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I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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It depends on if there is going to be a drafted letter to add on to and personalize or if each person is expected to write it from scratch.. I don't have the energy for that.

I still think it makes a lot more sense to spend our time and energy writing to someone who is more likely to care and listen and do some research.. I've heard wonderful things about Dr. Oz, though I don't watch his show.  Seems kind of pointless to try Dr. Phil again.. but that is just my opinion.

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

http://www.caringbridge.org/visit/sarahmae

 

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

 

How many plan to write the show and ask for this?

 

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AM

Subject: Re: Dr. Phil letter writing campaign?

 

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are " the only one " .

Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.

I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience.

Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.

>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him.

> The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

>  > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> >

> To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE

> > >   > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.

> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.

> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and " taking them away " . I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)

> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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Hello:I think this can be very successful in getting the word out, but it must an organized and coordinated effort.I am all for getting the word out about this. I will write a letter to whomever we end up selecting. Dr. Oz is a good suggestion, but since Dr. Phil is already in the loop - maybe a good place to start. Regardless - I'm in as far a letter writing campaign. I on the other hand do not want my 13 year old on the show - but will write the letter in support of having a show on this.Just to let you know (I'm sure a lot of you already do know) there are other groups out there - a bunch on Facebook. Some closed - some open. I think that we should have one person put together a blurb about this letter writing campaign - after it's organized and decided. Then we can post it on all the other various Misophonia groups to direct more support for the letter writing campaign for the show. I think the form letter is a good idea. It can be posted - then copied and printed individually. People will probably do a form letter faster then composing their own.Here is the info I have on some other groups: (you may have to join for the links to work - but if you are an FB member - you can type the name in the search bar w/in Facebook and it should bring you there) Open Groups on

Facebook

Misophonia: Selective

Sound Sensitivity Syndrome (4S)https://www.facebook.com/groups/299375912551/Misophonia/4S not-Anonymoushttps://www.facebook.com/group.php?gid=134993849874873 Closed Groups on

Facebook4S/Misphoniahttps://www.facebook.com/groups/55410897698/UK Misophonia (Sound Sensitivity) Support Grouphttps://www.facebook.com/groups/25590393130/ Meet-up group (online)UK Misophonia (Sound Sensitivity) Support Grouphttp://www.meetup.com/Sound-Sensitivity/

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Count me in, Mike!

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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I like Doctor Oz, but his show is definitely about " short segments " of this and

that.

I'd also be willing to add my name to a drafted letter instead of each writing

their won, partly because I'm short on time, but mostly because I'd think a

united front with one well-written letter will be most effective.

A compromise could be a partially drafted letter where individuals can add their

own personalized statement and signature.

I've seen political campaigns offer their readers one-click links to an online

letter in which the user can then send " as is " or " add to " , then just click SEND

so the letter goes to a pre-determined email address. Does anyone know how to do

this?

> > >

> > > That was a sound, well thought out decision not to do the show. But I

> > think there is hope for Dr. Phil. He is such a high profile guy, and maybe

> > not as bad as we have come to think of him.

> > > The important thing is to get the word out there and his show offers that

> > as well as anything. They are always looking for interesting topics.

> > > Â

> > > What if we start a letter (or email) writing campaign to them to do a

> > show exclusively dedicated to Misophonia?

> > > Any comments or suggestions?

> > > Mike

> > >

> > > From: DebbieW <dmw0824@>

> > > To: Soundsensitivity

> > > Sent: Friday, October 14, 2011 8:15 PM

> > > Subject: Dr Phil Show - UPDATE

> > >

> > >

> > > Â

> > > Hi Everyone!

> > >

> > > I appreciate everyones input and advise from my previous post! I haven't

> > responded or commented back to anyone since because I was so unsure on what

> > I was going to do. I have been so back and forth between going and not going

> > for the past couple of days. I took everyones advise into consideration and

> > actually used some towards the producers I have been in contact with.

> > >

> > > So, I have decided not to go. I have told them that I do not think that

> > my disorder deserves (or can be) to be grouped with other 'unusual

> > disorders'. I wrote them the letter months ago before all of the publicity

> > of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and

> > whomever else is in the know) needs to know that Misophonia is NOT just an

> > unusual disorder and has a name. I told her that I am able to provide her

> > (the producer) with contacts of people that should be involved and that I

> > would be happy to fly out there if this is something they would consider to

> > do.

> > >

> > > I just hope that I didn't miss my chance and opportunity to help anyone

> > else out there that doesn't know about this and that it is a real disorder.

> > One of my biggest goals (besides finding my own cure) is to help others that

> > don't know that this is real and that they are not alone.

> > >

> > > Hope I didn't let anyone down and I will keep everyone updated as to what

> > I find out. Hopefully I can get them to do an entire episode dedicated to

> > Misophonia.

> > >

> > > Also, I watched the clip of the young girl that went on Dr Phil with the

> > disorder. For one, I hated the fact that she was linked with a girl who was

> > obsessed with and one that was a wedding planner but just

> > couldn't get married herself! This was a fear of mine as to who I would be

> > on the show with! But listening to what Dr Phil said, I didn't take any

> > offense to it. I don't think he knew any better about the disorder (and

> > neither did the young girl. She did not have a name for it and didn't know

> > it was a real disorder). I read an article about someone once who over came

> > Misophonia. Not that they were cured but was able to cope way better than

> > myself and I am sure a lot of other people. It was very similar to his

> > strategies with listening to sounds and " taking them away " . I just think he

> > did a good job for what he thought he was dealing with. Maybe if we have an

> > entire episode dedicated to the subject and now he has more information on

> > it,

> > > he will give even better advise and coping methods. Just a thought :)

> > >

> > > Thank you all again for everything you have brought to this group and to

> > me personally!|

> > >

> > > Debbie

> > >

> >

> >

> >

> >

> >

>

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My mother likens it to when my brother was diagnosed with autism in the early 70's and no one knew what it was.  She would get screamed at in public for his outbursts, and saying that he had autism did not stop anyone from continuing to scream at her.  My grandmother would tell people that her grandson was autistic, and people would say, " Oh! That's so nice to have an artist in the family! "

It took the braveness of people going public to get doctors to become brave enough to say, " This is a disorder. "   And look at autism, now!I am saddened that we will not have the opportunity to say our piece, and Dr. Phil rarely devotes an entire show to one disorder.  It's always a cluster of disorders.  The likelihood that we would get a whole show is low, and I hope that we get another chance to speak up...in whatever the format.

Nothing will change until awareness changes, and we've already got a leg up with the NYT and Today Show attention.

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I'm in To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 11:33 AMSubject: Re: Re: Dr. Phil

letter writing campaign?

Count me in, Mike!

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The

important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the

past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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I think the form letter idea is great! Maybe we can get it together and present it to all of the shows, Dr. Phil, Dr. Oz and Dr. Grupta. More bang for the buck.

Anyone gifted in writing such a letter? There are a lot of excellent writers here as we all know.

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 8:11 AMSubject: Re: Re: Dr. Phil letter writing campaign?

It depends on if there is going to be a drafted letter to add on to and personalize or if each person is expected to write it from scratch.. I don't have the energy for that.I still think it makes a lot more sense to spend our time and energy writing to someone who is more likely to care and listen and do some research.. I've heard wonderful things about Dr. Oz, though I don't watch his show. Seems kind of pointless to try Dr. Phil again.. but that is just my opinion.

---------------------------------------------------------

♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥http://www.caringbridge.org/visit/sarahmae

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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Yes, I think dr.gupta is anotherpossibility

Hi All

I'm a fan of Dr. Sanjay Gupta on CNN. He seems sincere and presents his segments in a sensitive manner. Is anyone else familiar with him?

Regards,

Elaine

> > >

> > > That was a sound, well thought out decision not to do the show. But I

> > think there is hope for Dr. Phil. He is such a high profile guy, and maybe

> > not as bad as we have come to think of him.

> > > The important thing is to get the word out there and his show offers that

> > as well as anything. They are always looking for interesting topics.

> > > Â

> > > What if we start a letter (or email) writing campaign to them to do a

> > show exclusively dedicated to Misophonia?

> > > Any comments or suggestions?

> > > Mike

> > >

> > > From: DebbieW <dmw0824@>

> > > To: Soundsensitivity

> > > Sent: Friday, October 14, 2011 8:15 PM

> > > Subject: Dr Phil Show - UPDATE

> > >

> > >

> > > Â

> > > Hi Everyone!

> > >

> > > I appreciate everyones input and advise from my previous post! I haven't

> > responded or commented back to anyone since because I was so unsure on what

> > I was going to do. I have been so back and forth between going and not going

> > for the past couple of days. I took everyones advise into consideration and

> > actually used some towards the producers I have been in contact with.

> > >

> > > So, I have decided not to go. I have told them that I do not think that

> > my disorder deserves (or can be) to be grouped with other 'unusual

> > disorders'. I wrote them the letter months ago before all of the publicity

> > of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and

> > whomever else is in the know) needs to know that Misophonia is NOT just an

> > unusual disorder and has a name. I told her that I am able to provide her

> > (the producer) with contacts of people that should be involved and that I

> > would be happy to fly out there if this is something they would consider to

> > do.

> > >

> > > I just hope that I didn't miss my chance and opportunity to help anyone

> > else out there that doesn't know about this and that it is a real disorder.

> > One of my biggest goals (besides finding my own cure) is to help others that

> > don't know that this is real and that they are not alone.

> > >

> > > Hope I didn't let anyone down and I will keep everyone updated as to what

> > I find out. Hopefully I can get them to do an entire episode dedicated to

> > Misophonia.

> > >

> > > Also, I watched the clip of the young girl that went on Dr Phil with the

> > disorder. For one, I hated the fact that she was linked with a girl who was

> > obsessed with and one that was a wedding planner but just

> > couldn't get married herself! This was a fear of mine as to who I would be

> > on the show with! But listening to what Dr Phil said, I didn't take any

> > offense to it. I don't think he knew any better about the disorder (and

> > neither did the young girl. She did not have a name for it and didn't know

> > it was a real disorder). I read an article about someone once who over came

> > Misophonia. Not that they were cured but was able to cope way better than

> > myself and I am sure a lot of other people. It was very similar to his

> > strategies with listening to sounds and "taking them away". I just think he

> > did a good job for what he thought he was dealing with. Maybe if we have an

> > entire episode dedicated to the subject and now he has more information on

> > it,

> > > he will give even better advise and coping methods. Just a thought :)

> > >

> > > Thank you all again for everything you have brought to this group and to

> > me personally!|

> > >

> > > Debbie

> > >

> >

> >

> >

> >

> >

>

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I heard it and replayed it to make sure I heard it correctly. Instead, he

actually mentioned misophobia -- fear of germs.

> > >

> > > That was a sound, well thought out decision not to do the show. But I

think there is hope for Dr. Phil. He is such a high profile guy, and maybe not

as bad as we have come to think of him.

> > > The important thing is to get the word out there and his show offers that

as well as anything. They are always looking for interesting topics.

> > > Â

> > > What if we start a letter (or email) writing campaign to them to do a show

exclusively dedicated to Misophonia?

> > > Any comments or suggestions?

> > > Mike

> > >

> > > From: DebbieW <dmw0824@>

> > > To: Soundsensitivity

> > > Sent: Friday, October 14, 2011 8:15 PM

> > > Subject: Dr Phil Show - UPDATE

> > >

> > >

> > > Â

> > > Hi Everyone!

> > >

> > > I appreciate everyones input and advise from my previous post! I haven't

responded or commented back to anyone since because I was so unsure on what I

was going to do. I have been so back and forth between going and not going for

the past couple of days. I took everyones advise into consideration and actually

used some towards the producers I have been in contact with.

> > >

> > > So, I have decided not to go. I have told them that I do not think that my

disorder deserves (or can be) to be grouped with other 'unusual disorders'. I

wrote them the letter months ago before all of the publicity of the NYT and

Today show etc... This needs a show of it's own. Dr Phil (and whomever else is

in the know) needs to know that Misophonia is NOT just an unusual disorder and

has a name. I told her that I am able to provide her (the producer) with

contacts of people that should be involved and that I would be happy to fly out

there if this is something they would consider to do.

> > >

> > > I just hope that I didn't miss my chance and opportunity to help anyone

else out there that doesn't know about this and that it is a real disorder. One

of my biggest goals (besides finding my own cure) is to help others that don't

know that this is real and that they are not alone.

> > >

> > > Hope I didn't let anyone down and I will keep everyone updated as to what

I find out. Hopefully I can get them to do an entire episode dedicated to

Misophonia.

> > >

> > > Also, I watched the clip of the young girl that went on Dr Phil with the

disorder. For one, I hated the fact that she was linked with a girl who was

obsessed with and one that was a wedding planner but just

couldn't get married herself! This was a fear of mine as to who I would be on

the show with! But listening to what Dr Phil said, I didn't take any offense to

it. I don't think he knew any better about the disorder (and neither did the

young girl. She did not have a name for it and didn't know it was a real

disorder). I read an article about someone once who over came Misophonia. Not

that they were cured but was able to cope way better than myself and I am sure a

lot of other people. It was very similar to his strategies with listening to

sounds and " taking them away " . I just think he did a good job for what he

thought he was dealing with. Maybe if we have an entire episode dedicated to the

subject and now he has more information on it,

> > > he will give even better advise and coping methods. Just a thought :)

> > >

> > > Thank you all again for everything you have brought to this group and to

me personally!|

> > >

> > > Debbie

> > >

> >

> >

> >

> >

>

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Just out of curiosity, did anyone pick up on the mention of misophonia on this week's episode of Fringe?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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There aren't too many doctors with misophonia experience. Neither my psychiatrist nor my psychologist has ever heardd of it. My rheumotologist either. Now I know its auditory, but lets face it - because of the weird symptoms, the first type of doctor someone suffering from this condition will go to is a psychiatrist or psychologist. They SHOULD have heard of it by now - especially if those that are diagnosed by an auditory specialist go back to the psych and tell them what it really is. But because this is a newly recognized condition, not many doctors know about it. And I think that, looking at the big picture and number of members on here, not enough of the population suffers from this to make most doctors really care. Many have never run into these symptoms at all, and others may

only run into 1 or 2 their entire professional career. Those with my symptoms are even more of a minority, since only about 5 people on this board seem to share those same symptoms. To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 10:45 AMSubject: Re: Re: Dr. Phil letter writing campaign?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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There aren't too many doctors with misophonia experience. Neither my psychiatrist nor my psychologist has ever heardd of it. My rheumotologist either. Now I know its auditory, but lets face it - because of the weird symptoms, the first type of doctor someone suffering from this condition will go to is a psychiatrist or psychologist. They SHOULD have heard of it by now - especially if those that are diagnosed by an auditory specialist go back to the psych and tell them what it really is. But because this is a newly recognized condition, not many doctors know about it. And I think that, looking at the big picture and number of members on here, not enough of the population suffers from this to make most doctors really care. Many have never run into these symptoms at all, and others may

only run into 1 or 2 their entire professional career. Those with my symptoms are even more of a minority, since only about 5 people on this board seem to share those same symptoms. To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 10:45 AMSubject: Re: Re: Dr. Phil letter writing campaign?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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Dr Phils show is usually the same theme throughout. But yes, being a snippet on the show is a joke. And in order to help other people that see it, whoever is on there must be able to have enough time to talk about all possible symptoms, even the rare ones. If I had seen the show with people saying that they are bothered by someone speaking foreign language or dogs barking or people chewing, I would never had made the connection to my own symptoms and still wouldn't know this was my condition. Every possible symptom and all the issues with sound people have mentioned on this board, including the rare tendency for echoalia, should be brought up on any show we are on. But I argree that we need an organized effort to make this happen and hopefully help change other people's lives - as well as educate the

public. If I could have shown my family long ago that this is not necessarily a mental problem but auditory, AND that other people do the same thing, they may not have thought I was such a freakTo: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 12:20 AMSubject: Re: Re: Dr. Phil letter writing campaign?

Just out of curiosity, did anyone pick up on the mention of misophonia on this week's episode of Fringe?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The

important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the

past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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Dr Phils show is usually the same theme throughout. But yes, being a snippet on the show is a joke. And in order to help other people that see it, whoever is on there must be able to have enough time to talk about all possible symptoms, even the rare ones. If I had seen the show with people saying that they are bothered by someone speaking foreign language or dogs barking or people chewing, I would never had made the connection to my own symptoms and still wouldn't know this was my condition. Every possible symptom and all the issues with sound people have mentioned on this board, including the rare tendency for echoalia, should be brought up on any show we are on. But I argree that we need an organized effort to make this happen and hopefully help change other people's lives - as well as educate the

public. If I could have shown my family long ago that this is not necessarily a mental problem but auditory, AND that other people do the same thing, they may not have thought I was such a freakTo: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 12:20 AMSubject: Re: Re: Dr. Phil letter writing campaign?

Just out of curiosity, did anyone pick up on the mention of misophonia on this week's episode of Fringe?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The

important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the

past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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So what is an audiologist going to do for us? What auditory structured could possibly be affected? I'm still unclear about that.

There aren't too many doctors with misophonia experience. Neither my psychiatrist nor my psychologist has ever heardd of it. My rheumotologist either. Now I know its auditory, but lets face it - because of the weird symptoms, the first type of doctor someone suffering from this condition will go to is a psychiatrist or psychologist. They SHOULD have heard of it by now - especially if those that are diagnosed by an auditory specialist go back to the psych and tell them what it really is. But because this is a newly recognized condition, not many doctors know about it. And I think that, looking at the big picture and number of members on here, not enough of the population suffers from this to make most doctors really care. Many have never run into these symptoms at all, and others may

only run into 1 or 2 their entire professional career. Those with my symptoms are even more of a minority, since only about 5 people on this board seem to share those same symptoms. To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 10:45 AMSubject: Re: Re: Dr. Phil letter writing campaign?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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I was quite surprised that my Psychiatrist had indeed heard of misophonia. But his understanding of it was that it is hyperacusis. I suspect that it may end up with a different name in the end because for I and many others, there are visual triggers completely unrelated to trigger sounds. I have only found one article well more like a letter to the editor in a pyschiatric journal, which just mentioned a couple of cases of this mysterious sound sensitivity and that Doctors should become aware of and it mentioned this group as well and mentioned it should be researched. I'd didn't tell my doctor so much about the triggers in the beginning, because I didn't think that it was relevant what they were in particular, and I was embarrassed.There are a lot of medical journals that Dr.s

need to read to stay current, I don 't imagine that they spend much time reading internet support groups usually, unless they are retired and like to offer advice.To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 8:36 AMSubject: Re: Re: Dr. Phil letter writing campaign?

There aren't too many doctors with misophonia experience. Neither my psychiatrist nor my psychologist has ever heardd of it. My rheumotologist either. Now I know its auditory, but lets face it - because of the weird symptoms, the first type of doctor someone suffering from this condition will go to is a psychiatrist or psychologist. They SHOULD have heard of it by now - especially if those that are diagnosed by an auditory specialist go back to the psych and tell them what it really is. But because this is a newly recognized condition, not many doctors know about it. And I think that, looking at the big picture and number of members on here, not enough of the population suffers from this to make most doctors really care. Many have never run into these symptoms at

all, and others may

only run into 1 or 2 their entire professional career. Those with my symptoms are even more of a minority, since only about 5 people on this board seem to share those same symptoms. To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 10:45 AMSubject: Re: Re: Dr. Phil letter writing campaign?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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I was quite surprised that my Psychiatrist had indeed heard of misophonia. But his understanding of it was that it is hyperacusis. I suspect that it may end up with a different name in the end because for I and many others, there are visual triggers completely unrelated to trigger sounds. I have only found one article well more like a letter to the editor in a pyschiatric journal, which just mentioned a couple of cases of this mysterious sound sensitivity and that Doctors should become aware of and it mentioned this group as well and mentioned it should be researched. I'd didn't tell my doctor so much about the triggers in the beginning, because I didn't think that it was relevant what they were in particular, and I was embarrassed.There are a lot of medical journals that Dr.s

need to read to stay current, I don 't imagine that they spend much time reading internet support groups usually, unless they are retired and like to offer advice.To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 8:36 AMSubject: Re: Re: Dr. Phil letter writing campaign?

There aren't too many doctors with misophonia experience. Neither my psychiatrist nor my psychologist has ever heardd of it. My rheumotologist either. Now I know its auditory, but lets face it - because of the weird symptoms, the first type of doctor someone suffering from this condition will go to is a psychiatrist or psychologist. They SHOULD have heard of it by now - especially if those that are diagnosed by an auditory specialist go back to the psych and tell them what it really is. But because this is a newly recognized condition, not many doctors know about it. And I think that, looking at the big picture and number of members on here, not enough of the population suffers from this to make most doctors really care. Many have never run into these symptoms at

all, and others may

only run into 1 or 2 their entire professional career. Those with my symptoms are even more of a minority, since only about 5 people on this board seem to share those same symptoms. To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 10:45 AMSubject: Re: Re: Dr. Phil letter writing campaign?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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The masking affect of white noise generators, I use an ipod with a pink noise track, offers some relief by blending the trigger noises into the background better, by reducing the contrast I guess. It offers more relief than any pill I have tried and I have tried many pills, you might like to try it for your misophonia.To: "Soundsensitivity " <Soundsensitivity >Cc: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 11:20 AMSubject: Re: Re: Dr. Phil letter writing campaign?

So what is an audiologist going to do for us? What auditory structured could possibly be affected? I'm still unclear about that.

There aren't too many doctors with misophonia experience. Neither my psychiatrist nor my psychologist has ever heardd of it. My rheumotologist either. Now I know its auditory, but lets face it - because of the weird symptoms, the first type of doctor someone suffering from this condition will go to is a psychiatrist or psychologist. They SHOULD have heard of it by now - especially if those that are diagnosed by an auditory specialist go back to the psych and tell them what it really is. But because this is a newly recognized condition, not many doctors know about it. And I think that, looking at the big picture and number of members on here, not enough of the population suffers from this to make most doctors really care. Many have never run into these symptoms at

all, and others may

only run into 1 or 2 their entire professional career. Those with my symptoms are even more of a minority, since only about 5 people on this board seem to share those same symptoms. To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 10:45 AMSubject: Re: Re: Dr. Phil letter writing campaign?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The

important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for

the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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Nope. Do you have a weblink?

 

Just out of curiosity, did anyone pick up on the mention of misophonia on this week's episode of Fringe? 

 

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

 

How many plan to write the show and ask for this?

 

Mike

To: Soundsensitivity

Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

 

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are " the only one " .

Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.

I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience.

Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.

>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

>  > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> >

> To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM

> Subject: Dr Phil Show - UPDATE> > >   > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.

> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.

> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and " taking them away " . I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)

> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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I'm in too!To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 12:29 PMSubject: Re: Re: Dr. Phil letter writing campaign?

I'm in To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 11:33 AMSubject: Re: Re: Dr. Phil

letter writing campaign?

Count me in, Mike!

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The

important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for

the

past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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I tried to tell my psychiatrist about misophonia last week and he laughed in my face and told me it is ridiculous. I am going to dump him immediately and find someone who is willing to at least check into it.To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 6:36 AMSubject: Re: Re: Dr. Phil letter writing campaign?

There aren't too many doctors with misophonia experience. Neither my psychiatrist nor my psychologist has ever heardd of it. My rheumotologist either. Now I know its auditory, but lets face it - because of the weird symptoms, the first type of doctor someone suffering from this condition will go to is a psychiatrist or psychologist. They SHOULD have heard of it by now - especially if those that are diagnosed by an auditory specialist go back to the psych and tell them what it really is. But because this is a newly recognized condition, not many doctors know about it. And I think that, looking at the big picture and number of members on here, not enough of the population suffers from this to make most doctors really care. Many have never run into

these symptoms at all, and others may

only run into 1 or 2 their entire professional career. Those with my symptoms are even more of a minority, since only about 5 people on this board seem to share those same symptoms. To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 10:45 AMSubject: Re: Re: Dr. Phil letter writing campaign?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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What kind of idiot psychiatrist are you seeing ! They should take his licence away.

I sure hope he is a rare exception.

To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 8:08 PMSubject: Re: Re: Dr. Phil letter writing campaign?

I tried to tell my psychiatrist about misophonia last week and he laughed in my face and told me it is ridiculous. I am going to dump him immediately and find someone who is willing to at least check into it.

To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 6:36 AMSubject: Re: Re: Dr. Phil letter writing campaign?

There aren't too many doctors with misophonia experience. Neither my psychiatrist nor my psychologist has ever heardd of it. My rheumotologist either. Now I know its auditory, but lets face it - because of the weird symptoms, the first type of doctor someone suffering from this condition will go to is a psychiatrist or psychologist. They SHOULD have heard of it by now - especially if those that are diagnosed by an auditory specialist go back to the psych and tell them what it really is. But because this is a newly recognized condition, not many doctors know about it. And I think that, looking at the big picture and number of members on here, not enough of the population suffers from this to make most doctors really care. Many have never run into these symptoms at all, and others may only run into 1 or 2 their entire professional career. Those with my symptoms are even more of a minority,

since only about 5 people on this board seem to share those same symptoms.

To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 10:45 AMSubject: Re: Re: Dr. Phil letter writing campaign?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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There are lots of bad psychiatrists out there. Remember, 1/2 the psychiatrists graduated at the bottom half of their class lol. I have found most to be rigid and egotistical. They think they know everything and would never admit to something not read in a medical periodical or learned from an esteemed colleague. From: Lawrence

To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 11:39 PMSubject: Re: Re: Dr. Phil letter writing campaign?

What kind of idiot psychiatrist are you seeing ! They should take his licence away.

I sure hope he is a rare exception.

To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 8:08 PMSubject: Re: Re: Dr. Phil letter writing campaign?

I tried to tell my psychiatrist about misophonia last week and he laughed in my face and told me it is ridiculous. I am going to dump him immediately and find someone who is willing to at least check into it.

To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 6:36 AMSubject: Re: Re: Dr. Phil letter writing campaign?

There aren't too many doctors with misophonia experience. Neither my psychiatrist nor my psychologist has ever heardd of it. My rheumotologist either. Now I know its auditory, but lets face it - because of the weird symptoms, the first type of doctor someone suffering from this condition will go to is a psychiatrist or psychologist. They SHOULD have heard of it by now - especially if those that are diagnosed by an auditory specialist go back to the psych and tell them what it really is. But because this is a newly recognized condition, not many doctors know about it. And I think that, looking at the big picture and number of members on here, not enough of the population suffers from this to make most doctors really care. Many have never run into these symptoms at all, and others may only run into 1 or 2 their entire professional career. Those with my symptoms are even more of a minority,

since only about 5 people on this board seem to share those same symptoms.

To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 10:45 AMSubject: Re: Re: Dr. Phil letter writing campaign?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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I never realized what an idiot he was until I sincerely tried to explain this trait to him. I have been seeing him for a few years and have been through a pharmaceutical nightmare over all of this and I was so excited to see him and tell him my news and he just brushed it off and literally chuckled as he called it ridiculous. I am on 5 different meds and I want just think it's time to dump him and find someone else who really gives a darn about me. I was shocked at disappointed. That's not the only he did to upset me. I wonder how they would take his licence away. I should report him to someone...

To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 8:39 PMSubject: Re: Re: Dr. Phil letter writing campaign?

What kind of idiot psychiatrist are you seeing ! They should take his licence away.

I sure hope he is a rare exception.

To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 8:08 PMSubject: Re: Re: Dr. Phil letter writing campaign?

I tried to tell my psychiatrist about misophonia last week and he laughed in my face and told me it is ridiculous. I am going to dump him immediately and find someone who is willing to at least check into it.

To: "Soundsensitivity " <Soundsensitivity >Sent: Sunday, October 16, 2011 6:36 AMSubject: Re: Re: Dr. Phil letter writing campaign?

There aren't too many doctors with misophonia experience. Neither my psychiatrist nor my psychologist has ever heardd of it. My rheumotologist either. Now I know its auditory, but lets face it - because of the weird symptoms, the first type of doctor someone suffering from this condition will go to is a psychiatrist or psychologist. They SHOULD have heard of it by now - especially if those that are diagnosed by an auditory specialist go back to the psych and tell them what it really is. But because this is a newly recognized condition, not many doctors know about it. And I think that, looking at the big picture and number of members on here, not enough of the population suffers from this to make most doctors really care. Many have never run into these symptoms at all, and others may only run into 1 or 2 their entire professional career. Those with my symptoms are even more of a minority,

since only about 5 people on this board seem to share those same symptoms.

To: "Soundsensitivity " <Soundsensitivity >Sent: Saturday, October 15, 2011 10:45 AMSubject: Re: Re: Dr. Phil letter writing campaign?

I am all for it. It would be of interest to see that this is common all over the world and almost all suffers have done so in silence and shame before we all found out recently that we were not the only ones.

Sensory processing disorders I think would make an interesting show.

How many plan to write the show and ask for this?

Mike

To: Soundsensitivity Sent: Saturday, October 15, 2011 7:16 AMSubject: Re: Dr. Phil letter writing campaign?

I think way more people suffer from Misophonia and/or generalized sensory processing disorder than we may realize. Remember how most of us felt when we first heard there was a name to our life of suffering? Creating awareness through such a well-watched show could be eye-opening for many sufferers who still think they are "the only one". Plus with the additional national and international awareness, it could be a first step to potential changes in laws in public settings. For instance, I would like to see gum and food stay out of classrooms. I think noise pollution is a big problem for everyone -- not just misophoniacs.I agree with Debbie's personal decision to not be a snippet on a larger show, and also agree that an entire show is more appropriate -- with sufferers who can articulate well and doctors with misophonia experience. Although I would love to have an entire Dr. Phil show on Misophonia, and I haven't seen his show

lately, isn't his general format to cover many different topics each show? If so, maybe we could at least have a major segment of the show -- maybe 1/3 of it? Or maybe the whole show could be on generalized sensory processing disorder, and Misophonia could be one segment? Maybe the show could educate about the differences between Misophonia, Hyperacusis, etc.>> That was a sound, well thought out decision not to do the show. But I think there is hope for Dr. Phil. He is such a high profile guy, and maybe not as bad as we have come to think of him. > The important thing is to get the word out there and his show offers that as well as anything. They are always looking for interesting topics.

> Â > What if we start a letter (or email) writing campaign to them to do a show exclusively dedicated to Misophonia?> Any comments or suggestions?> Mike> > > To: Soundsensitivity > Sent: Friday, October 14, 2011 8:15 PM> Subject: Dr Phil Show - UPDATE> > > Â > Hi Everyone!> > I appreciate everyones input and advise from my previous post! I haven't responded or commented back to anyone since because I was so unsure on what I was going to do. I have been so back and forth between going and not going for the past couple of days. I took everyones advise into consideration and actually used some towards the producers I have been in contact

with. > > So, I have decided not to go. I have told them that I do not think that my disorder deserves (or can be) to be grouped with other 'unusual disorders'. I wrote them the letter months ago before all of the publicity of the NYT and Today show etc... This needs a show of it's own. Dr Phil (and whomever else is in the know) needs to know that Misophonia is NOT just an unusual disorder and has a name. I told her that I am able to provide her (the producer) with contacts of people that should be involved and that I would be happy to fly out there if this is something they would consider to do.> > I just hope that I didn't miss my chance and opportunity to help anyone else out there that doesn't know about this and that it is a real disorder. One of my biggest goals (besides finding my own cure) is to help others that don't know that this is real and that they are not alone.> > Hope I didn't let anyone down

and I will keep everyone updated as to what I find out. Hopefully I can get them to do an entire episode dedicated to Misophonia.> > Also, I watched the clip of the young girl that went on Dr Phil with the disorder. For one, I hated the fact that she was linked with a girl who was obsessed with and one that was a wedding planner but just couldn't get married herself! This was a fear of mine as to who I would be on the show with! But listening to what Dr Phil said, I didn't take any offense to it. I don't think he knew any better about the disorder (and neither did the young girl. She did not have a name for it and didn't know it was a real disorder). I read an article about someone once who over came Misophonia. Not that they were cured but was able to cope way better than myself and I am sure a lot of other people. It was very similar to his strategies with listening to sounds and "taking them away". I just think he did a

good job for what he thought he was dealing with. Maybe if we have an entire episode dedicated to the subject and now he has more information on it,> he will give even better advise and coping methods. Just a thought :)> > Thank you all again for everything you have brought to this group and to me personally!|> > Debbie>

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