Re: [CRPS]rsd Nerve Blocks

[Guest guest]

Hi Robin,

Wow, that really all depends on the individual.

I myself do not know the answer to what the medications were they used on my

back.

I know for my arm it was a Stellate Ganglion (sp) block. It is a needle

inserted into the neck, and it does not require an IV or medication before

hand.

The blocks for the lower extremity were done in the back also. This type of

block requires an IV and meds. before hand.

As far as the longevity of the blocks, again my blocks did not work, but

everyone is different.

The others on the list may be able to help more. Is this for you? How long

ago was the rsd diagnosed?

Hugs,

Deb

List Owner

CRPS/RSD

Onelist.com

[Guest guest]

Hi Robin,

Wow, that really all depends on the individual.

I myself do not know the answer to what the medications were they used on my

back.

I know for my arm it was a Stellate Ganglion (sp) block. It is a needle

inserted into the neck, and it does not require an IV or medication before

hand.

The blocks for the lower extremity were done in the back also. This type of

block requires an IV and meds. before hand.

As far as the longevity of the blocks, again my blocks did not work, but

everyone is different.

The others on the list may be able to help more. Is this for you? How long

ago was the rsd diagnosed?

Hugs,

Deb

List Owner

CRPS/RSD

Onelist.com

[Guest guest]

Hi Margot:

The blocks thar I have had (18)wre done with marcaine.

Under a floroscope the Dr will try to find the right ganglian nerve

roots.When found he bathes them in the marcaine.At one point I had a

port-a-cath.A epidural catheter which was tunnled under the skin and

accessed thruogh a 90 degree needle port under the skin in my side .This was

then hooked up to a pump and gave me a precise dose constantly.(ha ha ha ha

)

The catheter punched a hole through the dura and I was infusing

intra-thecialy(straight into ceberal spinal fluid).My homehealth care nurse

saved my life as I was almost out and right around the corner from

menigitis.

The theory behind the blocks as i understand it is like this.

They are trying to put the affected area to sleep (hit a re-set

button).Then when it wakes the sympathetic system goes back to normal.Short

of that the blocks are used for extreme pain relief and to slow the

progression of the disease.I never had a block last more than 10 hrs.They

were shooting for72.From here I went on to dorsal collum stimulators

(another story ).

For some they are a blessing for me they did nothing.

Kinda like swimming with no lifeguard the water can be deep and cold swim at

your own risk

Have a good rest

PJ

- rsd Nerve Blocks

What actually ARE nerve blocks and what drug is injected .....where? I

am finaly free enough to spend a little time on the site you recommend

Deb and of course I have read about nerve blocks. My Orthapedic Surgeon

was going to inject Novacaine into my ankle till I said `HOLD IT!!! I am

allergic to that stuff! " so he did not do it. Was that a nerve block he

was going to do do you think?

Margot

http://mysite.xtra.co.nz/~TEMKATZ

" Cats have nothing on dragons for inquisitiveness " =^..^=

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[Guest guest]

PJ,

I didn't have much luck with the blocks either. After I was diagnosed I

went through a series of 4 and then a catherdra with daily injections. I

seemed to go into remission and the doctor thought I was " cured. " I then

had to start therapy for my knee which was operated on a month or so

before. Ouch!! I did okay for a few months and then the pain started

coming back. I was going for a block once a week. More catherdras and

even had one with a pump at home and a visiting nurse. The darn thing

numbed me from the waist down. I was a mess. More blocks and spreading.

I have to wonder if all the blocks I had, at least 30, caused the

spreading. I know it works for some and it initially did for me but no

longer. I hated them. Maybe twice they got the needles in the right place

on the first try.

Hugs, Tracey

> [Original Message]

>

> To: <CRPSegroups>

> Date: 5/19/00 10:13:35 AM

> Subject: RE: rsd Nerve Blocks

>

> Hi Margot:

> The blocks thar I have had (18)wre done with marcaine.

> Under a floroscope the Dr will try to find the right ganglian nerve

> roots.When found he bathes them in the marcaine.At one point I had a

> port-a-cath.A epidural catheter which was tunnled under the skin and

> accessed thruogh a 90 degree needle port under the skin in my side .This

was

> then hooked up to a pump and gave me a precise dose constantly.(ha ha ha

ha

> )

> The catheter punched a hole through the dura and I was infusing

> intra-thecialy(straight into ceberal spinal fluid).My homehealth care

nurse

> saved my life as I was almost out and right around the corner from

> menigitis.

> The theory behind the blocks as i understand it is like this.

> They are trying to put the affected area to sleep (hit a re-set

> button).Then when it wakes the sympathetic system goes back to

normal.Short

> of that the blocks are used for extreme pain relief and to slow the

> progression of the disease.I never had a block last more than 10 hrs.They

> were shooting for72.From here I went on to dorsal collum stimulators

> (another story ).

> For some they are a blessing for me they did nothing.

> Kinda like swimming with no lifeguard the water can be deep and cold swim

at

> your own risk

> Have a good rest

> PJ

>

> - rsd Nerve Blocks

>

>

> What actually ARE nerve blocks and what drug is injected .....where? I

> am finaly free enough to spend a little time on the site you recommend

> Deb and of course I have read about nerve blocks. My Orthapedic Surgeon

> was going to inject Novacaine into my ankle till I said `HOLD IT!!! I am

> allergic to that stuff! " so he did not do it. Was that a nerve block he

> was going to do do you think?

>

> Margot

> http://mysite.xtra.co.nz/~TEMKATZ

> " Cats have nothing on dragons for inquisitiveness " =^..^=

>

>

> ------------------------------------------------------------------------

> Up to 60% OFF food!

> Buy Now and Shipping is Free.

> http://click./1/4016/0/_/706883/_/958728904/

> ------------------------------------------------------------------------

>

>

[Guest guest]

Tracey:

I think the thing that the Dr's don't or won't admit is that the entire

system is involved and they have yet to be able to address the entire

system. the blocks are a stop gap fix and a crap shoot for results.

I also went numb the the pump,the things that we do in the search for pain

relief.Guinea pigs are what we are and will contine to be until they find an

effective treatment.Hope you have a good day!

PJ

- rsd Nerve Blocks

>

>

> What actually ARE nerve blocks and what drug is injected .....where? I

> am finaly free enough to spend a little time on the site you recommend

> Deb and of course I have read about nerve blocks. My Orthapedic Surgeon

> was going to inject Novacaine into my ankle till I said `HOLD IT!!! I am

> allergic to that stuff! " so he did not do it. Was that a nerve block he

> was going to do do you think?

>

> Margot

> http://mysite.xtra.co.nz/~TEMKATZ

> " Cats have nothing on dragons for inquisitiveness " =^..^=

>

>

> ------------------------------------------------------------------------

> Up to 60% OFF food!

> Buy Now and Shipping is Free.

> http://click./1/4016/0/_/706883/_/958728904/

> ------------------------------------------------------------------------

>

>

[Guest guest]

In a message dated 5/19/00 5:35:31 AM Eastern Daylight Time,

margot.robartes@... writes:

<< My Orthopedic Surgeon

was going to inject Novocain into my ankle till I said `HOLD IT!!! I am

allergic to that stuff! " so he did not do it. Was that a nerve block he >>

Margot,

PLEASE do not allow any doctor to inject the site of injury directly? This is

what I have been told can exacerbate the whole thing!

Nerve blocks are done either in your back or neck. I don't know about a site,

but I do know that they have some info on it in the Rsds.org site.

I have to go to my sons confirmation right now but, if you still can't find

anything, please email me privately. I know I have it somewhere. I hope to

talk to you all at least on Monday, maybe Sunday night.

Hugs,

Deb

[Guest guest]

PJ,

Can't agree with you more. Had a thought while reading your message and

looking up at the kid's hamster in his cage. Let's hope that since we're

being the guinea pigs, they don't lock us up in a cage with a wheel to run

on!!!!!

Hugs, Tracey

> [Original Message]

>

> To: <CRPSegroups>

> Date: 5/19/00 12:10:45 PM

> Subject: RE: rsd Nerve Blocks

>

> Tracey:

> I think the thing that the Dr's don't or won't admit is that the entire

> system is involved and they have yet to be able to address the entire

> system. the blocks are a stop gap fix and a crap shoot for results.

> I also went numb the the pump,the things that we do in the search for pain

> relief.Guinea pigs are what we are and will contine to be until they find

an

> effective treatment.Hope you have a good day!

> PJ

>

> - rsd Nerve Blocks

> >

> >

> > What actually ARE nerve blocks and what drug is injected .....where? I

> > am finaly free enough to spend a little time on the site you recommend

> > Deb and of course I have read about nerve blocks. My Orthapedic Surgeon

> > was going to inject Novacaine into my ankle till I said `HOLD IT!!! I am

> > allergic to that stuff! " so he did not do it. Was that a nerve block he

> > was going to do do you think?

> >

> > Margot

> > http://mysite.xtra.co.nz/~TEMKATZ

> > " Cats have nothing on dragons for inquisitiveness " =^..^=

> >

> >

> > ------------------------------------------------------------------------

> > Up to 60% OFF food!

> > Buy Now and Shipping is Free.

> > http://click./1/4016/0/_/706883/_/958728904/

> > ------------------------------------------------------------------------

> >

> >

[Guest guest]

It can't happen because of my severe allergy to it, so have no fear.

Makes feel a little nervous as I now wonder what he was actually trying

to do by injecting novacaine or however you spell it, into my ankle!

Margot

Re: rsd Nerve Blocks

> In a message dated 5/19/00 5:35:31 AM Eastern Daylight Time,

> margot.robartes@... writes:

>

> << My Orthopedic Surgeon

> was going to inject Novocain into my ankle till I said `HOLD IT!!! I

am

> allergic to that stuff! " so he did not do it. Was that a nerve block

he >>

> Margot,

> PLEASE do not allow any doctor to inject the site of injury directly?

This is

> what I have been told can exacerbate the whole thing!

> Nerve blocks are done either in your back or neck. I don't know about

a site,

> but I do know that they have some info on it in the Rsds.org site.

> I have to go to my sons confirmation right now but, if you still can't

find

> anything, please email me privately. I know I have it somewhere. I

hope to

> talk to you all at least on Monday, maybe Sunday night.

>

> Hugs,

> Deb

>

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