Re: Dr. Phil letter writing campaign?

October 17, 2011

exactly. See, my therapist is facsinated and is intrugued by this new information and immediately realized that she has another client who must have the same thing. My psychiatrist is the one who acted like a complete jerk. I am done with him...the only thing is I am on all of these meds and I can't just stop taking them....but I need find someone who cares.

To: "Soundsensitivity " <Soundsensitivity >Sent: Monday, October 17, 2011 3:47 AMSubject: Re: Re: Dr. Phil letter writing campaign?

There are lots of bad psychiatrists out there. Remember, 1/2 the psychiatrists graduated at the bottom half of their class lol. I have found most to be rigid and egotistical. They think they know everything and would never admit to something not read in a medical periodical or learned from an esteemed colleague.

To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 11:39 PMSubject: Re: Re: Dr. Phil letter writing campaign?

What kind of idiot psychiatrist are you seeing ! They should take his licence away.

I sure hope he is a rare exception.

To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 8:08 PMSubject: Re: Re: Dr. Phil letter writing campaign?

I tried to tell my psychiatrist about misophonia last week and he laughed in my face and told me it is ridiculous. I am going to dump him immediately and find someone who is willing to at least check into it.

To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 6:36 AMSubject: Re: Re: Dr. Phil letter writing campaign?

There aren't too many doctors with misophonia experience. Neither my psychiatrist nor my psychologist has ever heardd of it. My rheumotologist either. Now I know its auditory, but lets face it - because of the weird symptoms, the first type of doctor someone suffering from this condition will go to is a psychiatrist or psychologist. They SHOULD have heard of it by now - especially if those that are diagnosed by an auditory specialist go back to the psych and tell them what it really is. But because this is a newly recognized condition, not many doctors know about it. And I think that, looking at the big picture and number of members on here, not enough of the population suffers from this to make most doctors really care. Many have never run into these symptoms at all, and others may only run into 1 or 2 their entire professional career. Those with my symptoms are even more of a minority,

since only about 5 people on this board seem to share those same symptoms.

To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 10:45 AMSubject: Re: Re: Dr. Phil letter writing campaign?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show.Ã‚ But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Ã‚ > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Ã‚ > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought > > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

October 17, 2011

Yes, FIRE HIM! I have had to do this once myself, I realized when I hurled the phone across the room after my last conversation with this psychiatrist... it was not a good fit, not that she was a bad doctor.The new psychiatrist can probably help you transition off the meds.I looked for a Doctor I figured might be interested in unusual cases, someone associated with a med school . At my last visit he said "we will be learning about this together" about my misophonia.From: Alesia Poynter

To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 10:08 PMSubject: Re: Re: Dr. Phil letter writing campaign?

I tried to tell my psychiatrist about misophonia last week and he laughed in my face and told me it is ridiculous. I am going to dump him immediately and find someone who is willing to at least check into it.To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 6:36 AMSubject: Re: Re: Dr. Phil

letter writing campaign?

There aren't too many doctors with misophonia experience. Neither my psychiatrist nor my psychologist has ever heardd of it. My rheumotologist either. Now I know its auditory, but lets face it - because of the weird symptoms, the first type of doctor someone suffering from this condition will go to is a psychiatrist or psychologist. They SHOULD have heard of it by now - especially if those that are diagnosed by an auditory specialist go back to the psych and tell them what it really is. But because this is a newly recognized condition, not many doctors know about it. And I think that, looking at the big picture and number of members on here, not enough of the population suffers from this to make most doctors really care. Many have never run into

these symptoms at all, and others may

only run into 1 or 2 their entire professional career. Those with my symptoms are even more of a minority, since only about 5 people on this board seem to share those same symptoms. To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 10:45 AMSubject: Re: Re: Dr. Phil letter writing campaign?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show.Ã‚ But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Ã‚ > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Ã‚ > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought > > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

October 17, 2011

This is exactly what I will do. Look for someone like you suggest. I just know I can never trust him again with anything so personal.

To: "Soundsensitivity " <Soundsensitivity >Sent: Monday, October 17, 2011 10:55 AMSubject: Re: Re: Dr. Phil letter writing campaign?

Yes, FIRE HIM! I have had to do this once myself, I realized when I hurled the phone across the room after my last conversation with this psychiatrist... it was not a good fit, not that she was a bad doctor.

The new psychiatrist can probably help you transition off the meds.I looked for a Doctor I figured might be interested in unusual cases, someone associated with a med school . At my last visit he said "we will be learning about this together" about my misophonia.