Re: Need Information Please

[Guest guest]

Baclofen eh.  Go online to see the common side effects.  These would include

muscle weakness, nausea, vomiting, drowsiness, etc.  Used to be benzos that

were given.  They have there own side effects, as well as addiction.

 

My question would be, why are you consulting a neurologist beyond the subject of

seizures, and for what is or should be a function of an internal medicine

specialist.  We had an EEG run own our daughter about a year ago, and the

results we negative (and as you pointed out, indeed, thank God),  but as her

psychiatrist pointed out, the test shows she did not have any seizures during

the test.

 

Having had my daughter on heavy duty meds during part of her life, I would

suggest you try other avenues that might be out there.  Does the Dr. explain

why he thinks these " tight muscles " are an issue, and if so, did he explain that

other issues might be adding to this problem.

 

In the end you have to do what you think is right.  Good luck to all of you.

 

To: Autism_in_Girls_and_Women

Sent: Friday, July 29, 2011 3:17 PM

Subject: Need Information Please

 

Hi, I haven't been posting much at all but I do read and keep up with this

group.

What I have to say is.,my step-daughter that lives with my husband and myself

for a week at a time went to a neurologist to see if she was having seizure's.

She had a 24 hour test done and the result's come back great ...no seizure's.

Thank God for that!!

But, he is really concerned with her muscles in her legs being so tight. He is

wanting to put her on a muscle relaxant that she will have to take for the rest

of her life she is 30yrs. old. He gave us two drugs to be thinking about,

one...Baclofen Pill or Liquid , two...Botox infections.

Does anyone out there have this problem with there child?

Any information will be greatly appreciatated.

Thank you,

[Guest guest]

>

>

> To: Autism_in_Girls_and_Women

> Sent: Friday, July 29, 2011 3:17 PM

> Subject: Need Information Please

>

>

>

>

> Hi, I haven't been posting much at all but I do read and keep up with this

group.

>

> What I have to say is.,my step-daughter that lives with my husband and myself

for a week at a time went to a neurologist to see if she was having seizure's.

She had a 24 hour test done and the result's come back great ...no seizure's.

Thank God for that!!

>

> But, he is really concerned with her muscles in her legs being so tight. He is

wanting to put her on a muscle relaxant that she will have to take for the rest

of her life she is 30yrs. old. He gave us two drugs to be thinking about,

one...Baclofen Pill or Liquid , two...Botox infections.

>

> Does anyone out there have this problem with there child?

> Any information will be greatly appreciatated.

>

> Thank you,

Hi ,

Those drugs would merely be addressing the symptoms and also carry potentially

dangerous risks and side effects. Spasticity and tight muscles can be caused by

oxidative stress (very common in our kids) and also by magnesium deficiency

(also common). I would try dramatically increasing her antioxidants. Look for

those with a very high ORAC value. Oregano oil is great and has many other

benefits. Additionally I would do transdermal magnesium therapy. Get some

magnesium oil and have her take a bath in it and also use it for massaging into

the tissues. You can also add a magnesium supplement at bedtime such as Natural

Calm. It's a powder you can make into a hot drink or let it chill and add it to

another beverage.

[Guest guest]

I have a friend whose daughter had leg braces and did botox for awhile.

Before commiting to that, I would check with a chiropractor for possible

non-drug solutions.

My daughter had minor leg knots as a toddler which the chiropractor took

care of.

Hth,

Corinne

>

>

> Hi, I haven't been posting much at all but I do read and keep up with this

group.

>

> What I have to say is.,my step-daughter that lives with my husband and

myself for a week at a time went to a neurologist to see if she was having

seizure's. She had a 24 hour test done and the result's come back great

....no seizure's. Thank God for that!!

>

> But, he is really concerned with her muscles in her legs being so tight.

He is wanting to put her on a muscle relaxant that she will have to take for

the rest of her life she is 30yrs. old. He gave us two drugs to be thinking

about, one...Baclofen Pill or Liquid , two...Botox infections.

>

> Does anyone out there have this problem with there child?

> Any information will be greatly appreciatated.

>

> Thank you,

>

>

[Guest guest]

>

> Baclofen eh.  Go online to see the common side effects.  These would include

muscle weakness, nausea, vomiting, drowsiness, etc.  Used to be benzos that

were given.  They have there own side effects, as well as addiction.

>  

> My question would be, why are you consulting a neurologist beyond the subject

of seizures, and for what is or should be a function of an internal medicine

specialist.  We had an EEG run own our daughter about a year ago, and the

results we negative (and as you pointed out, indeed, thank God),  but as her

psychiatrist pointed out, the test shows she did not have any seizures during

the test.

>  

> Having had my daughter on heavy duty meds during part of her life, I would

suggest you try other avenues that might be out there.  Does the Dr. explain

why he thinks these " tight muscles " are an issue, and if so, did he explain that

other issues might be adding to this problem.

>  

> In the end you have to do what you think is right.  Good luck to all of you.

>  

>

>

,

Thanks for replying to my message!

The only reason we consulted a neurologist beyond the subject of seizures was,

he saw how much her muscle's in her arms, and legs were so tight. We are not

consulting with this neurologist for this matter. He was just telling us what

may need done for her. He said he has seen this in children with Autism and

Retts, that they don't use there muscles like most children/ Adults. We are

taking her, to her regular doctor to learn more about this and to go see a

specialist.

It is all so stressful, and I don't want to rush into just any thing because my

daughter is Non-Verbal so we would not know when she is having some of the side

affects that come with these drug's.

I thank you for all your input,

>

> To: Autism_in_Girls_and_Women

> Sent: Friday, July 29, 2011 3:17 PM

> Subject: Need Information Please

>

>

>  

>

> Hi, I haven't been posting much at all but I do read and keep up with this

group.

>

> What I have to say is.,my step-daughter that lives with my husband and myself

for a week at a time went to a neurologist to see if she was having seizure's.

She had a 24 hour test done and the result's come back great ...no seizure's.

Thank God for that!!

>

> But, he is really concerned with her muscles in her legs being so tight. He is

wanting to put her on a muscle relaxant that she will have to take for the rest

of her life she is 30yrs. old. He gave us two drugs to be thinking about,

one...Baclofen Pill or Liquid , two...Botox infections.

>

> Does anyone out there have this problem with there child?

> Any information will be greatly appreciatated.

>

> Thank you,

>

>

>

>

>

[Guest guest]

>

> >

> >

> > To: Autism_in_Girls_and_Women

> > Sent: Friday, July 29, 2011 3:17 PM

> > Subject: Need Information Please

> >

> >

> >

> >

> > Hi, I haven't been posting much at all but I do read and keep up with this

group.

> >

> > What I have to say is.,my step-daughter that lives with my husband and

myself for a week at a time went to a neurologist to see if she was having

seizure's. She had a 24 hour test done and the result's come back great ...no

seizure's. Thank God for that!!

> >

> > But, he is really concerned with her muscles in her legs being so tight. He

is wanting to put her on a muscle relaxant that she will have to take for the

rest of her life she is 30yrs. old. He gave us two drugs to be thinking about,

one...Baclofen Pill or Liquid , two...Botox infections.

> >

> > Does anyone out there have this problem with there child?

> > Any information will be greatly appreciatated.

> >

> > Thank you,

>

> Hi ,

>

> Those drugs would merely be addressing the symptoms and also carry potentially

dangerous risks and side effects. Spasticity and tight muscles can be caused by

oxidative stress (very common in our kids) and also by magnesium deficiency

(also common). I would try dramatically increasing her antioxidants. Look for

those with a very high ORAC value. Oregano oil is great and has many other

benefits. Additionally I would do transdermal magnesium therapy. Get some

magnesium oil and have her take a bath in it and also use it for massaging into

the tissues. You can also add a magnesium supplement at bedtime such as Natural

Calm. It's a powder you can make into a hot drink or let it chill and add it to

another beverage.

>

>

>

,

Thank you for replying to my message! I so agree with you on potential

dangerous risks and side affects. I will look into this Oxidative Stress and

Magnesium deficiency. We are going to take her to her regular doctor and have

him refer her to a specialist.

Thanks again,

[Guest guest]

Our 20 year old daughter has autism. She has been verbal since around the

age of 6. She had lost speech but recovered it once we put her on a gluten

and casein free diet. Around the age of 16 she started having grand mal

seizures. We got the seizures under control and extinguished them completely

with the help of diet (gf/cf and low free glutamate) and medications

including Depakote, gabapentin, and Kepra. Other drugs suggested to us

include Namenda (mostly for OCD) and Baclofen. All of these meds work to

reduce the over activity of neurons. Overexcited neurons can lead to

seizures in the extreme and migraines at the other end the spectrum. Some of

these meds elevate the activity of GABA while reducing the activity of

Glutamate. Bacolefen is one that elevates GABA activity. Depakote

simultaneously increases GABA activity while reducing Glutamate activity.

Gabapentin contains 5 GABAs per molecule. Kepra inhibits SV2A, a synaptic

protein. Namenda is an NMDA receptor blocker.

You are probably familiar with the opioid theory as the rationale for the

gf/cf diet. One thing that has not been discussed in the autism community in

relation to the opioids is that they have a neuroexcitotoxic effect. I

believe that the main neurological benefit from a gf/cf diet is that it

reduces the excitotoxic load and frees up GABA. Interestingly GABA is used

to help stroke patients recover speech. The gf/cf diet also significantly

helped our daughter in respect of motor/muscle issues.

Baclofen is used to address spasticity or muscle tightness.

These medications tend to lead to weight gain. They also affect hormones.

I know of no medical side-effects to a gf/cf diet.

[Guest guest]

,

There are a couple of common causes of that behavior. It's fairly well

known. In fact, even some animals are known to swallow air to the point of

misery - especially high-strung animals such as race horses.

_Burping & Anxiety | LIVESTRONG.COM_

(http://www.livestrong.com/article/146693-burping-anxiety/)

There may be a medical cause for the behavior, but if the

gastroenterologist can't find a physical cause for her swallowing air, it may be

a habit

she has developed to deal with anxiety. My dd experiences a lot of anxiety,

and she has developed many different nervous tics over the years in

attempting to cope with those feelings. Most of the time, she wasn't even

conscious

that she was doing them.

Sandi

In a message dated 5/1/2012 2:30:04 P.M. Central Daylight Time,

bkayholl@... writes:

Hi, my step-daughter is 31yrs. non-verbal and has been having problems

with her belly. She hold's her breath a lot to the point that we think she

will pass out. She has been doing this for a long time, but here lately she

has been doing it a lot more. She was taken to the ER last night when she was

at her mom's. She told us that she was mad and so upset and screaming that

she had to do something. They done all kinds of test and blood work and

said everything was fine except that she had LOT'S of air in her belly. So

they are waiting on a gastro Dr. to come in and look at her. My question is,

does anyone else have this type of problem and what do you do about it. Any

help or Info will be greatly appreciated. Thanks,

[Guest guest]

>

> ,

>

> There are a couple of common causes of that behavior. It's fairly well

> known. In fact, even some animals are known to swallow air to the point of

> misery - especially high-strung animals such as race horses.

> _Burping & Anxiety | LIVESTRONG.COM_

> (http://www.livestrong.com/article/146693-burping-anxiety/)

>

> There may be a medical cause for the behavior, but if the

> gastroenterologist can't find a physical cause for her swallowing air, it may

be a habit

> she has developed to deal with anxiety. My dd experiences a lot of anxiety,

> and she has developed many different nervous tics over the years in

> attempting to cope with those feelings. Most of the time, she wasn't even

conscious

> that she was doing them.

>

> Sandi

>

>

> In a message dated 5/1/2012 2:30:04 P.M. Central Daylight Time,

> bkayholl@... writes:

>

> Hi, my step-daughter is 31yrs. non-verbal and has been having problems

> with her belly. She hold's her breath a lot to the point that we think she

> will pass out. She has been doing this for a long time, but here lately she

> has been doing it a lot more. She was taken to the ER last night when she was

> at her mom's. She told us that she was mad and so upset and screaming that

> she had to do something. They done all kinds of test and blood work and

> said everything was fine except that she had LOT'S of air in her belly. So

> they are waiting on a gastro Dr. to come in and look at her. My question is,

> does anyone else have this type of problem and what do you do about it. Any

> help or Info will be greatly appreciated. Thanks,

>

>

>

[Guest guest]

Reg Reynolds

There are both medical (medication) and psychological (psychotherapy)

treatments for anxiety. I would try something like EFT (Emotional Freedom

Technique). By the way, you say she is non-verbal. Does she have an

alternative communication system such as the iPad?

[Guest guest]

>

> Reg Reynolds

>

>

>

> There are both medical (medication) and psychological (psychotherapy)

> treatments for anxiety. I would try something like EFT (Emotional Freedom

> Technique). By the way, you say she is non-verbal. Does she have an

> alternative communication system such as the iPad?

>

>

>

>