vulva cancer

[Guest guest]

I have vulva cancer and quite a few operations. I can not function at all as

a women . I have no sensual feelings at all. I feel a lot of pain during sex

and even feel nauseaus. I am lucky to have a husband who loves me anyway. I

had hormone therapy but it gave me bad pain in my breasts, stomache and lower

parts, so I stopped it.. It is very hard to deal with this disease

emotionally . It would be nice to find others to talk with to share with

one another what we are doing to try to combat this disease. I take various

vitamins. there is nothing medically that can be done for it. It can be

only checked visually. I can feel it getting worse, more thickness, and

pain in my bladder. I get light headed and dizzy a lot lately. I felt a lot

better between my third and fourth operations than I do now. My husband

doesn't understand why I need a support group. He says it is not important and

all I need is him to be my support. I can't talk to him about how I feel since

he doesn't understand and keeps telling me to think possitive. My

doctors look at the problem area and say that it has healed well and he'll see

me in six months. Is there another person out there that has been going

through this too? I am a bit of an idealist. I keep thinking that if I

can talk with others who have this disease and find out what they are doing

for it, what vitamins, etc. then maybe we can put our heads together and

figure out how to deal with it and get better. you can write me

through this site, or e-mail me at rayapat@... looking

forward to hearing from someone, Pat