-LINK mcginnityb@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 1999 Report Share Posted December 1, 1999 Bonnie, I did try the kitchen sink the other night to no avail, I thought it might work but was wrong... I think with Kennedy I should do the opposite of what I think sometimes!!! Mom to Kennedy 22 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 Re: behaviors. From: TURK22082@... , Once in a blue moon Patty used to be afraid of the tub and especially the pool. She did love to play in the kitchen sink, especially with bubbles in it. The more she played in the sink, the easier it was to get her into the tub. Also, it hurts her when water gets in her ears. Cotton balls helped. But with tubes and the way her ears are now, she wears molds to bathe and swim. We never let her get water in her ears. The thing about feeling better in a confined area was also true for us. It took years for her to be in a pool by her own volition. And then even today she stays near the sides. She often bathed with her sister when they were little, with her being in the back of the tub. Also, I have to admit, when she was a baby till she was around two we sometimes bathed her in the kitchen sink. Of course we made sure the sink was sterile first. And, it was only seldom done so she wouldn't expect it. Bonnie --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 1999 Report Share Posted December 1, 1999 Bonnie, I did try the kitchen sink the other night to no avail, I thought it might work but was wrong... I think with Kennedy I should do the opposite of what I think sometimes!!! Mom to Kennedy 22 mos old CHARGEr, 10, 8, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/SunsetStrip/Palms/5716 ICQ #1426476 Re: behaviors. From: TURK22082@... , Once in a blue moon Patty used to be afraid of the tub and especially the pool. She did love to play in the kitchen sink, especially with bubbles in it. The more she played in the sink, the easier it was to get her into the tub. Also, it hurts her when water gets in her ears. Cotton balls helped. But with tubes and the way her ears are now, she wears molds to bathe and swim. We never let her get water in her ears. The thing about feeling better in a confined area was also true for us. It took years for her to be in a pool by her own volition. And then even today she stays near the sides. She often bathed with her sister when they were little, with her being in the back of the tub. Also, I have to admit, when she was a baby till she was around two we sometimes bathed her in the kitchen sink. Of course we made sure the sink was sterile first. And, it was only seldom done so she wouldn't expect it. Bonnie --------------------------- Quote Link to comment Share on other sites More sharing options...
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