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Re: Any one else have other sensory abnormalities?

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I move my hands constantly. That's part of my Attention Deficit Disorder

however.

>

> I wonder if any of you have any other sensory abnormalities?

>

> I certainly do. For instance, I have a severly overactive tactical sense. I

ALWAYS have to be doing something with my hands.

>

> I used to HAVE to smell virtually everything. That one has gotten better over

the years because it is so obvious. Everyone always asking why I smell

everything has made me very aware of the behavior.

>

> My eyes are very sensitive to light, but I don't think that is in the same

category.

>

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I have always been sensitive to smell, touch, light, sound, and taste... but none of them are to the extreme that my sound sensitivities have been in the last 3 years. I used to be sensitive to sound.. now I have misophonia and hyperacusis and there is a huge difference between a sensitivity... and these horrible conditions.

But yes, I am sensitive in every sense of the word!---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

 

I wonder if any of you have any other sensory abnormalities?

I certainly do. For instance, I have a severly overactive tactical sense. I ALWAYS have to be doing something with my hands.

I used to HAVE to smell virtually everything. That one has gotten better over the years because it is so obvious. Everyone always asking why I smell everything has made me very aware of the behavior.

My eyes are very sensitive to light, but I don't think that is in the same category.

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I feel like I hear TEST PATTERNS in my EARS ( unless your at least 45 & rember

when TV stations were off the air You won't understand what I just said)

>

> I wonder if any of you have any other sensory abnormalities?

>

> I certainly do. For instance, I have a severly overactive tactical sense. I

ALWAYS have to be doing something with my hands.

>

> I used to HAVE to smell virtually everything. That one has gotten better over

the years because it is so obvious. Everyone always asking why I smell

everything has made me very aware of the behavior.

>

> My eyes are very sensitive to light, but I don't think that is in the same

category.

>

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Yes, I most certainly do....

am hypersensitive to all odors,,,,have tinnitus, chronic and

persistent,,,,sensitive to motion,,, have multi chemical sensitivity,,,and more.

>

> I wonder if any of you have any other sensory abnormalities?

>

> I certainly do. For instance, I have a severly overactive tactical sense. I

ALWAYS have to be doing something with my hands.

>

> I used to HAVE to smell virtually everything. That one has gotten better over

the years because it is so obvious. Everyone always asking why I smell

everything has made me very aware of the behavior.

>

> My eyes are very sensitive to light, but I don't think that is in the same

category.

>

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I hear the "Test Patterns" too, very brief and infrequently though. I always look around to see if anyone else is hearing the same thing. > To: Soundsensitivity > Date: Wed, 23 May 2012 04:46:34 +0000> Subject: Re: Any one else have other sensory abnormalities?> > I feel like I hear TEST PATTERNS in my EARS ( unless your at least 45 & rember when TV stations were off the air You won't understand what I just said)> > > >> > I wonder if any of you have any other sensory abnormalities?> > > > I certainly do. For instance, I have a severly overactive tactical sense. I ALWAYS have to be doing something with my hands. > > > > I used to HAVE to smell virtually everything. That one has gotten better over the years because it is so obvious. Everyone always asking why I smell everything has made me very aware of the behavior. > > > > My eyes are very sensitive to light, but I don't think that is in the same category.> >> > > > > ------------------------------------> > PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGES ARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE. > > ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.> Thank you. MJ

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I'm sensitive to smell, light, and sound my entire life. As a child I would cover my ears at certain sounds, hide my face under my father's armpit as we go outside my father have told me. Not so much taste or touch I don't think. But I always have to be doing something with my hands.<3 ArleneSent from my iPhone

I have always been sensitive to smell, touch, light, sound, and taste... but none of them are to the extreme that my sound sensitivities have been in the last 3 years. I used to be sensitive to sound.. now I have misophonia and hyperacusis and there is a huge difference between a sensitivity... and these horrible conditions.

But yes, I am sensitive in every sense of the word!---------------------------------------------------------

♥

"Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

I wonder if any of you have any other sensory abnormalities?

I certainly do. For instance, I have a severly overactive tactical sense. I ALWAYS have to be doing something with my hands.

I used to HAVE to smell virtually everything. That one has gotten better over the years because it is so obvious. Everyone always asking why I smell everything has made me very aware of the behavior.

My eyes are very sensitive to light, but I don't think that is in the same category.

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I am very sensitive to light in the morning, I don't like to turn on the kitchen

light until I've been up for awhile.

>

> I wonder if any of you have any other sensory abnormalities?

>

> I certainly do. For instance, I have a severly overactive tactical sense. I

ALWAYS have to be doing something with my hands.

>

> I used to HAVE to smell virtually everything. That one has gotten better over

the years because it is so obvious. Everyone always asking why I smell

everything has made me very aware of the behavior.

>

> My eyes are very sensitive to light, but I don't think that is in the same

category.

>

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I was just recently diagnosed with Sensory Processing Disorder. All my senses have different level of sensitivity. My eyes are sensitive to bright lights and flashing/strobe lighting. Monday it was very over cast here yet I was stressed and it was too bright so I was wearing my sun glasses.My sense of smell is weird. I can't smell when something is burning on the stove while

I'm cooking, even if I'm in the same room, but then I'll smell the very slight fragrance of my mom's one medicine like it was the strongest smell ever. I don't really like to be touch unless its a strong touch. I prefer to hug someone over them hugging me. I like to be cold and I get over heated very quickly....the list goes on with my tactical sensory problems. I always play with something in my hands though, right now I have two rubber bands on my desk that have both been wrapped around a finger and then unwound over and over again.

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Amelia,

I have Sensory Processing Disorder (SPD), too. All my senses are involved,

especially auditory. I think Misophonia is the auditory " branch " of SPD, but I'm

no medical expert. Would you might telling me how you were diagnosed? It's very

unusual to hear that!

You may be interested in a book by Sharon Heller, a psychologist who shares our

disorder. It's called " Too Loud, Too Bright, Too Fast, Too Tight " , on Amazon for

about $10. It will shed some light on your symptoms. The fact that the author is

a psychologist who recognizes SPD as a neurological issue might give credibility

to the disorder for those family skeptics out there.

There is treatment, except it's hard to obtain depending on where you live. I'm

in the Dallas area and had access to specially trained occupational therapists.

The therapies seem unorthodox, but so is this disorder. Perhaps you can contact

them and ask if they know of any OT's in your area.

http://www.ntxtherapyinnovations.com

I'll be following your posts. Good luck.

Colleen

>

> I was just recently diagnosed with Sensory Processing Disorder. All my senses

have different level of sensitivity.  

>

> My eyes are sensitive to bright lights and flashing/strobe lighting.  Monday

it was very over cast here yet I was stressed and it was too bright so I was

wearing my sun glasses.

> My sense of smell is weird. I can't smell when something is burning on the

stove while I'm cooking, even if I'm in the same room, but then I'll smell the

very slight fragrance of my mom's one medicine like it was the strongest

smell ever. 

> I don't really like to be touch unless its a strong touch.  I prefer to hug

someone over them hugging me. I like to be cold and I get over heated very

quickly....the list goes on with my tactical sensory problems. I always play

with something in my hands though, right now I have two rubber bands on my desk

that have both been wrapped around a finger and then unwound over and over

again. 

>

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I am sensitive to touch, if someone touches me unexpectedly, it's like a jolt

through my body. Not the biggest deal.

My eyes are constantly bloodshot due to the bright lights in my office or

outside (sunny Colorado) so I have to dim the lights and wear sunglasses until

dusk.

Not sure if these are at all related.

But my hearing is the major sensitivity - I have hyperacusis, misophonia, and

tinnitus.

Loud sounds, soft sounds, trigger sounds, and ear ringing. I can't get a break

with that. I'm all-around overstimulated with hearing.

>

> I wonder if any of you have any other sensory abnormalities?

>

> I certainly do. For instance, I have a severly overactive tactical sense. I

ALWAYS have to be doing something with my hands.

>

> I used to HAVE to smell virtually everything. That one has gotten better over

the years because it is so obvious. Everyone always asking why I smell

everything has made me very aware of the behavior.

>

> My eyes are very sensitive to light, but I don't think that is in the same

category.

>

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,

Please read my post of 11:42am today to Amelia about Sensory Processing

Disorder. The information might help you.

Also, I had tinnitus after taking mood stabilizing drugs (drugs can cause or

worsen tinnitus). I don't know if it will work for you, but I used a CD from

Universal Sound to treat Tinnitus. After 3 months, my tinnitus disappeared.

Maybe it would have faded by itself, anyway. I'll never know for sure, but the

CD is a relatively inexpensive treatment.

http://www.universalsoundtherapy.com

Good luck.

Colleen

> >

> > I wonder if any of you have any other sensory abnormalities?

> >

> > I certainly do. For instance, I have a severly overactive tactical sense. I

ALWAYS have to be doing something with my hands.

> >

> > I used to HAVE to smell virtually everything. That one has gotten better

over the years because it is so obvious. Everyone always asking why I smell

everything has made me very aware of the behavior.

> >

> > My eyes are very sensitive to light, but I don't think that is in the same

category.

> >

>

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I have Sensory Processing Disorder... to me my misophonia is just part of the

sound (auditory) part of SPD.

I am sensitive to bright light and will wear sunglasses when it's not sunny, if

there is any kind of glare. I can't stand flourescent lights!! They should be

outlawed :)

I can't wear turtlenecks or wool. When I get home I instantly take any jewelry

off and change clothes if I'm not in jeans or something.

I won't eat foods with weird textures like mushrooms. I smell things before

everyone else. I need strong touches, not light caresses that give me

goosebumps and feel creepy. I prefer to hug first because then my body knows

what's coming and doesn't freak.

Sound? Oh boy, that's a big one. Loud noises, loud voices, raspy voices,

screeching, too many noises at once, teeth sucking, dogs barking, shrieking, gum

cracking, pen clicking, tapping sounds...need I go on?

Repetitive movements, usually nervous ones that are so distracting!

Geez, I could make a book out of listing them all!

>

> I wonder if any of you have any other sensory abnormalities?

>

> I certainly do. For instance, I have a severly overactive tactical sense. I

ALWAYS have to be doing something with my hands.

>

> I used to HAVE to smell virtually everything. That one has gotten better over

the years because it is so obvious. Everyone always asking why I smell

everything has made me very aware of the behavior.

>

> My eyes are very sensitive to light, but I don't think that is in the same

category.

>

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My skin and body are extremely sensitive. I cannot wear anything even remotely

snug-fitting, from head to toe, but esp. around my neck or waist or arms. I

cannot sleep on any fabric but a certain kind of cotton and when I find a set of

sheets that are comfortable I wear them thin. I am irritated by jumpy things in

my line of sight, esp. if my attention is supposed to be elsewhere (ie my

husband wiggling his feet/toes while we're watching TV drives me INSANE).

>

> I wonder if any of you have any other sensory abnormalities?

>

> I certainly do. For instance, I have a severly overactive tactical sense. I

ALWAYS have to be doing something with my hands.

>

> I used to HAVE to smell virtually everything. That one has gotten better over

the years because it is so obvious. Everyone always asking why I smell

everything has made me very aware of the behavior.

>

> My eyes are very sensitive to light, but I don't think that is in the same

category.

>

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Hi. I have issues with light touch.. It sends me off the handle. Also I have

some visual triggers. I hate having this. But it's the sound that is the worst,

then touch, then visual. My son has SPD and I do as well.

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What sort of visual trigger if you don't mind me asking? I'm wondering if I do

as well but didn't make the connection. I am beginning to understand now that

this is bigger for me and effects me more than I thought prior to joining the

group.

------------------------------

>

>

>Hi. I have issues with light touch.. It sends me off the handle. Also I have

some visual triggers. I hate having this. But it's the sound that is the worst,

then touch, then visual. My son has SPD and I do as well.

>

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Hmmm...the sounds and visual triggers common to misophonia are def the most pronounced, but i also have a deep aversion to other sensory things such as nails snagging on blankets (always carry a nail clipper because the thought of being stranded in public with a jagged nail is HORRIFYING), i hate when my legs get hairy (like a few days after shaving and beyond) it makes me irritable and i will even lose sleep due to the discomfort, i have a hard time playing with chalk, dont like the residue on my hands, would love to go barefoot like the hippie i am at heart, but hate hate hate the sensation of dirty feet, even walking out for a short time on the sidewalk i come in and feel the need to wash my feet. (seriously writing this out makes me sound much crazier than i am! Lol. Or does it??) If i feel like my hands are dirty it is distracting and my anxiety level is slightly increased. On the flip side i LOOOVE loud music and long hot baths, showers. I am creative and enjoy vivid and colorful things. While i love loud music, i often feel bombarded if too many things are going on at once, or if i am trying to think/work and the tv is on etc. Especially if it isnt in my control.This all sounds somewhat OCD but i have never gone to a professional. Maybe i should. Nothing as uncomfortable or debilitating as the miso symptoms by far though. Before i found the world of like minded sufferers i wondered if my miso was a form of ocd. Im still not convinced its not, or at least a similar affliction. Also my son has autism, and i can relate on the sensory issues he has, knowing how my own affect me and arent something in my control, even if to others it seems a strange thing to be bothered by. So in all i have experienced and read and heard...i feel autism/sensory processing disorders/ocd/misophonia all have some shared similarities worth looking at. I believe it is wired in the brain, and interesting that most of us remember this starting around 9 years give or take. Are there major brain changes at that age and in what area???Kaci McCall (Livonia, Mi) 33yrsWww.mysticalrainbowcreations.comSent from my HTC smartphone on the Now Network from Sprint!

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I don't know about the previous poster, but I have a number of visual

sensitivities. I am sensitive to fluorescent lights, and keep the fluoro lights

in my office at work switched off. I am sensitive to the sight of crowds of

people moving about in public places - I have to keep my eyes on the ground, or

on buildings - something that doesn't keep moving. I am sensitive to repetitive

movements by even one individual - e.g. leg jiggling, chewing motions (jaw

moving, even if silent), someone picking repetitively at their face or similar,

someone tapping or drumming their fingers, etc. My brain won't switch off to

such movements.

NB: I am diagnosed with Asperger's, and sensitivity to fluorescent lights is

very common among Aspies - as are other visual and non-visual sensory

sensitivities. I am also sensitive to smells and heights. Like many Aspies, I

also have discomfort with eye contact, particularly if I am trying to think or

if I am feeling shy with a stranger or acquaintance. I can easily get sensory

overload from faces - e.g. extroverted, emotionally expressive people.

>

> >

> >

> >Hi. I have issues with light touch.. It sends me off the handle. Also I have

some visual triggers. I hate having this. But it's the sound that is the worst,

then touch, then visual. My son has SPD and I do as well.

> >

>

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Kaci asked a good question last week about brain changes that occur around the

age of 9. That seems to be the average age that most of us started to notice

triggers, so there must be a common link. I'd welcome a discussion about this.

Several days ago someone mentioned jaw development along with orthodontics and

its proximity to the cochlea. I've also seen mention of ear infections--keep in

mind that not all ear infections have obvious symptoms. Some are latent, and

discovery requires testing. (Speaking from experience.)

I'm wondering about hormonal changes in the pre-puberty stage that might

increase susceptibility to trauma or a life-altering event or illness. Many

times, when I discuss this disorder with health providers in my quest for

treatment, they speculate that SPD or Miso might be caused by trauma (which

changes brain chemistry).

It's my belief that if we can determine what causes sensory disorders, someone

might be able to develop a viable treatment.

So keeping an open mind, I'd like to hear other theories regarding cause from

anyone who'd like to share.

Colleen

>

> Hmmm...the sounds and visual triggers common to misophonia are def the most

pronounced, but i also have a deep aversion to other sensory things such as

nails snagging on blankets (always carry a nail clipper because the thought of

being stranded in public with a jagged nail is HORRIFYING), i hate when my legs

get hairy (like a few days after shaving and beyond) it makes me irritable and i

will even lose sleep due to the discomfort, i have a hard time playing with

chalk, dont like the residue on my hands, would love to go barefoot like the

hippie i am at heart, but hate hate hate the sensation of dirty feet, even

walking out for a short time on the sidewalk i come in and feel the need to wash

my feet. (seriously writing this out makes me sound much crazier than i am! Lol.

Or does it??) If i feel like my hands are dirty it is distracting and my anxiety

level is slightly increased. On the flip side i LOOOVE loud music and long hot

baths, showers. I am creative and enjoy vivid and colorful things. While i love

loud music, i often feel bombarded if too many things are going on at once, or

if i am trying to think/work and the tv is on etc. Especially if it isnt in my

control.

>

> This all sounds somewhat OCD but i have never gone to a professional. Maybe i

should. Nothing as uncomfortable or debilitating as the miso symptoms by far

though. Before i found the world of like minded sufferers i wondered if my miso

was a form of ocd. Im still not convinced its not, or at least a similar

affliction.

>

> Also my son has autism, and i can relate on the sensory issues he has, knowing

how my own affect me and arent something in my control, even if to others it

seems a strange thing to be bothered by.

>

> So in all i have experienced and read and heard...i feel autism/sensory

processing disorders/ocd/misophonia all have some shared similarities worth

looking at. I believe it is wired in the brain, and interesting that most of us

remember this starting around 9 years give or take. Are there major brain

changes at that age and in what area???

>

> Kaci McCall (Livonia, Mi) 33yrs

> Www.mysticalrainbowcreations.com

>

> Sent from my HTC smartphone on the Now Network from Sprint!

>

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hi, its defiately a genetic link 100%. how do i know this? both me and my twin brother have suffered from this since the age of about 7..also unfortunately my 9 yr. old daughter definately is showing signs of 4s. ive kept it hidden from her her entire life..... maybe you aare on to something in the age thing..development ?? who knows ? hopoe we find a cure..

Subject: Re: Any one else have other sensory abnormalities?To: Soundsensitivity Date: Monday, May 28, 2012, 9:22 AM

Kaci asked a good question last week about brain changes that occur around the age of 9. That seems to be the average age that most of us started to notice triggers, so there must be a common link. I'd welcome a discussion about this.Several days ago someone mentioned jaw development along with orthodontics and its proximity to the cochlea. I've also seen mention of ear infections--keep in mind that not all ear infections have obvious symptoms. Some are latent, and discovery requires testing. (Speaking from experience.) I'm wondering about hormonal changes in the pre-puberty stage that might increase susceptibility to trauma or a life-altering event or illness. Many times, when I discuss this disorder with health providers in my quest for treatment, they speculate that SPD or Miso might be caused by trauma (which changes brain chemistry).It's my belief that if we can determine what causes sensory disorders, someone might be

able to develop a viable treatment.So keeping an open mind, I'd like to hear other theories regarding cause from anyone who'd like to share.Colleen >> Hmmm...the sounds and visual triggers common to misophonia are def the most pronounced, but i also have a deep aversion to other sensory things such as nails snagging on blankets (always carry a nail clipper because the thought of being stranded in public with a jagged nail is HORRIFYING), i hate when my legs get hairy (like a few days after shaving and beyond) it makes me

irritable and i will even lose sleep due to the discomfort, i have a hard time playing with chalk, dont like the residue on my hands, would love to go barefoot like the hippie i am at heart, but hate hate hate the sensation of dirty feet, even walking out for a short time on the sidewalk i come in and feel the need to wash my feet. (seriously writing this out makes me sound much crazier than i am! Lol. Or does it??) If i feel like my hands are dirty it is distracting and my anxiety level is slightly increased. On the flip side i LOOOVE loud music and long hot baths, showers. I am creative and enjoy vivid and colorful things. While i love loud music, i often feel bombarded if too many things are going on at once, or if i am trying to think/work and the tv is on etc. Especially if it isnt in my control.> > This all sounds somewhat OCD but i have never gone to a professional. Maybe i should. Nothing as uncomfortable or debilitating as the

miso symptoms by far though. Before i found the world of like minded sufferers i wondered if my miso was a form of ocd. Im still not convinced its not, or at least a similar affliction. > > Also my son has autism, and i can relate on the sensory issues he has, knowing how my own affect me and arent something in my control, even if to others it seems a strange thing to be bothered by. > > So in all i have experienced and read and heard...i feel autism/sensory processing disorders/ocd/misophonia all have some shared similarities worth looking at. I believe it is wired in the brain, and interesting that most of us remember this starting around 9 years give or take. Are there major brain changes at that age and in what area???> > Kaci McCall (Livonia, Mi) 33yrs> Www.mysticalrainbowcreations.com> > Sent from my HTC smartphone on the Now Network from

Sprint!>

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I think there can be a genetic link, but I don't think it's all or nothing--0% or 100%.Nobody else in my family has this and several others are in the same boat. Yet there are many who do have family members with it... but I don't think 100% is accurate since not all of us have other family members with misophonia.

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

 

hi, its defiately a genetic link 100%. how do i know this? both me and my twin brother have suffered from this since the age of about 7..also unfortunately my 9 yr. old daughter  definately  is showing signs of 4s. ive kept it hidden from her her entire life..... maybe you aare on to something in the age thing..development ?? who knows ? hopoe we find a cure..

Subject: Re: Any one else have other sensory abnormalities?

To: Soundsensitivity Date: Monday, May 28, 2012, 9:22 AM

 

Kaci asked a good question last week about brain changes that occur around the age of 9. That seems to be the average age that most of us started to notice triggers, so there must be a common link. I'd welcome a discussion about this.

Several days ago someone mentioned jaw development along with orthodontics and its proximity to the cochlea. I've also seen mention of ear infections--keep in mind that not all ear infections have obvious symptoms. Some are latent, and discovery requires testing. (Speaking from experience.)

I'm wondering about hormonal changes in the pre-puberty stage that might increase susceptibility to trauma or a life-altering event or illness. Many times, when I discuss this disorder with health providers in my quest for treatment, they speculate that SPD or Miso might be caused by trauma (which changes brain chemistry).

It's my belief that if we can determine what causes sensory disorders, someone might be

able to develop a viable treatment.So keeping an open mind, I'd like to hear other theories regarding cause from anyone who'd like to share.Colleen

>> Hmmm...the sounds and visual triggers common to misophonia are def the most pronounced, but i also have a deep aversion to other sensory things such as nails snagging on blankets (always carry a nail clipper because the thought of being stranded in public with a jagged nail is HORRIFYING), i hate when my legs get hairy (like a few days after shaving and beyond) it makes me

irritable and i will even lose sleep due to the discomfort, i have a hard time playing with chalk, dont like the residue on my hands, would love to go barefoot like the hippie i am at heart, but hate hate hate the sensation of dirty feet, even walking out for a short time on the sidewalk i come in and feel the need to wash my feet. (seriously writing this out makes me sound much crazier than i am! Lol. Or does it??) If i feel like my hands are dirty it is distracting and my anxiety level is slightly increased. On the flip side i LOOOVE loud music and long hot baths, showers. I am creative and enjoy vivid and colorful things. While i love loud music, i often feel bombarded if too many things are going on at once, or if i am trying to think/work and the tv is on etc. Especially if it isnt in my control.

> > This all sounds somewhat OCD but i have never gone to a professional. Maybe i should. Nothing as uncomfortable or debilitating as the

miso symptoms by far though. Before i found the world of like minded sufferers i wondered if my miso was a form of ocd. Im still not convinced its not, or at least a similar affliction. > > Also my son has autism, and i can relate on the sensory issues he has, knowing how my own affect me and arent something in my control, even if to others it seems a strange thing to be bothered by.

> > So in all i have experienced and read and heard...i feel autism/sensory processing disorders/ocd/misophonia all have some shared similarities worth looking at. I believe it is wired in the brain, and interesting that most of us remember this starting around 9 years give or take. Are there major brain changes at that age and in what area???

> > Kaci McCall (Livonia, Mi) 33yrs> Www.mysticalrainbowcreations.com> > Sent from my HTC smartphone on the Now Network from

Sprint!>

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As for genetics, it is probably like most traits that are passed on. Some are inherited, some aren't. Some families have all the same hair/eye color, some don't look anything alike. I guess there could be a specific gene for this. I wonder if other sensory disorders are heriditary. I've never heard it mentioned before that they are. GingerSent on the Sprint® Now Network from my BlackBerry®Sender: Soundsensitivity Date: Mon, 28 May 2012 12:08:27 -0500To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Re: Any one else have other sensory abnormalities? I think there can be a genetic link, but I don't think it's all or nothing--0% or 100%.Nobody else in my family has this and several others are in the same boat. Yet there are many who do have family members with it... but I don't think 100% is accurate since not all of us have other family members with misophonia.---------------------------------------------------------♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥ hi, its defiately a genetic link 100%. how do i know this? both me and my twin brother have suffered from this since the age of about 7..also unfortunately my 9 yr. old daughter  definately  is showing signs of 4s. ive kept it hidden from her her entire life..... maybe you aare on to something in the age thing..development ?? who knows ? hopoe we find a cure..Subject: Re: Any one else have other sensory abnormalities?To: Soundsensitivity Date: Monday, May 28, 2012, 9:22 AM  Kaci asked a good question last week about brain changes that occur around the age of 9. That seems to be the average age that most of us started to notice triggers, so there must be a common link. I'd welcome a discussion about this.Several days ago someone mentioned jaw development along with orthodontics and its proximity to the cochlea. I've also seen mention of ear infections--keep in mind that not all ear infections have obvious symptoms. Some are latent, and discovery requires testing. (Speaking from experience.) I'm wondering about hormonal changes in the pre-puberty stage that might increase susceptibility to trauma or a life-altering event or illness. Many times, when I discuss this disorder with health providers in my quest for treatment, they speculate that SPD or Miso might be caused by trauma (which changes brain chemistry).It's my belief that if we can determine what causes sensory disorders, someone might beable to develop a viable treatment.So keeping an open mind, I'd like to hear other theories regarding cause from anyone who'd like to share.Colleen >> Hmmm...the sounds and visual triggers common to misophonia are def the most pronounced, but i also have a deep aversion to other sensory things such as nails snagging on blankets (always carry a nail clipper because the thought of being stranded in public with a jagged nail is HORRIFYING), i hate when my legs get hairy (like a few days after shaving and beyond) it makes meirritable and i will even lose sleep due to the discomfort, i have a hard time playing with chalk, dont like the residue on my hands, would love to go barefoot like the hippie i am at heart, but hate hate hate the sensation of dirty feet, even walking out for a short time on the sidewalk i come in and feel the need to wash my feet. (seriously writing this out makes me sound much crazier than i am! Lol. Or does it??) If i feel like my hands are dirty it is distracting and my anxiety level is slightly increased. On the flip side i LOOOVE loud music and long hot baths, showers. I am creative and enjoy vivid and colorful things. While i love loud music, i often feel bombarded if too many things are going on at once, or if i am trying to think/work and the tv is on etc. Especially if it isnt in my control.> > This all sounds somewhat OCD but i have never gone to a professional. Maybe i should. Nothing as uncomfortable or debilitating as themiso symptoms by far though. Before i found the world of like minded sufferers i wondered if my miso was a form of ocd. Im still not convinced its not, or at least a similar affliction. > > Also my son has autism, and i can relate on the sensory issues he has, knowing how my own affect me and arent something in my control, even if to others it seems a strange thing to be bothered by. > > So in all i have experienced and read and heard...i feel autism/sensory processing disorders/ocd/misophonia all have some shared similarities worth looking at. I believe it is wired in the brain, and interesting that most of us remember this starting around 9 years give or take. Are there major brain changes at that age and in what area???> > Kaci McCall (Livonia, Mi) 33yrs> Www.mysticalrainbowcreations.com> > Sent from my HTC smartphone on the Now Network fromSprint!>

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I have seen a research paper (not on Wikipedia :-) ) which provides evidence of

some genetic factors in sensory sensitivity, especially in relation to touch

sensitivity. It was part of a submission about sensory processing disorder to

the DSM revision committee.

Sensory sensitivity is very high amongst people with autism spectrum disorders,

and those conditions seem to have a strong genetic link.

>

> As for genetics, it is probably like most traits that are passed on. Some are

inherited, some aren't. Some families have all the same hair/eye color, some

don't look anything alike.

>

> I guess there could be a specific gene for this. I wonder if other sensory

disorders are heriditary. I've never heard it mentioned before that they are.

>

> Ginger

> Sent on the Sprint® Now Network from my BlackBerry®

>

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I as well have other sensory issues in addition to misophonia. Sounds strange,

but popsicle sticks drive me crazy. Since a child, I've been unable to eat a

popsicle fully -- have to eat around the stick. It's actually any sort of wet

wood that I have an aversion to. I have an arsenal of plastic cooking utensils

because using wooden ones would send me off the edge. I've actually googled this

issue and there seem to be many others who share this odd dislike. I could go

on and on with other sensory issues too. Sand on my feet (forget the beach),

socks -- I hate socks and the way they feel. Even in the coldest winter I refuse

to wear them. There are other aversions as well, but you get the point.

>

> Hmmm...the sounds and visual triggers common to misophonia are def the most

pronounced, but i also have a deep aversion to other sensory things such as

nails snagging on blankets (always carry a nail clipper because the thought of

being stranded in public with a jagged nail is HORRIFYING), i hate when my legs

get hairy (like a few days after shaving and beyond) it makes me irritable and i

will even lose sleep due to the discomfort, i have a hard time playing with

chalk, dont like the residue on my hands, would love to go barefoot like the

hippie i am at heart, but hate hate hate the sensation of dirty feet, even

walking out for a short time on the sidewalk i come in and feel the need to wash

my feet. (seriously writing this out makes me sound much crazier than i am! Lol.

Or does it??) If i feel like my hands are dirty it is distracting and my anxiety

level is slightly increased. On the flip side i LOOOVE loud music and long hot

baths, showers. I am creative and enjoy vivid and colorful things. While i love

loud music, i often feel bombarded if too many things are going on at once, or

if i am trying to think/work and the tv is on etc. Especially if it isnt in my

control.

>

> This all sounds somewhat OCD but i have never gone to a professional. Maybe i

should. Nothing as uncomfortable or debilitating as the miso symptoms by far

though. Before i found the world of like minded sufferers i wondered if my miso

was a form of ocd. Im still not convinced its not, or at least a similar

affliction.

>

> Also my son has autism, and i can relate on the sensory issues he has, knowing

how my own affect me and arent something in my control, even if to others it

seems a strange thing to be bothered by.

>

> So in all i have experienced and read and heard...i feel autism/sensory

processing disorders/ocd/misophonia all have some shared similarities worth

looking at. I believe it is wired in the brain, and interesting that most of us

remember this starting around 9 years give or take. Are there major brain

changes at that age and in what area???

>

> Kaci McCall (Livonia, Mi) 33yrs

> Www.mysticalrainbowcreations.com

>

> Sent from my HTC smartphone on the Now Network from Sprint!

>

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This sparked something else I hate. I can't stand someone covering me, like

with a sheet or blanket, in such a sway that it produces a wave of air. I feel

as though I'm suffocating, and I always anticipate it and either grab the edge

with my hand or move my face away. And I do insist on washing my feet before

bedtime, but I'm not sure that's necessarily related.

> >

> > Hmmm...the sounds and visual triggers common to misophonia are def the most

pronounced, but i also have a deep aversion to other sensory things such as

nails snagging on blankets (always carry a nail clipper because the thought of

being stranded in public with a jagged nail is HORRIFYING), i hate when my legs

get hairy (like a few days after shaving and beyond) it makes me irritable and i

will even lose sleep due to the discomfort, i have a hard time playing with

chalk, dont like the residue on my hands, would love to go barefoot like the

hippie i am at heart, but hate hate hate the sensation of dirty feet, even

walking out for a short time on the sidewalk i come in and feel the need to wash

my feet. (seriously writing this out makes me sound much crazier than i am! Lol.

Or does it??) If i feel like my hands are dirty it is distracting and my anxiety

level is slightly increased. On the flip side i LOOOVE loud music and long hot

baths, showers. I am creative and enjoy vivid and colorful things. While i love

loud music, i often feel bombarded if too many things are going on at once, or

if i am trying to think/work and the tv is on etc. Especially if it isnt in my

control.

> >

> > This all sounds somewhat OCD but i have never gone to a professional. Maybe

i should. Nothing as uncomfortable or debilitating as the miso symptoms by far

though. Before i found the world of like minded sufferers i wondered if my miso

was a form of ocd. Im still not convinced its not, or at least a similar

affliction.

> >

> > Also my son has autism, and i can relate on the sensory issues he has,

knowing how my own affect me and arent something in my control, even if to

others it seems a strange thing to be bothered by.

> >

> > So in all i have experienced and read and heard...i feel autism/sensory

processing disorders/ocd/misophonia all have some shared similarities worth

looking at. I believe it is wired in the brain, and interesting that most of us

remember this starting around 9 years give or take. Are there major brain

changes at that age and in what area???

> >

> > Kaci McCall (Livonia, Mi) 33yrs

> > Www.mysticalrainbowcreations.com

> >

> > Sent from my HTC smartphone on the Now Network from Sprint!

> >

>

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Karolina That's funny you say that. I can't put my head out of the window of a moving car or put my face in front of a fan because it feels like I can't breathe! And I also have misophonia. Kim

This sparked something else I hate. I can't stand someone covering me, like with a sheet or blanket, in such a sway that it produces a wave of air. I feel as though I'm suffocating, and I always anticipate it and either grab the edge with my hand or move my face away. And I do insist on washing my feet before bedtime, but I'm not sure that's necessarily related.

> >

> > Hmmm...the sounds and visual triggers common to misophonia are def the most pronounced, but i also have a deep aversion to other sensory things such as nails snagging on blankets (always carry a nail clipper because the thought of being stranded in public with a jagged nail is HORRIFYING), i hate when my legs get hairy (like a few days after shaving and beyond) it makes me irritable and i will even lose sleep due to the discomfort, i have a hard time playing with chalk, dont like the residue on my hands, would love to go barefoot like the hippie i am at heart, but hate hate hate the sensation of dirty feet, even walking out for a short time on the sidewalk i come in and feel the need to wash my feet. (seriously writing this out makes me sound much crazier than i am! Lol. Or does it??) If i feel like my hands are dirty it is distracting and my anxiety level is slightly increased. On the flip side i LOOOVE loud music and long hot baths, showers. I am creative and enj

oy vivid and colorful things. While i love loud music, i often feel bombarded if too many things are going on at once, or if i am trying to think/work and the tv is on etc. Especially if it isnt in my control.

> >

> > This all sounds somewhat OCD but i have never gone to a professional. Maybe i should. Nothing as uncomfortable or debilitating as the miso symptoms by far though. Before i found the world of like minded sufferers i wondered if my miso was a form of ocd. Im still not convinced its not, or at least a similar affliction.

> >

> > Also my son has autism, and i can relate on the sensory issues he has, knowing how my own affect me and arent something in my control, even if to others it seems a strange thing to be bothered by.

> >

> > So in all i have experienced and read and heard...i feel autism/sensory processing disorders/ocd/misophonia all have some shared similarities worth looking at. I believe it is wired in the brain, and interesting that most of us remember this starting around 9 years give or take. Are there major brain changes at that age and in what area???

> >

> > Kaci McCall (Livonia, Mi) 33yrs

> > Www.mysticalrainbowcreations.com

> >

> > Sent from my HTC smartphone on the Now Network from Sprint!

> >

>

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